Using expert patients' narratives as an educational resource.

Abstract:

:In this article, we examine the topic of patient participation in health care and report on how we have drawn on the concept of patient expertise to produce a new kind of information booklet for chronic arthritis patients. The booklet is patient-generated and contains the illness narratives of patients with three kinds of arthritis. The booklet draws upon the knowledge of patients who feel they are flourishing despite their condition. By communicating information through the powerful medium of narrative it is hoped the booklet will be a useful educational and supportive resource for other patients with a similar condition. We would encourage health professionals to acknowledge patient expertise and to consider the expertise of certain patients as a valuable educational resource both for themselves and for other patients.

journal_name

Patient Educ Couns

authors

Swift TL,Dieppe PA

doi

10.1016/j.pec.2004.05.004

subject

Has Abstract

pub_date

2005-04-01 00:00:00

pages

115-21

issue

1

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(04)00161-2

journal_volume

57

pub_type

杂志文章
  • Correlates of preferring a passive role in decision-making among patients with schizophrenia or bipolar disorder.

    abstract:OBJECTIVE:To assess the factors associated with the persistence of clinician-led style in the therapeutic relationship in cases of serious mental illness, and the conditioning factors that the patients identify as determinants of their health. METHOD:Assessment of preferences in the decision-making process and health-...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.10.019

    authors: Morán-Sánchez I,Bernal-López MLÁ,Salmerón D,Pérez-Cárceles MD

    更新日期:2020-10-17 00:00:00

  • Patient perceptions of a decision support tool to assist with young women's contraceptive choice.

    abstract:OBJECTIVE:Contraceptive decision support tools (DSTs) have been suggested as a way to provide patient-centered contraceptive care, but little is known about the role they play in women's decision-making. The aim of this study is to understand patients' perceptions of the value of a contraceptive DST. METHODS:We conduc...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.08.022

    authors: Marshall C,Nuru-Jeter A,Guendelman S,Mauldon J,Raine-Bennett T

    更新日期:2017-02-01 00:00:00

  • Does motivational interviewing counseling time influence HIV-positive persons' self-efficacy to practice safer sex?

    abstract:OBJECTIVE:This study examined the impact of motivational interviewing (MI) counseling time on self-efficacy to practice safer sex for people living with HIV/AIDS (PLWHA). METHODS:In 4 month intervals we followed a cohort of 490 PLWHA for 12 months. We conducted hierarchical linear regression models to examine changes ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2011.07.021

    authors: Chariyeva Z,Golin CE,Earp JA,Suchindran C

    更新日期:2012-04-01 00:00:00

  • Practicing "Reflective listening" is a mandatory prerequisite for empathy.

    abstract::We must humbly acknowledge that the healthcare system is less and less about empathy despite interacting with patients is a prerequisite for care: shared decision making is the cornerstone for compliance to treatment and therefore its -effectiveness. Empathy is not about tricks, it is about "client-centred therapy" a ...

    journal_title:Patient education and counseling

    pub_type: 评论,信件

    doi:10.1016/j.pec.2020.03.024

    authors: Braillon A,Taiebi F

    更新日期:2020-09-01 00:00:00

  • Factors in the doctor-patient relationship that accentuate physicians' hurt feelings when patients terminate the relationship with them.

    abstract:OBJECTIVE:The present study explores the emotional effect of the injury experienced by physician's, as a consequence of a patient's termination of their relationship. METHODS:A vignette study using different scenarios describing a patient who switched to another doctor was distributed to 119 family physicians. A three...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2007.03.010

    authors: Hareli S,Karnieli-Miller O,Hermoni D,Eidelman S

    更新日期:2007-07-01 00:00:00

  • Narrative medicine as a means of training medical students toward residency competencies.

    abstract:OBJECTIVE:This study sought to explore the perceived influence of narrative medicine training on clinical skill development of fourth-year medical students, focusing on competencies mandated by ACGME and the RCPSC in areas of communication, collaboration, and professionalism. METHODS:Using grounded-theory, three metho...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.01.014

    authors: Arntfield SL,Slesar K,Dickson J,Charon R

    更新日期:2013-06-01 00:00:00

  • Relevance of graph literacy in the development of patient-centered communication tools.

    abstract:OBJECTIVE:To determine the literacy skill sets of patients in the context of graphical interpretation of interactive dashboards. METHODS:We assessed literacy characteristics of prostate cancer patients and assessed comprehension of quality of life dashboards. Health literacy, numeracy and graph literacy were assessed ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.09.009

    authors: Nayak JG,Hartzler AL,Macleod LC,Izard JP,Dalkin BM,Gore JL

    更新日期:2016-03-01 00:00:00

  • Implementation and effectiveness of a hospital smoking cessation service in Germany.

    abstract:OBJECTIVE:Hospitalized smokers are often highly motivated to quit and receptive to assistance. There are few published accounts of hospital-based smoking cessation programmes implemented outside of a trial setting, particularly outside North America. We describe the implementation and effectiveness of a dedicated smoki...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.09.024

    authors: Balmford J,Leifert JA,Schulz C,Elze M,Jaehne A

    更新日期:2014-01-01 00:00:00

  • The effect of conflicting medication information and physician support on medication adherence for chronically ill patients.

    abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.11.006

    authors: Carpenter DM,DeVellis RF,Fisher EB,DeVellis BM,Hogan SL,Jordan JM

    更新日期:2010-11-01 00:00:00

  • Management of stable COPD.

    abstract::Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/S0738-3991(03)00095-8

    authors: van der Valk P,Monninkhof E,van der Palen J,Zielhuis G,van Herwaarden C

    更新日期:2004-03-01 00:00:00

  • The reliability of a modified Kalamazoo Consensus Statement Checklist for assessing the communication skills of multidisciplinary clinicians in the simulated environment.

    abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.07.013

    authors: Peterson EB,Calhoun AW,Rider EA

    更新日期:2014-09-01 00:00:00

  • Explaining the causal links between illness management and symptom reduction: Development of an evidence-based patient education strategy.

    abstract:OBJECTIVE:To determine whether explaining the causal links between illness management and symptom reduction would help younger and older adults learn and apply health information. METHOD:Ninety younger and 51 older adults read about a fictitious disease with or without explanations about the cause-and-effects (causal ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.01.009

    authors: Zhang KM,Swartzman LC,Petrella RJ,Gill DP,Minda JP

    更新日期:2017-06-01 00:00:00

  • Finding the right balance of physical activity: a focus group study about experiences among patients with chronic fatigue syndrome.

    abstract:OBJECTIVE:To explore contexts of experiences of physical activity perceived as beneficial or harmful for CFS patients. METHODS:A qualitative study with empirical data from two focus groups with purposive sampling. Mean age was 50, two of ten participants were male, and social demographics varied. Participants were inv...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.05.027

    authors: Larun L,Malterud K

    更新日期:2011-05-01 00:00:00

  • Self medication and health habits in the management of upper gastrointestinal symptoms.

    abstract::Upper gastrointestinal symptoms are a common complaint among the general population but only a small proportion of sufferers seek medical advice. The aim of this study was to examine what kind of perceptions persons using self medication have about the causes of their gastrointestinal symptoms, whether they have made ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(98)00103-7

    authors: Sihvo S,Hemminki E

    更新日期:1999-05-01 00:00:00

  • Interaction-A missing piece of the jigsaw in interpreter-mediated medical consultation models.

    abstract::In 2015, at the International Conference on Communication in Healthcare in New Orleans, USA, we formed a symposium panel to discuss and debate how interdisciplinary research can inform interpreter-mediated medical consultation training. In all our work, a recurring theme is not just the strengths but also the shortcom...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.04.021

    authors: Li S,Gerwing J,Krystallidou D,Rowlands A,Cox A,Pype P

    更新日期:2017-09-01 00:00:00

  • Implementation of patient education software in an anticoagulation clinic to decrease visit times for new patient appointments.

    abstract:OBJECTIVE:Patient education on high-risk medications such as warfarin is important, and they require quick follow-up after initiation to maximize efficacy and safety. In our Anticoagulation Clinic, two 60-minute new patient appointments are available each day, contributing to prolonged lead-time. We instituted standard...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.12.023

    authors: Patino MI,Kraus P,Bishop MA

    更新日期:2019-05-01 00:00:00

  • A health literate approach to the prevention of childhood overweight and obesity.

    abstract:OBJECTIVE:To describe a systematic assessment of patient educational materials for the Growing Right Onto Wellness (GROW) trial, a childhood obesity prevention study targeting a low health literate population. METHODS:Process included: (1) expert review of educational content, (2) assessment of the quality of material...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.08.010

    authors: White RO,Thompson JR,Rothman RL,McDougald Scott AM,Heerman WJ,Sommer EC,Barkin SL

    更新日期:2013-12-01 00:00:00

  • Prevalence and correlates of perceived unmet needs of people with systemic lupus erythematosus.

    abstract::To assess the prevalence and correlates of perceived unmet need among people with systemic lupus erythematosus (SLE) 386 people with SLE, recruited from a support association in NSW, Australia, completed a mail-back survey that included 97 items measuring perceived unmet needs across seven domains: physical, daily liv...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2004.03.015

    authors: Moses N,Wiggers J,Nicholas C,Cockburn J

    更新日期:2005-04-01 00:00:00

  • Development, pilot testing and psychometric validation of a short version of the coronary artery disease education questionnaire: The CADE-Q SV.

    abstract:OBJECTIVE:To develop, pilot test and psychometrically validate a shorter version of the coronary artery disease education questionnaire (CADE-Q), called CADE-Q SV. METHODS:Based on previous versions of the CADE-Q, cardiac rehabilitation (CR) experts developed 20 items divided into 5 knowledge domains to comprise the f...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2015.11.002

    authors: Ghisi GLM,Sandison N,Oh P

    更新日期:2016-03-01 00:00:00

  • Short length of stay and the discharge process: Preparing breast cancer patients appropriately.

    abstract:OBJECTIVE:Breast cancer is the most common cancer among women worldwide, increasing the relevance of an efficient and successful care process. As length of stay (LOS) in the hospital decreases, patients' satisfaction with the LOS varies. We hypothesize that successful discharge planning can improve this evaluation. ME...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.08.012

    authors: Nowak M,Lee S,Karbach U,Pfaff H,Groß SE

    更新日期:2019-12-01 00:00:00

  • Promoting men's knowledge of cancer risk reduction: A systematic review of interventions.

    abstract:OBJECTIVE:To critically appraise and discuss evidence from interventions designed to increase men's knowledge about cancer risk reduction. METHODS:A systematic review was conducted. Six electronic databases were searched for interventions published between January 1st 2006 and May 30th 2016 in English. Studies were in...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.03.002

    authors: Reidy M,Saab MM,Hegarty J,Von Wagner C,O'Mahony M,Murphy M,Drummond FJ

    更新日期:2018-08-01 00:00:00

  • Nurses' instruction of patients in the use of INR-monitors for self-management of cardio-vascular conditions: Missed instructional opportunities.

    abstract:OBJECTIVE:To explore the effectiveness of a patient education programme for chronic disease self-management in terms of whether (a) patients are taught to perform the medical procedure and (b) nurses have evidence of patients' proficiency when they start self-management. METHODS:Patients were followed through an educa...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.10.001

    authors: Larsen T

    更新日期:2017-04-01 00:00:00

  • Psychological characteristics associated with the onset and course of asthma in children and adolescents: a systematic review of longitudinal effects.

    abstract:OBJECTIVE:to systematically review all available studies that investigated the longitudinal relationships between the psychological characteristics of children and adolescents suffering from asthma and those of their caregivers, and the onset and course of the asthma. METHODS:relevant studies were identified using Med...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2010.03.011

    authors: Tibosch MM,Verhaak CM,Merkus PJ

    更新日期:2011-01-01 00:00:00

  • A reversal theory approach to the causes and treatment of stress in professional life.

    abstract::An interactive model, which takes into account both situation and individual, is likely to be most useful in understanding the occurrence of stress in professional life. Reversal theory, when applied in the way detailed in the present paper, yields just such a model. It also, in the way discussed, provides a number of...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(93)90004-g

    authors: Fontana D,Valente L

    更新日期:1993-12-01 00:00:00

  • Drug labels: are they a readable material?

    abstract:OBJECTIVE:This study aims to evaluate cardiovascular drug labels from the perspective of how readable the text materials are. METHODS:Comparison of drug labels written in accordance with the 1997 Brazilian legislation with those written in accordance with the 2003 Brazilian legislation, with journalistic text and scie...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.05.004

    authors: Didonet J,Mengue SS

    更新日期:2008-10-01 00:00:00

  • Interventions to promote the use of advance directives: an overview of systematic reviews.

    abstract:OBJECTIVE:To identify, appraise and synthesise the results of systematic reviews of the literature (SRLs) that examines the effectiveness of interventions to increase advance directive (AD) completion rate. METHODS:Narrative review of the literature-an overview of SRLs focused on interventions to improve patients' AD ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2009.09.027

    authors: Tamayo-Velázquez MI,Simón-Lorda P,Villegas-Portero R,Higueras-Callejón C,García-Gutiérrez JF,Martínez-Pecino F,Barrio-Cantalejo IM

    更新日期:2010-07-01 00:00:00

  • Learning to listen: effects of using conversational transcripts to help medical students improve their use of open questions in soliciting patient problems.

    abstract:OBJECTIVE:This study reports effects of a 'bottom-up' pedagogy using doctor-patient conversation transcripts to improve medical students' use of open questions in soliciting patient problems. METHODS:We implemented an innovative approach involving students reviewing transcripts of medical interviews, skills practice u...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.03.022

    authors: Tsai MH,Lu FH,Frankel RM

    更新日期:2013-10-01 00:00:00

  • The role of relationships in the professional formation of physicians: case report and illustration of an elicitation technique.

    abstract:OBJECTIVE:Studies of physicians' professional development highlight the important effect that the learning environment has in shaping student attitudes, behaviors, and values. The objective of this study was to better understand the interplay among relationships and experiences in mediating the effects of the learning ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.pec.2008.05.016

    authors: Haidet P,Hatem DS,Fecile ML,Stein HF,Haley HL,Kimmel B,Mossbarger DL,Inui TS

    更新日期:2008-09-01 00:00:00

  • Self-regulation and weight reduction in patients with type 2 diabetes: a pilot intervention study.

    abstract:OBJECTIVE:To evaluate the efficacy of a self-regulation (SR) weight reduction intervention on weight, body mass index (BMI), glycosylated hemoglobin (HbA1c) (primary outcomes), exercise, nutrition and quality of life (secondary outcomes). METHODS:A pilot intervention (n=53) based on SR-principles consisted of a motiva...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2008.09.027

    authors: Huisman S,de Gucht V,Maes S,Schroevers M,Chatrou M,Haak H

    更新日期:2009-04-01 00:00:00

  • The influence of locus of control on preferences for information and decision making.

    abstract::Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2003.09.010

    authors: Hashimoto H,Fukuhara S

    更新日期:2004-11-01 00:00:00