Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness.

abstract：BACKGROUND:Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. AIM:To evaluate perceived psychological support in relation to end-of...

journal_title：Palliative medicine

authors： Dombrecht L,Cohen J,Cools F,Deliens L,Goossens L,Naulaers G,Beernaert K,Chambaere K,NICU consortium.

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:in community studies the prevalence of depression is higher in women than men; however, in palliative care settings this relationship is usually less strong, absent or reversed. AIM:to identify reasons for excess depression among men receiving palliative care. DESIGN:cross-sectional study. SETTING/PARTICI...

journal_title：Palliative medicine

authors： Hayes RD,Lee W,Rayner L,Price A,Monroe B,Hansford P,Sykes N,Hotopf M

更新日期：2012-07-01 00:00:00

abstract：:The most commonly encountered clinical conditions presenting with cognitive failure (CF) are delirium, dementia and amnestic disorders. Of these, delirium is probably the most prevalent in palliative care, and it is potentially reversible. Thus, improvement in diagnostics seems warranted. The objectives of this review...

journal_title：Palliative medicine

authors： Hjermstad M,Loge JH,Kaasa S

更新日期：2004-09-01 00:00:00

abstract：:E-technology is increasingly used in oncology to obtain self-reported symptom assessment information from patients, although its potential to provide a clinical monitoring tool in palliative care is relatively unexplored in the UK. This study aimed to evaluate the support provided to lung cancer patients post palliati...

journal_title：Palliative medicine

authors： Cox A,Illsley M,Knibb W,Lucas C,O'Driscoll M,Potter C,Flowerday A,Faithfull S

更新日期：2011-10-01 00:00:00

abstract：:Homeless persons tend to die younger than the housed population and have complex, often unmet, end-of-life care needs. High levels of illicit drug use among this population are a particular challenge for health and social services professionals involved in end-of-life care services delivery. This article explores the ...

journal_title：Palliative medicine

authors： McNeil R,Guirguis-Younger M

更新日期：2012-06-01 00:00:00

abstract：:When a person is diagnosed with a severe disease, it seems plausible that existential questions and death anxiety are easily intensified. The aims of this study were to explore whether this is the case, to what extent patients and their next of kin experience death anxiety, and how these experiences are expressed. Fol...

journal_title：Palliative medicine

authors： Adelbratt S,Strang P

更新日期：2000-11-01 00:00:00

abstract：:The frequency of the use of laxatives, and the relationship between doses of laxatives and of opioid analgesia, were determined by a prospective study of 498 hospice inpatients with advanced cancer. Laxatives were required by 87% of patients taking oral strong opioids, 74% of those on weak opioids and 64% of those not...

journal_title：Palliative medicine

authors： Sykes NP

更新日期：1998-09-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：:Patients with advanced cancer experience multiple demands and losses that place them at risk for experiencing psychological distress. Researchers can face challenges in conducting research among this population because of their poor levels of physical and cognitive functioning. This paper aims to develop our understan...

journal_title：Palliative medicine

authors： Ryan D,Gallagher P,Wright S,Cassidy E

更新日期：2012-03-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

journal_title：Palliative medicine

authors： Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:The Surprise Question ("Would I be surprised if this patient were to die within the next 12 months?") is widely used to identify palliative patients, though with low predictive value. To improve timely identification of palliative care needs, we propose an additional Surprise Question ("Would I be surprised ...

journal_title：Palliative medicine

authors： Ermers DJ,Kuip EJ,Veldhoven C,Schers HJ,Perry M,Bronkhorst EM,Vissers KC,Engels Y

更新日期：2021-01-11 00:00:00

abstract：BACKGROUND:Cancer-associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6 months. Most studies focus on prophylaxis and treatment; few have explored the patients' experience. AIMS:To identify and synthesise the available literature concerning patients' experience of ...

journal_title：Palliative medicine

authors： Benelhaj NB,Hutchinson A,Maraveyas AM,Seymour JD,Ilyas MW,Johnson MJ

更新日期：2018-05-01 00:00:00

abstract：BACKGROUND:Little is known about the impact of methicillin-resistant Staphylococcus aureus in palliative care settings. To date, the clinical impact of methicillin-resistant Staphylococcus aureus in palliative care is unknown. AIM:To determine prevalence and incidence of methicillin-resistant Staphylococcus aureus col...

journal_title：Palliative medicine

authors： Gleeson A,Larkin P,Walsh C,O'Sullivan N

更新日期：2016-04-01 00:00:00

abstract：BACKGROUND:There is widespread agreement that the families of hospice patients need to be prepared for the final days of life, yet current practices preparing families are not well described. Examining the gap between family needs and current practice will inform the development of effective preparatory interventions. ...

journal_title：Palliative medicine

authors： Kehl KA

更新日期：2015-02-01 00:00:00

abstract：BACKGROUND:We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. AIM:To find out in the existing literature what features of hospice at home models work best, for whom and under what cir...

journal_title：Palliative medicine

authors： Hashem F,Brigden C,Wilson P,Butler C

更新日期：2020-01-01 00:00:00

abstract：BACKGROUND:Hospital is the most common place of cancer death but concerns regarding the quality of end-of-life care remain. AIM:Preliminary assessment of the effectiveness of the Liverpool Care Pathway on the quality of end-of-life care provided to adult cancer patients during their last week of life in hospital. DES...

journal_title：Palliative medicine

authors： Costantini M,Pellegrini F,Di Leo S,Beccaro M,Rossi C,Flego G,Romoli V,Giannotti M,Morone P,Ivaldi GP,Cavallo L,Fusco F,Higginson IJ

更新日期：2014-01-01 00:00:00

abstract：BACKGROUND:Psychological distress is highly prevalent among patients with metastatic colorectal cancer. AIMS:To perform an economic evaluation of a combined screening and treatment program targeting psychological distress in patients with metastatic colorectal cancer in comparison with usual care. DESIGN:Societal cos...

journal_title：Palliative medicine

authors： El Alili M,Schuurhuizen CSEW,Braamse AMJ,Beekman ATF,van der Linden MH,Konings IR,Dekker J,Bosmans JE

更新日期：2020-07-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

journal_title：Palliative medicine

authors： Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

更新日期：2015-05-01 00:00:00

abstract：:Chronic cough is a distressing symptom experienced by approximately 37% of patients with advanced cancer. Palliation of chronic nonproductive cough should always first address the underlying cause but in some patients chronic, nonproductive cough persists and antitussive agents are required. Opioids are the gold stand...

journal_title：Palliative medicine

authors： Doona M,Walsh D

更新日期：1998-01-01 00:00:00

abstract：BACKGROUND:Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. AIM:To identify the elements that nursing home residents' family carers perceive as good end-of-life care and develop a conceptual mod...

journal_title：Palliative medicine

authors： Gonella S,Basso I,De Marinis MG,Campagna S,Di Giulio P

更新日期：2019-06-01 00:00:00

abstract：:The subject of communication between palliative care physicians and their patients regarding their diagnosis and prognosis has not been extensively researched. The purpose of this survey was to compare the attitudes and beliefs of palliative care specialists regarding communication with the terminally ill in Europe, S...

journal_title：Palliative medicine

authors： Bruera E,Neumann CM,Mazzocato C,Stiefel F,Sala R

更新日期：2000-07-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：STUDY OBJECTIVE:The Italian Survey of the Dying of Cancer (ISDOC) was undertaken to evaluate the experiences of Italian people dying from cancer during their last three months of life in all settings of care. STUDY DESIGN:A two-stage probability sample was used to estimate end-of-life outcomes of about 160 000 Italian...

journal_title：Palliative medicine

authors： Costantini M,Beccaro M,Merlo F,ISDOC Study Group.

更新日期：2005-12-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：BACKGROUND:A normal vitamin D status is required for bones and muscles to maintain their function and structure, but it also contributes to the functional integrity of other multiple physiologic systems in the body. AIM:To assess the relationship of Vitamin D deficiency with health-related quality-of-life issues, fati...

journal_title：Palliative medicine

authors： Martínez-Alonso M,Dusso A,Ariza G,Nabal M

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:Previous findings implicated rumination (recurrent dwelling on abstract concerns) in elevated psychological distress in palliative patients. We hypothesised that reducing rumination may be important in addressing psychological distress in palliative care. AIM:This study tested the prediction that a brief gu...

journal_title：Palliative medicine

authors： Galfin JM,Watkins ER,Harlow T

更新日期：2012-04-01 00:00:00

abstract：BACKGROUND:The Delirium Observation Screening Scale (DOS) is designed to detect delirium by nurses' observations and has shown good psychometric properties. Its use in palliative care unit patients has not been studied. AIM:To determine diagnostic and concurrent validity, internal consistency, and user-friendliness of...

journal_title：Palliative medicine

authors： Detroyer E,Clement PM,Baeten N,Pennemans M,Decruyenaere M,Vandenberghe J,Menten J,Joosten E,Milisen K

更新日期：2014-01-01 00:00:00