Abstract:
:This paper reports on a qualitative study, which explores the narratives of patients, who live with medically unexplained symptoms (MUS) and who have not secured a diagnostic label. Interviews were undertaken with 18 participants (5 men and 13 women) who attended a neurology outpatients department in the UK. Three features of the patients' narratives identified are: the 'chaotic' structure of their illness narratives; concern that symptoms may be 'all in the mind'; and their status as 'medical orphans'. All the patients acknowledge that diagnosis is difficult and accept that a medical explanation will invariably be possible. However, they are more concerned to secure some form of ongoing medical and social support. An understanding of both the structure as well as the content of patients' narratives of undiagnosed illness may contribute to the development of more effective and sensitive patient centred care.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Nettleton S,Watt I,O'Malley L,Duffey Pdoi
10.1016/j.pec.2004.02.010subject
Has Abstractpub_date
2005-02-01 00:00:00pages
205-10issue
2eissn
0738-3991issn
1873-5134pii
S0738399104000989journal_volume
56pub_type
杂志文章abstract:OBJECTIVE:To investigate whether the Verona Coding Definitions of Emotional Sequences to code health providers' responses (VR-CoDES-P) can be used for assessment of medical students' responses to patients' cues and concerns provided in written case vignettes. METHODS:Student responses in direct speech to patient cues ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.026
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVES:This study aimed to investigate patients' willingness to initiate a preventive treatment and compared two established effect measures to the newly developed Delay of Events (DoE) measure that expresses treatment effect as a gain in event-free time. METHODS:In this cross-sectional, randomized survey experime...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2016.07.028
更新日期:2016-12-01 00:00:00
abstract:OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.06.002
更新日期:2007-10-01 00:00:00
abstract:OBJECTIVE:To investigate 1) younger (< 65) and older (> 65) adults' preference for and understanding of graph formats presenting risk information, and 2) the contribution of age, health literacy, numeracy and graph literacy in understanding information. MATERIALS AND METHODS:To assess preferences, participants (n = 21...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.06.031
更新日期:2021-01-01 00:00:00
abstract:OBJECTIVE:The objectives of this study were to identify nutrition communication styles of Dutch GPs, their strategies regarding nutrition communication and nutrition information seeking behaviours. Another aim is to provide a hypothetical model for nutrition communication style, including psycho-social and socio-demogr...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.09.001
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:Obesity is a complex condition involving biological, psychological, sociocultural and environmental components. Impulsivity seems to be a particularly important factor. Whiteside and Lynam recently proposed dividing impulsivity into four separate dimensions: Urgency, lack of Premeditation, lack of Perseveranc...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.03.003
更新日期:2010-06-01 00:00:00
abstract:OBJECTIVE:To identify, appraise and synthesise the results of systematic reviews of the literature (SRLs) that examines the effectiveness of interventions to increase advance directive (AD) completion rate. METHODS:Narrative review of the literature-an overview of SRLs focused on interventions to improve patients' AD ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2009.09.027
更新日期:2010-07-01 00:00:00
abstract::Asthma information pamphlets, brochures and other media materials are produced by a range of organisations for a diverse range of educational purposes. It is important to understand the principles of preparing appropriate and intelligible written material, to increase the probability that they will be more likely to i...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(97)00096-7
更新日期:1997-12-01 00:00:00
abstract:OBJECTIVE:We examined the reach and impact of five decision aids (DAs) routinely distributed to breast cancer patients as part of a shared decision making demonstration project. METHODS:From 2005 to 2008, we surveyed patients' change in knowledge and decisional conflict (DC) before and after their review of DAs. Using...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.05.011
更新日期:2012-02-01 00:00:00
abstract:OBJECTIVE:The objective of this study was to examine the perceptions of men, practice nurses (PNs) and general practitioners (GPs) on patient decision coaching for prostate cancer screening. METHODS:Seven focus groups were conducted with 47 participants, representing three stakeholder groups - men, GPs and PNs. All fo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.01.003
更新日期:2018-05-01 00:00:00
abstract:OBJECTIVE:Communication inequality has been offered as one potential mechanism through which social determinants influence multiple health behaviors. The purpose of this study was to examine the underlying mechanisms between communication inequality and health behaviors. METHODS:Data from a nationally representative c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.05.018
更新日期:2016-11-01 00:00:00
abstract:OBJECTIVE:Emotions, are in part conveyed by varying levels of fundamental frequency of voice pitch (f0). This study tests the hypothesis that patients display heightened levels of emotional arousal (f0) during Verona Coding Definitions of Emotional Sequences (VR-CoDES) cues and concerns versus during neutral statements...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.003
更新日期:2016-12-01 00:00:00
abstract:OBJECTIVE:To examine how physicians use information about a patient's background knowledge when both anticipating what a patient knows and producing actual answers in an email counseling setting. METHODS:A fictitious patient used a (high vs. low) level of technical jargon in an email inquiry about diabetes and provide...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.01.011
更新日期:2012-08-01 00:00:00
abstract:OBJECTIVE:To describe the importance of teaching clinicians when and how to overcome language barriers in clinical practice, provide an example of a curriculum for teaching on this topic, and outline the critical issues that must be addressed in this type of teaching. METHODS:We describe a 1.5h educational program for...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.12.001
更新日期:2010-02-01 00:00:00
abstract:OBJECTIVE:Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common def...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2016.09.002
更新日期:2017-01-01 00:00:00
abstract:OBJECTIVE:To compare communication between navigators and women according to follow-up status in a postpartum patient navigation program ("Navigating New Motherhood" [NNM]). METHODS:This is a mixed methods secondary analysis of text message and email transcripts from NNM. Transcripts were analyzed by number of message...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.10.028
更新日期:2019-04-01 00:00:00
abstract::A video was produced to inform men diagnosed with localised prostate cancer of the different management options for their disease. It was tested for increased knowledge and understanding on a healthy population of similar age (n=10), who were assessed before and after watching the video (20 interviews). The video was ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00187-8
更新日期:2003-03-01 00:00:00
abstract:OBJECTIVE:To break new ground by directly examining how patients seek life-expectancy estimates, and how doctors support them in doing so. METHODS:Conversation analytic examination of 10 recorded UK hospice consultations involving 3 palliative specialists. RESULTS:Life-expectancy estimate episodes frequently begin af...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.03.026
更新日期:2019-02-01 00:00:00
abstract:OBJECTIVE:This study explores whether an Experiential Training Programme (ETP) in communication skills (CS) improves students' ability to identify patients clues compared to those who follow a non-experiential training throughout their medical studies. METHOD:Intervention Group (IG): 85 4th-year medical students who r...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.05.018
更新日期:2020-11-01 00:00:00
abstract:BACKGROUND:Clinical guidelines informed by patient preferences are more likely to be used and widely advocated, yet research shows that few guidelines reflect patient preferences. OBJECTIVE:Explore how developers generate guidelines informed by patient preferences. PATIENT INVOLVEMENT:Seventeen patients were involved...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.10.001
更新日期:2020-10-07 00:00:00
abstract::Using ethnoscience methods, interviews with 50 South Asian women living in Western Canada were conducted and analyzed to explore explanations and images of breast cancer. Embedded in the women's stories of breast cancer were distinctive, often vivid and fear-provoking images of abnormal growth. Explanations about the ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00118-9
更新日期:1999-07-01 00:00:00
abstract::Knowledge of health care professionals' different understandings of diabetes care is important when preparing such professionals in patient education. For patients to manage illness effectively, the actions of health care professionals are crucial. Patients' understanding of their condition should be taken as the poin...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/s0738-3991(02)00212-4
更新日期:2003-09-01 00:00:00
abstract:OBJECTIVE:To examine the information seeking behavior and health literacy of caregivers of individuals living with spinal cord injury in Switzerland and their impact on the caregiving experience. METHODS:Nationwide survey of family caregivers of people with spinal cord injury (N = 717). Caregivers aged 18+ who assiste...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.02.024
更新日期:2020-08-01 00:00:00
abstract:OBJECTIVE:To review and meta-analyze the efficacy of educational counseling alone in tinnitus. METHODS:We collected randomized controlled trials (RCTs) adhered to PRISMA guidelines. Analyzed the effect of educational counseling alone versus other forms of therapy (psychological or combination) with RevMan 5.3. RESULT...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2019.07.031
更新日期:2020-01-01 00:00:00
abstract:OBJECTIVE:To examine the impact of Veterans' coping strategies on mental health treatment engagement following a positive screen for depression. METHODS:A mixed-methods observational study using a mailed survey and semi-structured interviews. Sample included 271 Veterans who screened positive for depression during a p...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.10.021
更新日期:2014-03-01 00:00:00
abstract:OBJECTIVE:To understand if narratives can be effective tools for diabetes empowerment, from the perspective of African-American participants in a program that improved diabetes self-efficacy and self-management. METHODS:In-depth interviews and focus groups were conducted with program graduates. Participants were asked...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.03.022
更新日期:2015-08-01 00:00:00
abstract:OBJECTIVE:The purpose of this article is to clarify the concept of empowerment and to correct common misconceptions about its use in diabetes care and education. METHODS:The patient empowerment approach is well suited to helping patients make self-selected changes related to weight, nutrition, and physical activity. A...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2009.07.025
更新日期:2010-06-01 00:00:00
abstract::Previous research has primarily focused on the relationship between providers and expectant mothers as a key element of quality prenatal care. Significantly less attention has been directed toward expectant fathers and the importance of their communication with prenatal care providers and involvement in the prenatal c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.11.005
更新日期:2020-11-06 00:00:00
abstract:OBJECTIVE:To examine knowledge displays (KDs), a practice by which Therapeutic Community (TC) professionals exhibit previous knowledge about their clients' circumstances and experiences. METHODS:Conversation analysis is used to examine 12 staff-led meetings recorded in Italy (8 in a drug addiction TC; 4 in a mental he...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.10.006
更新日期:2016-06-01 00:00:00
abstract:OBJECTIVE:To enhance partner notification (PN) practices in Dutch STI clinics, a PN training using motivational interviewing as core strategy was offered to STI professionals and evaluated. METHODS:The effectiveness of PN training on professionals' attitude, self-efficacy, skills and behavior toward PN, was examined u...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.08.025
更新日期:2013-12-01 00:00:00