Patients' experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey.

abstract：:This paper presents a qualitative study exploring the meaning of 'dignity' to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multi...

journal_title：Palliative medicine

authors： Enes SP

更新日期：2003-04-01 00:00:00

abstract：STUDY OBJECTIVE:The Italian Survey of the Dying of Cancer (ISDOC) was undertaken to evaluate the experiences of Italian people dying from cancer during their last three months of life in all settings of care. STUDY DESIGN:A two-stage probability sample was used to estimate end-of-life outcomes of about 160 000 Italian...

journal_title：Palliative medicine

authors： Costantini M,Beccaro M,Merlo F,ISDOC Study Group.

更新日期：2005-12-01 00:00:00

abstract：BACKGROUND:The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure. AIM:To ...

journal_title：Palliative medicine

authors： Ament SM,Couwenberg IM,Boyne JJ,Kleijnen J,Stoffers HE,van den Beuken MH,Engels Y,Bellersen L,Janssen DJ

更新日期：2021-01-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：PURPOSE/OBJECTIVE:Patients with cancer or symptoms referable to cancer therapy were offered acupuncture as potential palliation of their symptoms. This paper describes the physical integration of the discipline into the Oncology Clinic, and patient perspectives on its availability and efficacy. PATIENTS AND METHODS:Be...

journal_title：Palliative medicine

authors： Johnstone PA,Polston GR,Niemtzow RC,Martin PJ

更新日期：2002-05-01 00:00:00

abstract：BACKGROUND:Bisphosphonates are the treatment of choice for hypercalcaemia of malignancy (HCM) but there is no consensus regarding which drug or dose should be given. We designed a systematic review to investigate the efficacy of bisphosphonates in the treatment of HCM. METHODS:We identified randomized controlled trial...

journal_title：Palliative medicine

authors： Saunders Y,Ross JR,Broadley KE,Edmonds PM,Patel S,Steering Group.

更新日期：2004-07-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：:This study compares terminally ill patients and their family caregivers in terms of the physical and emotional status of the patients, the adequacy of the support provided for the patients and where the patients would be most appropriately placed during the last stage of their lives. Patients and caregivers shared sim...

journal_title：Palliative medicine

authors： Spiller JA,Alexander DA

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Cancer-associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6 months. Most studies focus on prophylaxis and treatment; few have explored the patients' experience. AIMS:To identify and synthesise the available literature concerning patients' experience of ...

journal_title：Palliative medicine

authors： Benelhaj NB,Hutchinson A,Maraveyas AM,Seymour JD,Ilyas MW,Johnson MJ

更新日期：2018-05-01 00:00:00

abstract：:To be able to distinguish end-stage palliative sedation from euthanasia without having to refer to intentions that are difficult to verify, physicians must be able to manage palliative sedation appropriately (i.e., see that death is not hastened as a result of disproportionate medication). In the present study, we ass...

journal_title：Palliative medicine

authors： Reuzel RP,Hasselaar GJ,Vissers KC,van der Wilt GJ,Groenewoud JM,Crul BJ

更新日期：2008-07-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00

abstract：BACKGROUND:There is increasing demand for primary care practitioners to play a key role in palliative care delivery. Given this, it is important to understand their perceptions of the barriers and enablers to optimal palliative care, and how commonly these are experienced. AIM:To explore the type and prevalence of bar...

journal_title：Palliative medicine

authors： Carey ML,Zucca AC,Freund MA,Bryant J,Herrmann A,Roberts BJ

更新日期：2019-10-01 00:00:00

abstract：:The European Association for Palliative Care recommendation for starting morphine for cancer pain is dose titration with immediate release (IR) oral morphine given every 4 h with additionally doses for breakthrough pain. As part of a EU 6th framework programme to revise the guidelines we review the evidence regarding ...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Borchgrevink PC

更新日期：2011-07-01 00:00:00

abstract：INTRODUCTION:This research examines 2006 population-based data on persons who died in US nursing homes (NHs) and received hospice in the NH. METHODS:We compared dying persons characteristics and lengths of hospice stay in five US states between 1992 and 1996 and in 2006. We also compared characteristics of dying perso...

journal_title：Palliative medicine

authors： Sterns S,Miller SC

更新日期：2011-06-01 00:00:00

abstract：BACKGROUND:Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. AIM:This study aimed to translate, ...

journal_title：Palliative medicine

authors： Henriksson A,Andershed B,Benzein E,Arestedt K

更新日期：2012-10-01 00:00:00

abstract：BACKGROUND:Primary care has the potential to play significant roles in providing effective palliative care for non-cancer patients. AIM:To identify, critically appraise and synthesise the existing evidence on views on the provision of palliative care for non-cancer patients by primary care providers and reveal any gap...

journal_title：Palliative medicine

authors： Oishi A,Murtagh FE

更新日期：2014-10-01 00:00:00

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：:A study of 95 children referred for palliative care was carried out at Queen Elizabeth Central Hospital in southern Malawi, to determine the prevalence of different symptoms and signs. Seventy-seven percent of the children had HIV, 17% had cancer and 6% had a variety of other diagnoses. The commonest symptoms spontane...

journal_title：Palliative medicine

authors： Lavy V

更新日期：2007-06-01 00:00:00

abstract：BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

journal_title：Palliative medicine

authors： Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:the right for patients of all diagnoses to be in receipt of palliative care from an early point in the diagnosis of a life-limiting condition is now enshrined in policy in a number of countries and increased emphasis is placed upon the role of generalist palliative care. However, little is known as to how th...

journal_title：Palliative medicine

authors： Gott M,Seymour J,Ingleton C,Gardiner C,Bellamy G

更新日期：2012-04-01 00:00:00

abstract：:Patients with advanced cancer experience multiple demands and losses that place them at risk for experiencing psychological distress. Researchers can face challenges in conducting research among this population because of their poor levels of physical and cognitive functioning. This paper aims to develop our understan...

journal_title：Palliative medicine

authors： Ryan D,Gallagher P,Wright S,Cassidy E

更新日期：2012-03-01 00:00:00

abstract：:When a person is diagnosed with a severe disease, it seems plausible that existential questions and death anxiety are easily intensified. The aims of this study were to explore whether this is the case, to what extent patients and their next of kin experience death anxiety, and how these experiences are expressed. Fol...

journal_title：Palliative medicine

authors： Adelbratt S,Strang P

更新日期：2000-11-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：:Clinical trials in palliative care involve multiple issues relating to patient populations, interventions and endpoints. Careful data collection and analysis of variables are vital for good clinical research in this complex area. ...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-03-01 00:00:00

abstract：BACKGROUND:The global prevalence of dementia is set to rise to almost 65 million people by 2030, providing policy makers and practitioners with significant challenges, not least within the realms of end-of-life care. The international literature would suggest that people with dementia may benefit from palliative forms ...

journal_title：Palliative medicine

authors： Ryan T,Gardiner C,Bellamy G,Gott M,Ingleton C

更新日期：2012-10-01 00:00:00

abstract：BACKGROUND:Sedatives are frequently used towards the end of life. However, there is scarce information when their use is labelled as 'palliative sedation'. AIM:To assess the use and labelling of 'continuous administration of sedatives within the last 7 days of life', based on objective operational criteria, on a palli...

journal_title：Palliative medicine

authors： Schildmann E,Pörnbacher S,Kalies H,Bausewein C

更新日期：2018-07-01 00:00:00

abstract：:Attitudes to companion animals were surveyed among 50 patients and staff at a day care hospice. Dog visits were welcomed by all but two. Of the 37 patients studied, only seven had a companion animal, often their closest companion. Many more would like to keep an animal, but were prevented by age, frailty or accommodat...

journal_title：Palliative medicine

authors： Phear DN

更新日期：1996-10-01 00:00:00

abstract：OBJECTIVES:To explore the experiences of people involved in UK palliative care day services (PCDS) and identify the important outcomes of this service. METHODS:Focus groups were carried out separately with patients, informal carers and volunteers from four purposively selected palliative care day units and with day un...

journal_title：Palliative medicine

authors： Low J,Perry R,Wilkinson S

更新日期：2005-01-01 00:00:00