The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder.

Abstract:

:The current study investigated the lived experience of 12 parents of children with an Autism Spectrum Disorder in everyday cultural contexts in Goa, India. Narratives from parents collected between 2009 and 2010 were analyzed using the procedures of phenomenological psychology. Four temporal phases of parents' experience emerged from these data. Findings showed that the earliest phase of the child's life was a period of relative normalcy and social cohesion. In the second phase, the child's behaviors began to disrupt the everyday social order, but parents viewed these unexpected behaviors as temporary. In the third phase, parents' observations in public situations, along with assessments of others, led to a qualitative shift in which parents began to perceive that there was a persisting problem interfering with their child's social and practical activities. In the fourth phase, parents grappled with developing their child's capacities to meet existing practical opportunities in the local society, while attempting to reshape the social world to accommodate the abilities and limits of children like their own. Parents' fundamental concerns throughout their journey were: learning to meet new and unfamiliar challenges as parents, caring for their child's basic needs, and finding an engaging niche with a sense of belonging for their child in the everyday milieu. Both culture-specific and potentially universal levels of experience are delineated in the overall findings. Implications for culturally sensitive research and practice in India and other low- and middle-income countries are discussed.

journal_name

Transcult Psychiatry

journal_title

Transcultural psychiatry

authors

Desai MU,Divan G,Wertz FJ,Patel V

doi

10.1177/1363461512447139

subject

Has Abstract

pub_date

2012-07-01 00:00:00

pages

613-37

issue

3-4

eissn

1363-4615

issn

1461-7471

pii

1363461512447139

journal_volume

49

pub_type

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