A self-care, problem-solving and mindfulness intervention for informal caregivers of people with motor neurone disease: A pilot study.

abstract：BACKGROUND:Telehealth technologies are an emerging resource opening up the possibility of greater support if they have utility for patients, carers and clinicians. They may also help to meet health systems' imperatives for improved service delivery within current budgets. Clinicians' experiences and attitudes play a ke...

journal_title：Palliative medicine

authors： Collier A,Morgan DD,Swetenham K,To TH,Currow DC,Tieman JJ

更新日期：2016-04-01 00:00:00

abstract：:Breakthrough pain (BKP) is a transitory flare of pain that occurs on a background of relatively well controlled baseline pain. Previous surveys have found that BKP is highly prevalent among patients with cancer pain and predicts more severe pain, pain-related distress and functional impairment, and relatively poor qua...

journal_title：Palliative medicine

authors： Caraceni A,Martini C,Zecca E,Portenoy RK,Ashby MA,Hawson G,Jackson KA,Lickiss N,Muirden N,Pisasale M,Moulin D,Schulz VN,Rico Pazo MA,Serrano JA,Andersen H,Henriksen HT,Mejholm I,Sjogren P,Heiskanen T,Kalso E,Pere

更新日期：2004-04-01 00:00:00

abstract：BACKGROUND:Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. AIM:To review the...

journal_title：Palliative medicine

authors： Harrop E,Morgan F,Longo M,Semedo L,Fitzgibbon J,Pickett S,Scott H,Seddon K,Sivell S,Nelson A,Byrne A

更新日期：2020-07-01 00:00:00

abstract：BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

journal_title：Palliative medicine

authors： Gerber K,Hayes B,Bryant C

更新日期：2019-07-01 00:00:00

abstract：:Fifty junior residents completed a six-month training period. An anonymous postal questionnaire was sent to collect the residents' opinions on improvements in their knowledge, perception of priorities and usefulness of training. Responses were rated from 5 (a great deal) to 1 (not at all improved). A total of 33 (66%)...

journal_title：Palliative medicine

authors： Duong PH,Zulian GB

更新日期：2006-07-01 00:00:00

abstract：:A study of 95 children referred for palliative care was carried out at Queen Elizabeth Central Hospital in southern Malawi, to determine the prevalence of different symptoms and signs. Seventy-seven percent of the children had HIV, 17% had cancer and 6% had a variety of other diagnoses. The commonest symptoms spontane...

journal_title：Palliative medicine

authors： Lavy V

更新日期：2007-06-01 00:00:00

abstract：:Access to palliative care (PC) is a major need worldwide. Using hospital charts of all patients who died over one year (April 2008-March 2009) in two mid-sized hospitals of a large Canadian city, similar in size and function and operated by the same administrative group, this study examined which patients who could be...

journal_title：Palliative medicine

authors： Cohen J,Wilson DM,Thurston A,MacLeod R,Deliens L

更新日期：2012-01-01 00:00:00

abstract：BACKGROUND AND AIMS:Palliative medicine is not recognized as a medical specialty in any of the five Nordic countries, but there is a great need for physicians with specialty qualifications to serve on an increasing number of palliative care services. The Associations for Palliative Medicine in the five countries agreed...

journal_title：Palliative medicine

authors： Haugen DF,Vejlgaard T

更新日期：2008-04-01 00:00:00

abstract：:Restructuring health care in Canada has emphasized the provision of ambulatory and home-based palliative care. Acquiring economic evidence is critical given this trend and its tremendous demands on family caregivers. The purposes of this study were: 1) to comprehensively assess the societal costs of home-based palliat...

journal_title：Palliative medicine

authors： Guerriere DN,Zagorski B,Fassbender K,Masucci L,Librach L,Coyte PC

更新日期：2010-07-01 00:00:00

abstract：:Dysphagia is a common and distressing problem in motor neurone disease. This paper examines some of the strategies available for managing patients with dysphagia, and illustrates these with four contrasting case histories. The factors which influence the decision making process in patients with dysphagia are also disc...

journal_title：Palliative medicine

authors： Scott A,Heughan A

更新日期：1993-01-01 00:00:00

abstract：BACKGROUND:Burn units are intensive care facilities specialized in the treatment of patients with severe burns. As burn injuries have a major impact in physical, psychosocial, and spiritual health, palliative care can be a strengthening component of integrated care. AIM:To review and appraise the existing evidence abo...

journal_title：Palliative medicine

authors： Ribeiro AF,Martins Pereira S,Gomes B,Nunes R

更新日期：2019-12-01 00:00:00

abstract：:The McGill Quality of Life Questionnaire (MQOL) is a widely used tool that has been specifically developed to measure the quality of life of patients facing a life-threatening illness. Preferably, a self-report instrument has an equal number of items worded positively and negatively. However, all the psychological sca...

journal_title：Palliative medicine

authors： Henry M,Huang LN,Ferland MK,Mitchell J,Cohen SR

更新日期：2008-09-01 00:00:00

abstract：BACKGROUND:We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. AIM:To find out in the existing literature what features of hospice at home models work best, for whom and under what cir...

journal_title：Palliative medicine

authors： Hashem F,Brigden C,Wilson P,Butler C

更新日期：2020-01-01 00:00:00

abstract：PURPOSE/OBJECTIVE:Patients with cancer or symptoms referable to cancer therapy were offered acupuncture as potential palliation of their symptoms. This paper describes the physical integration of the discipline into the Oncology Clinic, and patient perspectives on its availability and efficacy. PATIENTS AND METHODS:Be...

journal_title：Palliative medicine

authors： Johnstone PA,Polston GR,Niemtzow RC,Martin PJ

更新日期：2002-05-01 00:00:00

abstract：:The presence of cognitive impairment in patients who are receiving hospice care can affect numerous practical, ethical and legal aspects of their healthcare. A number of factors can contribute to cognitive impairment in these patients. Prevalence rates of cognitive impairment vary widely, but it remains under-recognis...

journal_title：Palliative medicine

authors： Irwin SA,Zurhellen CH,Diamond LC,Dunn LB,Palmer BW,Jeste DV,Twamley EW

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00

abstract：:Outpatient palliative care can provide significant benefits to seriously ill patients, but several barriers to appropriate referrals remain. No study has examined the physician factors associated with referral to outpatient palliative care. To determine physician factors, with a focus on physician beliefs, associated ...

journal_title：Palliative medicine

authors： Ahluwalia SC,Fried TR

更新日期：2009-10-01 00:00:00

abstract：BACKGROUND:Being at peace is important for the quality of life of dying cancer patients, but its features, and the role of the doctor in facilitating peace, are unclear. AIM:We sought to understand the features of a peaceful patient, and patients' preferences regarding the role of the doctor in facilitating a sense of...

journal_title：Palliative medicine

authors： Best M,Butow P,Olver I

更新日期：2014-10-01 00:00:00

abstract：:Health-related quality of life (HRQL) is difficult to define and measure. It is a generic term that includes concepts such as physical health, life satisfaction, psychological well-being and self-integrity. Realizing and appreciating the importance of HRQL is crucial for physicians if they are to be in a position to o...

journal_title：Palliative medicine

authors： Mystakidou K,Tsilika E,Befon S,Kululias V,Vlahos L

更新日期：1999-09-01 00:00:00

abstract：:The Research Network of the European Association for Palliative Care (EAPC) performed a survey of 3030 cancer patients from 143 palliative care centres in 21 European countries. The survey addressed pain intensity and the use of non-opioid analgesics, adjuvant analgesics and opioids. Patients were treated with analges...

journal_title：Palliative medicine

authors： Klepstad P,Kaasa S,Cherny N,Hanks G,de Conno F,Research Steering Committee of the EAPC.

更新日期：2005-09-01 00:00:00

abstract：:Back pain resulting from spinal instability in metastatic bone disease can be difficult to alleviate by pharmacological methods and surgical intervention is frequently required. This paper discusses the treatment options with three illustrative case reports. ...

journal_title：Palliative medicine

authors： Fallon MT,O'Neill WM

更新日期：1993-01-01 00:00:00

abstract：OBJECTIVES:To explore the experiences of people involved in UK palliative care day services (PCDS) and identify the important outcomes of this service. METHODS:Focus groups were carried out separately with patients, informal carers and volunteers from four purposively selected palliative care day units and with day un...

journal_title：Palliative medicine

authors： Low J,Perry R,Wilkinson S

更新日期：2005-01-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：BACKGROUND:The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM:To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life car...

journal_title：Palliative medicine

authors： Ross L,Neergaard MA,Petersen MA,Groenvold M

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:The evidence supporting pharmacological treatment of death rattle is poor; yet, anticholinergic drugs feature in end-of-life care pathways and guidelines worldwide as a treatment option. AIM:This qualitative arm of a wider study aimed to explore important issues which health-care professionals associated wi...

journal_title：Palliative medicine

authors： Hirsch CA,Marriott JF,Faull CM

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS:To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify...

journal_title：Palliative medicine

authors： Dzingina MD,Reilly CC,Bausewein C,Jolley CJ,Moxham J,McCrone P,Higginson IJ,Yi D

更新日期：2017-04-01 00:00:00

abstract：BACKGROUND:This case report describes an end-stage cancer patient with intractable neuropathic pain and delirium who was successfully managed during the last 3 weeks of her life with a continuous subcutaneous infusion of dexmedetomidine. CASE PRESENTATION:A 55-year-old woman with locally advanced cervical cancer and u...

journal_title：Palliative medicine

authors： Hilliard N,Brown S,Mitchinson S

更新日期：2015-03-01 00:00:00

abstract：BACKGROUND:Communities have limited understanding of palliative care, creating barriers to informed choice around consideration of a full range of care options in the event of serious illness. Few empirically tested interventions are available to educate community about palliative care, and ultimately improve timely ac...

journal_title：Palliative medicine

authors： Collins A,McLachlan SA,Hill M,Collins S,Philip J

更新日期：2020-09-01 00:00:00

abstract：:Parenteral administration of mixtures of morphine with other drugs has become common practice in palliative care. Such mixtures are sometimes found to be incompatible but compatibility data are scarce. An attempt was made to develop a quick and simple investigation strategy to obtain complete information on the compat...

journal_title：Palliative medicine

authors： Vermeire A,Remon JP,Schrijvers D,Demeulenaere P

更新日期：2002-09-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00