Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study.

abstract：BACKGROUND:Cancer-associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6 months. Most studies focus on prophylaxis and treatment; few have explored the patients' experience. AIMS:To identify and synthesise the available literature concerning patients' experience of ...

journal_title：Palliative medicine

authors： Benelhaj NB,Hutchinson A,Maraveyas AM,Seymour JD,Ilyas MW,Johnson MJ

更新日期：2018-05-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:While there have been some studies looking at the impact on quality of life of patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the specialist palliative needs of these patients has been conducted. AIM:This study aims to explore the specialist palliative care needs of ...

journal_title：Palliative medicine

authors： Bajwah S,Higginson IJ,Ross JR,Wells AU,Birring SS,Riley J,Koffman J

更新日期：2013-10-01 00:00:00

abstract：BACKGROUND:In clinical practice the major role of opioid drugs is the management of malignant and nonmalignant pain. The primary aim of this study is to evaluate the trend in sales of four opioid analgesic drugs (codeine, tramadol, morphine, fentanyl), from wholesalers to community pharmacies, as an indicator of opioid...

journal_title：Palliative medicine

authors： De Conno F,Ripamonti C,Brunelli C

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:ENABLE (Educate, Nurture, Advise Before Life Ends) II was one of the first randomized controlled trials (RCTs) examining the effects of a concurrent oncology palliative care intervention on quality of life, mood, and symptom control for advanced cancer patients and their caregivers. However, little is known ...

journal_title：Palliative medicine

authors： Maloney C,Lyons KD,Li Z,Hegel M,Ahles TA,Bakitas M

更新日期：2013-04-01 00:00:00

abstract：BACKGROUND:Dementia is a life limiting illness and is becoming a major cause of death in developed countries. Many people with dementia die in nursing homes or long-term residential care settings. Spouse caregivers of people with dementia living in nursing homes find themselves in a position which is difficult to under...

journal_title：Palliative medicine

authors： Hennings J,Froggatt K,Payne S

更新日期：2013-07-01 00:00:00

abstract：:Back pain resulting from spinal instability in metastatic bone disease can be difficult to alleviate by pharmacological methods and surgical intervention is frequently required. This paper discusses the treatment options with three illustrative case reports. ...

journal_title：Palliative medicine

authors： Fallon MT,O'Neill WM

更新日期：1993-01-01 00:00:00

abstract：:This systematic review evaluates the evidence underpinning the provision of palliative day care services (PDS) to determine whether such services have a measurable effect on attendees' wellbeing. The majority of studies reviewed were qualitative and elicited individual perceptions of the benefits PDS. Although it was ...

journal_title：Palliative medicine

authors： Stevens E,Martin CR,White CA

更新日期：2011-03-01 00:00:00

abstract：:In an era of ever increasing emphasis on cost-effectiveness of health care, and with the introduction of the internal market, there is now an urgent need for information on the costs and quality of palliative care. This paper highlights the complexities involved in acquiring and measuring such information and discusse...

journal_title：Palliative medicine

authors： Tierney AJ,Sladden S,Anderson J,King M,Lapsley I,Llewellyn S

更新日期：1994-10-01 00:00:00

abstract：BACKGROUND:Burn units are intensive care facilities specialized in the treatment of patients with severe burns. As burn injuries have a major impact in physical, psychosocial, and spiritual health, palliative care can be a strengthening component of integrated care. AIM:To review and appraise the existing evidence abo...

journal_title：Palliative medicine

authors： Ribeiro AF,Martins Pereira S,Gomes B,Nunes R

更新日期：2019-12-01 00:00:00

abstract：:The history and development of an extra care sheltered housing complex, specifically designed and built for frail, ambulant, cancer patients is reviewed. Consideration is given to diagnosis, length of stay, place of death, family and social background. Problems are highlighted and the need for future research is discu...

journal_title：Palliative medicine

authors： Sherry KL

更新日期：1995-07-01 00:00:00

abstract：BACKGROUND:Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS:To identify rec...

journal_title：Palliative medicine

authors： Day E,Jones L,Langner R,Bluebond-Langner M

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:End-of-life implantable cardioverter defibrillator deactivation discussions should commence before device implantation and be ongoing, yet many implantable cardioverter defibrillators remain active in patients' last days. AIM:To examine associations among implantable cardioverter defibrillator knowledge, pa...

journal_title：Palliative medicine

authors： McEvedy SM,Cameron J,Lugg E,Miller J,Haedtke C,Hammash M,Biddle MJ,Lee KS,Mariani JA,Ski CF,Thompson DR,Chung ML,Moser DK

更新日期：2018-01-01 00:00:00

abstract：BACKGROUND:The Palliative Care Problem Severity Score is a clinician-rated tool to assess problem severity in four palliative care domains (pain, other symptoms, psychological/spiritual, family/carer problems) using a 4-point categorical scale (absent, mild, moderate, severe). AIM:To test the reliability and acceptabi...

journal_title：Palliative medicine

authors： Masso M,Allingham SF,Johnson CE,Pidgeon T,Yates P,Currow D,Eagar K

更新日期：2016-05-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00

abstract：:Despite the lack of clear benefits of feeding via gastrostomy tube in dementia patients, its use has been increasing. The views of health professionals, patients and their carers differ widely about the perceived benefits, which makes decision-making difficult and stressful. The palliative care approach of facilitatin...

journal_title：Palliative medicine

authors： Shah SH

更新日期：2006-10-01 00:00:00

abstract：BACKGROUND:Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. AIM:To identify the elements that nursing home residents' family carers perceive as good end-of-life care and develop a conceptual mod...

journal_title：Palliative medicine

authors： Gonella S,Basso I,De Marinis MG,Campagna S,Di Giulio P

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND AND AIMS:Palliative medicine is not recognized as a medical specialty in any of the five Nordic countries, but there is a great need for physicians with specialty qualifications to serve on an increasing number of palliative care services. The Associations for Palliative Medicine in the five countries agreed...

journal_title：Palliative medicine

authors： Haugen DF,Vejlgaard T

更新日期：2008-04-01 00:00:00

abstract：:Patients with advanced cancer experience multiple demands and losses that place them at risk for experiencing psychological distress. Researchers can face challenges in conducting research among this population because of their poor levels of physical and cognitive functioning. This paper aims to develop our understan...

journal_title：Palliative medicine

authors： Ryan D,Gallagher P,Wright S,Cassidy E

更新日期：2012-03-01 00:00:00

abstract：:Philip J Larkin, Fliss Murtagh, Heather Richardson, Myra Bluebond Langner and Sheila Payne (2016) Collaboration: Securing a future for palliative care research. Palliative Medicine, September 2016 30:8 709-710, doi: 10.1177/0269216316661970. ...

journal_title：Palliative medicine

authors：

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:Being at peace is important for the quality of life of dying cancer patients, but its features, and the role of the doctor in facilitating peace, are unclear. AIM:We sought to understand the features of a peaceful patient, and patients' preferences regarding the role of the doctor in facilitating a sense of...

journal_title：Palliative medicine

authors： Best M,Butow P,Olver I

更新日期：2014-10-01 00:00:00

abstract：:This paper describes the development and content of palliative care residential workshops for general practitioner/district nurse pairs from the same practice. Pre- and post-testing self-rating scales were completed by the participants of five workshops. A retrospective questionnaire identified perceived effects on pr...

journal_title：Palliative medicine

authors： Nash A,Hoy A

更新日期：1993-01-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：:We determined the relationship between symptom severity and distress for multiple cancer symptoms, and examined patient demographic influences on severity and distress in advanced cancer. A Cochran-Armitage trend test determined whether symptom distress increased with severity. Chi-square, Fisher's exact test and logi...

journal_title：Palliative medicine

authors： Kirkova J,Walsh D,Rybicki L,Davis MP,Aktas A,Tao Jin,Homsi J

更新日期：2010-04-01 00:00:00

abstract：:Open pulmonary tuberculosis has been increasingly seen in HIV-infected patients in this hospice. Multidrug-resistant tuberculosis is a new and serious threat and two cases have occurred in our hospice in the past two years. This infection poses a health risk to staff, patients, relatives and volunteers. Palliative car...

journal_title：Palliative medicine

authors： McKeogh MM

更新日期：1997-11-01 00:00:00

abstract：BACKGROUND:As end-of-life (EoL) care expands across Europe and the world, service developments are increasingly studied. The sociocultural context in which such changes take place, however, is often neglected in research. AIM:To explore sociocultural factors in EoL care in Belgium as represented by the literature. DE...

journal_title：Palliative medicine

authors： Andrew EV,Cohen J,Evans N,Meñaca A,Harding R,Higginson I,Pool R,Gysels M,PRISMA.

更新日期：2013-02-01 00:00:00

abstract：:Breakthrough pain (BKP) is a transitory flare of pain that occurs on a background of relatively well controlled baseline pain. Previous surveys have found that BKP is highly prevalent among patients with cancer pain and predicts more severe pain, pain-related distress and functional impairment, and relatively poor qua...

journal_title：Palliative medicine

authors： Caraceni A,Martini C,Zecca E,Portenoy RK,Ashby MA,Hawson G,Jackson KA,Lickiss N,Muirden N,Pisasale M,Moulin D,Schulz VN,Rico Pazo MA,Serrano JA,Andersen H,Henriksen HT,Mejholm I,Sjogren P,Heiskanen T,Kalso E,Pere

更新日期：2004-04-01 00:00:00

abstract：:The most commonly encountered clinical conditions presenting with cognitive failure (CF) are delirium, dementia and amnestic disorders. Of these, delirium is probably the most prevalent in palliative care, and it is potentially reversible. Thus, improvement in diagnostics seems warranted. The objectives of this review...

journal_title：Palliative medicine

authors： Hjermstad M,Loge JH,Kaasa S

更新日期：2004-09-01 00:00:00

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00