Cross-cultural validation of the McGill Quality of Life questionnaire in Hong Kong Chinese.

abstract：:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

journal_title：Palliative medicine

authors： Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

更新日期：2010-10-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:This paper reviews a number of studies relating to religion and coping with chronic illness, emphasizing those aspects relevant to palliative care. After pointing out that religious and existential needs are common in chronic illness, a critical examination is made of those studies which purport to demonstrate associa...

journal_title：Palliative medicine

authors： Dein S,Stygall J

更新日期：1997-07-01 00:00:00

abstract：BACKGROUND:Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely ac...

journal_title：Palliative medicine

authors： Collins A,McLachlan SA,Hill M,Collins S,Philip J

更新日期：2020-09-01 00:00:00

abstract：BACKGROUND:Burn units are intensive care facilities specialized in the treatment of patients with severe burns. As burn injuries have a major impact in physical, psychosocial, and spiritual health, palliative care can be a strengthening component of integrated care. AIM:To review and appraise the existing evidence abo...

journal_title：Palliative medicine

authors： Ribeiro AF,Martins Pereira S,Gomes B,Nunes R

更新日期：2019-12-01 00:00:00

abstract：:As part of a large multicentre study on palliative care units in Italy, carried out between 1 January and 30 June 1995, we describe the place, circumstances and 'quality of death' of patients admitted to home palliative care. Data presented refer to 401 patients (67% of the 601 patients randomly selected for evaluatio...

journal_title：Palliative medicine

authors： Peruselli C,Di Giulio P,Toscani F,Gallucci M,Brunelli C,Costantini M,Tamburini M,Paci E,Miccinesi G,Addington-Hall JM,Higginson IJ

更新日期：1999-05-01 00:00:00

abstract：:Objective of this study is to examine physicians' practices regarding information disclosure to terminally ill patients and to their relatives, without informing the patient. A questionnaire had been sent to a random sample of 3014 Belgian physicians from different specialties frequently involved in end-of-life care. ...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Bilsen J,Mortier F,Deliens L

更新日期：2009-06-01 00:00:00

abstract：BACKGROUND:The WHO definitions of palliative care have been adopted in Denmark and implemented in The National Guidelines from 1999, but service developments have been very slow and not according to the recommendations. Attitudes to palliative care of Danish doctors and nurses may in part account for this. OBJECTIVE:T...

journal_title：Palliative medicine

authors： Vejlgaard T,Addington-Hall JM

更新日期：2005-03-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. AIM:To evaluate perceived psychological support in relation to end-of...

journal_title：Palliative medicine

authors： Dombrecht L,Cohen J,Cools F,Deliens L,Goossens L,Naulaers G,Beernaert K,Chambaere K,NICU consortium.

更新日期：2020-03-01 00:00:00

abstract：:E-technology is increasingly used in oncology to obtain self-reported symptom assessment information from patients, although its potential to provide a clinical monitoring tool in palliative care is relatively unexplored in the UK. This study aimed to evaluate the support provided to lung cancer patients post palliati...

journal_title：Palliative medicine

authors： Cox A,Illsley M,Knibb W,Lucas C,O'Driscoll M,Potter C,Flowerday A,Faithfull S

更新日期：2011-10-01 00:00:00

abstract：:The frequency of the use of laxatives, and the relationship between doses of laxatives and of opioid analgesia, were determined by a prospective study of 498 hospice inpatients with advanced cancer. Laxatives were required by 87% of patients taking oral strong opioids, 74% of those on weak opioids and 64% of those not...

journal_title：Palliative medicine

authors： Sykes NP

更新日期：1998-09-01 00:00:00

abstract：BACKGROUND:Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a ke...

journal_title：Palliative medicine

authors： Collier A,Morgan DD,Swetenham K,To TH,Currow DC,Tieman JJ

更新日期：2016-04-01 00:00:00

abstract：:There is growing evidence that the palliative care needs of certain people, such as those from minority ethnic groups, are not being met. The aim of this study was to investigate whether place of death from cancer differs between ethnic groups. A total of 101,516 patients resident in South East England and who died fr...

journal_title：Palliative medicine

authors： Coupland VH,Madden P,Jack RH,Møller H,Davies EA

更新日期：2011-06-01 00:00:00

abstract：STUDY OBJECTIVE:The Italian Survey of the Dying of Cancer (ISDOC) was undertaken to evaluate the experiences of Italian people dying from cancer during their last three months of life in all settings of care. STUDY DESIGN:A two-stage probability sample was used to estimate end-of-life outcomes of about 160 000 Italian...

journal_title：Palliative medicine

authors： Costantini M,Beccaro M,Merlo F,ISDOC Study Group.

更新日期：2005-12-01 00:00:00

abstract：:Increasing emphasis is being placed on the need for advanced care planning (ACP) at the end of life. The Preferred Priorities for Care (PPC) document is a patient-held record promoted by the End of Life Care Strategy as an ACP tool to promote discussion and communication amongst patients, family and health care provid...

journal_title：Palliative medicine

authors： Preston H,Fineberg IC,Callagher P,Mitchell DJ

更新日期：2012-03-01 00:00:00

abstract：:This study looked at the efficacy of drug treatment in managing death rattle in a 30-bedded specialist palliative care unit. The study was conducted in two phases. In the first, patients received hyoscine hydrobromide as the antimuscarinic; glycopyrrolate was used in the second phase. The patients in the two phases we...

journal_title：Palliative medicine

authors： Back IN,Jenkins K,Blower A,Beckhelling J

更新日期：2001-07-01 00:00:00

abstract：BACKGROUND:The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. AIM:To establish, test and manag...

journal_title：Palliative medicine

authors： Lundström S,Axelsson B,Heedman PA,Fransson G,Fürst CJ

更新日期：2012-06-01 00:00:00

abstract：:A study of 95 children referred for palliative care was carried out at Queen Elizabeth Central Hospital in southern Malawi, to determine the prevalence of different symptoms and signs. Seventy-seven percent of the children had HIV, 17% had cancer and 6% had a variety of other diagnoses. The commonest symptoms spontane...

journal_title：Palliative medicine

authors： Lavy V

更新日期：2007-06-01 00:00:00

abstract：BACKGROUND:In clinical practice the major role of opioid drugs is the management of malignant and nonmalignant pain. The primary aim of this study is to evaluate the trend in sales of four opioid analgesic drugs (codeine, tramadol, morphine, fentanyl), from wholesalers to community pharmacies, as an indicator of opioid...

journal_title：Palliative medicine

authors： De Conno F,Ripamonti C,Brunelli C

更新日期：2005-04-01 00:00:00

abstract：:Chronic cough is a distressing symptom experienced by approximately 37% of patients with advanced cancer. Palliation of chronic nonproductive cough should always first address the underlying cause but in some patients chronic, nonproductive cough persists and antitussive agents are required. Opioids are the gold stand...

journal_title：Palliative medicine

authors： Doona M,Walsh D

更新日期：1998-01-01 00:00:00

abstract：:Breakthrough pain (BKP) is a transitory flare of pain that occurs on a background of relatively well controlled baseline pain. Previous surveys have found that BKP is highly prevalent among patients with cancer pain and predicts more severe pain, pain-related distress and functional impairment, and relatively poor qua...

journal_title：Palliative medicine

authors： Caraceni A,Martini C,Zecca E,Portenoy RK,Ashby MA,Hawson G,Jackson KA,Lickiss N,Muirden N,Pisasale M,Moulin D,Schulz VN,Rico Pazo MA,Serrano JA,Andersen H,Henriksen HT,Mejholm I,Sjogren P,Heiskanen T,Kalso E,Pere

更新日期：2004-04-01 00:00:00

abstract：:The Association for Palliative Medicine (APM) produced a previous undergraduate palliative medicine syllabus in 1992. This study describes the process of developing the new APM consensus syllabus against the background of changes in medical education and palliative medicine since 1992. The syllabus was derived by mean...

journal_title：Palliative medicine

authors： Paes P,Wee B

更新日期：2008-06-01 00:00:00

abstract：:Despite the lack of clear benefits of feeding via gastrostomy tube in dementia patients, its use has been increasing. The views of health professionals, patients and their carers differ widely about the perceived benefits, which makes decision-making difficult and stressful. The palliative care approach of facilitatin...

journal_title：Palliative medicine

authors： Shah SH

更新日期：2006-10-01 00:00:00

abstract：BACKGROUND:Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands i...

journal_title：Palliative medicine

authors： Henriksson A,Årestedt K

更新日期：2013-07-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：BACKGROUND:The Liverpool Care Pathway was used in UK hospitals (late 1990s to July 2014) in an attempt to generate hospice-style high-quality end-of-life care in acute settings. Despite being widely established, there was limited research or contextual evidence regarding this approach or its impact. Growing criticism f...

journal_title：Palliative medicine

authors： Twigger S,Yardley SJ

更新日期：2017-10-01 00:00:00

abstract：:This systematic review evaluates the evidence underpinning the provision of palliative day care services (PDS) to determine whether such services have a measurable effect on attendees' wellbeing. The majority of studies reviewed were qualitative and elicited individual perceptions of the benefits PDS. Although it was ...

journal_title：Palliative medicine

authors： Stevens E,Martin CR,White CA

更新日期：2011-03-01 00:00:00