Comparison of preferences for end-of-life care among patients with advanced cancer and their caregivers: A discrete choice experiment.

abstract：:Breakthrough pain (BKP) is a transitory flare of pain that occurs on a background of relatively well controlled baseline pain. Previous surveys have found that BKP is highly prevalent among patients with cancer pain and predicts more severe pain, pain-related distress and functional impairment, and relatively poor qua...

journal_title：Palliative medicine

authors： Caraceni A,Martini C,Zecca E,Portenoy RK,Ashby MA,Hawson G,Jackson KA,Lickiss N,Muirden N,Pisasale M,Moulin D,Schulz VN,Rico Pazo MA,Serrano JA,Andersen H,Henriksen HT,Mejholm I,Sjogren P,Heiskanen T,Kalso E,Pere

更新日期：2004-04-01 00:00:00

abstract：BACKGROUND:The Palliative Care Problem Severity Score is a clinician-rated tool to assess problem severity in four palliative care domains (pain, other symptoms, psychological/spiritual, family/carer problems) using a 4-point categorical scale (absent, mild, moderate, severe). AIM:To test the reliability and acceptabi...

journal_title：Palliative medicine

authors： Masso M,Allingham SF,Johnson CE,Pidgeon T,Yates P,Currow D,Eagar K

更新日期：2016-05-01 00:00:00

abstract：BACKGROUND:The Gold Standards Framework (GSF) was developed to improve the delivery of palliative care in general practice. AIM:The aim of the study was to evaluate the first phase of GSF in terms of its acceptability to primary care teams, effectiveness in changing practice and professionals' views on the consequence...

journal_title：Palliative medicine

authors： Thomas K,Noble B

更新日期：2007-01-01 00:00:00

abstract：BACKGROUND:Hospitalizations in patients with metastatic cancer occur commonly at the end of life but have not been well-described in individuals with metastatic breast cancer. AIM:To describe the reasons for admission and frequency of palliative care and hospice utilization in hospitalized patients with metastatic bre...

journal_title：Palliative medicine

authors： Shin JA,Parkes A,El-Jawahri A,Traeger L,Knight H,Gallagher ER,Temel JS

更新日期：2016-10-01 00:00:00

abstract：:Increasing emphasis is being placed on the need for advanced care planning (ACP) at the end of life. The Preferred Priorities for Care (PPC) document is a patient-held record promoted by the End of Life Care Strategy as an ACP tool to promote discussion and communication amongst patients, family and health care provid...

journal_title：Palliative medicine

authors： Preston H,Fineberg IC,Callagher P,Mitchell DJ

更新日期：2012-03-01 00:00:00

abstract：BACKGROUND:Hospital is the most common place of cancer death but concerns regarding the quality of end-of-life care remain. AIM:Preliminary assessment of the effectiveness of the Liverpool Care Pathway on the quality of end-of-life care provided to adult cancer patients during their last week of life in hospital. DES...

journal_title：Palliative medicine

authors： Costantini M,Pellegrini F,Di Leo S,Beccaro M,Rossi C,Flego G,Romoli V,Giannotti M,Morone P,Ivaldi GP,Cavallo L,Fusco F,Higginson IJ

更新日期：2014-01-01 00:00:00

abstract：:Cyclizine is an antihistamine, which is frequently used to manage nausea and vomiting in cancer patients. Antihistamines can be drugs of misuse/abuse, and the article describes four cancer patients who developed such problems after receiving parenteral cyclizine within the inpatient unit of a cancer centre. The articl...

journal_title：Palliative medicine

authors： Bailey F,Davies A

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. AIM:To evaluate perceived psychological support in relation to end-of...

journal_title：Palliative medicine

authors： Dombrecht L,Cohen J,Cools F,Deliens L,Goossens L,Naulaers G,Beernaert K,Chambaere K,NICU consortium.

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:the right for patients of all diagnoses to be in receipt of palliative care from an early point in the diagnosis of a life-limiting condition is now enshrined in policy in a number of countries and increased emphasis is placed upon the role of generalist palliative care. However, little is known as to how th...

journal_title：Palliative medicine

authors： Gott M,Seymour J,Ingleton C,Gardiner C,Bellamy G

更新日期：2012-04-01 00:00:00

abstract：:This study looked at the efficacy of drug treatment in managing death rattle in a 30-bedded specialist palliative care unit. The study was conducted in two phases. In the first, patients received hyoscine hydrobromide as the antimuscarinic; glycopyrrolate was used in the second phase. The patients in the two phases we...

journal_title：Palliative medicine

authors： Back IN,Jenkins K,Blower A,Beckhelling J

更新日期：2001-07-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：:This paper reviews a number of studies relating to religion and coping with chronic illness, emphasizing those aspects relevant to palliative care. After pointing out that religious and existential needs are common in chronic illness, a critical examination is made of those studies which purport to demonstrate associa...

journal_title：Palliative medicine

authors： Dein S,Stygall J

更新日期：1997-07-01 00:00:00

abstract：:The frequency of the use of laxatives, and the relationship between doses of laxatives and of opioid analgesia, were determined by a prospective study of 498 hospice inpatients with advanced cancer. Laxatives were required by 87% of patients taking oral strong opioids, 74% of those on weak opioids and 64% of those not...

journal_title：Palliative medicine

authors： Sykes NP

更新日期：1998-09-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Depressive disorders are common among cancer patients. Ketamine can quickly relieve depression, and its subcutaneous administration appears to be as effective as and probably safer than its standard intravenous administration. Herein, we report a case verifying the antidepressant effect of a subcutaneous esk...

journal_title：Palliative medicine

authors： Barbosa MG,Delfino RS,Sarin LM,Jackowski AP

更新日期：2020-06-01 00:00:00

abstract：BACKGROUND:Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. AIM:To identify the elements that nursing home residents' family carers perceive as good end-of-life care and develop a conceptual mod...

journal_title：Palliative medicine

authors： Gonella S,Basso I,De Marinis MG,Campagna S,Di Giulio P

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：:Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised co...

journal_title：Palliative medicine

authors： Agar M,Currow DC,Shelby-James TM,Plummer J,Sanderson C,Abernethy AP

更新日期：2008-10-01 00:00:00

abstract：:This retrospective study examined the influence of a hospital palliative care team on the activity of a local hospice home care team over a four-year period from May 1989 to April 1993 in East Leeds. The increasing referral to death interval observed in home care patients over this period appears to be due to the pres...

journal_title：Palliative medicine

authors： Bennett M,Corcoran G

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:No systematic meta-analysis is available on the prevalence of cancer patients' accurate prognostic awareness and differences in accurate prognostic awareness by publication year, region, assessment method, and service received. AIM:To examine the prevalence of advanced/terminal cancer patients' accurate pro...

journal_title：Palliative medicine

authors： Chen CH,Kuo SC,Tang ST

更新日期：2017-05-01 00:00:00

abstract：:Although anecdotal reports suggest nebulized lignocaine may help breathlessness in patients with cancer this has not been examined formally. We report a pilot study comparing nebulized lignocaine 100 mg and 200 mg with saline in six patients with cancer who were breathless at rest. Nebulized lignocaine was well tolera...

journal_title：Palliative medicine

authors： Wilcock A,Corcoran R,Tattersfield AE

更新日期：1994-01-01 00:00:00

abstract：:Restructuring health care in Canada has emphasized the provision of ambulatory and home-based palliative care. Acquiring economic evidence is critical given this trend and its tremendous demands on family caregivers. The purposes of this study were: 1) to comprehensively assess the societal costs of home-based palliat...

journal_title：Palliative medicine

authors： Guerriere DN,Zagorski B,Fassbender K,Masucci L,Librach L,Coyte PC

更新日期：2010-07-01 00:00:00

abstract：:The history and development of an extra care sheltered housing complex, specifically designed and built for frail, ambulant, cancer patients is reviewed. Consideration is given to diagnosis, length of stay, place of death, family and social background. Problems are highlighted and the need for future research is discu...

journal_title：Palliative medicine

authors： Sherry KL

更新日期：1995-07-01 00:00:00

abstract：:Fifty junior residents completed a six-month training period. An anonymous postal questionnaire was sent to collect the residents' opinions on improvements in their knowledge, perception of priorities and usefulness of training. Responses were rated from 5 (a great deal) to 1 (not at all improved). A total of 33 (66%)...

journal_title：Palliative medicine

authors： Duong PH,Zulian GB

更新日期：2006-07-01 00:00:00

abstract：:The purpose of this study was to compare patient and proxy (physician and nurse) assessments of symptoms in advanced cancer patients. The sample consisted of 49 patients with advanced cancer admitted to an acute palliative care unit. Three independent assessments were completed for each patient on two occasions within...

journal_title：Palliative medicine

authors： Nekolaichuk CL,Bruera E,Spachynski K,MacEachern T,Hanson J,Maguire TO

更新日期：1999-07-01 00:00:00

abstract：BACKGROUND:The majority of children and young people who die in the United Kingdom have pre-existing life-limiting illness. Currently, most such deaths occur in hospital, most frequently within the intensive care environment. AIM:To explore the experiences of senior medical and nursing staff regarding the challenges a...

journal_title：Palliative medicine

authors： Mitchell S,Dale J

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Early palliative care improves quality of life during life-prolonging treatment for patients with cancer, but the role of nurses in facilitating the early involvement of palliative care is unclear. AIM:To conceptualize the psychosocial processes involved in the introduction and provision of palliative care ...

journal_title：Palliative medicine

authors： Mohammed S,Savage P,Kevork N,Swami N,Rodin G,Zimmermann C

更新日期：2020-02-01 00:00:00

abstract：BACKGROUND:A systematic review, undertaken according to an initiative to revise European Association for Palliative Care guidelines on the use of opioids for cancer pain, which aimed to analyse analgesic efficacy and side effects of spinal opioids in adult cancer patients previously treated with systemic opioids. METH...

journal_title：Palliative medicine

authors： Kurita GP,Kaasa S,Sjøgren P,European Palliative Care Research Collaborative (EPCRC).

更新日期：2011-07-01 00:00:00

abstract：:This paper presents a qualitative study exploring the meaning of 'dignity' to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multi...

journal_title：Palliative medicine

authors： Enes SP

更新日期：2003-04-01 00:00:00