Abstract:
:To assess the prevalence and correlates of perceived unmet need among people with systemic lupus erythematosus (SLE) 386 people with SLE, recruited from a support association in NSW, Australia, completed a mail-back survey that included 97 items measuring perceived unmet needs across seven domains: physical, daily living, psychological/spiritual/existential, health services, health information, social support and employment/financial. Ninety-four percent of participants had at least one unmet need. The highest levels of unmet need were tiredness (81%); pain (73%); not being able to do things one used to (72%); fear of exacerbation (72%); sleeping problems (70%); anxiety and stress (69%); and feeling down (68%). Five of the highest levels of unmet needs were in the psychological domain. Researchers concluded that current health care delivery is not adequately meeting some of the needs of people with SLE. A comprehensive needs assessment questionnaire for all SLE patients could help providers manage protocols more effectively.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Moses N,Wiggers J,Nicholas C,Cockburn Jdoi
10.1016/j.pec.2004.03.015subject
Has Abstractpub_date
2005-04-01 00:00:00pages
30-8issue
1eissn
0738-3991issn
1873-5134pii
S0738399104001223journal_volume
57pub_type
杂志文章abstract:OBJECTIVE:To gain an understanding of how patient satisfaction (PS) with the doctor (PSD) is conceptualized through an empirical review of how it is currently being measured. The content of PS questionnaire items was examined to (a) determine the primary domains underlying PSD, and (b) summarize the specific doctor-rel...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2015.05.020
更新日期:2015-06-10 00:00:00
abstract:OBJECTIVE:To investigate the association between the quality of the family physician-patient relationship and frequent attendance of primary and specialist health care. METHODS:Cross-sectional survey of a representative German population sample (N=2.266). Family physician-patient relationship was assessed with the Pat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.02.009
更新日期:2016-07-01 00:00:00
abstract:UNLABELLED:In this study we examine which factors are related to compliance with medication in patients suffering from rheumatoid arthritis (RA). PATIENTS:persons suffering recently developed, active RA, who cooperated in a randomized study on the effect of patient education. We analyzed the relation between adherence...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(98)00087-1
更新日期:1999-01-01 00:00:00
abstract:OBJECTIVE:To determine the literacy skill sets of patients in the context of graphical interpretation of interactive dashboards. METHODS:We assessed literacy characteristics of prostate cancer patients and assessed comprehension of quality of life dashboards. Health literacy, numeracy and graph literacy were assessed ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.09.009
更新日期:2016-03-01 00:00:00
abstract::A three-day residential Body Awareness Program (BAP) was developed to teach people with Chronic A-specific Psychosomatic Symptoms (CAPS) to react adequately to disturbances of the balance between a daily workload and the capacity to deal with it. The short-term effects of the program for people with CAPS are presented...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.02.014
更新日期:2004-11-01 00:00:00
abstract:OBJECTIVE:To describe the importance of teaching clinicians when and how to overcome language barriers in clinical practice, provide an example of a curriculum for teaching on this topic, and outline the critical issues that must be addressed in this type of teaching. METHODS:We describe a 1.5h educational program for...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.12.001
更新日期:2010-02-01 00:00:00
abstract:OBJECTIVE:Low patient recruitment into diabetes prevention programs is a challenge. The primary aim of this study was to demonstrate that an increased recruitment rate can be achieved by communicating personalized risk of progression to type 2 diabetes, estimating risk reduction with weight loss, and offering program c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.10.017
更新日期:2020-10-12 00:00:00
abstract::We aimed to examine risk perceptions among patients at moderate to high cardiovascular risk. A questionnaire about perceived absolute risk of myocardial infarction and stroke was sent to 2424 patients with hypertension or diabetes. Response rate was 86.3% and 1557 patients without atherosclerotic disease were included...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00248-3
更新日期:2004-01-01 00:00:00
abstract:OBJECTIVE:Surgeons and psychiatrists have been described as two contrary groups, the one healing by hands and the other by words. Empathy is needed in every physician-patient relationship. We tested whether (1) surgeons and psychiatrists show different levels of cognitive and emotional empathy; (2) measurements of cogn...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.01.013
更新日期:2014-05-01 00:00:00
abstract:OBJECTIVE:To explore whether reversibility, decision timing, and uncertainty are relevant to men deciding on treatment for localized prostate cancer (LPC). DESIGN:Secondary qualitative data analysis of unstructured interviews. METHODS:Content analysis of previously collected qualitative data (31 individual interviews...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.03.017
更新日期:2009-11-01 00:00:00
abstract:OBJECTIVE:To explore patient observations of teamwork-related behaviors such as inter-team communication through a newly designed survey. METHODS:In this cross-sectional study, 101 patients (N=86) and caregivers (N=15) recruited from the emergency department (ED) of an urban, academic medical center (>85,000 visits/ye...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.06.002
更新日期:2014-09-01 00:00:00
abstract:OBJECTIVE:To review and synthesise definitions of the teach-back method in the literature. The second aim is to synthesise the barriers, facilitators and perceptions of teach-back use in healthcare consultations with patients. METHODS:A systematic review and thematic synthesis following Braun and Clarke's method. RES...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.07.026
更新日期:2021-01-01 00:00:00
abstract:OBJECTIVE:To evaluate the feasibility of a web-based coaching programme for vascular risk factor treatment, to describe the patterns of use and to measure changes in risk factors. METHODS:Patients with a clinical manifestation of arterial disease and Internet access were asked to participate in the nurse-led Internet-...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章
doi:10.1016/j.pec.2008.06.004
更新日期:2008-10-01 00:00:00
abstract::Previous research has primarily focused on the relationship between providers and expectant mothers as a key element of quality prenatal care. Significantly less attention has been directed toward expectant fathers and the importance of their communication with prenatal care providers and involvement in the prenatal c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.005
更新日期:2020-11-06 00:00:00
abstract:OBJECTIVE:Patient education on high-risk medications such as warfarin is important, and they require quick follow-up after initiation to maximize efficacy and safety. In our Anticoagulation Clinic, two 60-minute new patient appointments are available each day, contributing to prolonged lead-time. We instituted standard...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.12.023
更新日期:2019-05-01 00:00:00
abstract:OBJECTIVE:Determine treatment adherence in patients with multiple chronic conditions (MCC). METHODS:A random patient sample ≥ 15 years, discharged from hospital with ≥1 chronic conditions (CC) was interviewed after 6-12 months. Analysis included variables in 5 dimensions (WHO): socio-demographics, disease, treatment, ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.12.012
更新日期:2010-11-01 00:00:00
abstract::The health care system in Canada is gradually shifting towards greater emphasis on patient involvement, health promotion and management of chronic illness. Nurses can play a key role in shaping these changes. This article provides an overview of several facets of the nurse's role in patient education: national policy ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(90)90045-m
更新日期:1990-08-01 00:00:00
abstract:OBJECTIVE:To explore primary care practitioners approach to and management of menstrual disorders using a sociological perspective. METHODS:Semi-structured interviews of primary care practitioners with an iterative approach to recruitment and analysis informed by grounded theory. RESULTS:Two broad approaches to patie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.12.002
更新日期:2006-01-01 00:00:00
abstract:OBJECTIVE:To understand if narratives can be effective tools for diabetes empowerment, from the perspective of African-American participants in a program that improved diabetes self-efficacy and self-management. METHODS:In-depth interviews and focus groups were conducted with program graduates. Participants were asked...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.03.022
更新日期:2015-08-01 00:00:00
abstract::In this qualitative study stroke patients rehabilitating in nursing homes experienced an increase in their autonomy (particularly in self-determination, independence and self-care) in the last weeks before discharge. The change in autonomy was found to be related to regained abilities and self-confidence, and to patie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00113-5
更新日期:2000-10-01 00:00:00
abstract:OBJECTIVE:We aimed at studying information needs of patients and their families, and their attitude towards the counterparts' information needs. Factors influencing psychological status of patients were investigated. METHODS:Self-designed questionnaires for information needs and attitude were delivered to participants...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.12.022
更新日期:2016-05-01 00:00:00
abstract:OBJECTIVE:To examine how physicians use information about a patient's background knowledge when both anticipating what a patient knows and producing actual answers in an email counseling setting. METHODS:A fictitious patient used a (high vs. low) level of technical jargon in an email inquiry about diabetes and provide...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.01.011
更新日期:2012-08-01 00:00:00
abstract:OBJECTIVE:To assess if exposure to varying "facts and myths" message formats affected participant knowledge and recall accuracy of information related to influenza vaccination. METHODS:Consenting patients (N=125) were randomized to receive one of four influenza related messages (Facts Only; Facts and Myths; Facts, Myt...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2013.06.017
更新日期:2013-09-01 00:00:00
abstract:OBJECTIVES:To evaluate the impact that role-playing two pre/post standardized patient scenarios within a tobacco cessation training program had on pharmacists' counseling skills. Second, to analyze the validity of the observation coding tool used to evaluate pharmacist's role-play performance. METHODS:Pharmacists perf...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.12.010
更新日期:2011-06-01 00:00:00
abstract:OBJECTIVES:Current cardiovascular disease (CVD) nutrition guidelines do not take into account Chinese medicine (CM) principles. We created a heart healthy integrative nutritional counseling (H2INC) curriculum consistent with CM principles and current nutrition guidelines. METHODS:We conducted three phases of semi-stru...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.08.011
更新日期:2018-12-01 00:00:00
abstract:OBJECTIVE:This study investigates HIV positive adolescents' health literacy and whether factors associated with health literacy in HIV-positive adults are associated with health literacy among HIV-positive adolescents. METHODS:Adolescents in this study were behaviorally and perinatally HIV-infected youth (n=186) from ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.07.014
更新日期:2010-04-01 00:00:00
abstract:OBJECTIVES:As communication is a central part of every interpersonal meeting within healthcare and research reveals several benefits of effective communication, we need to teach students and practitioners how to communicate with patients and with colleagues. This paper reflects on what and how to teach. METHODS:In the...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.08.011
更新日期:2015-10-01 00:00:00
abstract:OBJECTIVE:To review the strengths and weaknesses of deliberative and intuitive processes in the context of patient decision support and to discuss implications for decision aid (DA) design. METHODS:Conceptual review of the strengths and weaknesses of intuitive and analytical decision making and applying these findings...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.11.016
更新日期:2013-05-01 00:00:00
abstract::This reflective piece tells the story of an impactful patient interaction that shaped the practice of a medical student. The essay focuses on the power of shared time and the development of meaningful relationships as a form of adjunctive therapy for patients, regardless of diagnosis or prognosis. Fostering an appreci...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.08.035
更新日期:2019-01-01 00:00:00
abstract:OBJECTIVES:To evaluate if the contents of pain management websites include the current best practice self-management support strategies for people with persistent pain, are cultural tailored and to determine the website quality. METHODS:Websites were searched from three major search engines (Google, Bing, and Yahoo). ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2019.04.009
更新日期:2019-09-01 00:00:00