Abstract:
OBJECTIVE:This systematic review aims to examine the roles of family members (FMs) in treatment decision-making for adult patients without cognitive or psychiatric disorders affecting their ability to participate in decision-making. METHODOLOGY:A comprehensive, systematic search of the Cochrane Library, PsycINFO, PubMed and ScienceDirect databases, with relevant keywords, was conducted. Two authors evaluated the eligibility of the studies independently, then cross-checked for accuracy. The quality of included studies were assessed using standardized criteria. RESULTS:Out of the 12.137 studies identified, 40 were included. Results highlighted the different roles and influences FMs have in the decision-making process. Moreover, several factors ranging from personal to cultural and family-related factors influence their level of involvement. Regardless of the illness, some similarities in family influence exist (e.g., social support). However, the type of family involvement varies according to the illness, the treatment choice and the patients' culture. CONCLUSION:FMs have an important role in the decision-making process. In fact, the final decision is often made by the patients after consulting their families. FMs can support both patients and medical teams, and thus facilitate the process. PRACTICE IMPLICATIONS:Physicians should include FMs in treatment decision-making when the patients and their FMs wish to be included.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Lamore K,Montalescot L,Untas Adoi
10.1016/j.pec.2017.08.003subject
Has Abstractpub_date
2017-12-01 00:00:00pages
2172-2181issue
12eissn
0738-3991issn
1873-5134pii
S0738-3991(17)30477-9journal_volume
100pub_type
杂志文章,评审abstract:OBJECTIVE:Few patients participate in cancer support groups despite their benefits. This study investigated the importance of Theory of Planned Behaviour variables in predicting group participation, relative to disease impact, existing support, coping and demographic variables. METHODS:Longitudinal study of patients w...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.05.003
更新日期:2014-08-01 00:00:00
abstract:OBJECTIVE:Patient-centered care emphasizes the need to form a therapeutic and trusting relationship between patients and providers in which patients feel comfortable disclosing health-relevant and personal information. It is still unknown how many patients disclose their sexual orientation to providers, under what circ...
journal_title:Patient education and counseling
pub_type: 杂志文章,meta分析,评审
doi:10.1016/j.pec.2018.05.001
更新日期:2018-09-01 00:00:00
abstract:OBJECTIVE:The main aim of this study was to establish the contents of the lay illness models on depression, cancer, hypertension, schizophrenia and influenza in healthy and ill people suffering from these diseases who have/have not coexisted with people with these health alterations. METHODS:Dimensions of lay illness ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.03.016
更新日期:2007-07-01 00:00:00
abstract:OBJECTIVE:To describe the characteristics of primary care attendees with depressive symptoms who use mental health websites. METHODS:789 individuals with depressive symptoms recruited and followed up annually for nine years. Self-reported written surveys included mental health, professional and self-help use, e-mental...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.07.008
更新日期:2018-01-01 00:00:00
abstract:OBJECTIVE:To examine which counseling behavior among GPs can be achieved after counseling training when organizational support is provided. METHODS:A random sample of 39 general practices was drawn, 34 took part. GPs received a pre-study assessment followed by a training session for smoking counseling. All patients sh...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.11.005
更新日期:2006-10-01 00:00:00
abstract::This paper provides an overview of prevalence, types, effects and treatment for affective disorders, with particular emphasis on educational and psychoeducational interventions. It reviews several models of psychoeducation including the approaches used in various programs at the Psychiatric hospital in which the autho...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/0738-3991(92)90195-o
更新日期:1992-04-01 00:00:00
abstract:UNLABELLED:Social characteristics (e.g. race, gender, age, education) are associated with health care disparities. We introduce social concordance, a composite measure of shared social characteristics between patients and physicians. OBJECTIVE:To determine whether social concordance predicts differences in medical vis...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.07.015
更新日期:2011-12-01 00:00:00
abstract:OBJECTIVE:Communication between professionals is essential because it contributes to an optimal continuum of care. Whether patients experience adequate continuum of care is uncertain. To address this, a questionnaire was developed to elucidate this care process from a patients' perspective. In this study, the instrumen...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.04.035
更新日期:2011-05-01 00:00:00
abstract:OBJECTIVE:To evaluate a web-based self-management training for health professionals. Patients spend 99% of their time outside the healthcare system. Thus self-management support from health professionals is central to optimal care. Our objective was to teach health professionals the skills to provide this support. MET...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.09.003
更新日期:2013-01-01 00:00:00
abstract:OBJECTIVE:We assess the efficacy and utility of automatically generated textual summaries of patients' medical histories at the point of care. METHOD:Twenty-one clinicians were presented with information about two cancer patients and asked to answer key questions. For each clinician, the information on one of the pati...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.04.019
更新日期:2013-08-01 00:00:00
abstract:OBJECTIVE:We examined the reach and impact of five decision aids (DAs) routinely distributed to breast cancer patients as part of a shared decision making demonstration project. METHODS:From 2005 to 2008, we surveyed patients' change in knowledge and decisional conflict (DC) before and after their review of DAs. Using...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.05.011
更新日期:2012-02-01 00:00:00
abstract:OBJECTIVE:To gain an understanding of how patient satisfaction (PS) with the doctor (PSD) is conceptualized through an empirical review of how it is currently being measured. The content of PS questionnaire items was examined to (a) determine the primary domains underlying PSD, and (b) summarize the specific doctor-rel...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2015.05.020
更新日期:2015-06-10 00:00:00
abstract::Research in interaction and interviewing behaviors usually has focused on the verbal behaviors exhibited by the interactants. These behaviors have been looked upon and analyzed in isolation, that is, as a single event. There is little or no information on physician-patient interactions that analyzes verbal behaviors a...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(84)90052-1
更新日期:1984-01-01 00:00:00
abstract:OBJECTIVE:A clinician's ability to infer patients' thoughts and feelings is a critical component of high quality care. The goal of this article is to present a new test to measure this ability in clinicians, called the Test of Accurate Perception of Patients' Affect (TAPPA). METHODS:Audiovisual clips were taken from p...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.10.004
更新日期:2014-02-01 00:00:00
abstract:OBJECTIVES:To evaluate interactional effects of patient-centered interviewing (PCI) compared to isolated clinician-centered interviewing (CCI). METHODS:We conducted a pilot study comparing PCI (N=4) to CCI (N=4) for simulated new-patient visits. We rated interviews independently and measured patient satisfaction with ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.06.005
更新日期:2012-09-01 00:00:00
abstract:OBJECTIVE:The smoking status of physicians can impact interactions with patients about smoking. The 'Smoking: The Opinions of Physicians' (STOP) survey examined whether an association existed between physician smoking status and beliefs about smoking and cessation and a physician's clinical interactions with patients r...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.07.042
更新日期:2009-01-01 00:00:00
abstract:OBJECTIVE:to evaluate the impact of a communication skills course for nurses on how to handle difficult communication situations in their daily work. METHODS:a 7-h course was developed using a construct of "Awareness, Feelings, Listen, Solve" (AFLS). A pedagogy of experiential, learner-centered learning was adopted. T...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2010.02.013
更新日期:2011-01-01 00:00:00
abstract::We evaluated the family-oriented care and counseling provided by the BC Children's Hospital Transport Team paramedies. One hundred families were asked to rate: (1) how they would like paramedies to communicate with them under ideal conditions; and (2) what they actually experienced during their child's transport. Ther...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00090-1
更新日期:1999-03-01 00:00:00
abstract:OBJECTIVE:To develop an attractive and effective patient feedback training programme for general practice trainees (GPTs). METHODS:First, an exploratory study was conducted in which patients and GPTs were interviewed after they had worked with patient feedback. This contributed to the development of the patient feedba...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.01.016
更新日期:2008-07-01 00:00:00
abstract::The effects of a pharmacy-based intervention on the knowledge and attitudes of asthma patients was studied with a small convenience sample in four Finnish community pharmacies. The intervention consisted of patient education, counselling and outcomes monitoring according to Therapeutic Outcomes Monitoring (TOM) concep...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,多中心研究
doi:10.1016/s0738-3991(00)00158-0
更新日期:2001-05-01 00:00:00
abstract::Clients seek genetic counseling in order to become informed, to make better decisions, and, if possible, to be reassured. Genetic knowledge, however, is fragmentary and incomplete and therefore it may involve more uncertainty than is desirable. In a cohort of 30 counseling sessions we studied the genetic information t...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(97)00052-9
更新日期:1997-09-01 00:00:00
abstract::The quality of Internet information needs to be evaluated and several tools exist for this purpose. However, none have demonstrated reliability and validity. This study tested the internal consistency and validity of the information quality tool (IQT), quality scale (QS) and DISCERN using 89 web sites discussing smoki...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00124-6
更新日期:2003-06-01 00:00:00
abstract:OBJECTIVE:We conducted a pragmatic randomized controlled trial to test the effectiveness of an asthma question prompt list with video intervention to increase youth question-asking and provider education during visits. METHODS:English or Spanish-speaking youth ages 11-17 with persistent asthma and their parents were e...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2018.01.013
更新日期:2018-06-01 00:00:00
abstract:OBJECTIVES:To investigate the gender preference of Muslim Israeli-Arab women regarding obstetricians/gynecologists, and identify other features that affect their choice. METHODS:The study included 167 responders to an anonymous questionnaire. RESULTS:Around one-half of the responders had no gender preference regardin...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.05.016
更新日期:2012-02-01 00:00:00
abstract:OBJECTIVES:We characterized patients' comprehension, memory, and impressions of risk communication messages in a patient decision aid (PtDA), Mammopad, and clarified perceived importance of numeric risk information in medical decision making. METHODS:Participants were 75 women in their forties with average risk factor...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.02.013
更新日期:2016-07-01 00:00:00
abstract:OBJECTIVE:To investigate the applied and conceptual relationship between two measures of shared decision making using the OPTION instrument developed in Wales and the Informed Decision Making instrument developed in Seattle, USA using audio-taped consultation data from a UK general practice population. METHODS:Twelve ...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2007.09.001
更新日期:2008-01-01 00:00:00
abstract:OBJECTIVE:To support families with a chronically ill child, a modular curriculum and new healthcare structures (trainer education, quality management) for a group self-management program (ModuS) were developed. ModuS focuses on common psychosocial aspects of chronic conditions and comprises generic and disease-specific...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2017.01.001
更新日期:2017-06-01 00:00:00
abstract:OBJECTIVE:It was hypothesized that parents exposed to a communication skills intervention would participate (e.g., ask questions, express concerns) in a pre-surgical consultation more than parents in the control group. METHODS:Sixty-five parents of prospective pediatric surgery patients were randomly assigned to eithe...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2013.03.015
更新日期:2013-10-01 00:00:00
abstract:OBJECTIVE:To review the theory and research evidence suggesting that tailored interactive multimedia computer programs (IMCPs) aimed at optimizing patient health behaviors could lessen socio-demographic health disparities. METHODS:Selective critical review of research regarding IMCPs tailored to psychological mediator...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.11.012
更新日期:2011-11-01 00:00:00
abstract::Within the field of oncology, the communication of an unfavourable diagnosis is regarded as a stressful event that affects all members of the oncology team, as well as the patient. In this exploratory study we found that the communication problems between doctors, patients and nursing staff were related to insufficien...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(96)00908-1
更新日期:1996-11-01 00:00:00