Patient perspectives on participation in the ENABLE II randomized controlled trial of a concurrent oncology palliative care intervention: benefits and burdens.

abstract：:In this population-based study, we found that parents who are aware that their child will die from a malignancy are more likely to care for their child at home during the child's last month of life compared to parents who are not aware. End-of-life home care was comparable to hospital care for satisfactory pain relief...

journal_title：Palliative medicine

authors： Surkan PJ,Dickman PW,Steineck G,Onelöv E,Kreicbergs U

更新日期：2006-04-01 00:00:00

abstract：BACKGROUND:Chronically homeless individuals have high rates of hospitalization and death, and they may benefit from the completion of advance directives. AIM:To determine the rate of advance directive completion using a counselor-guided intervention, identify characteristics associated with advance directive completio...

journal_title：Palliative medicine

authors： Leung AK,Nayyar D,Sachdeva M,Song J,Hwang SW

更新日期：2015-09-01 00:00:00

abstract：:In this paper we review the challenges facing the delivery of research in end-of-life care in the UK and internationally as health policies begin to focus on improving care. These include the problems of terminology in this field of enquiry and the lack of emphasis on clinical studies relating to the medical aspects o...

journal_title：Palliative medicine

authors： Bennett MI,Davies EA,Higginson IJ

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS:To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify...

journal_title：Palliative medicine

authors： Dzingina MD,Reilly CC,Bausewein C,Jolley CJ,Moxham J,McCrone P,Higginson IJ,Yi D

更新日期：2017-04-01 00:00:00

abstract：PURPOSE/OBJECTIVE:Patients with cancer or symptoms referable to cancer therapy were offered acupuncture as potential palliation of their symptoms. This paper describes the physical integration of the discipline into the Oncology Clinic, and patient perspectives on its availability and efficacy. PATIENTS AND METHODS:Be...

journal_title：Palliative medicine

authors： Johnstone PA,Polston GR,Niemtzow RC,Martin PJ

更新日期：2002-05-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

journal_title：Palliative medicine

authors： Gerber K,Hayes B,Bryant C

更新日期：2019-07-01 00:00:00

abstract：:Existential distress has been recognized as a source of suffering for oncology patients. This study focusses on existential issues and coping mechanisms of a unique culturally diverse Jewish/Middle Eastern oncology population. A qualitative assessment of 40 patients with advanced cancer was undertaken through an inter...

journal_title：Palliative medicine

authors： Blinderman CD,Cherny NI

更新日期：2005-07-01 00:00:00

abstract：BACKGROUND:The Gold Standards Framework (GSF) was developed to improve the delivery of palliative care in general practice. AIM:The aim of the study was to evaluate the first phase of GSF in terms of its acceptability to primary care teams, effectiveness in changing practice and professionals' views on the consequence...

journal_title：Palliative medicine

authors： Thomas K,Noble B

更新日期：2007-01-01 00:00:00

abstract：:Attitudes to companion animals were surveyed among 50 patients and staff at a day care hospice. Dog visits were welcomed by all but two. Of the 37 patients studied, only seven had a companion animal, often their closest companion. Many more would like to keep an animal, but were prevented by age, frailty or accommodat...

journal_title：Palliative medicine

authors： Phear DN

更新日期：1996-10-01 00:00:00

abstract：BACKGROUND:Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely ac...

journal_title：Palliative medicine

authors： Collins A,McLachlan SA,Hill M,Collins S,Philip J

更新日期：2020-09-01 00:00:00

abstract：BACKGROUND:The Palliative Care Problem Severity Score is a clinician-rated tool to assess problem severity in four palliative care domains (pain, other symptoms, psychological/spiritual, family/carer problems) using a 4-point categorical scale (absent, mild, moderate, severe). AIM:To test the reliability and acceptabi...

journal_title：Palliative medicine

authors： Masso M,Allingham SF,Johnson CE,Pidgeon T,Yates P,Currow D,Eagar K

更新日期：2016-05-01 00:00:00

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Psychological distress is highly prevalent among patients with metastatic colorectal cancer. AIMS:To perform an economic evaluation of a combined screening and treatment program targeting psychological distress in patients with metastatic colorectal cancer in comparison with usual care. DESIGN:Societal cos...

journal_title：Palliative medicine

authors： El Alili M,Schuurhuizen CSEW,Braamse AMJ,Beekman ATF,van der Linden MH,Konings IR,Dekker J,Bosmans JE

更新日期：2020-07-01 00:00:00

abstract：PURPOSE:In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. METHODS:We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that pres...

journal_title：Palliative medicine

authors： Albers G,Echteld MA,de Vet HC,Onwuteaka-Philipsen BD,van der Linden MH,Deliens L

更新日期：2010-01-01 00:00:00

abstract：STUDY OBJECTIVE:The Italian Survey of the Dying of Cancer (ISDOC) was undertaken to evaluate the experiences of Italian people dying from cancer during their last three months of life in all settings of care. STUDY DESIGN:A two-stage probability sample was used to estimate end-of-life outcomes of about 160 000 Italian...

journal_title：Palliative medicine

authors： Costantini M,Beccaro M,Merlo F,ISDOC Study Group.

更新日期：2005-12-01 00:00:00

abstract：:In an increasingly secular age in which society no longer offers a code of behaviour for those who are bereaved as in Victorian times, the majority of people do not seek support from church-based rituals of remembrance. Most hospices provide religious Services of Remembrance and Thanksgiving or non-faith remembrance g...

journal_title：Palliative medicine

authors： Vale-Taylor P

更新日期：2009-09-01 00:00:00

abstract：:Back pain resulting from spinal instability in metastatic bone disease can be difficult to alleviate by pharmacological methods and surgical intervention is frequently required. This paper discusses the treatment options with three illustrative case reports. ...

journal_title：Palliative medicine

authors： Fallon MT,O'Neill WM

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Sedatives are frequently used towards the end of life. However, there is scarce information when their use is labelled as 'palliative sedation'. AIM:To assess the use and labelling of 'continuous administration of sedatives within the last 7 days of life', based on objective operational criteria, on a palli...

journal_title：Palliative medicine

authors： Schildmann E,Pörnbacher S,Kalies H,Bausewein C

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：BACKGROUND:Terminal illness not only causes physical suffering but also spiritual distress. Spiritual care has been widely implemented by healthcare professionals to assist patients coping with spiritual distress. However, the effects of spiritual care need to be clear. AIM:To evaluate the effects of spiritual care on...

journal_title：Palliative medicine

authors： Chen J,Lin Y,Yan J,Wu Y,Hu R

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:Primary care has the potential to play significant roles in providing effective palliative care for non-cancer patients. AIM:To identify, critically appraise and synthesise the existing evidence on views on the provision of palliative care for non-cancer patients by primary care providers and reveal any gap...

journal_title：Palliative medicine

authors： Oishi A,Murtagh FE

更新日期：2014-10-01 00:00:00

abstract：BACKGROUND:There is widespread agreement that the families of hospice patients need to be prepared for the final days of life, yet current practices preparing families are not well described. Examining the gap between family needs and current practice will inform the development of effective preparatory interventions. ...

journal_title：Palliative medicine

authors： Kehl KA

更新日期：2015-02-01 00:00:00

abstract：INTRODUCTION:This research examines 2006 population-based data on persons who died in US nursing homes (NHs) and received hospice in the NH. METHODS:We compared dying persons characteristics and lengths of hospice stay in five US states between 1992 and 1996 and in 2006. We also compared characteristics of dying perso...

journal_title：Palliative medicine

authors： Sterns S,Miller SC

更新日期：2011-06-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：BACKGROUND:Previous findings implicated rumination (recurrent dwelling on abstract concerns) in elevated psychological distress in palliative patients. We hypothesised that reducing rumination may be important in addressing psychological distress in palliative care. AIM:This study tested the prediction that a brief gu...

journal_title：Palliative medicine

authors： Galfin JM,Watkins ER,Harlow T

更新日期：2012-04-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00