Prevalence and correlates of perceived unmet needs of people with systemic lupus erythematosus.

Abstract:

:To assess the prevalence and correlates of perceived unmet need among people with systemic lupus erythematosus (SLE) 386 people with SLE, recruited from a support association in NSW, Australia, completed a mail-back survey that included 97 items measuring perceived unmet needs across seven domains: physical, daily living, psychological/spiritual/existential, health services, health information, social support and employment/financial. Ninety-four percent of participants had at least one unmet need. The highest levels of unmet need were tiredness (81%); pain (73%); not being able to do things one used to (72%); fear of exacerbation (72%); sleeping problems (70%); anxiety and stress (69%); and feeling down (68%). Five of the highest levels of unmet needs were in the psychological domain. Researchers concluded that current health care delivery is not adequately meeting some of the needs of people with SLE. A comprehensive needs assessment questionnaire for all SLE patients could help providers manage protocols more effectively.

journal_name

Patient Educ Couns

authors

Moses N,Wiggers J,Nicholas C,Cockburn J

doi

10.1016/j.pec.2004.03.015

subject

Has Abstract

pub_date

2005-04-01 00:00:00

pages

30-8

issue

1

eissn

0738-3991

issn

1873-5134

pii

S0738399104001223

journal_volume

57

pub_type

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