Measuring the costs and quality of palliative care: a discussion paper.

abstract：BACKGROUND:Specialist palliative care (SPC) services in Ireland are well developed by international standards. However, standardized information on all patients of SPC services is not collected so the proportion of patients seen with a noncancer diagnosis is just an estimate at 5%. AIMS:To describe Irish SPC services'...

journal_title：Palliative medicine

authors： O'Leary N,Tiernan E

更新日期：2008-01-01 00:00:00

abstract：:Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family...

journal_title：Palliative medicine

authors： Giles S,Miyasaki J

更新日期：2009-03-01 00:00:00

abstract：:Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point...

journal_title：Palliative medicine

authors： Nolan S

更新日期：2011-01-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Gastroparesis is an under-recognised cause of refractory nausea and vomiting in patients with malignancy. The most common aetiologies are paraneoplastic and postsurgical dysmotility. There are little data on the efficacy of treatment to direct the management of patients with this symptom. We present a case a...

journal_title：Palliative medicine

authors： Franco M,Koulaeva E

更新日期：2014-07-01 00:00:00

abstract：INTRODUCTION:Even though depression has serious and wide-ranging effects on outcomes in palliative care, errors in the identification of depressed patients are common. OBJECTIVES:To examine the clinical validity of widely publicised one- and two-question screening tools for depression in two palliative care settings. ...

journal_title：Palliative medicine

authors： Robinson JA,Crawford GB

更新日期：2005-06-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：BACKGROUND:The majority of children and young people who die in the United Kingdom have pre-existing life-limiting illness. Currently, most such deaths occur in hospital, most frequently within the intensive care environment. AIM:To explore the experiences of senior medical and nursing staff regarding the challenges a...

journal_title：Palliative medicine

authors： Mitchell S,Dale J

更新日期：2015-04-01 00:00:00

abstract：:This paper presents a qualitative study exploring the meaning of 'dignity' to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multi...

journal_title：Palliative medicine

authors： Enes SP

更新日期：2003-04-01 00:00:00

abstract：OBJECTIVE:A prospective cohort study evaluated the performance and acceptability of the cognitive based Mood Evaluation Questionnaire (MEQ) in assessing depressive symptoms over time in patients with advanced cancer. The structured clinical interview for DSM-III-R (SCID) and the single-item interview screening question...

journal_title：Palliative medicine

authors： Meyer HA,Sinnott C,Seed PT

更新日期：2003-10-01 00:00:00

abstract：:Progressive multifocal leukoencephalopathy (PML) is a rare but usually fatal demyelinating disease of the central nervous system in patients who are immunocompromised. It is characterized by rapid neurological deterioration associated with progressive white matter changes on imaging and is confirmed by isolation of th...

journal_title：Palliative medicine

authors： Cotton PJ,Le B

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:E-technology is increasingly used in oncology to obtain self-reported symptom assessment information from patients, although its potential to provide a clinical monitoring tool in palliative care is relatively unexplored in the UK. This study aimed to evaluate the support provided to lung cancer patients post palliati...

journal_title：Palliative medicine

authors： Cox A,Illsley M,Knibb W,Lucas C,O'Driscoll M,Potter C,Flowerday A,Faithfull S

更新日期：2011-10-01 00:00:00

abstract：BACKGROUND:Chronic kidney disease palliative care guidelines would benefit from more diverse and objectively defined health status measures. AIM:The aim is to identify high-risk patients from administrative data and facilitate timely and uniform palliative care involvement. DESIGN:It is a retrospective cohort study. ...

journal_title：Palliative medicine

authors： Nenova Z,Hotchkiss J Jr

更新日期：2019-04-01 00:00:00

abstract：:Prospective controlled clinical trials provide the highest level of evidence in palliative care. Both parallel and crossover studies have unique advantages and disadvantages. Excellent knowledge of the patient population, interventions and endpoints are useful in choosing the most appropriate trial. Open pilot studies...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-05-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00

abstract：BACKGROUND:Patients with advanced cancer often have to make difficult decisions, such as how much to spend on moderately life-extending treatments. This and other end-of-life decisions are also influenced by their informal caregivers. Understanding the relative value that patients and their caregivers place on various ...

journal_title：Palliative medicine

authors： Malhotra C,Farooqui MA,Kanesvaran R,Bilger M,Finkelstein E

更新日期：2015-10-01 00:00:00

abstract：BACKGROUND:This case report describes an end-stage cancer patient with intractable neuropathic pain and delirium who was successfully managed during the last 3 weeks of her life with a continuous subcutaneous infusion of dexmedetomidine. CASE PRESENTATION:A 55-year-old woman with locally advanced cervical cancer and u...

journal_title：Palliative medicine

authors： Hilliard N,Brown S,Mitchinson S

更新日期：2015-03-01 00:00:00

abstract：:This study reports the process and results of a psychometric evaluation of a clinical audit tool, the Support Team Assessment Schedule (STAS), used to measure outcomes of palliative care. The STAS was developed in London, UK to audit community palliative care services provided by a support team. The purpose of this st...

journal_title：Palliative medicine

authors： Carson MG,Fitch MI,Vachon ML

更新日期：2000-01-01 00:00:00

abstract：:Back pain resulting from spinal instability in metastatic bone disease can be difficult to alleviate by pharmacological methods and surgical intervention is frequently required. This paper discusses the treatment options with three illustrative case reports. ...

journal_title：Palliative medicine

authors： Fallon MT,O'Neill WM

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Benzodiazepines are widely used in palliative care, but few studies have attempted to study their use. AIM:To determine the frequency and nature of benzodiazepine prescribing in a palliative care setting. METHOD:The notes of a consecutive series of 100 patients who had died or been discharged from the hosp...

journal_title：Palliative medicine

authors： Henderson M,MacGregor E,Sykes N,Hotopf M

更新日期：2006-06-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：:In this paper we review the challenges facing the delivery of research in end-of-life care in the UK and internationally as health policies begin to focus on improving care. These include the problems of terminology in this field of enquiry and the lack of emphasis on clinical studies relating to the medical aspects o...

journal_title：Palliative medicine

authors： Bennett MI,Davies EA,Higginson IJ

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:A normal vitamin D status is required for bones and muscles to maintain their function and structure, but it also contributes to the functional integrity of other multiple physiologic systems in the body. AIM:To assess the relationship of Vitamin D deficiency with health-related quality-of-life issues, fati...

journal_title：Palliative medicine

authors： Martínez-Alonso M,Dusso A,Ariza G,Nabal M

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:The Liverpool Care Pathway was used in UK hospitals (late 1990s to July 2014) in an attempt to generate hospice-style high-quality end-of-life care in acute settings. Despite being widely established, there was limited research or contextual evidence regarding this approach or its impact. Growing criticism f...

journal_title：Palliative medicine

authors： Twigger S,Yardley SJ

更新日期：2017-10-01 00:00:00

abstract：BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

journal_title：Palliative medicine

authors： Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:in community studies the prevalence of depression is higher in women than men; however, in palliative care settings this relationship is usually less strong, absent or reversed. AIM:to identify reasons for excess depression among men receiving palliative care. DESIGN:cross-sectional study. SETTING/PARTICI...

journal_title：Palliative medicine

authors： Hayes RD,Lee W,Rayner L,Price A,Monroe B,Hansford P,Sykes N,Hotopf M

更新日期：2012-07-01 00:00:00

abstract：OBJECTIVES:To explore the experiences of people involved in UK palliative care day services (PCDS) and identify the important outcomes of this service. METHODS:Focus groups were carried out separately with patients, informal carers and volunteers from four purposively selected palliative care day units and with day un...

journal_title：Palliative medicine

authors： Low J,Perry R,Wilkinson S

更新日期：2005-01-01 00:00:00

abstract：BACKGROUND:Hospital is the most common place of cancer death but concerns regarding the quality of end-of-life care remain. AIM:Preliminary assessment of the effectiveness of the Liverpool Care Pathway on the quality of end-of-life care provided to adult cancer patients during their last week of life in hospital. DES...

journal_title：Palliative medicine

authors： Costantini M,Pellegrini F,Di Leo S,Beccaro M,Rossi C,Flego G,Romoli V,Giannotti M,Morone P,Ivaldi GP,Cavallo L,Fusco F,Higginson IJ

更新日期：2014-01-01 00:00:00

abstract：BACKGROUND:ENABLE (Educate, Nurture, Advise Before Life Ends) II was one of the first randomized controlled trials (RCTs) examining the effects of a concurrent oncology palliative care intervention on quality of life, mood, and symptom control for advanced cancer patients and their caregivers. However, little is known ...

journal_title：Palliative medicine

authors： Maloney C,Lyons KD,Li Z,Hegel M,Ahles TA,Bakitas M

更新日期：2013-04-01 00:00:00