Domiciliary care: a comparison of the views of terminally ill patients and their family caregivers.

abstract：BACKGROUND:Home-based care coordination and support programs for people with advanced illness work alongside usual care to promote personal care goals, which usually include a preference for home-based end-of-life care. More research is needed to confirm the efficacy of these programs, especially when disseminated on a...

journal_title：Palliative medicine

authors： Sudat SEK,Franco A,Pressman AR,Rosenfeld K,Gornet E,Stewart W

更新日期：2018-02-01 00:00:00

abstract：:The quality of research, and the resulting quality of evidence available to guide palliative care, is dependent on the ethical decisions underpinning its design, conduct and report. Whilst much has been published debating the ethics of palliative care research, an assessment of the quality and synthesis of the central...

journal_title：Palliative medicine

authors： Duke S,Bennett H

更新日期：2010-03-01 00:00:00

abstract：BACKGROUND:Intrathecal drug delivery is known to be effective in alleviating cancer pain in patients for whom the conventional World Health Organization approach has proved insufficient. A multidisciplinary interventional cancer pain service was established in the West of Scotland in 2008 with the aim of providing a sa...

journal_title：Palliative medicine

authors： Mitchell A,McGhie J,Owen M,McGinn G

更新日期：2015-06-01 00:00:00

abstract：:This retrospective clinical study reports on the experience of palliative venting gastrostomy (PVG) in an integrated acute teaching hospital and hospice-based palliative care service over a seven-year period (1989-97). PVG was performed for 51 patients with refractory nausea and vomiting resulting from varying degrees...

journal_title：Palliative medicine

authors： Brooksbank MA,Game PA,Ashby MA

更新日期：2002-11-01 00:00:00

abstract：:Medical training teaches physicians to sit when breaking bad news, though there have been no controlled studies to support this advice. We aimed to establish cancer patients' preference for physician posture when physicians break bad news using a randomized controlled crossover trial in a department of palliative care...

journal_title：Palliative medicine

authors： Bruera E,Palmer JL,Pace E,Zhang K,Willey J,Strasser F,Bennett MI

更新日期：2007-09-01 00:00:00

abstract：BACKGROUND:The Palliative Care Problem Severity Score is a clinician-rated tool to assess problem severity in four palliative care domains (pain, other symptoms, psychological/spiritual, family/carer problems) using a 4-point categorical scale (absent, mild, moderate, severe). AIM:To test the reliability and acceptabi...

journal_title：Palliative medicine

authors： Masso M,Allingham SF,Johnson CE,Pidgeon T,Yates P,Currow D,Eagar K

更新日期：2016-05-01 00:00:00

abstract：BACKGROUND:Being at peace is important for the quality of life of dying cancer patients, but its features, and the role of the doctor in facilitating peace, are unclear. AIM:We sought to understand the features of a peaceful patient, and patients' preferences regarding the role of the doctor in facilitating a sense of...

journal_title：Palliative medicine

authors： Best M,Butow P,Olver I

更新日期：2014-10-01 00:00:00

abstract：:Open pulmonary tuberculosis has been increasingly seen in HIV-infected patients in this hospice. Multidrug-resistant tuberculosis is a new and serious threat and two cases have occurred in our hospice in the past two years. This infection poses a health risk to staff, patients, relatives and volunteers. Palliative car...

journal_title：Palliative medicine

authors： McKeogh MM

更新日期：1997-11-01 00:00:00

abstract：BACKGROUND:Patient misunderstandings about prognosis may be related to lack of communication. AIM:This study aimed to examine prognosis discussions held with hospitalized patients for whom palliative care consultations were requested, and if prognosis discussions did not occur, to explore why not. DESIGN:This was a s...

journal_title：Palliative medicine

authors： Chang A,Datta-Barua I,McLaughlin B,Daly B

更新日期：2014-04-01 00:00:00

abstract：BACKGROUND:Death with dignity has been identified as important both to patients and their surviving family. While research results have been published on what patients themselves believe may affect the dignity of their deaths, little is known about what family caregivers consider to be a dignified death. AIM:(1) To as...

journal_title：Palliative medicine

authors： van Gennip IE,Pasman HR,Kaspers PJ,Oosterveld-Vlug MG,Willems DL,Deeg DJ,Onwuteaka-Philipsen BD

更新日期：2013-07-01 00:00:00

abstract：:This paper reviews the experience of managing 31 patients with severe dysphagia in motor neurone disease. Thirteen patients were fed nasogastrically and the remaining 18 were managed conservatively without a nasogastric tube. The introduction of nasogastric feeding led to the development of new problems in some patien...

journal_title：Palliative medicine

authors： Scott AG,Austin HE

更新日期：1994-01-01 00:00:00

abstract：OBJECTIVES:To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. DATA SOURCES:Seven electronic databases were searched for the period January 1994--November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metal...

journal_title：Palliative medicine

authors： Docherty A,Owens A,Asadi-Lari M,Petchey R,Williams J,Carter YH

更新日期：2008-03-01 00:00:00

abstract：:This is a review of tools that have been developed to assess pain in children, with a brief evaluation of their practicality and validity. There are some suggestions for the direction of future research in the development and use of the scales. ...

journal_title：Palliative medicine

authors： Hain RD

更新日期：1997-09-01 00:00:00

abstract：:Research into the burden of illness has focused predominantly on family caregivers, with little consideration of the other side of the caregiving relationship-care recipients' perspectives on having become a 'burden to others'. However, there is now a small but growing body of evidence to suggest that worry about crea...

journal_title：Palliative medicine

authors： McPherson CJ,Wilson KG,Murray MA

更新日期：2007-03-01 00:00:00

abstract：:A survey of all district health authorities in England was conducted in order to describe current patterns of needs assessment and contract setting for palliative care services. Outcome measures included the completion of needs assessments in the past five years, the type of data used for needs assessment, and recomme...

journal_title：Palliative medicine

authors： Robbins MA,Frankel SJ

更新日期：1995-10-01 00:00:00

abstract：:This paper describes the development and content of palliative care residential workshops for general practitioner/district nurse pairs from the same practice. Pre- and post-testing self-rating scales were completed by the participants of five workshops. A retrospective questionnaire identified perceived effects on pr...

journal_title：Palliative medicine

authors： Nash A,Hoy A

更新日期：1993-01-01 00:00:00

abstract：:This retrospective study examined the influence of a hospital palliative care team on the activity of a local hospice home care team over a four-year period from May 1989 to April 1993 in East Leeds. The increasing referral to death interval observed in home care patients over this period appears to be due to the pres...

journal_title：Palliative medicine

authors： Bennett M,Corcoran G

更新日期：1994-01-01 00:00:00

abstract：BACKGROUND:Sedatives are frequently used towards the end of life. However, there is scarce information when their use is labelled as 'palliative sedation'. AIM:To assess the use and labelling of 'continuous administration of sedatives within the last 7 days of life', based on objective operational criteria, on a palli...

journal_title：Palliative medicine

authors： Schildmann E,Pörnbacher S,Kalies H,Bausewein C

更新日期：2018-07-01 00:00:00

abstract：:This paper reviews a number of studies relating to religion and coping with chronic illness, emphasizing those aspects relevant to palliative care. After pointing out that religious and existential needs are common in chronic illness, a critical examination is made of those studies which purport to demonstrate associa...

journal_title：Palliative medicine

authors： Dein S,Stygall J

更新日期：1997-07-01 00:00:00

abstract：:Objective of this study is to examine physicians' practices regarding information disclosure to terminally ill patients and to their relatives, without informing the patient. A questionnaire had been sent to a random sample of 3014 Belgian physicians from different specialties frequently involved in end-of-life care. ...

journal_title：Palliative medicine

authors： Michiels E,Deschepper R,Bilsen J,Mortier F,Deliens L

更新日期：2009-06-01 00:00:00

abstract：:Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care research. Interviews were transcribed and analysed using a grounded ...

journal_title：Palliative medicine

authors： Stevens T,Wilde D,Paz S,Ahmedzai SH,Rawson A,Wragg D

更新日期：2003-09-01 00:00:00

abstract：BACKGROUND:As end-of-life (EoL) care expands across Europe and the world, service developments are increasingly studied. The sociocultural context in which such changes take place, however, is often neglected in research. AIM:To explore sociocultural factors in EoL care in Belgium as represented by the literature. DE...

journal_title：Palliative medicine

authors： Andrew EV,Cohen J,Evans N,Meñaca A,Harding R,Higginson I,Pool R,Gysels M,PRISMA.

更新日期：2013-02-01 00:00:00

abstract：:Existential distress has been recognized as a source of suffering for oncology patients. This study focusses on existential issues and coping mechanisms of a unique culturally diverse Jewish/Middle Eastern oncology population. A qualitative assessment of 40 patients with advanced cancer was undertaken through an inter...

journal_title：Palliative medicine

authors： Blinderman CD,Cherny NI

更新日期：2005-07-01 00:00:00

abstract：:Progressive multifocal leukoencephalopathy (PML) is a rare but usually fatal demyelinating disease of the central nervous system in patients who are immunocompromised. It is characterized by rapid neurological deterioration associated with progressive white matter changes on imaging and is confirmed by isolation of th...

journal_title：Palliative medicine

authors： Cotton PJ,Le B

更新日期：2013-03-01 00:00:00

abstract：:Enabling patients to be cared for in their preferred location often involves journeys between care settings. The challenge of ensuring journeys are timely and safe emerged as an important issue in an evaluation of palliative care services, which informed a service redesign programme in three areas of the United Kingdo...

journal_title：Palliative medicine

authors： Ingleton C,Payne S,Sargeant A,Seymour J

更新日期：2009-12-01 00:00:00

abstract：:Separate accounts of care were recorded weekly from staff, patients and relatives in a randomised sample of patients with terminal cancer referred to a home care service with readily available beds. Various services were involved but nurses made most contacts, 3.0 visits and 2.4 phone calls weekly, rising sharply in t...

journal_title：Palliative medicine

authors： Hinton J

更新日期：1996-04-01 00:00:00

abstract：:The purpose of this study is to analyze French general practitioners' attitudes toward prescribing opiate painkillers for dying patients and compare them with their attitudes toward making frequent home visits. One hundred and fifteen general practitioners indicated the acceptability of prescribing opiates in 48 scena...

journal_title：Palliative medicine

authors： Mas C,Albaret MC,Sorum PC,Mullet E

更新日期：2010-01-01 00:00:00

abstract：:To date, the experiences of out-of-hours general practitioners with regard to palliative care patients and their management are yet to be evaluated, since the new General Medical Services contract came into force. In 2007 the National Institute for Health Research highlighted the need to identify factors that improve ...

journal_title：Palliative medicine

authors： Taubert M,Nelson A

更新日期：2010-07-01 00:00:00

abstract：OBJECTIVE:To summarize available literature containing data on the treatment of depression in palliative care patients. METHODS:A systematic review was conducted using extensive electronic databases and hand searches. All randomized controlled trials (RCTs) of interventions for depression in patients with advanced dis...

journal_title：Palliative medicine

authors： Ly KL,Chidgey J,Addington-Hall J,Hotopf M

更新日期：2002-07-01 00:00:00

abstract：BACKGROUND:The Liverpool Care Pathway was used in UK hospitals (late 1990s to July 2014) in an attempt to generate hospice-style high-quality end-of-life care in acute settings. Despite being widely established, there was limited research or contextual evidence regarding this approach or its impact. Growing criticism f...

journal_title：Palliative medicine

authors： Twigger S,Yardley SJ

更新日期：2017-10-01 00:00:00