Abstract：
:Clients seek genetic counseling in order to become informed, to make better decisions, and, if possible, to be reassured. Genetic knowledge, however, is fragmentary and incomplete and therefore it may involve more uncertainty than is desirable. In a cohort of 30 counseling sessions we studied the genetic information that was actually conveyed in terms of its predictability, controllability and novelty. With regard to predictability it emerged to be rather the rule than the exception that clients of genetic counseling were confronted with (1) an inconclusive diagnosis, (2) the chance or an estimate of the chance of the occurrence or recurrence of a genetic disorder, and (3) ambiguity about the severity of the disease. In case of bad news, possibilities for control (therapeutic or preventive measures) were minimal. In a few cases, clients were confronted with completely unexpected findings, i.e., information of high novelty. It is concluded that the high degree of uncertainty in the information provided during genetic counseling--reflecting the true state of the art--is in direct contrast to the needs of clients.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
van Zuuren FJ,van Schie EC,van Baaren NKdoi
10.1016/s0738-3991(97)00052-9subject
Has Abstractpub_date
1997-09-01 00:00:00pages
129-39issue
1-2eissn
0738-3991issn
1873-5134pii
S0738-3991(97)00052-9journal_volume
32pub_type
杂志文章abstract：OBJECTIVE:To identify and describe the extent to which theory or theoretical frameworks informed the development and evaluation of decision support technologies (DSTs). METHODS:The analysis was based on the decision technologies used in studies included in the Cochrane systematic review of patient decision aids for pe...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2007.12.004
更新日期：2008-04-01 00:00:00
abstract：OBJECTIVE:to get insight into healthcare professionals' current experience with, and views on consultation audio-recordings made on patients' initiative. METHOD:215 Dutch healthcare professionals (123 physicians and 92 nurses) working in oncology care completed a survey inquiring their experiences and views. RESULTS:...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.03.001
更新日期：2017-08-01 00:00:00
abstract：OBJECTIVE:Experimental studies have found that clinician-expressed empathy improves patients' information recall in (advanced) cancer consultations. It remains unclear, however, whether these results are generalizable to clinical care and, if so, what the underlying mechanism is. We aimed to i) determine the relationsh...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.10.025
更新日期：2020-10-22 00:00:00
abstract：OBJECTIVE:A 2006 national survey of pediatric clerkship directors revealed that only 25% taught cultural competence, but 81% expressed interest in a validated cultural competence curriculum. The authors designed and evaluated a multi-modality cultural competence curriculum for pediatric clerkships including a validated...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.07.029
更新日期：2010-04-01 00:00:00
abstract：OBJECTIVE:New pharmacological measures assessing medication adherence, including longitudinal drug levels in hair, are emerging. Little is known, however, about how best to present results from such measures to patients and clinicians in comprehensive, easy-to-understand, acceptable formats. We, therefore, developed th...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.12.029
更新日期：2019-06-01 00:00:00
abstract：OBJECTIVE:A systematic review and qualitative synthesis was undertaken to deduce the knowledge, attitudes, skills and training of mental health professionals regarding complicated grief (CG). METHODS:PsychInfo, Embase, Medline, CINAHL, PBSC, Web of Science and ERIC databases were used to identify relevant literature. ...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2017.03.010
更新日期：2017-08-01 00:00:00
abstract：OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2011.06.001
更新日期：2012-03-01 00:00:00
abstract：OBJECTIVE:Relatively few studies have tracked retention effects of stroke education in low- and high-risk groups. Such information is important to improve the design of stroke prevention programs. METHODS:The frequency of risk factors within the sample was defined as "high" if 30% or more of participants in that group...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.08.024
更新日期：2009-02-01 00:00:00
abstract：:The effect of message source on message recall and perceived credibility was examined in a randomized study comparing two different computer-tailored bulletins promoting fruit and vegetable consumption among rural African American church members. An expert oriented (EXP) bulletin was compared with a spiritual and past...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/s0738-3991(98)00132-3
更新日期：1999-02-01 00:00:00
abstract：:Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/S0738-3991(03)00095-8
更新日期：2004-03-01 00:00:00
abstract：:In this article, we examine the topic of patient participation in health care and report on how we have drawn on the concept of patient expertise to produce a new kind of information booklet for chronic arthritis patients. The booklet is patient-generated and contains the illness narratives of patients with three kind...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.05.004
更新日期：2005-04-01 00:00:00
abstract：OBJECTIVE:The VR-CoDES has been previously applied in the dental context. However, we know little about how dental patients with intellectual disabilities (ID) and complex communication needs express their emotional distress during dental visits. This is the first study explored the applicability of the VR-CoDES to a d...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.07.023
更新日期：2014-11-01 00:00:00
abstract：OBJECTIVE:To get insights into the decision-making strategy of health-care consumers when confronted with comparative consumer information. METHODS:Qualitative descriptive study among 18 consumers who had a hip or knee replacement no longer than five years ago. To study their decision-making strategies a paper draft f...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.10.027
更新日期：2010-03-01 00:00:00
abstract：:Despite my efforts and those of quite a few experienced colleagues we failed to diagnose our friend's wife illness and prevent her demise. But a sad and frustrating experience also stimulates reflection and dwelling on potential errors we made and hope to identify the next time. ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.07.017
更新日期：2018-11-01 00:00:00
abstract：OBJECTIVE:The implementation of patient-centered care (PCC) innovations continues to be poorly understood. We used the implementation effectiveness framework to pilot a method for measuring the impact of a PCC innovation in primary care practices. METHODS:We analyzed data from a prior study that assessed the implement...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.09.009
更新日期：2014-12-01 00:00:00
abstract：OBJECTIVES:It is important for health professionals to have behavior change skills to empower people to manage long-term-conditions. Theoretically derived, competency-based training can be particularly effective where it considers reflective and automatic routes to behavior change. The aim of this study was to develop,...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.04.013
更新日期：2020-11-01 00:00:00
abstract：OBJECTIVE:To determine the literacy skill sets of patients in the context of graphical interpretation of interactive dashboards. METHODS:We assessed literacy characteristics of prostate cancer patients and assessed comprehension of quality of life dashboards. Health literacy, numeracy and graph literacy were assessed ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.09.009
更新日期：2016-03-01 00:00:00
abstract：:Twelve physicians, 33 nurses, and 30 patients completed questionnaires to elicit similarities and differences in perceptions of educational needs of post-myocardial infarction (MI) patients. Results, using chi-square analysis, indicated that the three groups generally agreed upon which areas should be included in educ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(84)90038-7
更新日期：1984-01-01 00:00:00
abstract：OBJECTIVE:Examine influences of diabetes-specific social support (D-SS) and depressive symptoms on glycemic control over time, among adults randomized to a diabetes self-management education and support (DSME/S) intervention or usual care. METHODS:Data were from 108 African-American and Latino participants in a 6-mont...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2015.05.019
更新日期：2015-11-01 00:00:00
abstract：OBJECTIVE:To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives. METHODS:73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.01.012
更新日期：2015-06-01 00:00:00
abstract：OBJECTIVE:A clinician's ability to infer patients' thoughts and feelings is a critical component of high quality care. The goal of this article is to present a new test to measure this ability in clinicians, called the Test of Accurate Perception of Patients' Affect (TAPPA). METHODS:Audiovisual clips were taken from p...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.10.004
更新日期：2014-02-01 00:00:00
abstract：OBJECTIVE:The patient empowerment paradigm has been promoted as a critical component of diabetes care. The present study explores how patients in an urban, public-sector clinic perceive patient empowerment as it applies to their treatment, interactions with clinicians, and self-care behaviors. METHODS:Semi-structured ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2011.09.010
更新日期：2012-06-01 00:00:00
abstract：OBJECTIVE:While most existing health literacy (HL) measures focus primarily on reading comprehension, the functional, communicative and critical HL scales from Ishikawa et al. [19] aim to measure a broader HL spectrum. The objective of this study was to evaluate the validity of the Dutch translation of this instrument....
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.07.014
更新日期：2012-10-01 00:00:00
abstract：OBJECTIVES:Question Prompt Lists (QPL) increase patient active participation in oncology interactions, but questions remain regarding how QPLs influence patient-oncologist information exchange. We examined how a QPL influenced information exchange during oncology interactions with African-American patients. METHODS:Da...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.09.020
更新日期：2020-03-01 00:00:00
abstract：OBJECTIVE:To meet the need for an interactive product on exercise during pregnancy and postpartum, we developed and evaluated a personally tailored multimedia CD-ROM. METHODS:Pregnant and postpartum women, who were randomly assigned to either the experimental group (PregXercise CD-ROM) or the control group (CD-ROM wit...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1016/j.pec.2007.10.017
更新日期：2008-02-01 00:00:00
abstract：OBJECTIVE:This study examines the preferences of patients with metastatic cancer regarding notification of imaging results, as well as distress surrounding the process. METHODS:On imaging day, preferences for notification, expectations of results, health literacy, and social support were measured. After receiving resu...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.08.032
更新日期：2020-02-01 00:00:00
abstract：:One way to reduce the need and demand for hospital services is via health promotion initiatives. A prenatal instructors' education module preventing the learning of violence as acceptable behaviour by children in their first year of life was developed by a health promoting hospital in partnership with its community. C...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(01)00190-2
更新日期：2001-12-15 00:00:00
abstract：OBJECTIVE:To evaluate residents' ability to engage standardized patients in informed decision making during a pregnancy loss scenario. METHODS:Forty patient encounters between interns and standardized patients were coded to assess informed decision-making practices, exploration of unexpressed concerns, and support pro...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.06.016
更新日期：2017-12-01 00:00:00
abstract：OBJECTIVE:Examine the psychometric properties of the Appraisal of Caregiving Scale (ACS). METHODS:Data were collected as part of the FOCUS Program trial in Michigan (N = 484 caregivers). RESULTS:Exploratory factor analysis found the ACS measured Threat, General Stress, and Benefit appraisals. Cronbach's alphas for al...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.01.009
更新日期：2015-05-01 00:00:00
abstract：OBJECTIVE:The purpose of this project was to gather preliminary data on preferred content for text reminders sent to low-income parents. METHODS:A brief, IRB-approved survey was administered to 200 consecutive English-speaking parents of children under 6 years old at a Pediatric Residency clinic. Because text messages...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2010.08.007
更新日期：2011-10-01 00:00:00
