Information disclosure to terminally ill patients and their relatives: self-reported practice of Belgian clinical specialists and general practitioners.

abstract：BACKGROUND:Early palliative care improves quality of life during life-prolonging treatment for patients with cancer, but the role of nurses in facilitating the early involvement of palliative care is unclear. AIM:To conceptualize the psychosocial processes involved in the introduction and provision of palliative care ...

journal_title：Palliative medicine

authors： Mohammed S,Savage P,Kevork N,Swami N,Rodin G,Zimmermann C

更新日期：2020-02-01 00:00:00

abstract：BACKGROUND:The Surprise Question ("Would I be surprised if this patient were to die within the next 12 months?") is widely used to identify palliative patients, though with low predictive value. To improve timely identification of palliative care needs, we propose an additional Surprise Question ("Would I be surprised ...

journal_title：Palliative medicine

authors： Ermers DJ,Kuip EJ,Veldhoven C,Schers HJ,Perry M,Bronkhorst EM,Vissers KC,Engels Y

更新日期：2021-01-11 00:00:00

abstract：PURPOSE:In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. METHODS:We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that pres...

journal_title：Palliative medicine

authors： Albers G,Echteld MA,de Vet HC,Onwuteaka-Philipsen BD,van der Linden MH,Deliens L

更新日期：2010-01-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：BACKGROUND:in community studies the prevalence of depression is higher in women than men; however, in palliative care settings this relationship is usually less strong, absent or reversed. AIM:to identify reasons for excess depression among men receiving palliative care. DESIGN:cross-sectional study. SETTING/PARTICI...

journal_title：Palliative medicine

authors： Hayes RD,Lee W,Rayner L,Price A,Monroe B,Hansford P,Sykes N,Hotopf M

更新日期：2012-07-01 00:00:00

abstract：BACKGROUND:End-of-life implantable cardioverter defibrillator deactivation discussions should commence before device implantation and be ongoing, yet many implantable cardioverter defibrillators remain active in patients' last days. AIM:To examine associations among implantable cardioverter defibrillator knowledge, pa...

journal_title：Palliative medicine

authors： McEvedy SM,Cameron J,Lugg E,Miller J,Haedtke C,Hammash M,Biddle MJ,Lee KS,Mariani JA,Ski CF,Thompson DR,Chung ML,Moser DK

更新日期：2018-01-01 00:00:00

abstract：:Using a decision-making and treatment checklist developed to facilitate the at-home palliative sedation process, we assessed the incidence and efficacy of palliative sedation for end-of-life cancer patients with intractable symptoms who died at home. We retrospectively reviewed the medical records of 370 patients who ...

journal_title：Palliative medicine

authors： Alonso-Babarro A,Varela-Cerdeira M,Torres-Vigil I,Rodríguez-Barrientos R,Bruera E

更新日期：2010-07-01 00:00:00

abstract：:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

journal_title：Palliative medicine

authors： Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

更新日期：2010-10-01 00:00:00

abstract：:The Association for Palliative Medicine (APM) produced a previous undergraduate palliative medicine syllabus in 1992. This study describes the process of developing the new APM consensus syllabus against the background of changes in medical education and palliative medicine since 1992. The syllabus was derived by mean...

journal_title：Palliative medicine

authors： Paes P,Wee B

更新日期：2008-06-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：:We investigated the impact of perception of socioeconomic burden on beliefs regarding a patient's autonomy in end-of-life (EOL) decision making. We also sought to identify the characteristics of individuals who advocate patient autonomy and their attitudes toward other EOL issues. A total of 1055 individuals from the ...

journal_title：Palliative medicine

authors： Kwon YC,Shin DW,Lee JH,Heo DS,Hong YS,Kim SY,Yun YH

更新日期：2009-01-01 00:00:00

abstract：OBJECTIVES:To explore the experiences of people involved in UK palliative care day services (PCDS) and identify the important outcomes of this service. METHODS:Focus groups were carried out separately with patients, informal carers and volunteers from four purposively selected palliative care day units and with day un...

journal_title：Palliative medicine

authors： Low J,Perry R,Wilkinson S

更新日期：2005-01-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Terminal illness not only causes physical suffering but also spiritual distress. Spiritual care has been widely implemented by healthcare professionals to assist patients coping with spiritual distress. However, the effects of spiritual care need to be clear. AIM:To evaluate the effects of spiritual care on...

journal_title：Palliative medicine

authors： Chen J,Lin Y,Yan J,Wu Y,Hu R

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:Clinical pathways aim to ensure that individuals receive appropriate evidence-based care and interventions, with the Liverpool Care Pathway for the Dying Patient focusing on end of life. However, controlled studies of the Liverpool Care Pathway for the Dying Patient, particularly outside of cancer settings, ...

journal_title：Palliative medicine

authors： Brännström M,Fürst CJ,Tishelman C,Petzold M,Lindqvist O

更新日期：2016-01-01 00:00:00

abstract：:Access to palliative care (PC) is a major need worldwide. Using hospital charts of all patients who died over one year (April 2008-March 2009) in two mid-sized hospitals of a large Canadian city, similar in size and function and operated by the same administrative group, this study examined which patients who could be...

journal_title：Palliative medicine

authors： Cohen J,Wilson DM,Thurston A,MacLeod R,Deliens L

更新日期：2012-01-01 00:00:00

abstract：:Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

journal_title：Palliative medicine

authors： McPherson CJ,Wilson KG,Murray MA

更新日期：2007-03-01 00:00:00

abstract：BACKGROUND:Depressive disorders are common among cancer patients. Ketamine can quickly relieve depression, and its subcutaneous administration appears to be as effective as and probably safer than its standard intravenous administration. Herein, we report a case verifying the antidepressant effect of a subcutaneous esk...

journal_title：Palliative medicine

authors： Barbosa MG,Delfino RS,Sarin LM,Jackowski AP

更新日期：2020-06-01 00:00:00

abstract：:The purpose of this study is to analyze French general practitioners' attitudes toward prescribing opiate painkillers for dying patients and compare them with their attitudes toward making frequent home visits. One hundred and fifteen general practitioners indicated the acceptability of prescribing opiates in 48 scena...

journal_title：Palliative medicine

authors： Mas C,Albaret MC,Sorum PC,Mullet E

更新日期：2010-01-01 00:00:00

abstract：:Chronic cough is a distressing symptom experienced by approximately 37% of patients with advanced cancer. Palliation of chronic nonproductive cough should always first address the underlying cause but in some patients chronic, nonproductive cough persists and antitussive agents are required. Opioids are the gold stand...

journal_title：Palliative medicine

authors： Doona M,Walsh D

更新日期：1998-01-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to be effective in alleviating cancer pain in patients for whom the conventional World Health Organization approach has proved insufficient. A multidisciplinary interventional cancer pain service was established in the West of Scotland in 2008 with the aim of providing a sa...

journal_title：Palliative medicine

authors： Mitchell A,McGhie J,Owen M,McGinn G

更新日期：2015-06-01 00:00:00

abstract：INTRODUCTION:This research examines 2006 population-based data on persons who died in US nursing homes (NHs) and received hospice in the NH. METHODS:We compared dying persons characteristics and lengths of hospice stay in five US states between 1992 and 1996 and in 2006. We also compared characteristics of dying perso...

journal_title：Palliative medicine

authors： Sterns S,Miller SC

更新日期：2011-06-01 00:00:00

abstract：:Philip J Larkin, Fliss Murtagh, Heather Richardson, Myra Bluebond Langner and Sheila Payne (2016) Collaboration: Securing a future for palliative care research. Palliative Medicine, September 2016 30:8 709-710, doi: 10.1177/0269216316661970. ...

journal_title：Palliative medicine

authors：

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:Making palliative care accessible to all citizens who are in need of this type of care requires effective policies and education. Moreover, healthcare professionals have an ethical and legal responsibility to ensure quality palliative care. Nevertheless, palliative care has had traditionally a limited emphas...

journal_title：Palliative medicine

authors： Martins Pereira S,Hernández-Marrero P

更新日期：2016-10-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00

abstract：:When a person is diagnosed with a severe disease, it seems plausible that existential questions and death anxiety are easily intensified. The aims of this study were to explore whether this is the case, to what extent patients and their next of kin experience death anxiety, and how these experiences are expressed. Fol...

journal_title：Palliative medicine

authors： Adelbratt S,Strang P

更新日期：2000-11-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：BACKGROUND:Patients approaching death often have a decreasing oral intake, which can be distressing for relatives. Little is known about the relatives' experiences with and perceptions of oral intake at the end of life. AIM:This study aims to contribute to a more thorough understanding of relatives' concerns regarding...

journal_title：Palliative medicine

authors： Raijmakers NJ,Clark JB,van Zuylen L,Allan SG,van der Heide A

更新日期：2013-07-01 00:00:00

abstract：:Back pain resulting from spinal instability in metastatic bone disease can be difficult to alleviate by pharmacological methods and surgical intervention is frequently required. This paper discusses the treatment options with three illustrative case reports. ...

journal_title：Palliative medicine

authors： Fallon MT,O'Neill WM

更新日期：1993-01-01 00:00:00