Abstract:
OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxiety. With an expansion in Internet access, individuals affected by HD have new opportunities for information retrieval and social support. The aim of this study is to examine the provision of social support in messages posted to a HD online support group bulletin board. METHODS:In total, 1313 messages were content analyzed using a modified version of the social support behavior code developed by [Cutrona CE, Suhr J. Controllability of stressful events and satisfaction with spouse support behaviors. Commun Res 1992;19:154-74]. RESULTS:The analysis indicates that group members most frequently offered informational (56.2%) and emotional support (51.9%) followed by network support (48.4%) with esteem support (21.7%), and tangible assistance (9.8%) least frequently offered. CONCLUSION:This study suggests that exchanging informational and emotional support represents a key function of this online group. PRACTICE IMPLICATIONS:Online support groups provide a unique opportunity for health professionals to learn about the experiences and views of individuals affected by HD and explore where and why gaps may exist between evidence-based medicine and consumer behavior and expectations.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Coulson NS,Buchanan H,Aubeeluck Adoi
10.1016/j.pec.2007.06.002subject
Has Abstractpub_date
2007-10-01 00:00:00pages
173-8issue
2eissn
0738-3991issn
1873-5134pii
S0738-3991(07)00226-1journal_volume
68pub_type
杂志文章abstract:OBJECTIVE:The implementation of patient-centered care (PCC) innovations continues to be poorly understood. We used the implementation effectiveness framework to pilot a method for measuring the impact of a PCC innovation in primary care practices. METHODS:We analyzed data from a prior study that assessed the implement...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.09.009
更新日期:2014-12-01 00:00:00
abstract:OBJECTIVE:The objective was to explore patients' and spouses' perception and attitudes towards participating in a patient and family advisory council. METHODS:A qualitative study with interviews conducted within a phenomenological-hermeneutical frame, inspired by Ricoeur were conducted with current and former particip...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.025
更新日期:2020-11-24 00:00:00
abstract:OBJECTIVE:To validate a hypothesized model exploring the influencing pathways of empowerment perceptions, health literacy, self-efficacy, and self-care behaviors to glycosylated hemoglobin (HbA1c) levels in patients with type 2 diabetes (T2DM). METHODS:Overall, 295 patients with T2DM were recruited from five endocrine...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.08.021
更新日期:2016-02-01 00:00:00
abstract:OBJECTIVE:Preferences of women who had completed adjuvant chemotherapy for early breast cancer were compared with those of their partners by determining the smallest benefits they judged sufficient to make adjuvant chemotherapy worthwhile. METHODS:Forty-six women and their partners were interviewed separately, 3-34 mo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.02.021
更新日期:2008-08-01 00:00:00
abstract::Many factors contribute to patients' self-management success. In the main these are attitudes, beliefs or perceptions of the patients rather than demographic characteristics. Patients do need not only to acquire knowledge and self-management abilities, but also the desire to apply them on a life-long basis. They requi...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/0738-3991(95)00748-o
更新日期:1995-09-01 00:00:00
abstract:OBJECTIVE:To determine the relative contributions of health literacy (HL) and illness and medication beliefs to medication adherence among older COPD patients and determine the pathways through which they operate. METHODS:The study was conducted using data from a prospective cohort of COPD patients in New York City an...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.024
更新日期:2020-11-25 00:00:00
abstract::A three-day residential Body Awareness Program (BAP) was developed to teach people with Chronic A-specific Psychosomatic Symptoms (CAPS) to react adequately to disturbances of the balance between a daily workload and the capacity to deal with it. The short-term effects of the program for people with CAPS are presented...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.02.014
更新日期:2004-11-01 00:00:00
abstract:OBJECTIVE:To describe ways family members assist adult patients with prescription medications at home, during medical visits and at the pharmacy. METHODS:Online survey of 400 adults (caregivers) who help another adult (care recipient) with prescription medication use. Regression modeled the contribution of caregiver c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.12.018
更新日期:2018-05-01 00:00:00
abstract:OBJECTIVE:To document cases of adverse or near adverse events in communication skills training (CST) and to identify risk factors and strategies to reduce the likelihood of their occurrence. METHODS:Six physician CST cases meeting criteria for an adverse or near adverse collected from experienced facilitators are anal...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.12.009
更新日期:2010-10-01 00:00:00
abstract:OBJECTIVE:The aim of this study was to offer a comparative analysis of informal interpreters during medical consultations with both good and poor mutual understanding between general practitioners (GPs) and patients. METHODS:Sixteen video-registered medical interviews of Turkish immigrant patients were analysed. Stret...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.10.005
更新日期:2010-11-01 00:00:00
abstract:OBJECTIVE:This study explored the impact of breast cancer patients' experiences of physician-patient communication and participation in decision making on patient depression and quality of life three and six months after primary treatment. METHODS:Participants were 135 German breast cancer patients, recruited within a...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.09.005
更新日期:2009-12-01 00:00:00
abstract:OBJECTIVE:Patient-centered approaches to medicine suggest the need for physicians to become more aware of concerns and needs expressed in patient narratives. However, patients and physicians have different goals and discourse styles during consultations. We attempt to bridge these differences by providing patients with...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2006.03.011
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVE:To fill a gap in research by examining cancer patient-provider communication regarding tobacco use and patients' perspectives regarding their experiences with smoking cessation and relapse. METHODS:In-depth interviews were conducted with 20 lung and head and neck cancer patients and 11 health care providers....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.09.024
更新日期:2009-12-01 00:00:00
abstract:OBJECTIVE:A clinician's ability to infer patients' thoughts and feelings is a critical component of high quality care. The goal of this article is to present a new test to measure this ability in clinicians, called the Test of Accurate Perception of Patients' Affect (TAPPA). METHODS:Audiovisual clips were taken from p...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.10.004
更新日期:2014-02-01 00:00:00
abstract:OBJECTIVE:To explore leadership perspectives on how to maintain high quality efficient care that is also person-centered and humanistic. METHODS:The authors interviewed and collected narrative transcripts from a convenience sample of 32 institutional healthcare leaders at seven U.S. medical schools. The institutional ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.04.025
更新日期:2019-10-01 00:00:00
abstract::Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.09.010
更新日期:2004-11-01 00:00:00
abstract:OBJECTIVE:The objectives of this study were to identify nutrition communication styles of Dutch GPs, their strategies regarding nutrition communication and nutrition information seeking behaviours. Another aim is to provide a hypothetical model for nutrition communication style, including psycho-social and socio-demogr...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.09.001
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:To profile and compare the content and presentation of written communications related to informed decision-making about mammography. METHODS:Materials from 16 screening programs organized at the national or regional level were analyzed according to five major information domains suggested by the internationa...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.09.012
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:Identify health literacy (HL) screening instruments available to CAD patients; describe the prevalence of low HL; explore the predictors of low HL; and, identify the association between HL, health behaviors, and outcomes among these patients. METHODS:A literature search of electronic databases was conducted ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.09.002
更新日期:2018-02-01 00:00:00
abstract::Presymptomatic DNA-testing for adult-onset diseases has serious psychological consequences. Here the psychological consequences of presymptomatic DNA-testing for Huntington's disease are reviewed. Both carriers and non-carriers experience emotional reactions after disclosure of their test result. However, up to today ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(97)00066-9
更新日期:1997-09-01 00:00:00
abstract:OBJECTIVE:Using Skype and remote standardized patients (RSPs), investigators sought to evaluate user acceptance of a web-based objective structured clinical examination (OSCE) among resident physicians. METHODS:After participating in four web-based clinical encounters addressing pain with RSPs, 59 residents from diffe...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.04.016
更新日期:2014-07-01 00:00:00
abstract:OBJECTIVE:Attachment style and emotional intelligence (EI) have been highlighted as potential factors influencing the variation in medical students' and doctors' patient-provider communication (PPC), particularly in relation to emotive issues. The objective of this review is to systematically review and synthesise the ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2013.05.010
更新日期:2013-11-01 00:00:00
abstract::Despite intensive efforts, most smoking prevention interventions have had disappointing results. In the present paper, the assumption underlying these efforts that smoking initiation is the result of a rational decision or plan, is questioned. The process of adolescent smoking initiation is described, based on a recen...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2003.04.004
更新日期:2004-12-01 00:00:00
abstract:OBJECTIVE:To evaluate patterns of and factors associated with a lack of pharmacotherapy as well as low adherence to treatment of hypothyroidism in pregnancy. METHODS:This multinational, cross-sectional, internet-based study recruited pregnant woman in 18 countries. Data about women's socio-demographic and medical char...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.04.006
更新日期:2016-10-01 00:00:00
abstract::The substantial health-enhancing potential of physical activity can be realised on population level best if people can incorporate physical activity into their daily life routines. Physically active commuting to and from work provides a promising mode for such activity. In a series of three studies we explored more sp...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00013-5
更新日期:1998-04-01 00:00:00
abstract::An evaluation of the long term impact of a health education intervention in primary care, for premenopausal women (45 years of age), is presented. The intervention included information and group discussion about menopause, stress management, health behaviours (smoking, exercise, diet) and treatment choices. Questionna...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(98)00143-8
更新日期:1999-11-01 00:00:00
abstract:OBJECTIVE:Little is known about how older African American women define family violence (FV) and what FV survivors might expect from their healthcare providers. The purpose of this study was to understand how these women define FV, where they seek help for FV, and what barriers they face in these efforts. METHODS:We c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.05.019
更新日期:2007-10-01 00:00:00
abstract::The revised Diabetes Attitudes Scale (DAS) was completed by nearly 1000 nurses and nursing students in South Australia. Confirmatory factor analysis was used to compare the factor structure with that previously obtained in the USA with patients with diabetes. The instrument was found to be robust. It was concluded tha...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(96)00932-9
更新日期:1996-10-01 00:00:00
abstract:OBJECTIVE:To determine which formats communicate medication adherence effectively to patients. METHODS:HIV-infected adults on antiretrovirals viewed examples of refill data in 5 formats: (1) percentage of doses, (2) number of days late to refill ("days late"), (3) calendar of days with/without medications, (4) pie cha...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.08.002
更新日期:2016-01-01 00:00:00
abstract:OBJECTIVE:Because quality health care delivery requires effective clinician-patient communication, successful training of health professionals requires communication skill curricula of the highest quality. Two approaches for developing medical communication curricula are a consensus approach and a theory driven approac...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.06.012
更新日期:2013-10-01 00:00:00