Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study.

Abstract:

BACKGROUND:Orofacial clefts (OFCs) are common birth defects that may impose a large burden on the health and psychosocioeconomic well-being of affected individuals and families. This study aims to identify qualitative factors that affect the quality of life (QOL) of family caregivers of children with OFCs. METHODS:A mixed-method study in which family caregivers of OFCs children were consecutively recruited from cleft clinics over a 3-month period. Quantitative data were analyzed using SPSS version 17 and focus group discussion by framework analysis. RESULTS:A total of 107 caregivers participated in the entire study, and 24 caregivers participated in the focus group discussions. About 50% of the children had cleft lip and palate (CLP), 28% with cleft lips only (CL) and 23.4% with cleft palate only (CP). Poor access to specific information and lack of empathy of professionals affected the quality of life and delivery of family-centered care. CONCLUSIONS:To improve the quality of life of family caregivers, individual-focused counseling sessions should be organized for caregivers soon after birth. This will provide an opportunity to discuss the laid out plans for supportive care. It will also be as an avenue to address the arising social issues by health professionals and counselors.

journal_name

Oral Dis

journal_title

Oral diseases

authors

Awoyale T,Onajole AT,Ogunnowo BE,Adeyemo WL,Wanyonyi KL,Butali A

doi

10.1111/odi.12379

subject

Has Abstract

pub_date

2016-03-01 00:00:00

pages

116-22

issue

2

eissn

1354-523X

issn

1601-0825

journal_volume

22

pub_type

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