Evaluation of quality-of-life measures for use in palliative care: a systematic review.

Abstract:

PURPOSE:In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. METHODS:We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that present data on patients receiving palliative care and at least one measurement property. A checklist was used to describe the characteristics of the instruments, and a widely accepted rating list was used to evaluate the clinimetric aspects. RESULTS:29 instruments were identified and evaluated, most of which were targeted at palliative patients in general. None of the instruments demonstrated satisfactory results for all measurement properties. Fourteen instruments received positive ratings for construct validity. Thirteen instruments were tested for reliability, but only two were tested adequately and had positive results (ICC>0.70). Responsiveness was not tested adequately for any of the instruments. Very few of the studies provided information on the interpretation of the scores. Overall, the MQOL, followed by the QUAL-E and the QODD, received the best ratings for their measurement properties. CONCLUSIONS:Many measurement instruments were identified, but most had not yet been adequately evaluated. The evaluation of existing instruments with good content validity should have priority over the development of new instruments.

journal_name

Palliat Med

journal_title

Palliative medicine

authors

Albers G,Echteld MA,de Vet HC,Onwuteaka-Philipsen BD,van der Linden MH,Deliens L

doi

10.1177/0269216309346593

subject

Has Abstract

pub_date

2010-01-01 00:00:00

pages

17-37

issue

1

eissn

0269-2163

issn

1477-030X

pii

0269216309346593

journal_volume

24

pub_type

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