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Involving patients and their families in deciding to use next generation sequencing: Results from a nationally representative survey of U.S. oncologists.

Abstract：

OBJECTIVE:Next generation sequencing (NGS) may aid in tumor classification and treatment. Barriers to shared decision-making may influence use of NGS. We examined, from oncologists' perspectives, whether barriers to involving patients/families in decision-making were associated with NGS use. METHODS:Using data from the first national survey of medical oncologists' perspectives on precision medicine (N = 1281), we approached our analyses in two phases. Bivariate analyses initially evaluated associations between barriers to involving patients/families in deciding to use NGS and provider- and organizational-level characteristics. Modified Poisson regressions then examined associations between patient/family barriers and NGS use. RESULTS:Approximately 59 % of oncologists reported at least one barrier to involving patients/families in decision-making regarding NGS use. Those reporting patient/family barriers tended to have fewer genomic resources at their practices, to be in rural or suburban areas, and to have a higher proportion of Medicaid patients. However, these barriers were not associated with NGS use. CONCLUSIONS:Oncologists encounter barriers to involving patients/families in NGS testing decisions. Organizational barriers may also potentially play a role in testing decisions. PRACTICE IMPLICATIONS:To foster patient-centered care, strategies to support patient involvement in genomic testing decisions are needed, particularly among practices in low-resource settings.

journal_name

Patient Educ Couns

journal_title

Patient education and counseling

authors

Spees LP,Roberts MC,Freedman AN,Butler EN,Klein WMP,Prabhu Das I,de Moor JS

doi

10.1016/j.pec.2020.03.001

subject

Has Abstract

pub_date

2021-01-01 00:00:00

pages

33-39

issue

1

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(20)30116-6

journal_volume

104

pub_type

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