Cost variations in ambulatory and home-based palliative care.

abstract：BACKGROUND:We developed a new single point of access to integrated palliative care, respiratory medicine and physiotherapy: the breathlessness support service for patients with advanced disease and refractory breathlessness. This study aimed to describe patients' experiences of the service and identify the aspects valu...

journal_title：Palliative medicine

authors： Reilly CC,Bausewein C,Pannell C,Moxham J,Jolley CJ,Higginson IJ

更新日期：2016-03-01 00:00:00

abstract：:The history and development of an extra care sheltered housing complex, specifically designed and built for frail, ambulant, cancer patients is reviewed. Consideration is given to diagnosis, length of stay, place of death, family and social background. Problems are highlighted and the need for future research is discu...

journal_title：Palliative medicine

authors： Sherry KL

更新日期：1995-07-01 00:00:00

abstract：:Progressive multifocal leukoencephalopathy (PML) is a rare but usually fatal demyelinating disease of the central nervous system in patients who are immunocompromised. It is characterized by rapid neurological deterioration associated with progressive white matter changes on imaging and is confirmed by isolation of th...

journal_title：Palliative medicine

authors： Cotton PJ,Le B

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:Terminal illness not only causes physical suffering but also spiritual distress. Spiritual care has been widely implemented by healthcare professionals to assist patients coping with spiritual distress. However, the effects of spiritual care need to be clear. AIM:To evaluate the effects of spiritual care on...

journal_title：Palliative medicine

authors： Chen J,Lin Y,Yan J,Wu Y,Hu R

更新日期：2018-07-01 00:00:00

abstract：:Fifty junior residents completed a six-month training period. An anonymous postal questionnaire was sent to collect the residents' opinions on improvements in their knowledge, perception of priorities and usefulness of training. Responses were rated from 5 (a great deal) to 1 (not at all improved). A total of 33 (66%)...

journal_title：Palliative medicine

authors： Duong PH,Zulian GB

更新日期：2006-07-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：:This paper describes the development and content of palliative care residential workshops for general practitioner/district nurse pairs from the same practice. Pre- and post-testing self-rating scales were completed by the participants of five workshops. A retrospective questionnaire identified perceived effects on pr...

journal_title：Palliative medicine

authors： Nash A,Hoy A

更新日期：1993-01-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：:We determined the relationship between symptom severity and distress for multiple cancer symptoms, and examined patient demographic influences on severity and distress in advanced cancer. A Cochran-Armitage trend test determined whether symptom distress increased with severity. Chi-square, Fisher's exact test and logi...

journal_title：Palliative medicine

authors： Kirkova J,Walsh D,Rybicki L,Davis MP,Aktas A,Tao Jin,Homsi J

更新日期：2010-04-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：BACKGROUND:Legacy has been invoked as a means for strengthening human attachments, continuing bonds, and ensuring that individuals will be remembered; however, little is known about the spectrum of approaches to, outcomes associated with, and best practices for legacy interventions. AIM:To systematically review resear...

journal_title：Palliative medicine

authors： Boles JC,Jones MT

更新日期：2021-01-25 00:00:00

abstract：:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

journal_title：Palliative medicine

authors： Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

更新日期：2010-10-01 00:00:00

abstract：:Despite the lack of clear benefits of feeding via gastrostomy tube in dementia patients, its use has been increasing. The views of health professionals, patients and their carers differ widely about the perceived benefits, which makes decision-making difficult and stressful. The palliative care approach of facilitatin...

journal_title：Palliative medicine

authors： Shah SH

更新日期：2006-10-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：:The aim of this study is to synthesize knowledge about the process of shared decision-making (SDM) in palliative care. Medline, EMBASE, CINAHL, PsychInfo, Web of Science were searched with core concepts: shared decisions, patient participation in decision-making, and palliative care. Titles and abstracts were screened...

journal_title：Palliative medicine

authors： Bélanger E,Rodríguez C,Groleau D

更新日期：2011-04-01 00:00:00

abstract：BACKGROUND:Little is known about the attitudes of healthcare professional students' perceived competence and confidence in treating those with dementia who are at the end of life. AIM:To explore the attitudes of final year medical, nursing and pharmacy students towards people with dementia and to evaluate their percei...

journal_title：Palliative medicine

authors： De Witt Jansen B,Weckmann M,Nguyen CM,Parsons C,Hughes CM

更新日期：2013-10-01 00:00:00

abstract：:As part of a large multicentre study on palliative care units in Italy, carried out between 1 January and 30 June 1995, we describe the place, circumstances and 'quality of death' of patients admitted to home palliative care. Data presented refer to 401 patients (67% of the 601 patients randomly selected for evaluatio...

journal_title：Palliative medicine

authors： Peruselli C,Di Giulio P,Toscani F,Gallucci M,Brunelli C,Costantini M,Tamburini M,Paci E,Miccinesi G,Addington-Hall JM,Higginson IJ

更新日期：1999-05-01 00:00:00

abstract：:Comprehensive palliative care programs are often implemented on a community level, and to evaluate such interventions, randomization by cluster (community) may be the only feasible method. In trials randomizing individual subjects, the importance of proper concealment has been stressed. In cluster randomized trials, h...

journal_title：Palliative medicine

authors： Jordhøy MS,Fayers PM,Ahlner-Elmqvist M,Kaasa S

更新日期：2002-01-01 00:00:00

abstract：:The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity ...

journal_title：Palliative medicine

authors： Lo RS,Woo J,Zhoc KC,Li CY,Yeo W,Johnson P,Mak Y,Lee J

更新日期：2001-09-01 00:00:00

abstract：BACKGROUND:The Surprise Question ("Would I be surprised if this patient were to die within the next 12 months?") is widely used to identify palliative patients, though with low predictive value. To improve timely identification of palliative care needs, we propose an additional Surprise Question ("Would I be surprised ...

journal_title：Palliative medicine

authors： Ermers DJ,Kuip EJ,Veldhoven C,Schers HJ,Perry M,Bronkhorst EM,Vissers KC,Engels Y

更新日期：2021-01-11 00:00:00

abstract：BACKGROUND:A universal consensus regarding standardized pain outcomes does not exist. The personalized pain goal has been suggested as a clinically relevant outcome measure. AIM:To assess the feasibility of obtaining a personalized pain goal and to compare a clinically based personalized pain goal definition versus a ...

journal_title：Palliative medicine

authors： Fainsinger R,Nekolaichuk C,Fainsinger L,Muller V,Fainsinger L,Amigo P,Brisebois A,Burton-Macleod S,Ghosh S,Gilbert R,Tarumi Y,Thai V,Wolch G

更新日期：2017-12-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：BACKGROUND:The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure. AIM:To ...

journal_title：Palliative medicine

authors： Ament SM,Couwenberg IM,Boyne JJ,Kleijnen J,Stoffers HE,van den Beuken MH,Engels Y,Bellersen L,Janssen DJ

更新日期：2021-01-01 00:00:00

abstract：:The question of whether a coherent tradition in research and research methods (or paradigm) exists in palliative care is explored in this paper through an examination of the discussion and debate surrounding palliative care; attempts at achieving consensus for research through priority setting exercises; and a critica...

journal_title：Palliative medicine

authors： Corner J

更新日期：1996-07-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00

abstract：:Prospective controlled clinical trials provide the highest level of evidence in palliative care. Both parallel and crossover studies have unique advantages and disadvantages. Excellent knowledge of the patient population, interventions and endpoints are useful in choosing the most appropriate trial. Open pilot studies...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-05-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:Depression is the most common psychiatric illness in patients with terminal cancer. Depression not only lowers the quality of life for the patients and their families, but patients who are depressed may also have physical symptoms that are difficult to palliate and that improve as their depression is appropriately tre...

journal_title：Palliative medicine

authors： Lloyd Williams M,Payne S

更新日期：2003-06-01 00:00:00

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00