Bereaved relatives' perspectives of the patient's oral intake towards the end of life: a qualitative study.

abstract：BACKGROUND:The global prevalence of dementia is set to rise to almost 65 million people by 2030, providing policy makers and practitioners with significant challenges, not least within the realms of end-of-life care. The international literature would suggest that people with dementia may benefit from palliative forms ...

journal_title：Palliative medicine

authors： Ryan T,Gardiner C,Bellamy G,Gott M,Ingleton C

更新日期：2012-10-01 00:00:00

abstract：BACKGROUND:Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS:To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify...

journal_title：Palliative medicine

authors： Dzingina MD,Reilly CC,Bausewein C,Jolley CJ,Moxham J,McCrone P,Higginson IJ,Yi D

更新日期：2017-04-01 00:00:00

abstract：:Using Grounded Theory, this study examines the experience of 19 palliative care chaplains in counselling dying people. Taking a broad-based definition of counselling, and using unstructured individual interviews and group work, the study aimed to understand how palliative care chaplains work with patients at the point...

journal_title：Palliative medicine

authors： Nolan S

更新日期：2011-01-01 00:00:00

abstract：:When a person is diagnosed with a severe disease, it seems plausible that existential questions and death anxiety are easily intensified. The aims of this study were to explore whether this is the case, to what extent patients and their next of kin experience death anxiety, and how these experiences are expressed. Fol...

journal_title：Palliative medicine

authors： Adelbratt S,Strang P

更新日期：2000-11-01 00:00:00

abstract：BACKGROUND:Early palliative care improves quality of life during life-prolonging treatment for patients with cancer, but the role of nurses in facilitating the early involvement of palliative care is unclear. AIM:To conceptualize the psychosocial processes involved in the introduction and provision of palliative care ...

journal_title：Palliative medicine

authors： Mohammed S,Savage P,Kevork N,Swami N,Rodin G,Zimmermann C

更新日期：2020-02-01 00:00:00

abstract：:This study compares terminally ill patients and their family caregivers in terms of the physical and emotional status of the patients, the adequacy of the support provided for the patients and where the patients would be most appropriately placed during the last stage of their lives. Patients and caregivers shared sim...

journal_title：Palliative medicine

authors： Spiller JA,Alexander DA

更新日期：1993-01-01 00:00:00

abstract：:The factors related to admission of patients with terminal cancer who had been referred to a reputable home care service were examined in 415 patients referred in a two-year period and in a prospective study of a randomized one in three sample of the 232 adults still alive one week after referral, who were able to con...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. AIM:To identify the elements that nursing home residents' family carers perceive as good end-of-life care and develop a conceptual mod...

journal_title：Palliative medicine

authors： Gonella S,Basso I,De Marinis MG,Campagna S,Di Giulio P

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Care relationships are crucial in tailoring the end-of-life care of a person with intellectual disabilities (ID) to their needs. Yet, almost all studies on end-of-life care for people with ID have been conducted among caregivers. The views of people with ID about care relationships at the end of life have no...

journal_title：Palliative medicine

authors： Bekkema N,de Veer AJ,Hertogh CM,Francke AL

更新日期：2016-07-01 00:00:00

abstract：BACKGROUND:Palliative care requires a multidisciplinary care team. General practitioners often ask specialised palliative home care teams for support. Working with specialised nurses offers learning opportunities, also called workplace learning. This can be enhanced by the presence of a learning facilitator. OBJECTIVE...

journal_title：Palliative medicine

authors： Pype P,Mertens F,Wens J,Stes A,Van den Eynden B,Deveugele M

更新日期：2015-05-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to be effective in alleviating cancer pain in patients for whom the conventional World Health Organization approach has proved insufficient. A multidisciplinary interventional cancer pain service was established in the West of Scotland in 2008 with the aim of providing a sa...

journal_title：Palliative medicine

authors： Mitchell A,McGhie J,Owen M,McGinn G

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:Understanding current patterns of functional decline will inform patient care and has health service and resource implications. AIM:This prospective consecutive cohort study aims to map the shape of functional decline trajectories at the end of life by diagnosis. DESIGN:Changes in functional status were me...

journal_title：Palliative medicine

authors： Morgan DD,Tieman JJ,Allingham SF,Ekström MP,Connolly A,Currow DC

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Cytochrome P450 3A is the most relevant drug-metabolizing enzyme in humans as it is involved in the elimination of 50% of marketed drugs. Nothing is known about the activity of cytochrome P450 3A in palliative care patients who have complicated symptoms often associated with a terminal illness. AIM:In order...

journal_title：Palliative medicine

authors： Geist M,Bardenheuer H,Burhenne J,Mikus G

更新日期：2019-07-01 00:00:00

abstract：:Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

journal_title：Palliative medicine

authors： McPherson CJ,Wilson KG,Murray MA

更新日期：2007-03-01 00:00:00

abstract：BACKGROUND:Chronic kidney disease palliative care guidelines would benefit from more diverse and objectively defined health status measures. AIM:The aim is to identify high-risk patients from administrative data and facilitate timely and uniform palliative care involvement. DESIGN:It is a retrospective cohort study. ...

journal_title：Palliative medicine

authors： Nenova Z,Hotchkiss J Jr

更新日期：2019-04-01 00:00:00

abstract：:Breakthrough pain (BKP) is a transitory flare of pain that occurs on a background of relatively well controlled baseline pain. Previous surveys have found that BKP is highly prevalent among patients with cancer pain and predicts more severe pain, pain-related distress and functional impairment, and relatively poor qua...

journal_title：Palliative medicine

authors： Caraceni A,Martini C,Zecca E,Portenoy RK,Ashby MA,Hawson G,Jackson KA,Lickiss N,Muirden N,Pisasale M,Moulin D,Schulz VN,Rico Pazo MA,Serrano JA,Andersen H,Henriksen HT,Mejholm I,Sjogren P,Heiskanen T,Kalso E,Pere

更新日期：2004-04-01 00:00:00

abstract：BACKGROUND:Benzodiazepines are widely used in palliative care, but few studies have attempted to study their use. AIM:To determine the frequency and nature of benzodiazepine prescribing in a palliative care setting. METHOD:The notes of a consecutive series of 100 patients who had died or been discharged from the hosp...

journal_title：Palliative medicine

authors： Henderson M,MacGregor E,Sykes N,Hotopf M

更新日期：2006-06-01 00:00:00

abstract：BACKGROUND:Globally, most care for people with life-limiting illnesses is provided by informal caregivers. Identifying characteristics of caregivers that may have unmet needs and negative outcomes can help provide better support to facilitate adjustment. AIM:We compared characteristics, expressed unmet needs and outco...

journal_title：Palliative medicine

authors： DiGiacomo M,Hatano Y,Phillips J,Lewis J,Abernethy AP,Currow DC

更新日期：2017-05-01 00:00:00

abstract：:The history and development of an extra care sheltered housing complex, specifically designed and built for frail, ambulant, cancer patients is reviewed. Consideration is given to diagnosis, length of stay, place of death, family and social background. Problems are highlighted and the need for future research is discu...

journal_title：Palliative medicine

authors： Sherry KL

更新日期：1995-07-01 00:00:00

abstract：BACKGROUND:Legacy has been invoked as a means for strengthening human attachments, continuing bonds, and ensuring that individuals will be remembered; however, little is known about the spectrum of approaches to, outcomes associated with, and best practices for legacy interventions. AIM:To systematically review resear...

journal_title：Palliative medicine

authors： Boles JC,Jones MT

更新日期：2021-01-25 00:00:00

abstract：:Clinical trials in palliative care involve multiple issues relating to patient populations, interventions and endpoints. Careful data collection and analysis of variables are vital for good clinical research in this complex area. ...

journal_title：Palliative medicine

authors： Mazzocato C,Sweeney C,Bruera E

更新日期：2001-03-01 00:00:00

abstract：:The aim of this study is to synthesize knowledge about the process of shared decision-making (SDM) in palliative care. Medline, EMBASE, CINAHL, PsychInfo, Web of Science were searched with core concepts: shared decisions, patient participation in decision-making, and palliative care. Titles and abstracts were screened...

journal_title：Palliative medicine

authors： Bélanger E,Rodríguez C,Groleau D

更新日期：2011-04-01 00:00:00

abstract：BACKGROUND:The WHO definitions of palliative care have been adopted in Denmark and implemented in The National Guidelines from 1999, but service developments have been very slow and not according to the recommendations. Attitudes to palliative care of Danish doctors and nurses may in part account for this. OBJECTIVE:T...

journal_title：Palliative medicine

authors： Vejlgaard T,Addington-Hall JM

更新日期：2005-03-01 00:00:00

abstract：BACKGROUND:In rural settings, relationships between place and self are often stronger than for urban residents, so one may expect that rural people would view dying at home as a major feature of the 'good death'. AIM:To explore the concept of the 'good death' articulated by rural patients with life-limiting illnesses,...

journal_title：Palliative medicine

authors： Rainsford S,Phillips CB,Glasgow NJ,MacLeod RD,Wiles RB

更新日期：2018-12-01 00:00:00

abstract：PURPOSE/OBJECTIVE:Patients with cancer or symptoms referable to cancer therapy were offered acupuncture as potential palliation of their symptoms. This paper describes the physical integration of the discipline into the Oncology Clinic, and patient perspectives on its availability and efficacy. PATIENTS AND METHODS:Be...

journal_title：Palliative medicine

authors： Johnstone PA,Polston GR,Niemtzow RC,Martin PJ

更新日期：2002-05-01 00:00:00

abstract：OBJECTIVES:Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this. DESIGN:Qualitative interview study with patients (two consecutive interviews). SETTING:Primary care Belgium. PARTICIPANTS:Seventeen terminally ill cancer patients, informed abo...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Van Der Kelen G,Bernheim JL,Mortier F,Vander Stichele R,Deliens L

更新日期：2007-07-01 00:00:00

abstract：:Using a decision-making and treatment checklist developed to facilitate the at-home palliative sedation process, we assessed the incidence and efficacy of palliative sedation for end-of-life cancer patients with intractable symptoms who died at home. We retrospectively reviewed the medical records of 370 patients who ...

journal_title：Palliative medicine

authors： Alonso-Babarro A,Varela-Cerdeira M,Torres-Vigil I,Rodríguez-Barrientos R,Bruera E

更新日期：2010-07-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to reduce pain in patients where conventional systemic analgesia has been ineffective or intolerable. However, there is little information regarding the effects of intrathecal drug delivery on quality of life and function in those with advanced, incurable cancer. AIM:Retro...

journal_title：Palliative medicine

authors： Patel N,Huddart M,Makins H,Mitchell T,Gibbins JL,Graterol J,Stevens D,Perkins P

更新日期：2018-01-01 00:00:00

abstract：:Attitudes to companion animals were surveyed among 50 patients and staff at a day care hospice. Dog visits were welcomed by all but two. Of the 37 patients studied, only seven had a companion animal, often their closest companion. Many more would like to keep an animal, but were prevented by age, frailty or accommodat...

journal_title：Palliative medicine

authors： Phear DN

更新日期：1996-10-01 00:00:00

abstract：BACKGROUND:Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. AIM:To evaluate perceived psychological support in relation to end-of...

journal_title：Palliative medicine

authors： Dombrecht L,Cohen J,Cools F,Deliens L,Goossens L,Naulaers G,Beernaert K,Chambaere K,NICU consortium.

更新日期：2020-03-01 00:00:00