Errors in recognition and management are still frequent in patients with cluster headache.

Abstract:

OBJECTIVES:To analyze the trajectory to diagnosis and information provided in a series of cluster headache (CH) patients from five headache clinics. METHODS:CH patients were asked to fill in an ad hoc questionnaire. RESULTS:Seventy-five patients (mean age 41.5 years, 67 males) completed the questionnaire. Patients had visited during an average of 4.9 years a mean of 4.6 physicians who had obtained 2.5 neuroimaging procedures per patient before getting a diagnosis of CH. Sixty-three (84%) had received no diagnosis (21 cases; 28%), while 43 (57%) had been given an average of 2.1 alternative diagnoses. Migraine, trigeminal neuralgia and sinusitis were the most frequent mistakes. After diagnosis, 55% had subjectively received poor/very poor information on CH. Ninety-five percent had poor or incorrect information about the nature of the disease, or acute (70%) and preventive (61%) treatments. Etiology (90%), management options (36%) and potential adverse events of medications (29%) were their main information demands. CONCLUSIONS:Although CH is an invalidating and clinically clear-cut disorder suffered by around 1/1,000 people, it is still frequently unrecognized and/or mistaken for other disorders, which calls for a better knowledge and education in the diagnosis of the main primary headaches.

journal_name

Eur Neurol

journal_title

European neurology

authors

Sánchez Del Rio M,Leira R,Pozo-Rosich P,Laínez JM,Alvarez R,Pascual J

doi

10.1159/000362517

subject

Has Abstract

pub_date

2014-01-01 00:00:00

pages

209-12

issue

3-4

eissn

0014-3022

issn

1421-9913

pii

000362517

journal_volume

72

pub_type

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