abstract：:Beauchamp and Childress' definition of autonomous decision-making includes the conditions of intentionality, understanding, and non-control. In genetics, however, a relational conception of autonomy has been increasingly recognized. This article aims to empirically assess aspects of social influence in genetic testing...

journal_title：Bioethics

authors： Zimmermann BM,Koné I,Shaw D,Elger B

更新日期：2021-02-01 00:00:00

abstract：:The systems approach is a widely accepted method for addressing healthcare adverse events. However, when adverse events are behavioral in nature, such as self-injury or aggression, a systems approach can restrict patient autonomy. We propose guidelines for balancing safety and autonomy considerations when developing s...

journal_title：Bioethics

authors： Zhong R,Wasser T

更新日期：2021-02-01 00:00:00

abstract：:Scientists seeking to conduct research with human subjects must first submit their proposals to research ethics committees (Institutional Review Boards [IRBs], in the United States). Some of these studies pose risks to "bystanders," i.e., people who may be affected by the research but who are not enrolled as study sub...

journal_title：Bioethics

authors： Wikler D

更新日期：2020-11-01 00:00:00

abstract：:Funders (located primarily in high-income countries) and high-income country researchers have historically dominated decision-making within global health research collaborations: from setting agendas and research design to determining how data are collected and analysed and what happens with findings and outputs. The ...

journal_title：Bioethics

authors： Pratt B

更新日期：2020-11-01 00:00:00

abstract：:Some commentators maintain that gestational surrogates are not 'mothers' in a way capable of grounding a claim to motherhood. These commentators find that the practices that constitute motherhood do not extend to gestational surrogates. We argue that gestational surrogates should be construed as mothers of the childre...

journal_title：Bioethics

authors： Murphy TF,Parks JA

更新日期：2020-11-01 00:00:00

abstract：:In controlled human infection (CHI) studies, investigators deliberately infect healthy individuals with pathogens in order to study mechanisms of disease or obtain preliminary efficacy data on investigational vaccines and medicines. CHI studies offer a fast and cost-effective way of generating new scientific insights,...

journal_title：Bioethics

authors： Rid A,Roestenberg M

更新日期：2020-10-01 00:00:00

abstract：:In Nigeria, reproduction is highly valued, with many people desiring to produce a child 'in their own image and likeness'. Previously, aspiring parents often resorted to adoption. Today, the availability of assisted reproductive technologies (ARTs) has provided options other than adoption for those desiring to procrea...

journal_title：Bioethics

authors： Egbokhare OO,Akintola SO

更新日期：2020-07-01 00:00:00

abstract：:Intersexuality, particularly in the global South, remains an under-researched field of study. In my in-progress doctoral research project, I explore the cultural, social, and medical discourses that influence how key stakeholders such as healthcare providers make decisions about the sex and gender assignment of the in...

journal_title：Bioethics

authors： Das A

更新日期：2020-07-01 00:00:00

abstract：:Slippery slope arguments (SSAs) are used in a wide range of philosophical debates, but are often dismissed as empirically ill-founded and logically fallacious. In particular, leading authors put forward a meta-SSA which points to instances of empirically ill-founded and logically fallacious SSAs and to the alleged exi...

journal_title：Bioethics

authors： Fumagalli R

更新日期：2020-05-01 00:00:00

abstract：:In 2017 and 2019, two research teams claimed 'proof of principle' for artificial womb technology (AWT). AWT has long been a subject of speculation in bioethical literature, with broad consensus that it is a welcome development. Despite this, little attention is afforded to more immediate ethical problems in the develo...

journal_title：Bioethics

authors： Romanis EC

更新日期：2020-05-01 00:00:00

abstract：:This paper is an analysis of the limits of family authority to refuse life saving treatment for a family member (in the Chinese medical context). Family consent has long been praised and practiced in many non-Western cultural settings such as China and Japan. In contrast, the controversy of family refusal remains less...

journal_title：Bioethics

authors： Jin P,Zhang X

更新日期：2020-03-01 00:00:00

abstract：:In 2015, the Chinese pharmacologist, Tu Youyou, was awarded the Nobel Prize for Physiology or Medicine for the discovery of artemisinin. Traditional Chinese medicine (TCM) was the source of inspiration for Tu's discovery and provides an opportunity for the world to know more about TCM as a source of medical knowledge ...

journal_title：Bioethics

authors： Zheng WR,Li EC,Peng S,Wang XS

更新日期：2020-02-01 00:00:00

abstract：:Germline genome editing is often disapproved of at the international policy level because of its possible threats to human dignity. However, from a critical perspective the relationship between this emerging technology and human dignity is relatively understudied. We explore the main principles that are referred to wh...

journal_title：Bioethics

authors： Segers S,Mertes H

更新日期：2020-01-01 00:00:00

abstract：:Political communities across the world have recently sought to tackle rising rates of vaccine hesitancy and refusal, by implementing coercive immunization programs, or by making existing immunization programs more coercive. Many academics and advocates of public health have applauded these policy developments, and the...

journal_title：Bioethics

authors： Navin MC,Attwell K

更新日期：2019-11-01 00:00:00

abstract：:This article will explore whether the law should allow people with anorexia nervosa to refuse nutrition and hydration with special reference to the English decision in Re E (Medical Treatment: Anorexia). It argues that the judge in that case made the correct decision in holding that the patient, who suffered from seve...

journal_title：Bioethics

authors： Ip EC

更新日期：2019-10-01 00:00:00

abstract：:The work of a bioethicist carries distinctive responsibilities. Alongside those of any worker, there are responsibilities associated with giving guidance to practitioners, policy makers and the public. In addition, bioethicists are professionally exposed to and required to identify situations of moral trouble, and as ...

journal_title：Bioethics

authors： Scully JL

更新日期：2019-10-01 00:00:00

abstract：:Joona Räsänen has argued that pro-life arguments against the permissibility of infanticide are not persuasive, and fail to show it to be immoral. We responded to Räsänen's arguments, concluding that his critique of pro-life arguments was misplaced. Räsänen has recently replied in 'Why pro-life arguments still are not ...

journal_title：Bioethics

authors： Blackshaw BP,Rodger D

更新日期：2019-10-01 00:00:00

abstract：:Antibiotic resistance is one of the most pressing public health problems humanity faces. Research into new classes of antibiotics and new kinds of treatments - including risky experimental treatments such as phage therapy and vaccines - is an important part of improving our ability to treat infectious diseases. In ord...

journal_title：Bioethics

authors： Anomaly J,Savulescu J

更新日期：2019-09-01 00:00:00

abstract：:We explore whether a Rawlsian approach might provide a guiding philosophy for the development of a healthcare system, in particular with regard to resolving tensions between different groups within it. We argue that an approach developed from some of Rawls' principles - using his 'veil of ignorance' and both the 'diff...

journal_title：Bioethics

authors： Fritz Z,Cox C

更新日期：2019-06-01 00:00:00

abstract：:Fatness stigma is pervasive. Being fat is widely regarded a bad thing, and fat persons suffer numerous social and material disadvantages in virtue of their weight being regarded that way. Despite the seriousness of this problem, it has received relatively little attention from analytic philosophers. In this paper, I s...

journal_title：Bioethics

authors： Nath R

更新日期：2019-06-01 00:00:00

abstract：:This paper considers Habermas' model of a post-secular political order in the light of the debate on male circumcision that arose in Germany after a court ruled that male circumcision was an unjustifiable act of bodily harm. Central to this model is the idea that religious reasons can only become effective in central ...

journal_title：Bioethics

authors： Greve J

更新日期：2019-05-01 00:00:00

abstract：:Working as clinical ethicists in an academic hospital, we find that practitioners tend to take a principle-based approach to moral dilemmas when it comes to (not) treating patients who feel like a burden, in which respect for autonomy tends to trump other principles. We argue that this approach insufficiently deals wi...

journal_title：Bioethics

authors： Metselaar S,Widdershoven G

更新日期：2019-05-01 00:00:00

abstract：:This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population-level research and big data because it results in a primary focus on consent (meta-, broad, dynamic and/or specific consent). Two recent guidelines - the 2016 WMA Declaration of Taipei on...

journal_title：Bioethics

authors： Ballantyne A

更新日期：2019-03-01 00:00:00

abstract：:In democratic theory, "legitimacy" refers to the set of conditions that must be in place in order for the claims to authority of somebody to be deemed appropriate, and for their claims to compliance to be warranted. Though criteria of legitimacy have been elaborated in the context of democratic states, there is no rea...

journal_title：Bioethics

authors： Smith MJ,Weinstock D

更新日期：2019-03-01 00:00:00

abstract：:This paper explores the legal and ethical concept of human subject research in order to determine whether genetic research with already available biosamples and data falls within this concept. Although the ethical concept seems to have evolved to recognize research based on data as human research, from a supranational...

journal_title：Bioethics

authors： Pormeister K

更新日期：2019-03-01 00:00:00

abstract：:Much of the debate about the ethics of abortion has centered on whether the fetus is a person. In an attempt to sidestep this complex issue, I argue that, even if the fetus is not a person, abortion is immoral. To arrive at this conclusion, I argue that giving a fetus fetal alcohol syndrome is immoral, and that if thi...

journal_title：Bioethics

authors： Hendricks P

更新日期：2019-02-01 00:00:00

abstract：:In the end-of-life context, alleviation of the suffering of a distressed patient is usually seen as a, if not the, central goal for the medical personnel treating her. Yet it has also been argued that suffering should be seen as a part of good dying. More precisely, it has been maintained that alleviating a dying pati...

journal_title：Bioethics

authors： Varelius J

更新日期：2019-01-01 00:00:00

abstract：:Uterus transplants provide another treatment for infertility. Some might think that we should embrace such transplants as one more way to assist people to have children. However, in this paper I argue that uterus transplants are not something that we ought to fund, nor something that we should make easy to access. Fir...

journal_title：Bioethics

authors： McTernan E

更新日期：2018-10-01 00:00:00

abstract：:Within the ethics and science literature surrounding uterus transplantation (UTx), emphasis is often placed on the extent to which UTx might improve upon, or offer additional benefits when compared to, existing 'treatment options' for women with absolute uterine factor infertility, such as adoption and gestational sur...

journal_title：Bioethics

authors： Guntram L,Williams NJ

更新日期：2018-10-01 00:00:00

abstract：:In his article 'The substance view: A critique', Rob Lovering argues that the substance view -according to which a human person comes into existence at the moment of conception - leads to such implausible implications that this view should be abandoned. I responded to his reductio arguments in 'A critique of Rob Lover...

journal_title：Bioethics

authors： Friberg-Fernros H

更新日期：2018-07-01 00:00:00

abstract：:Contemporary realities of global population movement increasingly bring to the fore the challenge of quality and equitable health provision across language barriers. While this linguistic challenge is not unique to immigration contexts and is likewise shared by health systems responding to the needs of aboriginal peop...

journal_title：Bioethics

authors： Peled Y

更新日期：2018-07-01 00:00:00

abstract：:Women face extraordinary difficulty in seeking sterilization as physicians routinely deny them the procedure. Physicians defend such denials by citing the possibility of future regret, a well-studied phenomenon in women's sterilization literature. Regret is, however, a problematic emotion upon which to deny reproducti...

journal_title：Bioethics

authors： Lalonde D

更新日期：2018-06-01 00:00:00

abstract：:Cass Sunstein and Richard Thaler recommend helping people make better decisions by employing 'nudges', which they define as noncoercive methods of influencing choice for the better. Not surprisingly, healthcare practitioners and public policy professionals have become interested in whether nudges might be a promising ...

journal_title：Bioethics

authors： Noggle R

更新日期：2018-03-01 00:00:00

abstract：:This paper argues that the convention of allocating donated gametes on a 'first come, first served' basis should be replaced with an allocation system that takes into account more morally relevant criteria than waiting time. This conclusion was developed using an empirical bioethics methodology, which involved a study...

journal_title：Bioethics

authors： Jenkins S,Ives J,Avery S,Draper H

更新日期：2018-01-01 00:00:00

abstract：:Therapeutic misconception involves the failure of subjects either to understand or to incorporate into their own expectations the distinctions in nature and purpose of personally responsive therapeutic care, and the generic relationship between subject and investigator which is constrained by research protocols. Resea...

journal_title：Bioethics

authors： McConville P

更新日期：2017-11-01 00:00:00

abstract：:Current practices of identifying and treating small indolent thyroid cancers constitute an important but in some ways unusual form of overdiagnosis. Overdiagnosis refers to diagnoses that generally harm rather than benefit patients, primarily because the diagnosed condition is not a harmful form of disease. Patients w...

journal_title：Bioethics

authors： Rogers WA,Craig WL,Entwistle VA

更新日期：2017-10-01 00:00:00

abstract：:I argue that appeals to conscience do not constitute reasons for granting healthcare professionals exemptions from providing services they consider immoral (e.g. abortion). My argument is based on a comparison between a type of objection that many people think should be granted, i.e. to abortion, and one that most peo...

journal_title：Bioethics

authors： Giubilini A

更新日期：2017-06-01 00:00:00

abstract：:Erik Malmqvist defends the prohibition on kidney sales as a justifiable measure to protect individuals from harms they have not autonomously chosen. This appeal to 'group soft paternalism' requires that three conditions be met. It must be shown that some vendors will be harmed, that some will be subject to undue press...

journal_title：Bioethics

authors： Semrau L

更新日期：2017-03-01 00:00:00

abstract：:This article reports on qualitative research conducted in KwaZulu-Natal, South Africa, among researchers and gate-keepers of health facilities in the province. Results suggest disparate but not irreconcilable perceptions of the social value of research in provincial health facilities. This study found that researchers...

journal_title：Bioethics

authors： Lutge E,Slack C,Wassenaar D

更新日期：2017-02-01 00:00:00

abstract：:In our previous article on the question whether heroin addicts are able to give informed consent voluntarily to research on heroin-assisted treatment, we criticized the ongoing bioethical discussion of a flawed conceptualization of heroin addicts' options. As a participant in this discussion, Edmund Henden defends the...

journal_title：Bioethics

authors： Uusitalo S,Broers B

更新日期：2016-11-01 00:00:00