The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: a systematic review of views from patients, carers and health-care professionals.

Abstract:

BACKGROUND:Primary care has the potential to play significant roles in providing effective palliative care for non-cancer patients. AIM:To identify, critically appraise and synthesise the existing evidence on views on the provision of palliative care for non-cancer patients by primary care providers and reveal any gaps in the evidence. DESIGN:Standard systematic review and narrative synthesis. DATA SOURCES:MEDLINE, Embase, CINAHL, PsycINFO, Applied Social Science Abstract and the Cochrane library were searched in 2012. Reference searching, hand searching, expert consultations and grey literature searches complemented these. Papers with the views of patients/carers or professionals on primary palliative care provision to non-cancer patients in the community were included. The amended Hawker's criteria were used for quality assessment of included studies. RESULTS:A total of 30 studies were included and represent the views of 719 patients, 605 carers and over 400 professionals. In all, 27 studies are from the United Kingdom. Patients and carers expect primary care physicians to provide compassionate care, have appropriate knowledge and play central roles in providing care. The roles of professionals are unclear to patients, carers and professionals themselves. Uncertainty of illness trajectory and lack of collaboration between health-care professionals were identified as barriers to effective care. CONCLUSIONS:Effective interprofessional work to deal with uncertainty and maintain coordinated care is needed for better palliative care provision to non-cancer patients in the community. Research into and development of a best model for effective interdisciplinary work are needed.

journal_name

Palliat Med

journal_title

Palliative medicine

authors

Oishi A,Murtagh FE

doi

10.1177/0269216314531999

subject

Has Abstract

pub_date

2014-10-01 00:00:00

pages

1081-98

issue

9

eissn

0269-2163

issn

1477-030X

pii

0269216314531999

journal_volume

28

pub_type

杂志文章,评审
  • Shared decision-making in palliative care: a systematic mixed studies review using narrative synthesis.

    abstract::The aim of this study is to synthesize knowledge about the process of shared decision-making (SDM) in palliative care. Medline, EMBASE, CINAHL, PsychInfo, Web of Science were searched with core concepts: shared decisions, patient participation in decision-making, and palliative care. Titles and abstracts were screened...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/0269216310389348

    authors: Bélanger E,Rodríguez C,Groleau D

    更新日期:2011-04-01 00:00:00

  • Lack of concealment may lead to selection bias in cluster randomized trials of palliative care.

    abstract::Comprehensive palliative care programs are often implemented on a community level, and to evaluate such interventions, randomization by cluster (community) may be the only feasible method. In trials randomizing individual subjects, the importance of proper concealment has been stressed. In cluster randomized trials, h...

    journal_title:Palliative medicine

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1191/0269216302pm523oa

    authors: Jordhøy MS,Fayers PM,Ahlner-Elmqvist M,Kaasa S

    更新日期:2002-01-01 00:00:00

  • Palliative care nursing education features more prominently in 2015 than 2005: Results from a nationwide survey and qualitative analysis of curricula.

    abstract:BACKGROUND:Making palliative care accessible to all citizens who are in need of this type of care requires effective policies and education. Moreover, healthcare professionals have an ethical and legal responsibility to ensure quality palliative care. Nevertheless, palliative care has had traditionally a limited emphas...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216316639794

    authors: Martins Pereira S,Hernández-Marrero P

    更新日期:2016-10-01 00:00:00

  • Defining the palliative care patient: a systematic review.

    abstract:BACKGROUND:The lack of a clear definition of the palliative care patient hampers the comparison of results across different studies and impedes implementation of research findings in everyday practice. AIM:The aim of this article is to propose minimum characteristics that define a palliative care patient. DESIGN:The ...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/0269216311435268

    authors: Van Mechelen W,Aertgeerts B,De Ceulaer K,Thoonsen B,Vermandere M,Warmenhoven F,Van Rijswijk E,De Lepeleire J

    更新日期:2013-03-01 00:00:00

  • Chronically homeless persons' participation in an advance directive intervention: A cohort study.

    abstract:BACKGROUND:Chronically homeless individuals have high rates of hospitalization and death, and they may benefit from the completion of advance directives. AIM:To determine the rate of advance directive completion using a counselor-guided intervention, identify characteristics associated with advance directive completio...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216315575679

    authors: Leung AK,Nayyar D,Sachdeva M,Song J,Hwang SW

    更新日期:2015-09-01 00:00:00

  • Depressive symptoms in advanced cancer. Part 1. Assessing depression: the Mood Evaluation Questionnaire.

    abstract:OBJECTIVE:A prospective cohort study evaluated the performance and acceptability of the cognitive based Mood Evaluation Questionnaire (MEQ) in assessing depressive symptoms over time in patients with advanced cancer. The structured clinical interview for DSM-III-R (SCID) and the single-item interview screening question...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1191/0269216303pm812oa

    authors: Meyer HA,Sinnott C,Seed PT

    更新日期:2003-10-01 00:00:00

  • Depression in palliative care: a systematic review. Part 2. Treatment.

    abstract:OBJECTIVE:To summarize available literature containing data on the treatment of depression in palliative care patients. METHODS:A systematic review was conducted using extensive electronic databases and hand searches. All randomized controlled trials (RCTs) of interventions for depression in patients with advanced dis...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1191/0269216302pm570oa

    authors: Ly KL,Chidgey J,Addington-Hall J,Hotopf M

    更新日期:2002-07-01 00:00:00

  • Preparing palliative home care nurses to act as facilitators for physicians' learning: Evaluation of a training programme.

    abstract:BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

    journal_title:Palliative medicine

    pub_type: 杂志文章,随机对照试验

    doi:10.1177/0269216314560391

    authors: Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

    更新日期:2015-05-01 00:00:00

  • Improving the delivery of palliative care in general practice: an evaluation of the first phase of the Gold Standards Framework.

    abstract:BACKGROUND:The Gold Standards Framework (GSF) was developed to improve the delivery of palliative care in general practice. AIM:The aim of the study was to evaluate the first phase of GSF in terms of its acceptability to primary care teams, effectiveness in changing practice and professionals' views on the consequence...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216306072501

    authors: Thomas K,Noble B

    更新日期:2007-01-01 00:00:00

  • QOLLTI-F: measuring family carer quality of life.

    abstract:BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

    journal_title:Palliative medicine

    pub_type: 杂志文章,多中心研究

    doi:10.1177/0269216306072764

    authors: Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

    更新日期:2006-12-01 00:00:00

  • A study of animal companionship in a day hospice.

    abstract::Attitudes to companion animals were surveyed among 50 patients and staff at a day care hospice. Dog visits were welcomed by all but two. Of the 37 patients studied, only seven had a companion animal, often their closest companion. Many more would like to keep an animal, but were prevented by age, frailty or accommodat...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/026921639601000410

    authors: Phear DN

    更新日期:1996-10-01 00:00:00

  • The effects of spiritual care on quality of life and spiritual well-being among patients with terminal illness: A systematic review.

    abstract:BACKGROUND:Terminal illness not only causes physical suffering but also spiritual distress. Spiritual care has been widely implemented by healthcare professionals to assist patients coping with spiritual distress. However, the effects of spiritual care need to be clear. AIM:To evaluate the effects of spiritual care on...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216318772267

    authors: Chen J,Lin Y,Yan J,Wu Y,Hu R

    更新日期:2018-07-01 00:00:00

  • Feeling like a burden to others: a systematic review focusing on the end of life.

    abstract::Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/0269216307076345

    authors: McPherson CJ,Wilson KG,Murray MA

    更新日期:2007-03-01 00:00:00

  • Gender differences in prevalence of depression among patients receiving palliative care: the role of dependency.

    abstract:BACKGROUND:in community studies the prevalence of depression is higher in women than men; however, in palliative care settings this relationship is usually less strong, absent or reversed. AIM:to identify reasons for excess depression among men receiving palliative care. DESIGN:cross-sectional study. SETTING/PARTICI...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216311416035

    authors: Hayes RD,Lee W,Rayner L,Price A,Monroe B,Hansford P,Sykes N,Hotopf M

    更新日期:2012-07-01 00:00:00

  • 'Was it worth it?' Intrathecal analgesia for cancer pain: A qualitative study exploring the views of family carers.

    abstract:BACKGROUND:Intrathecal drug delivery is known to reduce pain in patients where conventional systemic analgesia has been ineffective or intolerable. However, there is little information regarding the effects of intrathecal drug delivery on quality of life and function in those with advanced, incurable cancer. AIM:Retro...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216317723777

    authors: Patel N,Huddart M,Makins H,Mitchell T,Gibbins JL,Graterol J,Stevens D,Perkins P

    更新日期:2018-01-01 00:00:00

  • Pain scales in children: a review.

    abstract::This is a review of tools that have been developed to assess pain in children, with a brief evaluation of their practicality and validity. There are some suggestions for the direction of future research in the development and use of the scales. ...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/026921639701100503

    authors: Hain RD

    更新日期:1997-09-01 00:00:00

  • Review: a narrative review of the published ethical debates in palliative care research and an assessment of their adequacy to inform research governance.

    abstract::The quality of research, and the resulting quality of evidence available to guide palliative care, is dependent on the ethical decisions underpinning its design, conduct and report. Whilst much has been published debating the ethics of palliative care research, an assessment of the quality and synthesis of the central...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/0269216309352714

    authors: Duke S,Bennett H

    更新日期:2010-03-01 00:00:00

  • The misuse/abuse of antihistamine antiemetic medication (cyclizine) by cancer patients.

    abstract::Cyclizine is an antihistamine, which is frequently used to manage nausea and vomiting in cancer patients. Antihistamines can be drugs of misuse/abuse, and the article describes four cancer patients who developed such problems after receiving parenteral cyclizine within the inpatient unit of a cancer centre. The articl...

    journal_title:Palliative medicine

    pub_type: 杂志文章,评审

    doi:10.1177/0269216308094337

    authors: Bailey F,Davies A

    更新日期:2008-10-01 00:00:00

  • Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review.

    abstract:BACKGROUND:The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure. AIM:To ...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216320963941

    authors: Ament SM,Couwenberg IM,Boyne JJ,Kleijnen J,Stoffers HE,van den Beuken MH,Engels Y,Bellersen L,Janssen DJ

    更新日期:2021-01-01 00:00:00

  • 'It all depends!': A qualitative study of preferences for place of care and place of death in terminally ill patients and their family caregivers.

    abstract:BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216319845794

    authors: Gerber K,Hayes B,Bryant C

    更新日期:2019-07-01 00:00:00

  • Measuring patient outcomes in palliative care: a reliability and validity study of the Support Team Assessment Schedule.

    abstract::This study reports the process and results of a psychometric evaluation of a clinical audit tool, the Support Team Assessment Schedule (STAS), used to measure outcomes of palliative care. The STAS was developed in London, UK to audit community palliative care services provided by a support team. The purpose of this st...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1191/026921600677786382

    authors: Carson MG,Fitch MI,Vachon ML

    更新日期:2000-01-01 00:00:00

  • Cross-cultural validation of the McGill Quality of Life questionnaire in Hong Kong Chinese.

    abstract::The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity ...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1191/026921601680419438

    authors: Lo RS,Woo J,Zhoc KC,Li CY,Yeo W,Johnson P,Mak Y,Lee J

    更新日期:2001-09-01 00:00:00

  • The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire.

    abstract::The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216310373168

    authors: Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

    更新日期:2010-10-01 00:00:00

  • Palliative care services: what needs assessment?

    abstract::A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/026921639500900403

    authors: Robbins MA,Frankel SJ

    更新日期:1995-10-01 00:00:00

  • 'Oh God, not a palliative': out-of-hours general practitioners within the domain of palliative care.

    abstract::To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216310368580

    authors: Taubert M,Nelson A

    更新日期:2010-07-01 00:00:00

  • The 'safe death': An ethnographic study exploring the perspectives of rural palliative care patients and family caregivers.

    abstract:BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216318800613

    authors: Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

    更新日期:2018-12-01 00:00:00

  • Existential issues do not necessarily result in existential suffering: lessons from cancer patients in Israel.

    abstract::Existential distress has been recognized as a source of suffering for oncology patients. This study focusses on existential issues and coping mechanisms of a unique culturally diverse Jewish/Middle Eastern oncology population. A qualitative assessment of 40 patients with advanced cancer was undertaken through an inter...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1191/0269216305pm1038oa

    authors: Blinderman CD,Cherny NI

    更新日期:2005-07-01 00:00:00

  • Which patients with terminal cancer are admitted from home care?

    abstract::The factors related to admission of patients with terminal cancer who had been referred to a reputable home care service were examined in 415 patients referred in a two-year period and in a prospective study of a randomized one in three sample of the 232 adults still alive one week after referral, who were able to con...

    journal_title:Palliative medicine

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1177/026921639400800303

    authors: Hinton J

    更新日期:1994-01-01 00:00:00

  • Inappropriateness of using opioids for end-stage palliative sedation: a Dutch study.

    abstract::To be able to distinguish end-stage palliative sedation from euthanasia without having to refer to intentions that are difficult to verify, physicians must be able to manage palliative sedation appropriately (i.e., see that death is not hastened as a result of disproportionate medication). In the present study, we ass...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216308091867

    authors: Reuzel RP,Hasselaar GJ,Vissers KC,van der Wilt GJ,Groenewoud JM,Crul BJ

    更新日期:2008-07-01 00:00:00

  • Retrospective evaluation of palliative care and hospice utilization in hospitalized patients with metastatic breast cancer.

    abstract:BACKGROUND:Hospitalizations in patients with metastatic cancer occur commonly at the end of life but have not been well-described in individuals with metastatic breast cancer. AIM:To describe the reasons for admission and frequency of palliative care and hospice utilization in hospitalized patients with metastatic bre...

    journal_title:Palliative medicine

    pub_type: 杂志文章

    doi:10.1177/0269216316637238

    authors: Shin JA,Parkes A,El-Jawahri A,Traeger L,Knight H,Gallagher ER,Temel JS

    更新日期:2016-10-01 00:00:00