A qualitative evaluation of the impact of palliative care day services: the experiences of patients, informal carers, day unit managers and volunteer staff.

abstract：BACKGROUND:Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS:To identify rec...

journal_title：Palliative medicine

authors： Day E,Jones L,Langner R,Bluebond-Langner M

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:No systematic meta-analysis is available on the prevalence of cancer patients' accurate prognostic awareness and differences in accurate prognostic awareness by publication year, region, assessment method, and service received. AIM:To examine the prevalence of advanced/terminal cancer patients' accurate pro...

journal_title：Palliative medicine

authors： Chen CH,Kuo SC,Tang ST

更新日期：2017-05-01 00:00:00

abstract：:We determined the relationship between symptom severity and distress for multiple cancer symptoms, and examined patient demographic influences on severity and distress in advanced cancer. A Cochran-Armitage trend test determined whether symptom distress increased with severity. Chi-square, Fisher's exact test and logi...

journal_title：Palliative medicine

authors： Kirkova J,Walsh D,Rybicki L,Davis MP,Aktas A,Tao Jin,Homsi J

更新日期：2010-04-01 00:00:00

abstract：BACKGROUND:The global prevalence of dementia is set to rise to almost 65 million people by 2030, providing policy makers and practitioners with significant challenges, not least within the realms of end-of-life care. The international literature would suggest that people with dementia may benefit from palliative forms ...

journal_title：Palliative medicine

authors： Ryan T,Gardiner C,Bellamy G,Gott M,Ingleton C

更新日期：2012-10-01 00:00:00

abstract：BACKGROUND:We developed a new single point of access to integrated palliative care, respiratory medicine and physiotherapy: the breathlessness support service for patients with advanced disease and refractory breathlessness. This study aimed to describe patients' experiences of the service and identify the aspects valu...

journal_title：Palliative medicine

authors： Reilly CC,Bausewein C,Pannell C,Moxham J,Jolley CJ,Higginson IJ

更新日期：2016-03-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to be effective in alleviating cancer pain in patients for whom the conventional World Health Organization approach has proved insufficient. A multidisciplinary interventional cancer pain service was established in the West of Scotland in 2008 with the aim of providing a sa...

journal_title：Palliative medicine

authors： Mitchell A,McGhie J,Owen M,McGinn G

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:The Liverpool Care Pathway was used in UK hospitals (late 1990s to July 2014) in an attempt to generate hospice-style high-quality end-of-life care in acute settings. Despite being widely established, there was limited research or contextual evidence regarding this approach or its impact. Growing criticism f...

journal_title：Palliative medicine

authors： Twigger S,Yardley SJ

更新日期：2017-10-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：:Morphine, the recommended drug for the management of moderate to severe cancer pain, is metabolized predominantly to the glucuronides morphine-6-glucuronide (M6G) and morphine-3-glucuronide (M3G). The quantitative clinical importance of these metabolites following the administration of oral morphine is unclear. This s...

journal_title：Palliative medicine

authors： Quigley C,Joel S,Patel N,Baksh A,Slevin M

更新日期：2003-03-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：:In this paper we review the challenges facing the delivery of research in end-of-life care in the UK and internationally as health policies begin to focus on improving care. These include the problems of terminology in this field of enquiry and the lack of emphasis on clinical studies relating to the medical aspects o...

journal_title：Palliative medicine

authors： Bennett MI,Davies EA,Higginson IJ

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Psychological distress is highly prevalent among patients with metastatic colorectal cancer. AIMS:To perform an economic evaluation of a combined screening and treatment program targeting psychological distress in patients with metastatic colorectal cancer in comparison with usual care. DESIGN:Societal cos...

journal_title：Palliative medicine

authors： El Alili M,Schuurhuizen CSEW,Braamse AMJ,Beekman ATF,van der Linden MH,Konings IR,Dekker J,Bosmans JE

更新日期：2020-07-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：BACKGROUND:A study designed to explore the experiences of patients with severe chronic obstructive pulmonary disease (COPD) and their carers, particularly with regard to ongoing and palliative care needs. METHODS:The participants were nine men and one woman with severe COPD and the carers of eight of the men, in East ...

journal_title：Palliative medicine

authors： Seamark DA,Blake SD,Seamark CJ,Halpin DM

更新日期：2004-10-01 00:00:00

abstract：BACKGROUND:A universal consensus regarding standardized pain outcomes does not exist. The personalized pain goal has been suggested as a clinically relevant outcome measure. AIM:To assess the feasibility of obtaining a personalized pain goal and to compare a clinically based personalized pain goal definition versus a ...

journal_title：Palliative medicine

authors： Fainsinger R,Nekolaichuk C,Fainsinger L,Muller V,Fainsinger L,Amigo P,Brisebois A,Burton-Macleod S,Ghosh S,Gilbert R,Tarumi Y,Thai V,Wolch G

更新日期：2017-12-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：BACKGROUND:Sedatives are frequently used towards the end of life. However, there is scarce information when their use is labelled as 'palliative sedation'. AIM:To assess the use and labelling of 'continuous administration of sedatives within the last 7 days of life', based on objective operational criteria, on a palli...

journal_title：Palliative medicine

authors： Schildmann E,Pörnbacher S,Kalies H,Bausewein C

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. AIM:To evaluate perceived psychological support in relation to end-of...

journal_title：Palliative medicine

authors： Dombrecht L,Cohen J,Cools F,Deliens L,Goossens L,Naulaers G,Beernaert K,Chambaere K,NICU consortium.

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Patient misunderstandings about prognosis may be related to lack of communication. AIM:This study aimed to examine prognosis discussions held with hospitalized patients for whom palliative care consultations were requested, and if prognosis discussions did not occur, to explore why not. DESIGN:This was a s...

journal_title：Palliative medicine

authors： Chang A,Datta-Barua I,McLaughlin B,Daly B

更新日期：2014-04-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：:Homeless persons tend to die younger than the housed population and have complex, often unmet, end-of-life care needs. High levels of illicit drug use among this population are a particular challenge for health and social services professionals involved in end-of-life care services delivery. This article explores the ...

journal_title：Palliative medicine

authors： McNeil R,Guirguis-Younger M

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：:There is growing evidence that the palliative care needs of certain people, such as those from minority ethnic groups, are not being met. The aim of this study was to investigate whether place of death from cancer differs between ethnic groups. A total of 101,516 patients resident in South East England and who died fr...

journal_title：Palliative medicine

authors： Coupland VH,Madden P,Jack RH,Møller H,Davies EA

更新日期：2011-06-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：BACKGROUND:Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a ke...

journal_title：Palliative medicine

authors： Collier A,Morgan DD,Swetenham K,To TH,Currow DC,Tieman JJ

更新日期：2016-04-01 00:00:00

abstract：:The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity ...

journal_title：Palliative medicine

authors： Lo RS,Woo J,Zhoc KC,Li CY,Yeo W,Johnson P,Mak Y,Lee J

更新日期：2001-09-01 00:00:00

abstract：:This paper reviews a number of studies relating to religion and coping with chronic illness, emphasizing those aspects relevant to palliative care. After pointing out that religious and existential needs are common in chronic illness, a critical examination is made of those studies which purport to demonstrate associa...

journal_title：Palliative medicine

authors： Dein S,Stygall J

更新日期：1997-07-01 00:00:00