Abstract：
OBJECTIVES:To assess the supportive care needs and interest in related services among brain tumour patients and their carers and to compare the level of unmet needs to other cancer populations. METHODS:A cross-sectional survey was posted to 363 households who were subscribed to the Queensland Cancer Fund Brain Tumour Support Service in 2005. Overall, 75 patients and 70 carers (response rate 29.8%) returned completed questionnaires. Measures were the Supportive Care Needs Survey (SCNS-34) and a brain tumour specific subscale for patients and carers, as well as the Hospital Anxiety and Depression Scale (HADS). RESULTS:Patients most frequently reported requiring support to overcome fatigue, uncertainty about the future and not being able to do the things they used to do. Carers wanted help dealing with fears about the patients mental or physical deterioration, with the impact caring had on their own life, and with reducing stress in the patient's life. Among patients, 30% reported anxious mood and 17% depressed mood on the HADS, while corresponding numbers for carers were 40% and 10%, respectively. Patients and/or carers with higher than average supportive care needs expressed greater interest in support services, such as those to improve physical activity, using community services more effectively and to manage stress. Greater emotional distress predicted higher supportive care needs (e.g. odds ratio depressed patients=2.11; (95% confidence interval 1.10-4.03), while no association was detected between patients' or carers' demographic characteristics, or patients' self-reported medical status and higher than average supportive care needs. CONCLUSION:The level of unmet supportive care needs observed among patients with a brain tumour and their carers is similar to that observed among cancer populations with metastatic disease. PRACTICE IMPLICATIONS:Interventions for this group should integrate lifestyle, coping support, and neuropsychological rehabilitation.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Janda M,Steginga S,Dunn J,Langbecker D,Walker D,Eakin Edoi
10.1016/j.pec.2008.01.020subject
Has Abstractpub_date
2008-05-01 00:00:00pages
251-8issue
2eissn
0738-3991issn
1873-5134pii
S0738-3991(08)00070-0journal_volume
71pub_type
杂志文章abstract：:One hundred fifty-nine young adults in the 17-18 year old age group suffering from chronic disease or handicap participated in this study which examined their attitudes towards enforced treatment and euthanasia in terminal patients. The comparison group included 120 healthy high school pupils of the same age group. A ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(98)00125-6
更新日期：1999-09-01 00:00:00
abstract：:The effect of a pre-coronary angioplasty education and counselling program on knowledge and psychological status of patients and on knowledge and quality of life/coping status of their spouses was evaluated. Forty patients and their spouses participated in a pre-coronary angioplasty education and counselling program a...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(97)00040-2
更新日期：1997-11-01 00:00:00
abstract：OBJECTIVE:This study explores whether an Experiential Training Programme (ETP) in communication skills (CS) improves students' ability to identify patients clues compared to those who follow a non-experiential training throughout their medical studies. METHOD:Intervention Group (IG): 85 4th-year medical students who r...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.05.018
更新日期：2020-11-01 00:00:00
abstract：OBJECTIVE:The objective was to explore patients' and spouses' perception and attitudes towards participating in a patient and family advisory council. METHODS:A qualitative study with interviews conducted within a phenomenological-hermeneutical frame, inspired by Ricoeur were conducted with current and former particip...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.11.025
更新日期：2020-11-24 00:00:00
abstract：OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxie...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.06.002
更新日期：2007-10-01 00:00:00
abstract：:American practitioners were surveyed about the role of self-care materials in the management of cardiology patients. Respondents indicated their patients commonly use self-care materials and seek recommendation of appropriate readings. Over half those responding had reviewed 'some' popular works, but few had been able...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(94)90029-9
更新日期：1994-08-01 00:00:00
abstract：:Responding to concerns articulated by Canadian women living with breast cancer and their families, the federal government has provided $2.7 million over five years to establish five regional information exchange pilot projects. Women experience considerable variation in access to information reflecting different resou...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(96)00898-1
更新日期：1996-07-01 00:00:00
abstract：:Females, especially older women, historically have been excluded from coronary heart disease (CHD) studies. The PrimeTime program was a randomized clinical trial designed to study the effects of a comprehensive lifestyle management program (very low-fat vegetarian diet, smoking cessation, stress-management training, m...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(98)00074-3
更新日期：1998-11-01 00:00:00
abstract：OBJECTIVE:Preferences of women who had completed adjuvant chemotherapy for early breast cancer were compared with those of their partners by determining the smallest benefits they judged sufficient to make adjuvant chemotherapy worthwhile. METHODS:Forty-six women and their partners were interviewed separately, 3-34 mo...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.02.021
更新日期：2008-08-01 00:00:00
abstract：OBJECTIVE:We examined the prevalence and extent of informed decision-making (IDM) and patient-centered decision-making (PCDM) in primary care visits of African Americans with depression. METHODS:We performed a cross-sectional analysis of audiotaped clinical encounters and post-visit surveys of 76 patients and their cl...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.07.027
更新日期：2018-02-01 00:00:00
abstract：OBJECTIVE:This paper explores factors that influence the formulation of risk perception among men with a family history of prostate cancer who are currently attending a prostate cancer screening clinic. METHODS:Semi-structured interviews were conducted with fifteen participants. Interview transcripts were analyzed usi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.11.020
更新日期：2011-11-01 00:00:00
abstract：:This study aimed to identify factors which predict participation of drug users in HIV-1 antibody testing. The study was part of a randomized controlled trial of three small group AIDS educational programs, in a 21-day in-patient drug detoxification and rehabilitation program. Subjects (n = 497) were clients admitted t...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/0738-3991(94)90070-1
更新日期：1994-12-01 00:00:00
abstract：:Recognition that communication plays a central role in the provision of quality patient care has led to learning more about interactions between patients and their health care providers. The present study examined interactions between women with breast cancer and their cancer care specialists from the patients' perspe...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(00)00147-6
更新日期：2001-04-01 00:00:00
abstract：OBJECTIVE:Physicians need good communication skills to communicate effectively with patients. The objective of this review was to identify effective training strategies for teaching communication skills to qualified physicians. METHODS:PubMED, PsycINFO, CINAHL, and COCHRANE were searched in October 2008 and in March 2...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2010.06.010
更新日期：2011-08-01 00:00:00
abstract：:The information-seeking behavior of cancer outpatients has been studied with the purpose of collecting data for the development of an educational intervention: stimulating communication between cancer outpatients and their specialists. The intention to seek information, the realization of the intention and the reasons...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(93)90087-d
更新日期：1993-11-01 00:00:00
abstract：OBJECTIVE:We conducted a pragmatic randomized controlled trial to test the effectiveness of an asthma question prompt list with video intervention to increase youth question-asking and provider education during visits. METHODS:English or Spanish-speaking youth ages 11-17 with persistent asthma and their parents were e...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2018.01.013
更新日期：2018-06-01 00:00:00
abstract：:A three-day residential Body Awareness Program (BAP) was developed to teach people with Chronic A-specific Psychosomatic Symptoms (CAPS) to react adequately to disturbances of the balance between a daily workload and the capacity to deal with it. The short-term effects of the program for people with CAPS are presented...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.02.014
更新日期：2004-11-01 00:00:00
abstract：OBJECTIVE:This study examines the preferences of patients with metastatic cancer regarding notification of imaging results, as well as distress surrounding the process. METHODS:On imaging day, preferences for notification, expectations of results, health literacy, and social support were measured. After receiving resu...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.08.032
更新日期：2020-02-01 00:00:00
abstract：:Randomised evaluations of resources to facilitate informed decisions about prostate cancer screening are rarely conducted. In this study, 421 men recruited from the community were randomly allocated to receive a leaflet (n = 140) or one of two resources meeting criteria for a decision-aid: a video (n = 141) or an evid...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/j.pec.2004.05.011
更新日期：2005-05-01 00:00:00
abstract：OBJECTIVE:Professional appearance is easily modifiable, and might alter the effects of a clinical encounter. We aimed to determine whether professional attire influences a patient's perception of treatment credibility. METHODS:We performed a single-blind randomized controlled study on 128 patients with acute non-speci...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2016.08.009
更新日期：2017-01-01 00:00:00
abstract：OBJECTIVE:This study tested the effectiveness of a brief, learner-centered, breaking bad news (BBN) communication skills training module using objective evaluation measures. METHODS:This randomized control study (N=66) compared intervention and control groups of students (n=28) and residents' (n=38) objective structur...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2016.11.008
更新日期：2017-04-01 00:00:00
abstract：OBJECTIVE:The present study explores the emotional effect of the injury experienced by physician's, as a consequence of a patient's termination of their relationship. METHODS:A vignette study using different scenarios describing a patient who switched to another doctor was distributed to 119 family physicians. A three...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.03.010
更新日期：2007-07-01 00:00:00
abstract：OBJECTIVE:To study how comprehension of cardiovascular disease (CVD) risk is influenced by: (1) infographics about qualitative risk information, with/without risk numbers; (2) which qualitative risk dimension is emphasized; (3) heart age vs. traditional risk format. METHODS:For aim 1, a 2 (infographics versus text) x ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.03.015
更新日期：2018-08-01 00:00:00
abstract：OBJECTIVE:First-degree relatives (FDRs) of people diagnosed with colorectal cancer (CRC) have a two- to threefold increased risk of developing the same disease. Tailored print interventions based on behavior change theories have demonstrated considerable promise in facilitating health-promoting behaviors. This study co...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2008.01.013
更新日期：2008-05-01 00:00:00
abstract：:This prospective study evaluated the effect of an individualized, comprehensive, home-based cardiac rehabilitation program combining exercise training with risk factor modification and psychosocial counseling on risk factors, psychological well-being, functional capacity, and work resumption in 99 post-percutaneous co...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(00)00164-6
更新日期：2001-06-01 00:00:00
abstract：OBJECTIVE:To explore the association between frailty and medication adherence by modeling medication beliefs (i.e., necessity and concerns) as mediators among community-dwelling older patients. METHODS:This cross-sectional study was conducted among 780 Chinese older patients. Frailty, medication adherence and medicati...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.05.013
更新日期：2020-05-15 00:00:00
abstract：OBJECTIVE:The purpose of this study was to improve patient education in clinic by evaluating patient perceptions of education provided, as well as patient self-confidence related to topics within cystic fibrosis (CF). The study assessed whether self-confidence matched knowledge and defined patient-specific goals for ed...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.06.004
更新日期：2018-10-01 00:00:00
abstract：OBJECTIVE:Examine the psychometric properties of the Appraisal of Caregiving Scale (ACS). METHODS:Data were collected as part of the FOCUS Program trial in Michigan (N = 484 caregivers). RESULTS:Exploratory factor analysis found the ACS measured Threat, General Stress, and Benefit appraisals. Cronbach's alphas for al...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.01.009
更新日期：2015-05-01 00:00:00
abstract：OBJECTIVE:To explore the accuracy and consistency of standardized patient (SP) performance in the context of routine genetic counseling, focusing on elements beyond scripted case items including general communication style and affective demeanor. METHODS:One hundred seventy-seven genetic counselors were randomly assig...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.10.005
更新日期：2011-11-01 00:00:00
abstract：OBJECTIVE:To determine which formats communicate medication adherence effectively to patients. METHODS:HIV-infected adults on antiretrovirals viewed examples of refill data in 5 formats: (1) percentage of doses, (2) number of days late to refill ("days late"), (3) calendar of days with/without medications, (4) pie cha...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.08.002
更新日期：2016-01-01 00:00:00
