Privacy and disclosure in medical genetics examined in an ethics of care.

abstract：:This article reports on qualitative research conducted in KwaZulu-Natal, South Africa, among researchers and gate-keepers of health facilities in the province. Results suggest disparate but not irreconcilable perceptions of the social value of research in provincial health facilities. This study found that researchers...

journal_title：Bioethics

authors： Lutge E,Slack C,Wassenaar D

更新日期：2017-02-01 00:00:00

abstract：:The systems approach is a widely accepted method for addressing healthcare adverse events. However, when adverse events are behavioral in nature, such as self-injury or aggression, a systems approach can restrict patient autonomy. We propose guidelines for balancing safety and autonomy considerations when developing s...

journal_title：Bioethics

authors： Zhong R,Wasser T

更新日期：2021-02-01 00:00:00

abstract：:Is it ethical to market complementary and alternative medicines? Complementary and alternative medicines (CAM) are medical products and services outside the mainstream of medical practice. But they are not just medicines (or supposed medicines) offered and provided for the prevention and treatment of illness. They are...

journal_title：Bioethics

authors： Macdonald C,Gavura S

更新日期：2016-02-01 00:00:00

abstract：:The assumption that people have a right to have children is considered in relation to the question of whether society has an obligation to allocate resources to make clinical in vitro fertilization available, at least to married couples where the woman is infertile and the couple provides the ovum and sperm. The auth...

journal_title：Bioethics

authors： Uniacke S

更新日期：1987-07-01 00:00:00

abstract：:As bioethics emerged in the 1960s and 1970s and began to have enormous impacts on the practice of medicine and research--fuelled, by broad socio-political changes that gave rise to the struggles of women, African Americans, gay men and lesbians, and the antiauthoritarianism impulse that characterised the New Left in d...

journal_title：Bioethics

authors： Bayer R,Fairchild AL

更新日期：2004-11-01 00:00:00

abstract：:Anderson was a member of the writing group for the recent revision of Australia's national Code of Practice for the use of animals in scientific research. Here he outlines the major features of the Code. These deal with animal experimentation ethics committees, with levels of pain and distress in subjects, with stan...

journal_title：Bioethics

authors： Anderson W

更新日期：1990-01-01 00:00:00

abstract：:Much of the debate about the ethics of abortion has centered on whether the fetus is a person. In an attempt to sidestep this complex issue, I argue that, even if the fetus is not a person, abortion is immoral. To arrive at this conclusion, I argue that giving a fetus fetal alcohol syndrome is immoral, and that if thi...

journal_title：Bioethics

authors： Hendricks P

更新日期：2019-02-01 00:00:00

abstract：:Biobanks are essential tools for furthering a broad range of medical research areas. However, despite the plethora of national and international laws and guidelines which apply to them, the access and sharing policies of biobanks are only sparsely addressed by regulatory bodies. The 'give and take' process of biosampl...

journal_title：Bioethics

authors： Colledge F,Elger B

更新日期：2015-07-01 00:00:00

abstract：:When applying moral principles to concrete cases, we assume a background shared understanding of the boundaries of the persons to whom the principles apply. In most contexts, this assumption is unproblematic. However, in end-of-life contexts, when patients are receiving 'artificial' life-support, judgments about where...

journal_title：Bioethics

authors： Jansen LA

更新日期：2006-04-01 00:00:00

abstract：:The future development of bioethics has been discussed in a number of articles in recent years, principally with regard to the trend towards empirical studies. However, what is meant by empirical studies in this context and how it is to be used concretely have been subject to varying interpretations. The purpose of th...

journal_title：Bioethics

authors： Nikku N,Eriksson BE

更新日期：2006-08-01 00:00:00

abstract：:Current practices of identifying and treating small indolent thyroid cancers constitute an important but in some ways unusual form of overdiagnosis. Overdiagnosis refers to diagnoses that generally harm rather than benefit patients, primarily because the diagnosed condition is not a harmful form of disease. Patients w...

journal_title：Bioethics

authors： Rogers WA,Craig WL,Entwistle VA

更新日期：2017-10-01 00:00:00

abstract：:The Principle of Agency says that if it would be good for a state of affairs to occur "naturally," then it is permissable to take action to bring it about. This contradicts the views of some bioethicists, who object to euthanasia, in vitro fertilization, and cloning, even though they acknowledge that the states of aff...

journal_title：Bioethics

authors： Rachels J

更新日期：1998-04-01 00:00:00

abstract：:Women face extraordinary difficulty in seeking sterilization as physicians routinely deny them the procedure. Physicians defend such denials by citing the possibility of future regret, a well-studied phenomenon in women's sterilization literature. Regret is, however, a problematic emotion upon which to deny reproducti...

journal_title：Bioethics

authors： Lalonde D

更新日期：2018-06-01 00:00:00

abstract：:CIOMS has been criticised for not adequately consulting stakeholders about its revised ethical guidelines regarding medical research. Political and logistical issues that arise in democratic processes and open exchange of information probably contributed to this exclusion. What might CIOMS have done to be more inclusi...

journal_title：Bioethics

authors： Macpherson CC

更新日期：2004-06-01 00:00:00

abstract：:Warnock, chair of Britain's Committee of Inquiry into Human Fertilisation and Embryology, discusses the implications of the "artificial family" for children born through the use of reproductive technologies. She considers both treatment of infertility and the possible use of assisted reproduction to enable persons ot...

journal_title：Bioethics

authors： Warnock M

更新日期：1987-04-01 00:00:00

abstract：:This paper reviews the dynamics behind, and ethical issues associated with, the phenomenon of drug resistance. Drug resistance is an important ethical issue partly because of the severe consequences likely to result from the increase in drug resistant pathogens if more is not done to control them. Drug resistance is a...

journal_title：Bioethics

authors： Selgelid MJ

更新日期：2007-05-01 00:00:00

abstract：:Following Bernheim,(1) we examine aspects of 'felicitometrics,'(2) the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt(3) of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subj...

journal_title：Bioethics

authors： Kowalski C,Pennell S,Vinokur A

更新日期：2008-07-01 00:00:00

abstract：:The concept of 'intimate citizenship' stresses the right of people to choose how they organize their personal lives and claim identities. Support and interest groups are seen as playing an important role in the pursuit of recognition for these intimate choices, by elaborating visible and positive cultures that invade ...

journal_title：Bioethics

authors： De Graeve K

更新日期：2010-09-01 00:00:00

abstract：:The inevitable need for rationing of healthcare has apparently presented the medical profession with the dilemma of choosing the lesser of two evils. Physicians appear to be obliged to adopt either an implausible version of traditional professional ethics or an equally problematic ethics of bedside rationing. The form...

journal_title：Bioethics

authors： Lauridsen S

更新日期：2009-06-01 00:00:00

abstract：:Joona Räsänen has argued that pro-life arguments against the permissibility of infanticide are not persuasive, and fail to show it to be immoral. We responded to Räsänen's arguments, concluding that his critique of pro-life arguments was misplaced. Räsänen has recently replied in 'Why pro-life arguments still are not ...

journal_title：Bioethics

authors： Blackshaw BP,Rodger D

更新日期：2019-10-01 00:00:00

abstract：:In the past decade, the perception of a bioterrorist threat has increased and created a demand on life scientists to consider the potential security implications of dual use research. This article examines a selection of proposed moral obligations for life scientists that have emerged to meet these concerns and the ex...

journal_title：Bioethics

authors： Kuhlau F,Eriksson S,Evers K,Höglund AT

更新日期：2008-11-01 00:00:00

abstract：:This paper considers Habermas' model of a post-secular political order in the light of the debate on male circumcision that arose in Germany after a court ruled that male circumcision was an unjustifiable act of bodily harm. Central to this model is the idea that religious reasons can only become effective in central ...

journal_title：Bioethics

authors： Greve J

更新日期：2019-05-01 00:00:00

abstract：:This article reports the results of a survey, by mailed questionnaire, of the attitudes, values and practices of doctors in Singapore with respect to the doctor-patient relationship. Questionnaires were sent to a random sample of 475 doctors (261 general practitioners and 214 medical specialists), out of which 249 (52...

journal_title：Bioethics

authors： Chan D,Goh LG

更新日期：2000-01-01 00:00:00

abstract：:Recent advances in reprogramming technology do not bypass the ethical challenge of embryo sacrifice. Induced pluripotent stem cell (iPS) research has been and almost certainly will continue to be conducted within the context of embryo sacrifice. If human embryos have moral status as human beings, then participation in...

journal_title：Bioethics

authors： Brown M

更新日期：2013-01-01 00:00:00

abstract：:Several recent articles have weighed in on the question of whether moral philosophers can be counted as moral experts. One argument denying this has been rejected by both sides of the debate. According to this argument, the extent of disagreement in modern moral philosophy prevents moral philosophers from being classi...

journal_title：Bioethics

authors： Cross B

更新日期：2016-03-01 00:00:00

abstract：:This paper considers what should be done about offers of organs for transplant that come with racist strings attached. Saving lives or improving their quality seem powerful reasons to accept the offer. Fairness, justice, and rejecting racism seem like powerful reasons against. This paper argues that conditional alloca...

journal_title：Bioethics

authors： Wilkinson TM

更新日期：2007-02-01 00:00:00

abstract：:In order to determine whether a particular course of conduct is ethically permissible it is important to have a concept of what it means to be harmed. The dominant theory of harm is the counterfactual account, most famously proposed by Joel Feinberg. This determines whether harm is caused by comparing what actually ha...

journal_title：Bioethics

authors： Purshouse C

更新日期：2016-05-01 00:00:00

abstract：:The grounds for global solidarity have been theorized and conceptualized in recent years, and many have argued that we need a global concept of solidarity. But the question remains: what can motivate efforts of the international community and nation-states? Our focus is the grounding of solidarity with respect to glob...

journal_title：Bioethics

authors： Eckenwiler L,Straehle C,Chung R

更新日期：2012-09-01 00:00:00

abstract：:The discussion on ethical issues, it is said, should not be confined to experts but should be extended to patients and local communities, because of the real need to engage stakeholders and non-stakeholders alike not only in carrying out any biomedical research project, but also in the drafting and legislation of bioe...

journal_title：Bioethics

authors： Manaloto RB,Alvarez AA,Alvarez MA

更新日期：2005-10-01 00:00:00

abstract：BACKGROUND:Empirical studies in Muslim communities on organ donation and blood transfusion show that Muslim counsellors play an important role in the decision process. Despite the emerging importance of online English Sunni fatwas, these fatwas on organ donation and blood transfusion have hardly been studied, thus crea...

journal_title：Bioethics

authors： Van den Branden S,Broeckaert B

更新日期：2011-03-01 00:00:00