Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review.

abstract：BACKGROUND:Patients approaching death often have a decreasing oral intake, which can be distressing for relatives. Little is known about the relatives' experiences with and perceptions of oral intake at the end of life. AIM:This study aims to contribute to a more thorough understanding of relatives' concerns regarding...

journal_title：Palliative medicine

authors： Raijmakers NJ,Clark JB,van Zuylen L,Allan SG,van der Heide A

更新日期：2013-07-01 00:00:00

abstract：:This retrospective study examined the influence of a hospital palliative care team on the activity of a local hospice home care team over a four-year period from May 1989 to April 1993 in East Leeds. The increasing referral to death interval observed in home care patients over this period appears to be due to the pres...

journal_title：Palliative medicine

authors： Bennett M,Corcoran G

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Population ageing will lead to more deaths with an uncertain trajectory. Identifying patients at risk of dying could facilitate more effective care planning. AIM:To determine whether screening for likely death within 12 months is more effective using screening tools or intuition. DESIGN:Randomised controll...

journal_title：Palliative medicine

authors： Mitchell GK,Senior HE,Rhee JJ,Ware RS,Young S,Teo PC,Murray S,Boyd K,Clayton JM

更新日期：2018-02-01 00:00:00

abstract：:The question of whether a coherent tradition in research and research methods (or paradigm) exists in palliative care is explored in this paper through an examination of the discussion and debate surrounding palliative care; attempts at achieving consensus for research through priority setting exercises; and a critica...

journal_title：Palliative medicine

authors： Corner J

更新日期：1996-07-01 00:00:00

abstract：BACKGROUND:It is often suggested that terminally ill patients favour end-of-life care at home. Yet, it is unclear how these preferences are formed, if the process is similar for patients and family caregivers, and if there are discrepancies between preferences for place of care and place of death. Understanding these n...

journal_title：Palliative medicine

authors： Gerber K,Hayes B,Bryant C

更新日期：2019-07-01 00:00:00

abstract：:The factors related to admission of patients with terminal cancer who had been referred to a reputable home care service were examined in 415 patients referred in a two-year period and in a prospective study of a randomized one in three sample of the 232 adults still alive one week after referral, who were able to con...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1994-01-01 00:00:00

abstract：:As part of a large multicentre study on palliative care units in Italy, carried out between 1 January and 30 June 1995, we describe the place, circumstances and 'quality of death' of patients admitted to home palliative care. Data presented refer to 401 patients (67% of the 601 patients randomly selected for evaluatio...

journal_title：Palliative medicine

authors： Peruselli C,Di Giulio P,Toscani F,Gallucci M,Brunelli C,Costantini M,Tamburini M,Paci E,Miccinesi G,Addington-Hall JM,Higginson IJ

更新日期：1999-05-01 00:00:00

abstract：BACKGROUND:Patient misunderstandings about prognosis may be related to lack of communication. AIM:This study aimed to examine prognosis discussions held with hospitalized patients for whom palliative care consultations were requested, and if prognosis discussions did not occur, to explore why not. DESIGN:This was a s...

journal_title：Palliative medicine

authors： Chang A,Datta-Barua I,McLaughlin B,Daly B

更新日期：2014-04-01 00:00:00

abstract：:Homeless persons tend to die younger than the housed population and have complex, often unmet, end-of-life care needs. High levels of illicit drug use among this population are a particular challenge for health and social services professionals involved in end-of-life care services delivery. This article explores the ...

journal_title：Palliative medicine

authors： McNeil R,Guirguis-Younger M

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:the right for patients of all diagnoses to be in receipt of palliative care from an early point in the diagnosis of a life-limiting condition is now enshrined in policy in a number of countries and increased emphasis is placed upon the role of generalist palliative care. However, little is known as to how th...

journal_title：Palliative medicine

authors： Gott M,Seymour J,Ingleton C,Gardiner C,Bellamy G

更新日期：2012-04-01 00:00:00

abstract：:The subject of communication between palliative care physicians and their patients regarding their diagnosis and prognosis has not been extensively researched. The purpose of this survey was to compare the attitudes and beliefs of palliative care specialists regarding communication with the terminally ill in Europe, S...

journal_title：Palliative medicine

authors： Bruera E,Neumann CM,Mazzocato C,Stiefel F,Sala R

更新日期：2000-07-01 00:00:00

abstract：BACKGROUND:This case report describes an end-stage cancer patient with intractable neuropathic pain and delirium who was successfully managed during the last 3 weeks of her life with a continuous subcutaneous infusion of dexmedetomidine. CASE PRESENTATION:A 55-year-old woman with locally advanced cervical cancer and u...

journal_title：Palliative medicine

authors： Hilliard N,Brown S,Mitchinson S

更新日期：2015-03-01 00:00:00

abstract：:The word 'euthanasia' has been used with a variety of meanings, all of which refer to one precise action: the killing of a suffering person. A moral evaluation of such an act can lead us either to condemn it a priori, shutting the door upon any argument, or to allow further discussion. But the issue must be discussed,...

journal_title：Palliative medicine

authors： Di Mola G

更新日期：1993-01-01 00:00:00

abstract：:Open pulmonary tuberculosis has been increasingly seen in HIV-infected patients in this hospice. Multidrug-resistant tuberculosis is a new and serious threat and two cases have occurred in our hospice in the past two years. This infection poses a health risk to staff, patients, relatives and volunteers. Palliative car...

journal_title：Palliative medicine

authors： McKeogh MM

更新日期：1997-11-01 00:00:00

abstract：BACKGROUND:Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. AIM:To review the...

journal_title：Palliative medicine

authors： Harrop E,Morgan F,Longo M,Semedo L,Fitzgibbon J,Pickett S,Scott H,Seddon K,Sivell S,Nelson A,Byrne A

更新日期：2020-07-01 00:00:00

abstract：BACKGROUND:The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (...

journal_title：Palliative medicine

authors： Cohen R,Leis AM,Kuhl D,Charbonneau C,Ritvo P,Ashbury FD

更新日期：2006-12-01 00:00:00

abstract：:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family caregive...

journal_title：Palliative medicine

authors： Heyland DK,Cook DJ,Rocker GM,Dodek PM,Kutsogiannis DJ,Skrobik Y,Jiang X,Day AG,Cohen SR,Canadian Researchers at the End of Life Network.

更新日期：2010-10-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Approximately one-third of rapid response team consultations involve issues of end-of-life care. We postulate a greater occurrence in patients with a life-limiting illness, in whom the opportunity for advance care planning and palliative care involvement should be offered. AIMS:We aim to review the characte...

journal_title：Palliative medicine

authors： Sulistio M,Franco M,Vo A,Poon P,William L

更新日期：2015-04-01 00:00:00

abstract：:Separate accounts of care were recorded weekly from staff, patients and relatives in a randomised sample of patients with terminal cancer referred to a home care service with readily available beds. Various services were involved but nurses made most contacts, 3.0 visits and 2.4 phone calls weekly, rising sharply in t...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1996-04-01 00:00:00

abstract：BACKGROUND:Being at peace is important for the quality of life of dying cancer patients, but its features, and the role of the doctor in facilitating peace, are unclear. AIM:We sought to understand the features of a peaceful patient, and patients' preferences regarding the role of the doctor in facilitating a sense of...

journal_title：Palliative medicine

authors： Best M,Butow P,Olver I

更新日期：2014-10-01 00:00:00

abstract：:Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

journal_title：Palliative medicine

authors： McPherson CJ,Wilson KG,Murray MA

更新日期：2007-03-01 00:00:00

abstract：BACKGROUND:The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. AIM:To establish, test and manag...

journal_title：Palliative medicine

authors： Lundström S,Axelsson B,Heedman PA,Fransson G,Fürst CJ

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS:To identify rec...

journal_title：Palliative medicine

authors： Day E,Jones L,Langner R,Bluebond-Langner M

更新日期：2016-12-01 00:00:00

abstract：BACKGROUND:While several studies have examined 'what' families want with regard to the place of a child's end-of-life care and death, few have explored 'how' parents reach a decision. AIMS:(1) to develop a model explaining how parents of a child with a life-threatening illness in Greece decide about the place of end-o...

journal_title：Palliative medicine

authors： Papadatou D,Kalliani V,Karakosta E,Liakopoulou P,Bluebond-Langner M

更新日期：2021-01-01 00:00:00

abstract：:The presence of cognitive impairment in patients who are receiving hospice care can affect numerous practical, ethical and legal aspects of their healthcare. A number of factors can contribute to cognitive impairment in these patients. Prevalence rates of cognitive impairment vary widely, but it remains under-recognis...

journal_title：Palliative medicine

authors： Irwin SA,Zurhellen CH,Diamond LC,Dunn LB,Palmer BW,Jeste DV,Twamley EW

更新日期：2008-10-01 00:00:00

abstract：BACKGROUND:Informal caregivers of people with motor neurone disease (MND) take on an extensive role. Caregivers are at increased risk of experiencing psychological distress and burden, yet, there is a lack of intervention programmes to support them. AIM:The aim of this study was to investigate the feasibility and acce...

journal_title：Palliative medicine

authors： Ugalde A,Mathers S,Hennessy Anderson N,Hudson P,Orellana L,Gluyas C

更新日期：2018-04-01 00:00:00

abstract：:Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point...

journal_title：Palliative medicine

authors： Nolan S

更新日期：2011-01-01 00:00:00

abstract：BACKGROUND:Constipation affects many patients receiving long-term opioid therapy for cancer pain. Little is known about the nature of psychological distress and the burden associated with this problem. This information may inform the development of effective treatment strategies and ameliorate distress. AIM:The object...

journal_title：Palliative medicine

authors： Dhingra L,Shuk E,Grossman B,Strada A,Wald E,Portenoy A,Knotkova H,Portenoy R

更新日期：2013-05-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00