Feeling like a burden to others: a systematic review focusing on the end of life.

abstract：BACKGROUND:While there have been some studies looking at the impact on quality of life of patients with idiopathic pulmonary fibrosis, to date no qualitative research looking at the specialist palliative needs of these patients has been conducted. AIM:This study aims to explore the specialist palliative care needs of ...

journal_title：Palliative medicine

authors： Bajwah S,Higginson IJ,Ross JR,Wells AU,Birring SS,Riley J,Koffman J

更新日期：2013-10-01 00:00:00

abstract：BACKGROUND:Little is known about the attitudes of healthcare professional students' perceived competence and confidence in treating those with dementia who are at the end of life. AIM:To explore the attitudes of final year medical, nursing and pharmacy students towards people with dementia and to evaluate their percei...

journal_title：Palliative medicine

authors： De Witt Jansen B,Weckmann M,Nguyen CM,Parsons C,Hughes CM

更新日期：2013-10-01 00:00:00

abstract：:This study reports UK doctors' opinions about legalisation of medically assisted dying (euthanasia and physician-assisted suicide), comparing this with the UK general public. A postal survey of 3733 UK medical practitioners was done. The majority of UK doctors are opposed to legalisation, contrasting with the UK gener...

journal_title：Palliative medicine

authors： Seale C

更新日期：2009-04-01 00:00:00

abstract：:The amount and quality of information and awareness in cancer patients' is a topic frequently debated, but few studies have focussed on terminal patients. This is the objective of the present study that involved two different palliative home-care units in Italy, which recruited 550 terminal cancer patients. Data from ...

journal_title：Palliative medicine

authors： Corli O,Apolone G,Pizzuto M,Cesaris L,Cozzolino A,Orsi L,Enterri L

更新日期：2009-06-01 00:00:00

abstract：:Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised co...

journal_title：Palliative medicine

authors： Agar M,Currow DC,Shelby-James TM,Plummer J,Sanderson C,Abernethy AP

更新日期：2008-10-01 00:00:00

abstract：PURPOSE:In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. METHODS:We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that pres...

journal_title：Palliative medicine

authors： Albers G,Echteld MA,de Vet HC,Onwuteaka-Philipsen BD,van der Linden MH,Deliens L

更新日期：2010-01-01 00:00:00

abstract：BACKGROUND:Bisphosphonates and denosumab are well-established therapies to reduce the frequency and severity of skeletal-related events in patients with bone metastasis. However, the analgesic effect of these medications on bone pain is uncertain. AIM:To identify, critically appraise and synthesize existing evidence t...

journal_title：Palliative medicine

authors： Porta-Sales J,Garzón-Rodríguez C,Llorens-Torromé S,Brunelli C,Pigni A,Caraceni A

更新日期：2017-01-01 00:00:00

abstract：:The factors related to admission of patients with terminal cancer who had been referred to a reputable home care service were examined in 415 patients referred in a two-year period and in a prospective study of a randomized one in three sample of the 232 adults still alive one week after referral, who were able to con...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Dementia is a life limiting illness and is becoming a major cause of death in developed countries. Many people with dementia die in nursing homes or long-term residential care settings. Spouse caregivers of people with dementia living in nursing homes find themselves in a position which is difficult to under...

journal_title：Palliative medicine

authors： Hennings J,Froggatt K,Payne S

更新日期：2013-07-01 00:00:00

abstract：BACKGROUND:Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers ha...

journal_title：Palliative medicine

authors： Micklewright K,Farquhar M

更新日期：2020-12-01 00:00:00

abstract：BACKGROUND:Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. AIM:This study aimed to translate, ...

journal_title：Palliative medicine

authors： Henriksson A,Andershed B,Benzein E,Arestedt K

更新日期：2012-10-01 00:00:00

abstract：:The high prevalence of pain and other symptoms throughout the HIV disease trajectory, the need for management of side effects related to antiretroviral therapy, the continuing incidence of cancers and new emerging co-morbidities as a result of extended life expectancy under new therapeutic regimes, and the ongoing nee...

journal_title：Palliative medicine

authors： Harding R,Easterbrook P,Higginson IJ,Karus D,Raveis VH,Marconi K

更新日期：2005-04-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：:Cyclizine is an antihistamine, which is frequently used to manage nausea and vomiting in cancer patients. Antihistamines can be drugs of misuse/abuse, and the article describes four cancer patients who developed such problems after receiving parenteral cyclizine within the inpatient unit of a cancer centre. The articl...

journal_title：Palliative medicine

authors： Bailey F,Davies A

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：OBJECTIVES:To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. DATA SOURCES:Seven electronic databases were searched for the period January 1994--November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metal...

journal_title：Palliative medicine

authors： Docherty A,Owens A,Asadi-Lari M,Petchey R,Williams J,Carter YH

更新日期：2008-03-01 00:00:00

abstract：BACKGROUND:The global prevalence of dementia is set to rise to almost 65 million people by 2030, providing policy makers and practitioners with significant challenges, not least within the realms of end-of-life care. The international literature would suggest that people with dementia may benefit from palliative forms ...

journal_title：Palliative medicine

authors： Ryan T,Gardiner C,Bellamy G,Gott M,Ingleton C

更新日期：2012-10-01 00:00:00

abstract：:Using a decision-making and treatment checklist developed to facilitate the at-home palliative sedation process, we assessed the incidence and efficacy of palliative sedation for end-of-life cancer patients with intractable symptoms who died at home. We retrospectively reviewed the medical records of 370 patients who ...

journal_title：Palliative medicine

authors： Alonso-Babarro A,Varela-Cerdeira M,Torres-Vigil I,Rodríguez-Barrientos R,Bruera E

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Specialist palliative care (SPC) services in Ireland are well developed by international standards. However, standardized information on all patients of SPC services is not collected so the proportion of patients seen with a noncancer diagnosis is just an estimate at 5%. AIMS:To describe Irish SPC services'...

journal_title：Palliative medicine

authors： O'Leary N,Tiernan E

更新日期：2008-01-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to reduce pain in patients where conventional systemic analgesia has been ineffective or intolerable. However, there is little information regarding the effects of intrathecal drug delivery on quality of life and function in those with advanced, incurable cancer. AIM:Retro...

journal_title：Palliative medicine

authors： Patel N,Huddart M,Makins H,Mitchell T,Gibbins JL,Graterol J,Stevens D,Perkins P

更新日期：2018-01-01 00:00:00

abstract：:Dysphagia is a common and distressing problem in motor neurone disease. This paper examines some of the strategies available for managing patients with dysphagia, and illustrates these with four contrasting case histories. The factors which influence the decision making process in patients with dysphagia are also disc...

journal_title：Palliative medicine

authors： Scott A,Heughan A

更新日期：1993-01-01 00:00:00

abstract：:Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family...

journal_title：Palliative medicine

authors： Giles S,Miyasaki J

更新日期：2009-03-01 00:00:00

abstract：:Clinical trials in palliative care involve multiple issues relating to patient populations, interventions and endpoints. Careful data collection and analysis of variables are vital for good clinical research in this complex area. ...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-03-01 00:00:00

abstract：:Vaccum assisted closure (VAC) therapy is a novel method of wound healing using topical negative pressure across the wound bed and containing all exudate within a sealed system. We report the use of VAC therapy to control pain and exudate of a malignant wound. ...

journal_title：Palliative medicine

authors： Ford-Dunn S

更新日期：2006-06-01 00:00:00

abstract：BACKGROUND AND AIMS:Palliative medicine is not recognized as a medical specialty in any of the five Nordic countries, but there is a great need for physicians with specialty qualifications to serve on an increasing number of palliative care services. The Associations for Palliative Medicine in the five countries agreed...

journal_title：Palliative medicine

authors： Haugen DF,Vejlgaard T

更新日期：2008-04-01 00:00:00

abstract：BACKGROUND:We have undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. AIM:To find out in the existing literature what features of hospice at home models work best, for whom and under what cir...

journal_title：Palliative medicine

authors： Hashem F,Brigden C,Wilson P,Butler C

更新日期：2020-01-01 00:00:00

abstract：:This study examines how frequently and for what indications sedatives are prescribed in a hospital support team and in a hospice. We also looked at the survival of sedated patients from the date of admission and from the start of sedation. Overall 26% of patients were prescribed sedatives in order to sedate them (31% ...

journal_title：Palliative medicine

authors： Stone P,Phillips C,Spruyt O,Waight C

更新日期：1997-03-01 00:00:00

abstract：:Enabling patients to be cared for in their preferred location often involves journeys between care settings. The challenge of ensuring journeys are timely and safe emerged as an important issue in an evaluation of palliative care services, which informed a service redesign programme in three areas of the United Kingdo...

journal_title：Palliative medicine

authors： Ingleton C,Payne S,Sargeant A,Seymour J

更新日期：2009-12-01 00:00:00

abstract：:Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point...

journal_title：Palliative medicine

authors： Nolan S

更新日期：2011-01-01 00:00:00

abstract：:This paper is a secondary observation of a larger pilot study. The Assessing Caregivers for Team Intervention via Video Encounters intervention project enabled caregiver participation in hospice interdisciplinary team meetings. This paper used the team observation scale to assess the impact of caregiver involvement on...

journal_title：Palliative medicine

authors： Wittenberg-Lyles E,Oliver DP,Demiris G,Burt S,Regehr K

更新日期：2010-03-01 00:00:00