Abstract:
:The aim of this study was to evaluate the likelihood, correlates, and psychological impact of parental communication to children of parents' BRCA1/2 genetic test results for breast cancer risk. Subjects were 133 adult members of high risk families. Sociodemographic, clinical, and psychological distress variables were assessed during a baseline telephone interview conducted prior to patient education and test result notification. Parental communication of test results to children and parental psychological distress and coping efforts were assessed 1 month post-genetic counseling and receipt of test results. Mothers (versus fathers), and persons with higher levels of baseline general distress, were significantly more likely to communicate their test results to children. Post-counseling coping efforts, both active and avoidant, were positively associated with post-counseling distress levels. However, communication of test results to children did not relate to changes in distress. In conclusion, parents with higher levels of pre-counseling general psychological distress may be more likely to communicate their genetic test results to children; however, this act does not minimize their distress and could possibly generate distress in their youngsters. Research is needed to evaluate the process and content of post-test disclosure episodes and the impact on participant, child, and family functioning.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Tercyak KP,Hughes C,Main D,Snyder C,Lynch JF,Lynch HT,Lerman Cdoi
10.1016/s0738-3991(00)00122-1subject
Has Abstractpub_date
2001-03-01 00:00:00pages
213-24issue
3eissn
0738-3991issn
1873-5134pii
S0738-3991(00)00122-1journal_volume
42pub_type
杂志文章abstract::This issue of Patient Education and Counseling presents the state of the art of patient education in several European countries. It is based on papers presented at a meeting in Paris on the evolution and development of patient education in western, central and eastern Europe (May 1999). Also patient education in the U...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(01)00111-2
更新日期:2001-07-01 00:00:00
abstract:OBJECTIVE:The aim of this study was to offer a comparative analysis of informal interpreters during medical consultations with both good and poor mutual understanding between general practitioners (GPs) and patients. METHODS:Sixteen video-registered medical interviews of Turkish immigrant patients were analysed. Stret...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.10.005
更新日期:2010-11-01 00:00:00
abstract:OBJECTIVE:Verbal and non-verbal behaviors, which are known as "relational contextualization cues", relay information about relationships and how they are structured. We developed a computer-simulated provider conducting an informed consent process for clinical research to investigate the effects of a provider's alignme...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.03.017
更新日期:2017-09-01 00:00:00
abstract:OBJECTIVE:Advances in health care require that individuals participate knowledgeably and actively in their health care to realize its full benefit. Implications of these changes for the behavior of individuals and for the practice of patient education are described. METHODS:An "engagement behavior framework" (EBF) was...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2010.02.002
更新日期:2010-03-01 00:00:00
abstract:OBJECTIVES:To investigate nursing staff attitudes towards involvement and role in end-of-life decisions (ELDs) and the relationships with sociodemographic and work-related characteristics. METHODS:Survey study among nationally representative Dutch research sample consisting of care professionals. Nursing staff working...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2013.09.018
更新日期:2014-01-01 00:00:00
abstract:OBJECTIVE:To investigate whether the Verona Coding Definitions of Emotional Sequences to code health providers' responses (VR-CoDES-P) can be used for assessment of medical students' responses to patients' cues and concerns provided in written case vignettes. METHODS:Student responses in direct speech to patient cues ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.08.026
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:Because quality health care delivery requires effective clinician-patient communication, successful training of health professionals requires communication skill curricula of the highest quality. Two approaches for developing medical communication curricula are a consensus approach and a theory driven approac...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.06.012
更新日期:2013-10-01 00:00:00
abstract:OBJECTIVE:We describe and compare the perceptions of professional and family member interpreters concerning their roles and tasks as interpreters in primary care clinical encounters. METHODS:Encounters between physicians (19) and patients (24) accompanied by a professional (6) or a family (9) interpreter were videotap...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.09.015
更新日期:2008-01-01 00:00:00
abstract:UNLABELLED:Few studies have investigated the views of health professionals with respect to their use of chronic disease self-management (CDSM) in the workplace. OBJECTIVE:This qualitative study, conducted in an Australian health care setting, examined health professional's formal self-management (SM) training and thei...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.07.036
更新日期:2010-04-01 00:00:00
abstract:OBJECTIVE:This study examined the impact of motivational interviewing (MI) counseling time on self-efficacy to practice safer sex for people living with HIV/AIDS (PLWHA). METHODS:In 4 month intervals we followed a cohort of 490 PLWHA for 12 months. We conducted hierarchical linear regression models to examine changes ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.07.021
更新日期:2012-04-01 00:00:00
abstract:OBJECTIVES:This study aimed to investigate patients' willingness to initiate a preventive treatment and compared two established effect measures to the newly developed Delay of Events (DoE) measure that expresses treatment effect as a gain in event-free time. METHODS:In this cross-sectional, randomized survey experime...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2016.07.028
更新日期:2016-12-01 00:00:00
abstract:OBJECTIVE:This study examines (a) providers' and interpreters' perception of their competition in controlling the content and process of provider-patient interactions, and (b) the challenges to providers' and interpreters' collaboration in bilingual health care. METHODS:I recruited 26 professional medical interpreters...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.02.017
更新日期:2010-02-01 00:00:00
abstract:OBJECTIVE:This study investigated whether doctors' attire influences the perception of empathy in the patient-doctor relationship during a therapeutic encounter. METHODS:A total number of 143 patients were divided into four groups when they were consulting a Traditional Korean Medicine doctor. Depending on the group, ...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2012.02.017
更新日期:2012-12-01 00:00:00
abstract:OBJECTIVE:This article explores the effect of conflicting information, defined as contradictory information about medication topics from different sources, on medication adherence in a sample of chronically ill patients. We specifically investigate whether conflicting information and physician support directly affect m...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.11.006
更新日期:2010-11-01 00:00:00
abstract:OBJECTIVE:To examine which counseling behavior among GPs can be achieved after counseling training when organizational support is provided. METHODS:A random sample of 39 general practices was drawn, 34 took part. GPs received a pre-study assessment followed by a training session for smoking counseling. All patients sh...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2005.11.005
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:Appropriate palliative care communication is pivotal to optimizing the quality of life in dying patients and their families. This review aims at describing communication patterns in palliative care and discussing potential relations between communication patterns and upcoming telecare in the practice of palli...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2013.07.002
更新日期:2013-12-01 00:00:00
abstract::The Division of Therapeutic Education for Chronic Diseases at the University Hospital of Geneva has been playing an important role in the field of therapeutic patient education for more than 25 years. More than 16,000 patients have been hospitalised and an excess of 75,000 h have been spent with a rather novel interdi...
journal_title:Patient education and counseling
pub_type: 历史文章,杂志文章
doi:10.1016/s0738-3991(01)00105-7
更新日期:2001-07-01 00:00:00
abstract::Shared decision-making is considered an important ideal for physician-patient interaction. The ideal states that health-related values should be discussed together. It raises two questions: (a) for which decisions is the ideal of shared decision-making relevant? (b) Which aspects of treatment should be discussed? The ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00093-2
更新日期:2000-01-01 00:00:00
abstract::Although recent work has encouraged doctors to express their uncertainty to patients as a means to improve communication the potential impact of this on patients remains unclear. The present study first explored the impact of the way in which uncertainty was expressed (behaviourally versus verbally) on doctor's and pa...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(02)00020-4
更新日期:2002-01-01 00:00:00
abstract:OBJECTIVE:1) to assess patients' descriptions of concerns, and 2) to inform a conceptual framework in which the impact of the nature of concerns on doctor-patient communication is specified. METHODS:Six focus groups were conducted with 39 cancer patients and survivors. In these focus groups participants were asked to ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.02.002
更新日期:2017-05-01 00:00:00
abstract:OBJECTIVE:The purpose of this article is to clarify the concept of empowerment and to correct common misconceptions about its use in diabetes care and education. METHODS:The patient empowerment approach is well suited to helping patients make self-selected changes related to weight, nutrition, and physical activity. A...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2009.07.025
更新日期:2010-06-01 00:00:00
abstract:OBJECTIVES:to examine the relationship between literacy and asthma management with a focus on the oral exchange. METHODS:study participants, all of whom reported asthma, were drawn from the New England Family Study (NEFS), an examination of links between education and health. NEFS data included reading, oral (speaking...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.02.023
更新日期:2011-01-01 00:00:00
abstract:OBJECTIVE:To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. METHODS:The sample (n=50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both th...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2006.06.002
更新日期:2007-01-01 00:00:00
abstract::The objective of the study was to validate the model of empathic opportunity (EO) and potential empathic opportunity (PEO) using the Roter Interaction Analysis System (RIAS) in a sample of cancer patients. Thirty-nine audio taped consultations at an outpatient oncology clinic performed by four oncologists were previou...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.09.006
更新日期:2004-09-01 00:00:00
abstract::The overall aim was to gain insight into and understand how physicians and nurses view the implementation of empowerment group education (EGE) in diabetes. Prior to the study the physicians and nurses attended a 2-day empowerment workshop. Further, they had implemented the empowerment approach in two groups of patient...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2003.07.009
更新日期:2004-06-01 00:00:00
abstract:OBJECTIVE:To evaluate existing measures of health numeracy using item response theory (IRT). METHODS:A cross-sectional study was conducted. Participants completed assessments of health numeracy measures including the Lipkus expanded health numeracy scale (Lipkus), and the Medical Data Interpretation Test (MDIT). The L...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.03.035
更新日期:2009-06-01 00:00:00
abstract:OBJECTIVE:Primary care providers (PCPs) are encouraged to counsel their obese patients about weight loss. We used focus groups to explore how PCPs communicate with patients about weight management. METHODS:During the summer of 2010, we conducted five focus groups of community-based PCPs who had patients enrolled in a ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.06.033
更新日期:2012-10-01 00:00:00
abstract::In this qualitative study stroke patients rehabilitating in nursing homes experienced an increase in their autonomy (particularly in self-determination, independence and self-care) in the last weeks before discharge. The change in autonomy was found to be related to regained abilities and self-confidence, and to patie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00113-5
更新日期:2000-10-01 00:00:00
abstract:OBJECTIVE:To evaluate the effectiveness of three different training protocols on physical function of older adults living in long-term care facilities. Emphasis was placed on feasibility in real-life situations. METHODS:Subjects (N=224) were randomised to 6 months of twice weekly (1) resistance training; (2) all-round...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1016/j.pec.2005.10.008
更新日期:2006-10-01 00:00:00
abstract:OBJECTIVE:General practitioner (GP) registrars often express the need for more expertise of non-pharmacological treatments for patients with mental health problems. Problem-solving treatment (PST) could be an attractive option. We aimed to explore GP registrars' views on PST-training during residency and on the actual ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.07.045
更新日期:2011-10-01 00:00:00