Abstract:
PURPOSE:Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. METHODS:A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. RESULTS:Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. CONCLUSION:The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.
journal_name
BMC Ophthalmoljournal_title
BMC ophthalmologyauthors
Stolk-Vos AC,Kasigar H,Nijmeijer KJ,Missotten TO,Busschbach JJ,van de Klundert JJ,Kranenburg LWdoi
10.1186/s12886-020-01388-ysubject
Has Abstractpub_date
2020-03-30 00:00:00pages
125issue
1issn
1471-2415pii
10.1186/s12886-020-01388-yjournal_volume
20pub_type
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journal_title:BMC ophthalmology
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