Impact of perception of socioeconomic burden on advocacy for patient autonomy in end-of-life decision making: a study of societal attitudes.

abstract：BACKGROUND:Patients approaching death often have a decreasing oral intake, which can be distressing for relatives. Little is known about the relatives' experiences with and perceptions of oral intake at the end of life. AIM:This study aims to contribute to a more thorough understanding of relatives' concerns regarding...

journal_title：Palliative medicine

authors： Raijmakers NJ,Clark JB,van Zuylen L,Allan SG,van der Heide A

更新日期：2013-07-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：:The McGill Quality of Life Questionnaire (MQOL) is a widely used tool that has been specifically developed to measure the quality of life of patients facing a life-threatening illness. Preferably, a self-report instrument has an equal number of items worded positively and negatively. However, all the psychological sca...

journal_title：Palliative medicine

authors： Henry M,Huang LN,Ferland MK,Mitchell J,Cohen SR

更新日期：2008-09-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to reduce pain in patients where conventional systemic analgesia has been ineffective or intolerable. However, there is little information regarding the effects of intrathecal drug delivery on quality of life and function in those with advanced, incurable cancer. AIM:Retro...

journal_title：Palliative medicine

authors： Patel N,Huddart M,Makins H,Mitchell T,Gibbins JL,Graterol J,Stevens D,Perkins P

更新日期：2018-01-01 00:00:00

abstract：:Cyclizine is an antihistamine, which is frequently used to manage nausea and vomiting in cancer patients. Antihistamines can be drugs of misuse/abuse, and the article describes four cancer patients who developed such problems after receiving parenteral cyclizine within the inpatient unit of a cancer centre. The articl...

journal_title：Palliative medicine

authors： Bailey F,Davies A

更新日期：2008-10-01 00:00:00

abstract：:Patients with advanced cancer experience multiple demands and losses that place them at risk for experiencing psychological distress. Researchers can face challenges in conducting research among this population because of their poor levels of physical and cognitive functioning. This paper aims to develop our understan...

journal_title：Palliative medicine

authors： Ryan D,Gallagher P,Wright S,Cassidy E

更新日期：2012-03-01 00:00:00

abstract：:Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

journal_title：Palliative medicine

authors： McPherson CJ,Wilson KG,Murray MA

更新日期：2007-03-01 00:00:00

abstract：:Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point...

journal_title：Palliative medicine

authors： Nolan S

更新日期：2011-01-01 00:00:00

abstract：BACKGROUND:Chronically homeless individuals have high rates of hospitalization and death, and they may benefit from the completion of advance directives. AIM:To determine the rate of advance directive completion using a counselor-guided intervention, identify characteristics associated with advance directive completio...

journal_title：Palliative medicine

authors： Leung AK,Nayyar D,Sachdeva M,Song J,Hwang SW

更新日期：2015-09-01 00:00:00

abstract：:The most commonly encountered clinical conditions presenting with cognitive failure (CF) are delirium, dementia and amnestic disorders. Of these, delirium is probably the most prevalent in palliative care, and it is potentially reversible. Thus, improvement in diagnostics seems warranted. The objectives of this review...

journal_title：Palliative medicine

authors： Hjermstad M,Loge JH,Kaasa S

更新日期：2004-09-01 00:00:00

abstract：BACKGROUND:As end-of-life (EoL) care expands across Europe and the world, service developments are increasingly studied. The sociocultural context in which such changes take place, however, is often neglected in research. AIM:To explore sociocultural factors in EoL care in Belgium as represented by the literature. DE...

journal_title：Palliative medicine

authors： Andrew EV,Cohen J,Evans N,Meñaca A,Harding R,Higginson I,Pool R,Gysels M,PRISMA.

更新日期：2013-02-01 00:00:00

abstract：:Restructuring health care in Canada has emphasized the provision of ambulatory and home-based palliative care. Acquiring economic evidence is critical given this trend and its tremendous demands on family caregivers. The purposes of this study were: 1) to comprehensively assess the societal costs of home-based palliat...

journal_title：Palliative medicine

authors： Guerriere DN,Zagorski B,Fassbender K,Masucci L,Librach L,Coyte PC

更新日期：2010-07-01 00:00:00

abstract：:The relationship between opioid dose, dantron dose, bowel function and physical functioning (measured with the modified Barthel Index) was determined in a sample of 50 inpatients with advanced cancer. Data were collected prospectively from chart review and patient interviews one week after admission to allow for proto...

journal_title：Palliative medicine

authors： Bennett M,Cresswell H

更新日期：2003-07-01 00:00:00

abstract：:Attitudes to companion animals were surveyed among 50 patients and staff at a day care hospice. Dog visits were welcomed by all but two. Of the 37 patients studied, only seven had a companion animal, often their closest companion. Many more would like to keep an animal, but were prevented by age, frailty or accommodat...

journal_title：Palliative medicine

authors： Phear DN

更新日期：1996-10-01 00:00:00

abstract：:This study reports the process and results of a psychometric evaluation of a clinical audit tool, the Support Team Assessment Schedule (STAS), used to measure outcomes of palliative care. The STAS was developed in London, UK to audit community palliative care services provided by a support team. The purpose of this st...

journal_title：Palliative medicine

authors： Carson MG,Fitch MI,Vachon ML

更新日期：2000-01-01 00:00:00

abstract：BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

journal_title：Palliative medicine

authors： Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

更新日期：2015-05-01 00:00:00

abstract：:Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised co...

journal_title：Palliative medicine

authors： Agar M,Currow DC,Shelby-James TM,Plummer J,Sanderson C,Abernethy AP

更新日期：2008-10-01 00:00:00

abstract：:Philip J Larkin, Fliss Murtagh, Heather Richardson, Myra Bluebond Langner and Sheila Payne (2016) Collaboration: Securing a future for palliative care research. Palliative Medicine, September 2016 30:8 709-710, doi: 10.1177/0269216316661970. ...

journal_title：Palliative medicine

authors：

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:This paper describes the development and content of palliative care residential workshops for general practitioner/district nurse pairs from the same practice. Pre- and post-testing self-rating scales were completed by the participants of five workshops. A retrospective questionnaire identified perceived effects on pr...

journal_title：Palliative medicine

authors： Nash A,Hoy A

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Dementia is a life limiting illness and is becoming a major cause of death in developed countries. Many people with dementia die in nursing homes or long-term residential care settings. Spouse caregivers of people with dementia living in nursing homes find themselves in a position which is difficult to under...

journal_title：Palliative medicine

authors： Hennings J,Froggatt K,Payne S

更新日期：2013-07-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：:E-technology is increasingly used in oncology to obtain self-reported symptom assessment information from patients, although its potential to provide a clinical monitoring tool in palliative care is relatively unexplored in the UK. This study aimed to evaluate the support provided to lung cancer patients post palliati...

journal_title：Palliative medicine

authors： Cox A,Illsley M,Knibb W,Lucas C,O'Driscoll M,Potter C,Flowerday A,Faithfull S

更新日期：2011-10-01 00:00:00

abstract：INTRODUCTION:Even though depression has serious and wide-ranging effects on outcomes in palliative care, errors in the identification of depressed patients are common. OBJECTIVES:To examine the clinical validity of widely publicised one- and two-question screening tools for depression in two palliative care settings. ...

journal_title：Palliative medicine

authors： Robinson JA,Crawford GB

更新日期：2005-06-01 00:00:00

abstract：:Depression is the most common psychiatric illness in patients with terminal cancer. Depression not only lowers the quality of life for the patients and their families, but patients who are depressed may also have physical symptoms that are difficult to palliate and that improve as their depression is appropriately tre...

journal_title：Palliative medicine

authors： Lloyd Williams M,Payne S

更新日期：2003-06-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00

abstract：:Vaccum assisted closure (VAC) therapy is a novel method of wound healing using topical negative pressure across the wound bed and containing all exudate within a sealed system. We report the use of VAC therapy to control pain and exudate of a malignant wound. ...

journal_title：Palliative medicine

authors： Ford-Dunn S

更新日期：2006-06-01 00:00:00

abstract：BACKGROUND:Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS:To identify rec...

journal_title：Palliative medicine

authors： Day E,Jones L,Langner R,Bluebond-Langner M

更新日期：2016-12-01 00:00:00