Abstract:
:In this article, we examine the topic of patient participation in health care and report on how we have drawn on the concept of patient expertise to produce a new kind of information booklet for chronic arthritis patients. The booklet is patient-generated and contains the illness narratives of patients with three kinds of arthritis. The booklet draws upon the knowledge of patients who feel they are flourishing despite their condition. By communicating information through the powerful medium of narrative it is hoped the booklet will be a useful educational and supportive resource for other patients with a similar condition. We would encourage health professionals to acknowledge patient expertise and to consider the expertise of certain patients as a valuable educational resource both for themselves and for other patients.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Swift TL,Dieppe PAdoi
10.1016/j.pec.2004.05.004subject
Has Abstractpub_date
2005-04-01 00:00:00pages
115-21issue
1eissn
0738-3991issn
1873-5134pii
S0738-3991(04)00161-2journal_volume
57pub_type
杂志文章abstract:OBJECTIVE:To assess the factors associated with the persistence of clinician-led style in the therapeutic relationship in cases of serious mental illness, and the conditioning factors that the patients identify as determinants of their health. METHOD:Assessment of preferences in the decision-making process and health-...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.10.019
更新日期:2020-10-17 00:00:00
abstract:OBJECTIVE:Contraceptive decision support tools (DSTs) have been suggested as a way to provide patient-centered contraceptive care, but little is known about the role they play in women's decision-making. The aim of this study is to understand patients' perceptions of the value of a contraceptive DST. METHODS:We conduc...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.022
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:This study examined the impact of motivational interviewing (MI) counseling time on self-efficacy to practice safer sex for people living with HIV/AIDS (PLWHA). METHODS:In 4 month intervals we followed a cohort of 490 PLWHA for 12 months. We conducted hierarchical linear regression models to examine changes ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.07.021
更新日期:2012-04-01 00:00:00
abstract::We must humbly acknowledge that the healthcare system is less and less about empathy despite interacting with patients is a prerequisite for care: shared decision making is the cornerstone for compliance to treatment and therefore its -effectiveness. Empathy is not about tricks, it is about "client-centred therapy" a ...
journal_title:Patient education and counseling
pub_type: 评论,信件
doi:10.1016/j.pec.2020.03.024
更新日期:2020-09-01 00:00:00
abstract:OBJECTIVE:The present study explores the emotional effect of the injury experienced by physician's, as a consequence of a patient's termination of their relationship. METHODS:A vignette study using different scenarios describing a patient who switched to another doctor was distributed to 119 family physicians. A three...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.03.010
更新日期:2007-07-01 00:00:00
abstract:OBJECTIVE:This study sought to explore the perceived influence of narrative medicine training on clinical skill development of fourth-year medical students, focusing on competencies mandated by ACGME and the RCPSC in areas of communication, collaboration, and professionalism. METHODS:Using grounded-theory, three metho...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.01.014
更新日期:2013-06-01 00:00:00
abstract:OBJECTIVE:To determine the literacy skill sets of patients in the context of graphical interpretation of interactive dashboards. METHODS:We assessed literacy characteristics of prostate cancer patients and assessed comprehension of quality of life dashboards. Health literacy, numeracy and graph literacy were assessed ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.09.009
更新日期:2016-03-01 00:00:00
abstract:OBJECTIVE:Hospitalized smokers are often highly motivated to quit and receptive to assistance. There are few published accounts of hospital-based smoking cessation programmes implemented outside of a trial setting, particularly outside North America. We describe the implementation and effectiveness of a dedicated smoki...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.09.024
更新日期:2014-01-01 00:00:00
abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.11.006
更新日期:2010-11-01 00:00:00
abstract::Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/S0738-3991(03)00095-8
更新日期:2004-03-01 00:00:00
abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.013
更新日期:2014-09-01 00:00:00
abstract:OBJECTIVE:To determine whether explaining the causal links between illness management and symptom reduction would help younger and older adults learn and apply health information. METHOD:Ninety younger and 51 older adults read about a fictitious disease with or without explanations about the cause-and-effects (causal ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.01.009
更新日期:2017-06-01 00:00:00
abstract:OBJECTIVE:To explore contexts of experiences of physical activity perceived as beneficial or harmful for CFS patients. METHODS:A qualitative study with empirical data from two focus groups with purposive sampling. Mean age was 50, two of ten participants were male, and social demographics varied. Participants were inv...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.05.027
更新日期:2011-05-01 00:00:00
abstract::Upper gastrointestinal symptoms are a common complaint among the general population but only a small proportion of sufferers seek medical advice. The aim of this study was to examine what kind of perceptions persons using self medication have about the causes of their gastrointestinal symptoms, whether they have made ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00103-7
更新日期:1999-05-01 00:00:00
abstract::In 2015, at the International Conference on Communication in Healthcare in New Orleans, USA, we formed a symposium panel to discuss and debate how interdisciplinary research can inform interpreter-mediated medical consultation training. In all our work, a recurring theme is not just the strengths but also the shortcom...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.04.021
更新日期:2017-09-01 00:00:00
abstract:OBJECTIVE:Patient education on high-risk medications such as warfarin is important, and they require quick follow-up after initiation to maximize efficacy and safety. In our Anticoagulation Clinic, two 60-minute new patient appointments are available each day, contributing to prolonged lead-time. We instituted standard...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.12.023
更新日期:2019-05-01 00:00:00
abstract:OBJECTIVE:To describe a systematic assessment of patient educational materials for the Growing Right Onto Wellness (GROW) trial, a childhood obesity prevention study targeting a low health literate population. METHODS:Process included: (1) expert review of educational content, (2) assessment of the quality of material...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.08.010
更新日期:2013-12-01 00:00:00
abstract::To assess the prevalence and correlates of perceived unmet need among people with systemic lupus erythematosus (SLE) 386 people with SLE, recruited from a support association in NSW, Australia, completed a mail-back survey that included 97 items measuring perceived unmet needs across seven domains: physical, daily liv...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.03.015
更新日期:2005-04-01 00:00:00
abstract:OBJECTIVE:To develop, pilot test and psychometrically validate a shorter version of the coronary artery disease education questionnaire (CADE-Q), called CADE-Q SV. METHODS:Based on previous versions of the CADE-Q, cardiac rehabilitation (CR) experts developed 20 items divided into 5 knowledge domains to comprise the f...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.11.002
更新日期:2016-03-01 00:00:00
abstract:OBJECTIVE:Breast cancer is the most common cancer among women worldwide, increasing the relevance of an efficient and successful care process. As length of stay (LOS) in the hospital decreases, patients' satisfaction with the LOS varies. We hypothesize that successful discharge planning can improve this evaluation. ME...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.08.012
更新日期:2019-12-01 00:00:00
abstract:OBJECTIVE:To critically appraise and discuss evidence from interventions designed to increase men's knowledge about cancer risk reduction. METHODS:A systematic review was conducted. Six electronic databases were searched for interventions published between January 1st 2006 and May 30th 2016 in English. Studies were in...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.03.002
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVE:To explore the effectiveness of a patient education programme for chronic disease self-management in terms of whether (a) patients are taught to perform the medical procedure and (b) nurses have evidence of patients' proficiency when they start self-management. METHODS:Patients were followed through an educa...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.10.001
更新日期:2017-04-01 00:00:00
abstract:OBJECTIVE:to systematically review all available studies that investigated the longitudinal relationships between the psychological characteristics of children and adolescents suffering from asthma and those of their caregivers, and the onset and course of the asthma. METHODS:relevant studies were identified using Med...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.03.011
更新日期:2011-01-01 00:00:00
abstract::An interactive model, which takes into account both situation and individual, is likely to be most useful in understanding the occurrence of stress in professional life. Reversal theory, when applied in the way detailed in the present paper, yields just such a model. It also, in the way discussed, provides a number of...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(93)90004-g
更新日期:1993-12-01 00:00:00
abstract:OBJECTIVE:This study aims to evaluate cardiovascular drug labels from the perspective of how readable the text materials are. METHODS:Comparison of drug labels written in accordance with the 1997 Brazilian legislation with those written in accordance with the 2003 Brazilian legislation, with journalistic text and scie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.05.004
更新日期:2008-10-01 00:00:00
abstract:OBJECTIVE:To identify, appraise and synthesise the results of systematic reviews of the literature (SRLs) that examines the effectiveness of interventions to increase advance directive (AD) completion rate. METHODS:Narrative review of the literature-an overview of SRLs focused on interventions to improve patients' AD ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2009.09.027
更新日期:2010-07-01 00:00:00
abstract:OBJECTIVE:This study reports effects of a 'bottom-up' pedagogy using doctor-patient conversation transcripts to improve medical students' use of open questions in soliciting patient problems. METHODS:We implemented an innovative approach involving students reviewing transcripts of medical interviews, skills practice u...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.03.022
更新日期:2013-10-01 00:00:00
abstract:OBJECTIVE:Studies of physicians' professional development highlight the important effect that the learning environment has in shaping student attitudes, behaviors, and values. The objective of this study was to better understand the interplay among relationships and experiences in mediating the effects of the learning ...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2008.05.016
更新日期:2008-09-01 00:00:00
abstract:OBJECTIVE:To evaluate the efficacy of a self-regulation (SR) weight reduction intervention on weight, body mass index (BMI), glycosylated hemoglobin (HbA1c) (primary outcomes), exercise, nutrition and quality of life (secondary outcomes). METHODS:A pilot intervention (n=53) based on SR-principles consisted of a motiva...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2008.09.027
更新日期:2009-04-01 00:00:00
abstract::Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.09.010
更新日期:2004-11-01 00:00:00