Getting a Fair Share: Attitudes and Perceptions of Biobank Stakeholders Concerning the Fairness of Sample Sharing.

abstract：:I reflect on the past, present, and future of the field of bioethics. In so doing, I offer a very situated overview of where bioethics has been, where it now is, where it seems to be going, where I think we could do better, and where I dearly hope the field will be heading. I also propose three ways of re-orienting ou...

journal_title：Bioethics

authors： Sherwin S

更新日期：2011-02-01 00:00:00

abstract：:Prominent international and national ethics commissions such as the UNESCO International Bioethics Committee rarely achieve anything remotely resembling gender equality, although local research and ethics committees are somewhat more egalitarian. Under-representation of women is particularly troubling when the subject...

journal_title：Bioethics

authors： Dickenson D

更新日期：2006-06-01 00:00:00

abstract：:In this paper I discuss the view that the appropriate concept of competence is a decision-relative one: that a person may be competent to make one decision but not another. The argument that I present is that neither of the two competing theories supporting the decision-relative approach, internalism and externalism, ...

journal_title：Bioethics

authors： Buller T

更新日期：2001-04-01 00:00:00

abstract：:The ethical aspects of placebo control in clinical trials have been extensively and controversially debated in the last decade. However, a thorough analytical comparison of the different existing international regulations, their terminologies and their ethical principles concerning placebo, is still missing. The centr...

journal_title：Bioethics

authors： Ehni HJ,Wiesing U

更新日期：2008-01-01 00:00:00

abstract：:This article reports on qualitative research conducted in KwaZulu-Natal, South Africa, among researchers and gate-keepers of health facilities in the province. Results suggest disparate but not irreconcilable perceptions of the social value of research in provincial health facilities. This study found that researchers...

journal_title：Bioethics

authors： Lutge E,Slack C,Wassenaar D

更新日期：2017-02-01 00:00:00

abstract：:Political communities across the world have recently sought to tackle rising rates of vaccine hesitancy and refusal, by implementing coercive immunization programs, or by making existing immunization programs more coercive. Many academics and advocates of public health have applauded these policy developments, and the...

journal_title：Bioethics

authors： Navin MC,Attwell K

更新日期：2019-11-01 00:00:00

abstract：:Several important issues are raised and illuminated in "Genetic Harm"; not least, in its detailed discussion of specific genetic disorders. In particular, it focuses on a type of disorder whose ill effects are not manifested at birth, but only at a later stage in life. The conclusion, with its significant implicatio...

journal_title：Bioethics

authors： Zohar NJ

更新日期：1991-10-01 00:00:00

abstract：:When patients refuse to receive medical treatment, the consequences of honouring their decisions can be tragic. This is no less true of patients who autonomously decide to refuse treatment. I distinguish three possible implications of these autonomous decisions. According to the Permissibility Claim, such a decision i...

journal_title：Bioethics

authors： Murphy P

更新日期：2005-06-01 00:00:00

abstract：:Much of the debate about the ethics of abortion has centered on whether the fetus is a person. In an attempt to sidestep this complex issue, I argue that, even if the fetus is not a person, abortion is immoral. To arrive at this conclusion, I argue that giving a fetus fetal alcohol syndrome is immoral, and that if thi...

journal_title：Bioethics

authors： Hendricks P

更新日期：2019-02-01 00:00:00

abstract：:The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of fals...

journal_title：Bioethics

authors： Wertz DC,Fletcher JC

更新日期：1991-07-01 00:00:00

abstract：:As Tom Tomlinson's study indicates, there is considerable misunderstanding and confusion among physicians and nurses working in the area. Brain death is often not well-understood by healthcare professionals and hence inadequately explained to relatives, leaving them confused as to whether their loved-one is alive or ...

journal_title：Bioethics

authors： Tomlinson T

更新日期：1990-07-01 00:00:00

abstract：:This paper reviews the dynamics behind, and ethical issues associated with, the phenomenon of drug resistance. Drug resistance is an important ethical issue partly because of the severe consequences likely to result from the increase in drug resistant pathogens if more is not done to control them. Drug resistance is a...

journal_title：Bioethics

authors： Selgelid MJ

更新日期：2007-05-01 00:00:00

abstract：:Ought we to improve our cognitive capacities beyond the normal human range? It might be a good idea to level out differences between peoples cognitive capacities; and some people's reaching beyond normal capacities may have some good side-effects on society at large (but also bad side-effects, of course). But is there...

journal_title：Bioethics

authors： Tännsjö T

更新日期：2009-09-01 00:00:00

abstract：:The future development of bioethics has been discussed in a number of articles in recent years, principally with regard to the trend towards empirical studies. However, what is meant by empirical studies in this context and how it is to be used concretely have been subject to varying interpretations. The purpose of th...

journal_title：Bioethics

authors： Nikku N,Eriksson BE

更新日期：2006-08-01 00:00:00

abstract：:Following Bernheim,(1) we examine aspects of 'felicitometrics,'(2) the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt(3) of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subj...

journal_title：Bioethics

authors： Kowalski C,Pennell S,Vinokur A

更新日期：2008-07-01 00:00:00

abstract：:In this paper we argue that sex-selective abortion (SSA) cannot be morally justified and that it should be prohibited. We present two main arguments against SSA. First, we present reasons why the decision for a woman to seek SSA in cultures with strong son-preference cannot be regarded as autonomous on either a narrow...

journal_title：Bioethics

authors： Rogers W,Ballantyne A,Draper H

更新日期：2007-11-01 00:00:00

abstract：:Contemporary realities of global population movement increasingly bring to the fore the challenge of quality and equitable health provision across language barriers. While this linguistic challenge is not unique to immigration contexts and is likewise shared by health systems responding to the needs of aboriginal peop...

journal_title：Bioethics

authors： Peled Y

更新日期：2018-07-01 00:00:00

abstract：:Some commentators maintain that gestational surrogates are not 'mothers' in a way capable of grounding a claim to motherhood. These commentators find that the practices that constitute motherhood do not extend to gestational surrogates. We argue that gestational surrogates should be construed as mothers of the childre...

journal_title：Bioethics

authors： Murphy TF,Parks JA

更新日期：2020-11-01 00:00:00

abstract：:The systems approach is a widely accepted method for addressing healthcare adverse events. However, when adverse events are behavioral in nature, such as self-injury or aggression, a systems approach can restrict patient autonomy. We propose guidelines for balancing safety and autonomy considerations when developing s...

journal_title：Bioethics

authors： Zhong R,Wasser T

更新日期：2021-02-01 00:00:00

abstract：:Social work and bioethics are fields deeply committed to cross-disciplinary collaboration to do their respective work. While scholars and practitioners from both fields share a commitment to social justice and to respecting the dignity, integrity and the worth of all persons, the overlap between the fields, including ...

journal_title：Bioethics

authors： Brazg T,Dotolo D,Blacksher E

更新日期：2015-06-01 00:00:00

abstract：:Respect for autonomy is problematic in relation to public health programmes such as vaccination, as the success of such programmes depends on widespread compliance. European countries have different policies for dealing with objectors to vaccination programmes. In some countries compliance is compulsory, while in othe...

journal_title：Bioethics

authors： Asveld L

更新日期：2008-06-01 00:00:00

abstract：:CIOMS has been criticised for not adequately consulting stakeholders about its revised ethical guidelines regarding medical research. Political and logistical issues that arise in democratic processes and open exchange of information probably contributed to this exclusion. What might CIOMS have done to be more inclusi...

journal_title：Bioethics

authors： Macpherson CC

更新日期：2004-06-01 00:00:00

abstract：:In this paper we consider the three categories offered by Howard Brody for understanding power in medicine. In his book The Healer's Power, Brody separates out power in medicine into the categories of Aesculapian, Social, and Charismatic power. We examine these three categories and then apply them to a case. In this c...

journal_title：Bioethics

authors： McMillan J,Anderson L

更新日期：1997-07-01 00:00:00

abstract：BACKGROUND:Empirical studies in Muslim communities on organ donation and blood transfusion show that Muslim counsellors play an important role in the decision process. Despite the emerging importance of online English Sunni fatwas, these fatwas on organ donation and blood transfusion have hardly been studied, thus crea...

journal_title：Bioethics

authors： Van den Branden S,Broeckaert B

更新日期：2011-03-01 00:00:00

abstract：:In the past decade, the perception of a bioterrorist threat has increased and created a demand on life scientists to consider the potential security implications of dual use research. This article examines a selection of proposed moral obligations for life scientists that have emerged to meet these concerns and the ex...

journal_title：Bioethics

authors： Kuhlau F,Eriksson S,Evers K,Höglund AT

更新日期：2008-11-01 00:00:00

abstract：:In Nigeria, reproduction is highly valued, with many people desiring to produce a child 'in their own image and likeness'. Previously, aspiring parents often resorted to adoption. Today, the availability of assisted reproductive technologies (ARTs) has provided options other than adoption for those desiring to procrea...

journal_title：Bioethics

authors： Egbokhare OO,Akintola SO

更新日期：2020-07-01 00:00:00

abstract：:In controlled human infection (CHI) studies, investigators deliberately infect healthy individuals with pathogens in order to study mechanisms of disease or obtain preliminary efficacy data on investigational vaccines and medicines. CHI studies offer a fast and cost-effective way of generating new scientific insights,...

journal_title：Bioethics

authors： Rid A,Roestenberg M

更新日期：2020-10-01 00:00:00

abstract：:Recent ethical and legal challenges have arisen concerning the rights of individuals over their IVF embryos, leading to questions about how, when the wishes of parents regarding their embryos conflict, such situations ought to be resolved. A notion commonly invoked in relation to frozen embryo disputes is that of repr...

journal_title：Bioethics

authors： Chan S,Quigley M

更新日期：2007-10-01 00:00:00

abstract：:The assumption that people have a right to have children is considered in relation to the question of whether society has an obligation to allocate resources to make clinical in vitro fertilization available, at least to married couples where the woman is infertile and the couple provides the ovum and sperm. The auth...

journal_title：Bioethics

authors： Uniacke S

更新日期：1987-07-01 00:00:00

abstract：:An educated guess about the future of academic bioethics can only be made on the basis of the historical conditions of its success. According to its official history, which attributes its success primarily to the service it has done for the patient, it should be safe at least as long as the patient still needs its ser...

journal_title：Bioethics

authors： Epstein M

更新日期：2010-06-01 00:00:00