Services given and help perceived during home care for terminal cancer.

abstract：BACKGROUND:The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. AIM:To establish, test and manag...

journal_title：Palliative medicine

authors： Lundström S,Axelsson B,Heedman PA,Fransson G,Fürst CJ

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:As end-of-life (EoL) care expands across Europe and the world, service developments are increasingly studied. The sociocultural context in which such changes take place, however, is often neglected in research. AIM:To explore sociocultural factors in EoL care in Belgium as represented by the literature. DE...

journal_title：Palliative medicine

authors： Andrew EV,Cohen J,Evans N,Meñaca A,Harding R,Higginson I,Pool R,Gysels M,PRISMA.

更新日期：2013-02-01 00:00:00

abstract：BACKGROUND:Patients with advanced cancer often have to make difficult decisions, such as how much to spend on moderately life-extending treatments. This and other end-of-life decisions are also influenced by their informal caregivers. Understanding the relative value that patients and their caregivers place on various ...

journal_title：Palliative medicine

authors： Malhotra C,Farooqui MA,Kanesvaran R,Bilger M,Finkelstein E

更新日期：2015-10-01 00:00:00

abstract：BACKGROUND:The Gold Standards Framework (GSF) was developed to improve the delivery of palliative care in general practice. AIM:The aim of the study was to evaluate the first phase of GSF in terms of its acceptability to primary care teams, effectiveness in changing practice and professionals' views on the consequence...

journal_title：Palliative medicine

authors： Thomas K,Noble B

更新日期：2007-01-01 00:00:00

abstract：BACKGROUND:Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. AIM:This study aimed to translate, ...

journal_title：Palliative medicine

authors： Henriksson A,Andershed B,Benzein E,Arestedt K

更新日期：2012-10-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：:Vaccum assisted closure (VAC) therapy is a novel method of wound healing using topical negative pressure across the wound bed and containing all exudate within a sealed system. We report the use of VAC therapy to control pain and exudate of a malignant wound. ...

journal_title：Palliative medicine

authors： Ford-Dunn S

更新日期：2006-06-01 00:00:00

abstract：:The question of whether a coherent tradition in research and research methods (or paradigm) exists in palliative care is explored in this paper through an examination of the discussion and debate surrounding palliative care; attempts at achieving consensus for research through priority setting exercises; and a critica...

journal_title：Palliative medicine

authors： Corner J

更新日期：1996-07-01 00:00:00

abstract：:The most commonly encountered clinical conditions presenting with cognitive failure (CF) are delirium, dementia and amnestic disorders. Of these, delirium is probably the most prevalent in palliative care, and it is potentially reversible. Thus, improvement in diagnostics seems warranted. The objectives of this review...

journal_title：Palliative medicine

authors： Hjermstad M,Loge JH,Kaasa S

更新日期：2004-09-01 00:00:00

abstract：:Medical training teaches physicians to sit when breaking bad news, though there have been no controlled studies to support this advice. We aimed to establish cancer patients' preference for physician posture when physicians break bad news using a randomized controlled crossover trial in a department of palliative care...

journal_title：Palliative medicine

authors： Bruera E,Palmer JL,Pace E,Zhang K,Willey J,Strasser F,Bennett MI

更新日期：2007-09-01 00:00:00

abstract：BACKGROUND:Burn units are intensive care facilities specialized in the treatment of patients with severe burns. As burn injuries have a major impact in physical, psychosocial, and spiritual health, palliative care can be a strengthening component of integrated care. AIM:To review and appraise the existing evidence abo...

journal_title：Palliative medicine

authors： Ribeiro AF,Martins Pereira S,Gomes B,Nunes R

更新日期：2019-12-01 00:00:00

abstract：:The Association for Palliative Medicine (APM) produced a previous undergraduate palliative medicine syllabus in 1992. This study describes the process of developing the new APM consensus syllabus against the background of changes in medical education and palliative medicine since 1992. The syllabus was derived by mean...

journal_title：Palliative medicine

authors： Paes P,Wee B

更新日期：2008-06-01 00:00:00

abstract：BACKGROUND:The Delirium Observation Screening Scale (DOS) is designed to detect delirium by nurses' observations and has shown good psychometric properties. Its use in palliative care unit patients has not been studied. AIM:To determine diagnostic and concurrent validity, internal consistency, and user-friendliness of...

journal_title：Palliative medicine

authors： Detroyer E,Clement PM,Baeten N,Pennemans M,Decruyenaere M,Vandenberghe J,Menten J,Joosten E,Milisen K

更新日期：2014-01-01 00:00:00

abstract：BACKGROUND:A systematic review, undertaken according to an initiative to revise European Association for Palliative Care guidelines on the use of opioids for cancer pain, which aimed to analyse analgesic efficacy and side effects of spinal opioids in adult cancer patients previously treated with systemic opioids. METH...

journal_title：Palliative medicine

authors： Kurita GP,Kaasa S,Sjøgren P,European Palliative Care Research Collaborative (EPCRC).

更新日期：2011-07-01 00:00:00

abstract：BACKGROUND:Hospital is the most common place of cancer death but concerns regarding the quality of end-of-life care remain. AIM:Preliminary assessment of the effectiveness of the Liverpool Care Pathway on the quality of end-of-life care provided to adult cancer patients during their last week of life in hospital. DES...

journal_title：Palliative medicine

authors： Costantini M,Pellegrini F,Di Leo S,Beccaro M,Rossi C,Flego G,Romoli V,Giannotti M,Morone P,Ivaldi GP,Cavallo L,Fusco F,Higginson IJ

更新日期：2014-01-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Depressive disorders are common among cancer patients. Ketamine can quickly relieve depression, and its subcutaneous administration appears to be as effective as and probably safer than its standard intravenous administration. Herein, we report a case verifying the antidepressant effect of a subcutaneous esk...

journal_title：Palliative medicine

authors： Barbosa MG,Delfino RS,Sarin LM,Jackowski AP

更新日期：2020-06-01 00:00:00

abstract：BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

journal_title：Palliative medicine

authors： Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS:To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify...

journal_title：Palliative medicine

authors： Dzingina MD,Reilly CC,Bausewein C,Jolley CJ,Moxham J,McCrone P,Higginson IJ,Yi D

更新日期：2017-04-01 00:00:00

abstract：:This is a review of tools that have been developed to assess pain in children, with a brief evaluation of their practicality and validity. There are some suggestions for the direction of future research in the development and use of the scales. ...

journal_title：Palliative medicine

authors： Hain RD

更新日期：1997-09-01 00:00:00

abstract：BACKGROUND:Death with dignity has been identified as important both to patients and their surviving family. While research results have been published on what patients themselves believe may affect the dignity of their deaths, little is known about what family caregivers consider to be a dignified death. AIM:(1) To as...

journal_title：Palliative medicine

authors： van Gennip IE,Pasman HR,Kaspers PJ,Oosterveld-Vlug MG,Willems DL,Deeg DJ,Onwuteaka-Philipsen BD

更新日期：2013-07-01 00:00:00

abstract：:A system of 12-hour nursing shifts was adopted at a newly-opened independent hospice. This paper presents the results from an exploratory, descriptive study in which nursing staff reported perceived advantages, disadvantages and satisfaction with the 12-hour shift system. A small sample (n = 11) of both qualified and ...

journal_title：Palliative medicine

authors： Hodgson LA

更新日期：1995-04-01 00:00:00

abstract：OBJECTIVES:To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. DATA SOURCES:Seven electronic databases were searched for the period January 1994--November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metal...

journal_title：Palliative medicine

authors： Docherty A,Owens A,Asadi-Lari M,Petchey R,Williams J,Carter YH

更新日期：2008-03-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a ke...

journal_title：Palliative medicine

authors： Collier A,Morgan DD,Swetenham K,To TH,Currow DC,Tieman JJ

更新日期：2016-04-01 00:00:00

abstract：BACKGROUND:This case report describes an end-stage cancer patient with intractable neuropathic pain and delirium who was successfully managed during the last 3 weeks of her life with a continuous subcutaneous infusion of dexmedetomidine. CASE PRESENTATION:A 55-year-old woman with locally advanced cervical cancer and u...

journal_title：Palliative medicine

authors： Hilliard N,Brown S,Mitchinson S

更新日期：2015-03-01 00:00:00

abstract：:As part of a large multicentre study on palliative care units in Italy, carried out between 1 January and 30 June 1995, we describe the place, circumstances and 'quality of death' of patients admitted to home palliative care. Data presented refer to 401 patients (67% of the 601 patients randomly selected for evaluatio...

journal_title：Palliative medicine

authors： Peruselli C,Di Giulio P,Toscani F,Gallucci M,Brunelli C,Costantini M,Tamburini M,Paci E,Miccinesi G,Addington-Hall JM,Higginson IJ

更新日期：1999-05-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：:Using a decision-making and treatment checklist developed to facilitate the at-home palliative sedation process, we assessed the incidence and efficacy of palliative sedation for end-of-life cancer patients with intractable symptoms who died at home. We retrospectively reviewed the medical records of 370 patients who ...

journal_title：Palliative medicine

authors： Alonso-Babarro A,Varela-Cerdeira M,Torres-Vigil I,Rodríguez-Barrientos R,Bruera E

更新日期：2010-07-01 00:00:00