How hospice staff members prepare family caregivers for the patient's final days of life: an exploratory study.

abstract：BACKGROUND:We developed a new single point of access to integrated palliative care, respiratory medicine and physiotherapy: the breathlessness support service for patients with advanced disease and refractory breathlessness. This study aimed to describe patients' experiences of the service and identify the aspects valu...

journal_title：Palliative medicine

authors： Reilly CC,Bausewein C,Pannell C,Moxham J,Jolley CJ,Higginson IJ

更新日期：2016-03-01 00:00:00

abstract：:Although anecdotal reports suggest nebulized lignocaine may help breathlessness in patients with cancer this has not been examined formally. We report a pilot study comparing nebulized lignocaine 100 mg and 200 mg with saline in six patients with cancer who were breathless at rest. Nebulized lignocaine was well tolera...

journal_title：Palliative medicine

authors： Wilcock A,Corcoran R,Tattersfield AE

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Of deaths in high-income countries, 75% are caused by progressive advanced chronic conditions. Palliative care needs to be extended from terminal cancer to these patients. However, direct measurement of the prevalence of people in need of palliative care in the population has not been attempted. AIM:Determi...

journal_title：Palliative medicine

authors： Gómez-Batiste X,Martínez-Muñoz M,Blay C,Amblàs J,Vila L,Costa X,Espaulella J,Espinosa J,Constante C,Mitchell GK

更新日期：2014-04-01 00:00:00

abstract：:To be able to distinguish end-stage palliative sedation from euthanasia without having to refer to intentions that are difficult to verify, physicians must be able to manage palliative sedation appropriately (i.e., see that death is not hastened as a result of disproportionate medication). In the present study, we ass...

journal_title：Palliative medicine

authors： Reuzel RP,Hasselaar GJ,Vissers KC,van der Wilt GJ,Groenewoud JM,Crul BJ

更新日期：2008-07-01 00:00:00

abstract：:In this population-based study, we found that parents who are aware that their child will die from a malignancy are more likely to care for their child at home during the child's last month of life compared to parents who are not aware. End-of-life home care was comparable to hospital care for satisfactory pain relief...

journal_title：Palliative medicine

authors： Surkan PJ,Dickman PW,Steineck G,Onelöv E,Kreicbergs U

更新日期：2006-04-01 00:00:00

abstract：:As part of a large multicentre study on palliative care units in Italy, carried out between 1 January and 30 June 1995, we describe the place, circumstances and 'quality of death' of patients admitted to home palliative care. Data presented refer to 401 patients (67% of the 601 patients randomly selected for evaluatio...

journal_title：Palliative medicine

authors： Peruselli C,Di Giulio P,Toscani F,Gallucci M,Brunelli C,Costantini M,Tamburini M,Paci E,Miccinesi G,Addington-Hall JM,Higginson IJ

更新日期：1999-05-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：BACKGROUND:Cancer-associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6 months. Most studies focus on prophylaxis and treatment; few have explored the patients' experience. AIMS:To identify and synthesise the available literature concerning patients' experience of ...

journal_title：Palliative medicine

authors： Benelhaj NB,Hutchinson A,Maraveyas AM,Seymour JD,Ilyas MW,Johnson MJ

更新日期：2018-05-01 00:00:00

abstract：:The aim of this study is to synthesize knowledge about the process of shared decision-making (SDM) in palliative care. Medline, EMBASE, CINAHL, PsychInfo, Web of Science were searched with core concepts: shared decisions, patient participation in decision-making, and palliative care. Titles and abstracts were screened...

journal_title：Palliative medicine

authors： Bélanger E,Rodríguez C,Groleau D

更新日期：2011-04-01 00:00:00

abstract：:A system of 12-hour nursing shifts was adopted at a newly-opened independent hospice. This paper presents the results from an exploratory, descriptive study in which nursing staff reported perceived advantages, disadvantages and satisfaction with the 12-hour shift system. A small sample (n = 11) of both qualified and ...

journal_title：Palliative medicine

authors： Hodgson LA

更新日期：1995-04-01 00:00:00

abstract：:The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity ...

journal_title：Palliative medicine

authors： Lo RS,Woo J,Zhoc KC,Li CY,Yeo W,Johnson P,Mak Y,Lee J

更新日期：2001-09-01 00:00:00

abstract：:Restructuring health care in Canada has emphasized the provision of ambulatory and home-based palliative care. Acquiring economic evidence is critical given this trend and its tremendous demands on family caregivers. The purposes of this study were: 1) to comprehensively assess the societal costs of home-based palliat...

journal_title：Palliative medicine

authors： Guerriere DN,Zagorski B,Fassbender K,Masucci L,Librach L,Coyte PC

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Previous findings implicated rumination (recurrent dwelling on abstract concerns) in elevated psychological distress in palliative patients. We hypothesised that reducing rumination may be important in addressing psychological distress in palliative care. AIM:This study tested the prediction that a brief gu...

journal_title：Palliative medicine

authors： Galfin JM,Watkins ER,Harlow T

更新日期：2012-04-01 00:00:00

abstract：BACKGROUND:Current end-of-life care policy and guidance recognises the important contribution of family carers, recommending that their needs should be assessed to support them in their caring role. How regular carer assessment is to be achieved is unclear, particularly because there is no evidence-based tool for direc...

journal_title：Palliative medicine

authors： Ewing G,Grande G,National Association for Hospice at Home.

更新日期：2013-03-01 00:00:00

abstract：BACKGROUND:In clinical practice the major role of opioid drugs is the management of malignant and nonmalignant pain. The primary aim of this study is to evaluate the trend in sales of four opioid analgesic drugs (codeine, tramadol, morphine, fentanyl), from wholesalers to community pharmacies, as an indicator of opioid...

journal_title：Palliative medicine

authors： De Conno F,Ripamonti C,Brunelli C

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Little is known about the impact of methicillin-resistant Staphylococcus aureus in palliative care settings. To date, the clinical impact of methicillin-resistant Staphylococcus aureus in palliative care is unknown. AIM:To determine prevalence and incidence of methicillin-resistant Staphylococcus aureus col...

journal_title：Palliative medicine

authors： Gleeson A,Larkin P,Walsh C,O'Sullivan N

更新日期：2016-04-01 00:00:00

abstract：BACKGROUND:Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. AIM:To review the...

journal_title：Palliative medicine

authors： Harrop E,Morgan F,Longo M,Semedo L,Fitzgibbon J,Pickett S,Scott H,Seddon K,Sivell S,Nelson A,Byrne A

更新日期：2020-07-01 00:00:00

abstract：:The subject of communication between palliative care physicians and their patients regarding their diagnosis and prognosis has not been extensively researched. The purpose of this survey was to compare the attitudes and beliefs of palliative care specialists regarding communication with the terminally ill in Europe, S...

journal_title：Palliative medicine

authors： Bruera E,Neumann CM,Mazzocato C,Stiefel F,Sala R

更新日期：2000-07-01 00:00:00

abstract：:Fifty junior residents completed a six-month training period. An anonymous postal questionnaire was sent to collect the residents' opinions on improvements in their knowledge, perception of priorities and usefulness of training. Responses were rated from 5 (a great deal) to 1 (not at all improved). A total of 33 (66%)...

journal_title：Palliative medicine

authors： Duong PH,Zulian GB

更新日期：2006-07-01 00:00:00

abstract：BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

journal_title：Palliative medicine

authors： Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

更新日期：2015-05-01 00:00:00

abstract：:Existential distress has been recognized as a source of suffering for oncology patients. This study focusses on existential issues and coping mechanisms of a unique culturally diverse Jewish/Middle Eastern oncology population. A qualitative assessment of 40 patients with advanced cancer was undertaken through an inter...

journal_title：Palliative medicine

authors： Blinderman CD,Cherny NI

更新日期：2005-07-01 00:00:00

abstract：:We describe training in CBT techniques for 20 palliative care practitioners delivered as 12 days' equivalent teaching plus skills-building supervision over a six month period. Audiotapes of trainees' interactions with patients during their usual work were rated using a specially devised 'Cognitive First Aid' rating sc...

journal_title：Palliative medicine

authors： Mannix KA,Blackburn IM,Garland A,Gracie J,Moorey S,Reid B,Standart S,Scott J

更新日期：2006-09-01 00:00:00

abstract：:Vaccum assisted closure (VAC) therapy is a novel method of wound healing using topical negative pressure across the wound bed and containing all exudate within a sealed system. We report the use of VAC therapy to control pain and exudate of a malignant wound. ...

journal_title：Palliative medicine

authors： Ford-Dunn S

更新日期：2006-06-01 00:00:00

abstract：:This retrospective clinical study reports on the experience of palliative venting gastrostomy (PVG) in an integrated acute teaching hospital and hospice-based palliative care service over a seven-year period (1989-97). PVG was performed for 51 patients with refractory nausea and vomiting resulting from varying degrees...

journal_title：Palliative medicine

authors： Brooksbank MA,Game PA,Ashby MA

更新日期：2002-11-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：:Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised co...

journal_title：Palliative medicine

authors： Agar M,Currow DC,Shelby-James TM,Plummer J,Sanderson C,Abernethy AP

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:People with dementia requiring palliative care have multiple needs, which are amplified in long-term care settings. The European Association for Palliative Care White Paper offers recommendations for optimal palliative care in dementia integral for this population, providing useful guidance to inform interve...

journal_title：Palliative medicine

authors： Kochovska S,Garcia MV,Bunn F,Goodman C,Luckett T,Parker D,Phillips JL,Sampson EL,van der Steen JT,Agar MR

更新日期：2020-04-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:The frequency of the use of laxatives, and the relationship between doses of laxatives and of opioid analgesia, were determined by a prospective study of 498 hospice inpatients with advanced cancer. Laxatives were required by 87% of patients taking oral strong opioids, 74% of those on weak opioids and 64% of those not...

journal_title：Palliative medicine

authors： Sykes NP

更新日期：1998-09-01 00:00:00

abstract：:Morphine, the recommended drug for the management of moderate to severe cancer pain, is metabolized predominantly to the glucuronides morphine-6-glucuronide (M6G) and morphine-3-glucuronide (M3G). The quantitative clinical importance of these metabolites following the administration of oral morphine is unclear. This s...

journal_title：Palliative medicine

authors： Quigley C,Joel S,Patel N,Baksh A,Slevin M

更新日期：2003-03-01 00:00:00