Abstract：
OBJECTIVE:The objective was to explore patients' and spouses' perception and attitudes towards participating in a patient and family advisory council. METHODS:A qualitative study with interviews conducted within a phenomenological-hermeneutical frame, inspired by Ricoeur were conducted with current and former participants (patients and/or spouses) of a patient and family advisory council in Denmark. RESULTS:In total, 16 participants were interviewed (12 former patients/four spouses) with a mean age of 68 (range 49-79) and 44 % women. After the analysis, perceptions and attitudes towards participating in a patient advisory council emerged in four themes; "Payback", "A personal invitation", "A safe and equal atmosphere", and "Sharing, caring, and healing". CONCLUSION:Participants of an advisory council express a need for "paying it back" to the health care system. When being part of the advisory council, the participants expressed feeling a genuine engagement and interest from the health-care professionals - leading to a feeling of being equal and taken seriously. The advisory council increased the process of recovery by sharing narratives with peers. PRACTICAL VALUE:Experiences of being part of an advisory council lead to an understanding of "why" former patients and spouses participate. This knowledge can help others to recruit members.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Missel M,Hansen MH,Petersson NB,Forman J,Højskov IE,Borregaard Bdoi
10.1016/j.pec.2020.11.025subject
Has Abstractpub_date
2020-11-24 00:00:00eissn
0738-3991issn
1873-5134pii
S0738-3991(20)30649-2pub_type
杂志文章abstract：OBJECTIVE:To investigate the effect of a lifestyle-related risk factor modification intervention on coronary artery disease (CAD) patients' lifestyle changes. METHOD:A randomized controlled study was conducted in Nepal. A total of 224 CAD patients (112 in each study group) were included at baseline, and 196 patients (...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.11.030
更新日期：2020-12-01 00:00:00
abstract：BACKGROUND:Chronic disease patients are affected by low computer and health literacy, which negatively affects their ability to benefit from access to online health information. OBJECTIVE:To estimate reliability and confirm model specifications for eHealth Literacy Scale (eHEALS) scores among chronic disease patients ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.09.008
更新日期：2017-02-01 00:00:00
abstract：OBJECTIVE:To explore whether reversibility, decision timing, and uncertainty are relevant to men deciding on treatment for localized prostate cancer (LPC). DESIGN:Secondary qualitative data analysis of unstructured interviews. METHODS:Content analysis of previously collected qualitative data (31 individual interviews...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.03.017
更新日期：2009-11-01 00:00:00
abstract：:As the growth of healthcare continues to outpace inflation, health policy makers are increasingly concerned with cost containment. This article summarizes studies of the cost-benefit of patient education studies in managed care and other settings, including comprehensive approaches to healthcare delivery that emphasiz...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/0738-3991(95)00723-d
更新日期：1995-09-01 00:00:00
abstract：OBJECTIVES:Massachusetts (MA) public schools conduct mandated body-mass index (BMI) screening and until recently, communicated results in a letter to parents/caregivers, to encourage primary care visits and provide aggregate data to the state Department of Public Health. This study assessed the letter's readability and...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.10.016
更新日期：2014-02-01 00:00:00
abstract：OBJECTIVES:To assess the supportive care needs and interest in related services among brain tumour patients and their carers and to compare the level of unmet needs to other cancer populations. METHODS:A cross-sectional survey was posted to 363 households who were subscribed to the Queensland Cancer Fund Brain Tumour ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.01.020
更新日期：2008-05-01 00:00:00
abstract：OBJECTIVE:This systematic review aims to examine the roles of family members (FMs) in treatment decision-making for adult patients without cognitive or psychiatric disorders affecting their ability to participate in decision-making. METHODOLOGY:A comprehensive, systematic search of the Cochrane Library, PsycINFO, PubM...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2017.08.003
更新日期：2017-12-01 00:00:00
abstract：OBJECTIVES:The ecological validity of video-vignettes design investigating patient-provider communication hinges on the engagement of analogue patients (APs) with the vignette. The present study aimed to compare engagement in two commonly utilized groups of APs, patients and disease-naïve individuals. Engagement was as...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.04.012
更新日期：2016-10-01 00:00:00
abstract：OBJECTIVE:To examine the informed consent process implementation and quality in Croatia using a specially developed instrument. METHODS:A cross-sectional questionnaire study was conducted in 300 patients (response rate 73%) from six hospitals in Croatia, along with psychometric evaluation of the questionnaire. RESULT...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.08.033
更新日期：2016-03-01 00:00:00
abstract：OBJECTIVE:To explore leadership perspectives on how to maintain high quality efficient care that is also person-centered and humanistic. METHODS:The authors interviewed and collected narrative transcripts from a convenience sample of 32 institutional healthcare leaders at seven U.S. medical schools. The institutional ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.04.025
更新日期：2019-10-01 00:00:00
abstract：OBJECTIVE:The present study aimed to contribute to the design of effective health education information. Based on cognitive-psychological theory, pictures were expected to improve understanding of two existing textual instructions for using asthma devices (inhaler chamber and peak flow meter). From an analysis of the a...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2005.12.003
更新日期：2006-12-01 00:00:00
abstract：OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2011.06.001
更新日期：2012-03-01 00:00:00
abstract：OBJECTIVE:Culture and ethnicity have often been cited as barriers in establishing an effective and satisfying doctor-patient relationship. The aim of this paper is to gain more insight in intercultural medical communication difficulties by reviewing observational studies on intercultural doctor-patient communication. I...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2005.11.014
更新日期：2006-12-01 00:00:00
abstract：OBJECTIVE:To assess the psychometric properties of the Threatening Medical Situations Inventory (TMSI) in a community sample (Study 1), and to examine its usefulness in individuals with a strong family history of cancer (Study 2). METHODS:Study 1 participants (N=276) completed 2 online surveys, 14 days apart. Study 2 ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.07.001
更新日期：2007-12-01 00:00:00
abstract：:This paper reports on a qualitative study, which explores the narratives of patients, who live with medically unexplained symptoms (MUS) and who have not secured a diagnostic label. Interviews were undertaken with 18 participants (5 men and 13 women) who attended a neurology outpatients department in the UK. Three fea...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.02.010
更新日期：2005-02-01 00:00:00
abstract：OBJECTIVE:The objective of this study is to shed light on common characteristics revealed in concept analyses of empowerment to contribute to further understanding. A further objective is to discuss how the perspective of healthcare service users appeared in the concept analyses. METHODS:The review was performed by sy...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2020.02.017
更新日期：2020-07-01 00:00:00
abstract：:The Russian Federation's recently adopted family medicine as a specialty, but with little or no training in psychosocial and behavioral issues, unlike many training programs in other countries. The purpose of this qualitative study was to explore the perceptions and experiences of Russian primary care physicians regar...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.11.006
更新日期：2005-11-01 00:00:00
abstract：:In this article, we examine the topic of patient participation in health care and report on how we have drawn on the concept of patient expertise to produce a new kind of information booklet for chronic arthritis patients. The booklet is patient-generated and contains the illness narratives of patients with three kind...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.05.004
更新日期：2005-04-01 00:00:00
abstract：:A palliative social worker describes a day in the hospital during which three patients come off their ventilators and families gather to say goodbye while a blizzard looms over the city. ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.04.003
更新日期：2017-12-01 00:00:00
abstract：OBJECTIVE:To describe the type of care provided by a nationally-representative sample of informal caregivers, the frequency of unmet supportive care needs, and examine characteristics associated with unmet needs. METHODS:Using data from the Health Information National Trends Survey, we identified caregivers of an adul...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.10.015
更新日期：2020-03-01 00:00:00
abstract：OBJECTIVE:To assess the impact of a 3-month follow-up of a 6-month quasi-experimental study conducted to evaluate a web-based, tailored-feedback intervention promoting four key components of the Mediterranean diet. METHODS:Fifty-three (intervention) and nineteen (control) healthy females, 25-55 years, employed at two ...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1016/j.pec.2008.05.030
更新日期：2008-11-01 00:00:00
abstract：OBJECTIVE:To evaluate shared decision-making (SDM) and delineate SDM processes in audio-recorded conversations between language congruent Spanish-/English-speaking clinicians and parents of pediatric mental health patients. METHODS:Transcripts from audio-recorded consultations were rated using the 5-Item Observing Pat...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.08.013
更新日期：2020-01-01 00:00:00
abstract：:Between 1987 and 1989, 177 cancer patients who were to receive intensive chemotherapy with curative intention, participated in a comprehensive care project with the aim of improving their total situation, and that of their relatives (n = 120). A number of steps were taken to improve, among other things, the informatio...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章
doi：10.1016/0738-3991(94)00655-6
更新日期：1995-05-01 00:00:00
abstract：OBJECTIVE:Evaluate the suitability, readability, quality, and usefulness of publicly available online resources for cancer caregivers. METHODS:Resources identified through a Google search and environmental scan were evaluated using the Suitability Assessment of Materials (SAM), an online readability text analysis tool...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.05.010
更新日期：2019-10-01 00:00:00
abstract：OBJECTIVE:This study aims to develop a conceptual model of patient-defined SDM, and understand what leads patients to label a specific, decision-making process as shared. METHODS:Qualitative interviews were conducted with 23 primary care patients following a recent appointment. Patients were asked about the meaning of...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.07.017
更新日期：2014-09-01 00:00:00
abstract：:Despite believing end-of-life (EOL) discussions with patients are important, doctors often do not have them. Multiple factors contribute to this shortfall, which interventions including reimbursement changes and communication skills training have not significantly improved to date. One commonly cited but under-researc...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.12.008
更新日期：2018-05-01 00:00:00
abstract：OBJECTIVE:To determine the relative contributions of health literacy (HL) and illness and medication beliefs to medication adherence among older COPD patients and determine the pathways through which they operate. METHODS:The study was conducted using data from a prospective cohort of COPD patients in New York City an...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.11.024
更新日期：2020-11-25 00:00:00
abstract：OBJECTIVE:To evaluate nutrition brochures for pregnant women in Germany based on evidence-based patient information (EBPI) criteria. METHODS:Nutrition brochures for pregnant women in Germany were collected. Brochures addressing the risk of salmonellosis, toxoplasmosis or listeriosis were analyzed by two researchers in...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.10.015
更新日期：2015-02-01 00:00:00
abstract：OBJECTIVE:Contextual factors are known to influence the acquisition and application of communication skills in clinical settings. Little is known about residents' perceptions of these factors. This article aims to explore residents' perceptions of contextual factors affecting the acquisition and application of communic...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.01.002
更新日期：2014-04-01 00:00:00
abstract：OBJECTIVE:To validate electronic prescriptions (e-prescriptions) as a method for measuring treatment adherence in patients with hypertension. METHODS:This prospective study initially included 120 patients treated for hypertension in primary care centers. Adherence was measured using the gold standard, the medication e...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.04.009
更新日期：2018-09-01 00:00:00
