Hope beyond (redundant) hope: how chaplains work with dying patients.

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00

abstract：BACKGROUND:We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. AIM:To find out in the existing literature what features of hospice at home models work best, for whom and under what cir...

journal_title：Palliative medicine

authors： Hashem F,Brigden C,Wilson P,Butler C

更新日期：2020-01-01 00:00:00

abstract：BACKGROUND:Although integrated care for existential suffering is an essential part of palliative care, little is known about its concept and efficacy as perceived by professionals. A questionnaire survey was carried out to 1) explore the underlying structure of psychosocial interventions recommended by specialists, 2) ...

journal_title：Palliative medicine

authors： Hirai K,Morita T,Kashiwagi T

更新日期：2003-12-01 00:00:00

abstract：BACKGROUND:Terminal illness not only causes physical suffering but also spiritual distress. Spiritual care has been widely implemented by healthcare professionals to assist patients coping with spiritual distress. However, the effects of spiritual care need to be clear. AIM:To evaluate the effects of spiritual care on...

journal_title：Palliative medicine

authors： Chen J,Lin Y,Yan J,Wu Y,Hu R

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:Little is known about the attitudes of healthcare professional students' perceived competence and confidence in treating those with dementia who are at the end of life. AIM:To explore the attitudes of final year medical, nursing and pharmacy students towards people with dementia and to evaluate their percei...

journal_title：Palliative medicine

authors： De Witt Jansen B,Weckmann M,Nguyen CM,Parsons C,Hughes CM

更新日期：2013-10-01 00:00:00

abstract：:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

journal_title：Palliative medicine

authors： Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

更新日期：2010-10-01 00:00:00

abstract：INTRODUCTION:Even though depression has serious and wide-ranging effects on outcomes in palliative care, errors in the identification of depressed patients are common. OBJECTIVES:To examine the clinical validity of widely publicised one- and two-question screening tools for depression in two palliative care settings. ...

journal_title：Palliative medicine

authors： Robinson JA,Crawford GB

更新日期：2005-06-01 00:00:00

abstract：PURPOSE/OBJECTIVE:Patients with cancer or symptoms referable to cancer therapy were offered acupuncture as potential palliation of their symptoms. This paper describes the physical integration of the discipline into the Oncology Clinic, and patient perspectives on its availability and efficacy. PATIENTS AND METHODS:Be...

journal_title：Palliative medicine

authors： Johnstone PA,Polston GR,Niemtzow RC,Martin PJ

更新日期：2002-05-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Patients with advanced cancer often have to make difficult decisions, such as how much to spend on moderately life-extending treatments. This and other end-of-life decisions are also influenced by their informal caregivers. Understanding the relative value that patients and their caregivers place on various ...

journal_title：Palliative medicine

authors： Malhotra C,Farooqui MA,Kanesvaran R,Bilger M,Finkelstein E

更新日期：2015-10-01 00:00:00

abstract：OBJECTIVE:To summarize available literature containing data on the treatment of depression in palliative care patients. METHODS:A systematic review was conducted using extensive electronic databases and hand searches. All randomized controlled trials (RCTs) of interventions for depression in patients with advanced dis...

journal_title：Palliative medicine

authors： Ly KL,Chidgey J,Addington-Hall J,Hotopf M

更新日期：2002-07-01 00:00:00

abstract：BACKGROUND:The global prevalence of dementia is set to rise to almost 65 million people by 2030, providing policy makers and practitioners with significant challenges, not least within the realms of end-of-life care. The international literature would suggest that people with dementia may benefit from palliative forms ...

journal_title：Palliative medicine

authors： Ryan T,Gardiner C,Bellamy G,Gott M,Ingleton C

更新日期：2012-10-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：:In an era of ever increasing emphasis on cost-effectiveness of health care, and with the introduction of the internal market, there is now an urgent need for information on the costs and quality of palliative care. This paper highlights the complexities involved in acquiring and measuring such information and discusse...

journal_title：Palliative medicine

authors： Tierney AJ,Sladden S,Anderson J,King M,Lapsley I,Llewellyn S

更新日期：1994-10-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00

abstract：:Morphine, the recommended drug for the management of moderate to severe cancer pain, is metabolized predominantly to the glucuronides morphine-6-glucuronide (M6G) and morphine-3-glucuronide (M3G). The quantitative clinical importance of these metabolites following the administration of oral morphine is unclear. This s...

journal_title：Palliative medicine

authors： Quigley C,Joel S,Patel N,Baksh A,Slevin M

更新日期：2003-03-01 00:00:00

abstract：:Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care research. Interviews were transcribed and analysed using a grounded ...

journal_title：Palliative medicine

authors： Stevens T,Wilde D,Paz S,Ahmedzai SH,Rawson A,Wragg D

更新日期：2003-09-01 00:00:00

abstract：:Restructuring health care in Canada has emphasized the provision of ambulatory and home-based palliative care. Acquiring economic evidence is critical given this trend and its tremendous demands on family caregivers. The purposes of this study were: 1) to comprehensively assess the societal costs of home-based palliat...

journal_title：Palliative medicine

authors： Guerriere DN,Zagorski B,Fassbender K,Masucci L,Librach L,Coyte PC

更新日期：2010-07-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：BACKGROUND:Sedatives are frequently used towards the end of life. However, there is scarce information when their use is labelled as 'palliative sedation'. AIM:To assess the use and labelling of 'continuous administration of sedatives within the last 7 days of life', based on objective operational criteria, on a palli...

journal_title：Palliative medicine

authors： Schildmann E,Pörnbacher S,Kalies H,Bausewein C

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:End-of-life implantable cardioverter defibrillator deactivation discussions should commence before device implantation and be ongoing, yet many implantable cardioverter defibrillators remain active in patients' last days. AIM:To examine associations among implantable cardioverter defibrillator knowledge, pa...

journal_title：Palliative medicine

authors： McEvedy SM,Cameron J,Lugg E,Miller J,Haedtke C,Hammash M,Biddle MJ,Lee KS,Mariani JA,Ski CF,Thompson DR,Chung ML,Moser DK

更新日期：2018-01-01 00:00:00

abstract：:The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity ...

journal_title：Palliative medicine

authors： Lo RS,Woo J,Zhoc KC,Li CY,Yeo W,Johnson P,Mak Y,Lee J

更新日期：2001-09-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：BACKGROUND:Patient misunderstandings about prognosis may be related to lack of communication. AIM:This study aimed to examine prognosis discussions held with hospitalized patients for whom palliative care consultations were requested, and if prognosis discussions did not occur, to explore why not. DESIGN:This was a s...

journal_title：Palliative medicine

authors： Chang A,Datta-Barua I,McLaughlin B,Daly B

更新日期：2014-04-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：:This paper presents a qualitative study exploring the meaning of 'dignity' to patients, relatives and professionals. It examines the impact of advanced illness and treatment and the issues pertinent to caring for dignity. Depth interviews were conducted with eight patients, six relatives and seven members of the multi...

journal_title：Palliative medicine

authors： Enes SP

更新日期：2003-04-01 00:00:00