Abstract:
OBJECTIVE:To describe the type of care provided by a nationally-representative sample of informal caregivers, the frequency of unmet supportive care needs, and examine characteristics associated with unmet needs. METHODS:Using data from the Health Information National Trends Survey, we identified caregivers of an adult care recipient. Descriptive statistics examined support provided by caregivers for activities of daily living (ADLs) and instrumental activities of daily living (IADLs) and caregiver perceptions of their needs in five areas: medical/nursing tasks, accessing services, respite care, support groups, and counseling for caregivers. Bivariate statistics examined sociodemographic and caregiver characteristics associated with each need. RESULTS:Among 316 caregivers, 30.9% reported at least one unmet supportive care need. Caregivers most often provided support for 0-2 ADLs and 5-7 IADLs. Younger age and longer duration of time caregiving were associated with unmet supportive care needs for medical/nursing training (p = 0.02 and 0.04, respectively). Caregivers providing assistance with more ADLs reported needs for respite care support (p=0.03). CONCLUSION:Subgroups of caregivers that may be most vulnerable with greater unmet supportive care needs are those that are younger, have provided care for longer, and those assisting with more ADLs. Future research should explore these factors to inform intervention development.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Mollica MA,Smith AW,Kent EEdoi
10.1016/j.pec.2019.10.015subject
Has Abstractpub_date
2020-03-01 00:00:00pages
626-634issue
3eissn
0738-3991issn
1873-5134pii
S0738-3991(19)30472-0journal_volume
103pub_type
杂志文章abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.11.006
更新日期:2010-11-01 00:00:00
abstract::This paper reports on an evaluation of the reactions of participants in a computer-controlled telephone conversation system (telephone-linked care, TLC) designed to offer nutrition and exercise counseling. After 6 months in the study, subjects were asked a series of questions about their opinions of the TLC system, in...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(02)00076-9
更新日期:2003-02-01 00:00:00
abstract:OBJECTIVE:This study describes the development of the Health Coaching Index (HCI), an observational tool for assessing fidelity to implementing health coaching practical skills. METHODS:Initial HCI items were developed, adapted following cognitive interviews, and refined during coding training. Participants (n = 42) w...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.08.040
更新日期:2020-09-09 00:00:00
abstract:OBJECTIVE:Patient activation can be measured using the Patient Activation Measure (PAM) developed by Hibbard et al., however, little is known about the uses of the PAM in research and in practice. This study aims to explore its differing utility in four UK exemplar sites. METHODS:Data from four exemplars in a range of...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.05.006
更新日期:2016-10-01 00:00:00
abstract:OBJECTIVE:This study examined the impact of motivational interviewing (MI) counseling time on self-efficacy to practice safer sex for people living with HIV/AIDS (PLWHA). METHODS:In 4 month intervals we followed a cohort of 490 PLWHA for 12 months. We conducted hierarchical linear regression models to examine changes ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.07.021
更新日期:2012-04-01 00:00:00
abstract:OBJECTIVE:To assess the effectiveness of including a social support intervention ('buddy system') in a group treatment programme to aid smoking cessation. METHODS:Five hundred and sixty-three smokers attended groups at a smokers' clinic. These groups were randomized either to be (a) groups in which smokers were paired...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2006.02.008
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVE:Breast cancer survivors experience a range of sexual health (SH) issues. Communication problems between patient and provider can prevent survivors from pursuing SH goals and can negatively influence biopsychosocial outcomes. The primary aims of this study were to identify provider communication behaviors that...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.06.019
更新日期:2016-11-01 00:00:00
abstract:OBJECTIVE:This study explored the impact of breast cancer patients' experiences of physician-patient communication and participation in decision making on patient depression and quality of life three and six months after primary treatment. METHODS:Participants were 135 German breast cancer patients, recruited within a...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.09.005
更新日期:2009-12-01 00:00:00
abstract:OBJECTIVE:To critically appraise and discuss evidence from interventions designed to increase men's knowledge about cancer risk reduction. METHODS:A systematic review was conducted. Six electronic databases were searched for interventions published between January 1st 2006 and May 30th 2016 in English. Studies were in...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.03.002
更新日期:2018-08-01 00:00:00
abstract::In this contribution it is argued that Dutch general practitioners (GPs) must make the transition from simply giving information to their patients, to providing them with medical education. Dutch GPs are in a prime position to contribute to the aims of health promotion. Instead of focusing health promotion on preventi...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(95)00806-b
更新日期:1995-07-01 00:00:00
abstract:OBJECTIVE:This paper describes a translational project that explored the feasibility and effect of introducing a coordinated approach to emotional care. METHODS:The project was undertaken using Action Research on one ward at St John of God Hospital Subiaco, Western Australia. A senior Registered Nurse was appointed to...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.04.011
更新日期:2008-10-01 00:00:00
abstract::The effect of an intervention programme to improve health education leaflet uptake in community pharmacies was conducted with a small convenience sample of 12 community pharmacies in North Staffordshire, UK. The intervention consisted of four different modes of leaflet provision. Modes 1 and 2 (without and with overt ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00034-4
更新日期:2003-01-01 00:00:00
abstract:OBJECTIVE:This study aims to develop a conceptual model of patient-defined SDM, and understand what leads patients to label a specific, decision-making process as shared. METHODS:Qualitative interviews were conducted with 23 primary care patients following a recent appointment. Patients were asked about the meaning of...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.017
更新日期:2014-09-01 00:00:00
abstract:OBJECTIVE:Most women diagnosed with unilateral breast cancer without BRCA1 or BRCA2 mutations are at low risk of contralateral breast cancer. Contralateral Prophylactic Mastectomy (CPM) decreases the relative risk of contralateral breast cancer, but may not increase life expectancy; yet international uptake is increasi...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.11.012
更新日期:2016-05-01 00:00:00
abstract:OBJECTIVE:The European Association of Communication in Healthcare (EACH) Early Career Researchers Network (ECRN) aims are to (1) promote international collaboration among young investigators and (2) provide a support network for future innovative communication research projects. In October 2009, Miami, USA at a worksho...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.06.020
更新日期:2010-09-01 00:00:00
abstract:OBJECTIVE:Develop a system of practice tools and procedures to prompt shared decision making in primary care. SDM-GRIP (Shared Decision Making Guidance Reminders in Practice) was developed for suspected stable coronary artery disease (CAD), prior to the percutaneous coronary intervention (PCI) decision. METHODS:Progra...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.12.028
更新日期:2011-11-01 00:00:00
abstract::With much of the developed world having the increasing sociologic and economic problems of an aging population, there is an increased awareness of educating patients to not only understand and follow the instructions of their medical teams but to have increased responsibility for their own care. Of all the chronic con...
journal_title:Patient education and counseling
pub_type: 历史文章,杂志文章
doi:10.1016/0738-3991(95)00735-i
更新日期:1995-09-01 00:00:00
abstract::This study examined interactions between doctors and their chronic pain patients in the context of investigations for medically unexplained pain. Doctor-patient interactions were explored through the analysis of the accounts of the communication process in the chronic pain consultation of 20 chronic pain patients with...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/S0738-3991(03)00105-8
更新日期:2004-03-01 00:00:00
abstract:OBJECTIVE:Culture and ethnicity have often been cited as barriers in establishing an effective and satisfying doctor-patient relationship. The aim of this paper is to gain more insight in intercultural medical communication difficulties by reviewing observational studies on intercultural doctor-patient communication. I...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2005.11.014
更新日期:2006-12-01 00:00:00
abstract:OBJECTIVE:This study introduces the concept of epistemic brokering in interpreter-mediated medical visits and illustrates how it can be used to effectively convey information between providers and patients/parents. METHODS:Conversation analysis is used to analyze 24 pediatric genetics consultations (=17.75 h) involvin...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.05.020
更新日期:2014-10-01 00:00:00
abstract:OBJECTIVE:To explore demographic-, health-, and smoking-related predictors and moderators of outcome in smokers who participated in two different brief smoking cessation interventions. METHODS:Data were acquired using a quasi-randomized controlled trial that tested the efficacy of computer-generated tailored letters a...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2009.07.005
更新日期:2010-01-01 00:00:00
abstract::While evidence exists regarding the effectiveness of many health education interventions, few of these evidence-based programs have been systematically or widely disseminated. This paper reports on the dissemination of one such intervention, the 6-week peer-led Chronic Disease Self-Management Program, throughout a lar...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.10.002
更新日期:2005-10-01 00:00:00
abstract::An interactive model, which takes into account both situation and individual, is likely to be most useful in understanding the occurrence of stress in professional life. Reversal theory, when applied in the way detailed in the present paper, yields just such a model. It also, in the way discussed, provides a number of...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(93)90004-g
更新日期:1993-12-01 00:00:00
abstract:OBJECTIVE:Studies of physicians' professional development highlight the important effect that the learning environment has in shaping student attitudes, behaviors, and values. The objective of this study was to better understand the interplay among relationships and experiences in mediating the effects of the learning ...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究
doi:10.1016/j.pec.2008.05.016
更新日期:2008-09-01 00:00:00
abstract:OBJECTIVE:Primary care providers (PCPs) are encouraged to counsel their obese patients about weight loss. We used focus groups to explore how PCPs communicate with patients about weight management. METHODS:During the summer of 2010, we conducted five focus groups of community-based PCPs who had patients enrolled in a ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.06.033
更新日期:2012-10-01 00:00:00
abstract:OBJECTIVE:Low patient recruitment into diabetes prevention programs is a challenge. The primary aim of this study was to demonstrate that an increased recruitment rate can be achieved by communicating personalized risk of progression to type 2 diabetes, estimating risk reduction with weight loss, and offering program c...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.10.017
更新日期:2020-10-12 00:00:00
abstract:OBJECTIVE:Huntington's disease (HD) is an inherited disorder, characterized by a progressive degeneration of the brain. Due to the nature of the symptoms, the genetic element of the disease, and the fact that there is no cure, HD patients and those in their support network often experience considerable stress and anxie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.06.002
更新日期:2007-10-01 00:00:00
abstract::Recognition that communication plays a central role in the provision of quality patient care has led to learning more about interactions between patients and their health care providers. The present study examined interactions between women with breast cancer and their cancer care specialists from the patients' perspe...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(00)00147-6
更新日期:2001-04-01 00:00:00
abstract:OBJECTIVE:This study aimed to describe disparities and temporal trends in the level of perceived patient-provider communication quality (PPPCQ) in the United States, and to identify sociodemographic and health-related factors associated with elements of PPPCQ. METHODS:A cross-sectional analysis was conducted using nat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.12.007
更新日期:2016-05-01 00:00:00
abstract:OBJECTIVE:Provider communication that supports patient autonomy has been associated with numerous positive patient outcomes. However, to date, no research has examined the relationship between perceived provider communication style and patient-assessed decision quality in breast cancer. METHODS:Using a population-base...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.06.025
更新日期:2016-12-01 00:00:00