The 'safe death': An ethnographic study exploring the perspectives of rural palliative care patients and family caregivers.

abstract：BACKGROUND:Patients approaching death often have a decreasing oral intake, which can be distressing for relatives. Little is known about the relatives' experiences with and perceptions of oral intake at the end of life. AIM:This study aims to contribute to a more thorough understanding of relatives' concerns regarding...

journal_title：Palliative medicine

authors： Raijmakers NJ,Clark JB,van Zuylen L,Allan SG,van der Heide A

更新日期：2013-07-01 00:00:00

abstract：BACKGROUND:Specialist palliative care (SPC) services in Ireland are well developed by international standards. However, standardized information on all patients of SPC services is not collected so the proportion of patients seen with a noncancer diagnosis is just an estimate at 5%. AIMS:To describe Irish SPC services'...

journal_title：Palliative medicine

authors： O'Leary N,Tiernan E

更新日期：2008-01-01 00:00:00

abstract：:The quality of research, and the resulting quality of evidence available to guide palliative care, is dependent on the ethical decisions underpinning its design, conduct and report. Whilst much has been published debating the ethics of palliative care research, an assessment of the quality and synthesis of the central...

journal_title：Palliative medicine

authors： Duke S,Bennett H

更新日期：2010-03-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：BACKGROUND:Little is known about the attitudes of healthcare professional students' perceived competence and confidence in treating those with dementia who are at the end of life. AIM:To explore the attitudes of final year medical, nursing and pharmacy students towards people with dementia and to evaluate their percei...

journal_title：Palliative medicine

authors： De Witt Jansen B,Weckmann M,Nguyen CM,Parsons C,Hughes CM

更新日期：2013-10-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to be effective in alleviating cancer pain in patients for whom the conventional World Health Organization approach has proved insufficient. A multidisciplinary interventional cancer pain service was established in the West of Scotland in 2008 with the aim of providing a sa...

journal_title：Palliative medicine

authors： Mitchell A,McGhie J,Owen M,McGinn G

更新日期：2015-06-01 00:00:00

abstract：:The purpose of this study was to compare patient and proxy (physician and nurse) assessments of symptoms in advanced cancer patients. The sample consisted of 49 patients with advanced cancer admitted to an acute palliative care unit. Three independent assessments were completed for each patient on two occasions within...

journal_title：Palliative medicine

authors： Nekolaichuk CL,Bruera E,Spachynski K,MacEachern T,Hanson J,Maguire TO

更新日期：1999-07-01 00:00:00

abstract：BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

journal_title：Palliative medicine

authors： Gerber K,Hayes B,Bryant C

更新日期：2019-07-01 00:00:00

abstract：BACKGROUND:Burn units are intensive care facilities specialized in the treatment of patients with severe burns. As burn injuries have a major impact in physical, psychosocial, and spiritual health, palliative care can be a strengthening component of integrated care. AIM:To review and appraise the existing evidence abo...

journal_title：Palliative medicine

authors： Ribeiro AF,Martins Pereira S,Gomes B,Nunes R

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS:To identify rec...

journal_title：Palliative medicine

authors： Day E,Jones L,Langner R,Bluebond-Langner M

更新日期：2016-12-01 00:00:00

abstract：:Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family...

journal_title：Palliative medicine

authors： Giles S,Miyasaki J

更新日期：2009-03-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：BACKGROUND:Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands i...

journal_title：Palliative medicine

authors： Henriksson A,Årestedt K

更新日期：2013-07-01 00:00:00

abstract：BACKGROUND:Cytochrome P450 3A is the most relevant drug-metabolizing enzyme in humans as it is involved in the elimination of 50% of marketed drugs. Nothing is known about the activity of cytochrome P450 3A in palliative care patients who have complicated symptoms often associated with a terminal illness. AIM:In order...

journal_title：Palliative medicine

authors： Geist M,Bardenheuer H,Burhenne J,Mikus G

更新日期：2019-07-01 00:00:00

abstract：BACKGROUND:Primary care has the potential to play significant roles in providing effective palliative care for non-cancer patients. AIM:To identify, critically appraise and synthesise the existing evidence on views on the provision of palliative care for non-cancer patients by primary care providers and reveal any gap...

journal_title：Palliative medicine

authors： Oishi A,Murtagh FE

更新日期：2014-10-01 00:00:00

abstract：:Using a decision-making and treatment checklist developed to facilitate the at-home palliative sedation process, we assessed the incidence and efficacy of palliative sedation for end-of-life cancer patients with intractable symptoms who died at home. We retrospectively reviewed the medical records of 370 patients who ...

journal_title：Palliative medicine

authors： Alonso-Babarro A,Varela-Cerdeira M,Torres-Vigil I,Rodríguez-Barrientos R,Bruera E

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to reduce pain in patients where conventional systemic analgesia has been ineffective or intolerable. However, there is little information regarding the effects of intrathecal drug delivery on quality of life and function in those with advanced, incurable cancer. AIM:Retro...

journal_title：Palliative medicine

authors： Patel N,Huddart M,Makins H,Mitchell T,Gibbins JL,Graterol J,Stevens D,Perkins P

更新日期：2018-01-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：BACKGROUND:Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. AIM:To identify the elements that nursing home residents' family carers perceive as good end-of-life care and develop a conceptual mod...

journal_title：Palliative medicine

authors： Gonella S,Basso I,De Marinis MG,Campagna S,Di Giulio P

更新日期：2019-06-01 00:00:00

abstract：OBJECTIVES:To identify and explore the educational needs of children's hospice doctors in England. DESIGN:A descriptive quantitative and qualitative survey. SETTING:Children's hospices in England. PARTICIPANTS:All children's hospice doctors (n =55) in England were approached, and 35 (65%) consented. INTERVENTIONS:A...

journal_title：Palliative medicine

authors： Amery J,Lapwood S

更新日期：2004-12-01 00:00:00

abstract：:The frequency of the use of laxatives, and the relationship between doses of laxatives and of opioid analgesia, were determined by a prospective study of 498 hospice inpatients with advanced cancer. Laxatives were required by 87% of patients taking oral strong opioids, 74% of those on weak opioids and 64% of those not...

journal_title：Palliative medicine

authors： Sykes NP

更新日期：1998-09-01 00:00:00

abstract：BACKGROUND:There is increasing demand for primary care practitioners to play a key role in palliative care delivery. Given this, it is important to understand their perceptions of the barriers and enablers to optimal palliative care, and how commonly these are experienced. AIM:To explore the type and prevalence of bar...

journal_title：Palliative medicine

authors： Carey ML,Zucca AC,Freund MA,Bryant J,Herrmann A,Roberts BJ

更新日期：2019-10-01 00:00:00

abstract：BACKGROUND:Clinical pathways aim to ensure that individuals receive appropriate evidence-based care and interventions, with the Liverpool Care Pathway for the Dying Patient focusing on end of life. However, controlled studies of the Liverpool Care Pathway for the Dying Patient, particularly outside of cancer settings, ...

journal_title：Palliative medicine

authors： Brännström M,Fürst CJ,Tishelman C,Petzold M,Lindqvist O

更新日期：2016-01-01 00:00:00

abstract：:Dysphagia is a common and distressing problem in motor neurone disease. This paper examines some of the strategies available for managing patients with dysphagia, and illustrates these with four contrasting case histories. The factors which influence the decision making process in patients with dysphagia are also disc...

journal_title：Palliative medicine

authors： Scott A,Heughan A

更新日期：1993-01-01 00:00:00

abstract：:Comprehensive palliative care programs are often implemented on a community level, and to evaluate such interventions, randomization by cluster (community) may be the only feasible method. In trials randomizing individual subjects, the importance of proper concealment has been stressed. In cluster randomized trials, h...

journal_title：Palliative medicine

authors： Jordhøy MS,Fayers PM,Ahlner-Elmqvist M,Kaasa S

更新日期：2002-01-01 00:00:00

abstract：:A system of 12-hour nursing shifts was adopted at a newly-opened independent hospice. This paper presents the results from an exploratory, descriptive study in which nursing staff reported perceived advantages, disadvantages and satisfaction with the 12-hour shift system. A small sample (n = 11) of both qualified and ...

journal_title：Palliative medicine

authors： Hodgson LA

更新日期：1995-04-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:Death anxiety is important but understudied in palliative care. New self-report measurements have been developed, but their interpretation and clinical utility may not be evident. AIM:To inform our understanding of death anxiety in patients with advanced cancer by exploring the relationship between this sel...

journal_title：Palliative medicine

authors： Tong E,Deckert A,Gani N,Nissim R,Rydall A,Hales S,Rodin G,Lo C

更新日期：2016-09-01 00:00:00

abstract：:In an increasingly secular age in which society no longer offers a code of behaviour for those who are bereaved as in Victorian times, the majority of people do not seek support from church-based rituals of remembrance. Most hospices provide religious Services of Remembrance and Thanksgiving or non-faith remembrance g...

journal_title：Palliative medicine

authors： Vale-Taylor P

更新日期：2009-09-01 00:00:00