Abstract:
:Background: Everyday routines play a vital role in child functioning and development. This study explored health professionals' documentation of everyday life and health care during the first year following gastrostomy tube placement in children and the content of intervention goals.Methods: The medical records of 39 children (median age 38 months, min-max: 15-192) in one region of Sweden were analysed. A content analysis approach was used with an inductive qualitative analysis supplemented by a deductive, quantitative analysis of documented intervention goals following the ICF-CY.Results: One overall theme, "Seeking a balance", captured the view of life with a gastrostomy and the health care provided. Two categories, "Striving for physical health" and "Depicting everyday life" with seven sub-categories, captured the key aspects of the documentation. Twenty-one children (54%) had intervention goals related to the gastrostomy, and these goals primarily focused on the ICF-CY component "Body functions".Conclusions: To some extent the medical records reflected different dimensions of everyday life, but the intervention goals clearly focused on bodily aspects. Understanding how health care for children using a gastrostomy is documented and planned by applying an ecocultural framework adds a valuable perspective and can contribute to family-centred interventions for children using a gastrostomy.Implications for RehabilitationThere is a need for increased awareness in healthcare professionals for a more consistent and holistic healthcare approach in the management of children with gastrostomy tube feeding.This study suggests that an expanded focus on children's participation in everyday mealtimes and in the healthcare follow-up of gastrostomy tube feeding is important in enhancing the intervention outcome.Multidisciplinary teams with a shared bio-psycho-social understanding of health would contribute to a situation in which the everyday lives of households adapt to living with gastrostomy.Routine care for children with gastrostomy should follow a checklist combining crucial physiological aspects of gastrostomy tube feeding with seemingly mundane family functions in order to achieve a successful gastrostomy tube feeding intervention.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Backman E,Granlund M,Karlsson AKdoi
10.1080/09638288.2019.1573383subject
Has Abstractpub_date
2020-09-01 00:00:00pages
2747-2757issue
19eissn
0963-8288issn
1464-5165journal_volume
42pub_type
杂志文章abstract:PURPOSE:Supportive interventions to enhance return to work (RTW) in cancer survivors hardly showed positive effects so far. Behavioral determinants might have to be considered in the development of interventions to achieve sustained employability. This study aimed to explore cancer survivors' perspectives and experienc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1219924
更新日期:2017-10-01 00:00:00
abstract::Purpose: To describe the characteristics and effectiveness of pediatric telerehabilitation interventions offered to children 0-12 years old or to their families.Methods: A systematic review was conducted on randomized control trials published between 2007 and 2018 involving at least one rehabilitation professional who...
journal_title:Disability and rehabilitation
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abstract:PURPOSE:Bladder dysfunction affects 75% of people with multiple sclerosis (MS). People with MS are reluctant to seek treatment for this distressing symptom. This is the first-known study to explore in depth how bladder dysfunction interferes with quality of life for people with MS. METHODS:Nineteen individual semi-str...
journal_title:Disability and rehabilitation
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更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To evaluate the quality of life of mothers with children suffering from cerebral palsy compared with those who have children with minor health problems. METHOD:Forty mothers with a child suffering from cerebral palsy and 44 mothers with a child suffering from minor health problems participated in a comparative...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400000187
更新日期:2004-12-02 00:00:00
abstract:PURPOSE/METHOD:The article discusses rehabilitation practices in Zimbabwe from both a local and international perspective. It considers the nature of formal and informal rehabilitation services in the country, and rehabilitation personnel training. RESULTS:Indigenous disability-related practices dominate the informal ...
journal_title:Disability and rehabilitation
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doi:10.1080/09638280010008889
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journal_title:Disability and rehabilitation
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更新日期:2019-06-01 00:00:00
abstract:PURPOSE:This study was designed to explore the cultural meaning and dimensions of quality of life from the perspective of Brazilian burn patients. METHOD:A qualitative research approach was used. Nineteen burn patients and their close relatives participated in this ethnographic study. Data were collected by means of d...
journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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doi:10.3109/09638288.2010.499490
更新日期:2011-01-01 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2003-02-18 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2015-01-01 00:00:00
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pub_type: 杂志文章,评审
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journal_title:Disability and rehabilitation
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doi:10.3109/09638288.2015.1076070
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other a...
journal_title:Disability and rehabilitation
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更新日期:2020-12-23 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2011.635746
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:The purpose of this experiment was to quantify lumbar muscle endurance training for individuals with a recent episode of acute low back pain (LBP) (≥ moderate pain for ≥ 2 days) and to observe whether the training would reduce the rate and severity of recurrent LBP episodes. METHOD:Twenty-six participants who ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
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更新日期:2012-01-01 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2018-06-01 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2012-01-01 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2009-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:1999-04-01 00:00:00
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pub_type: 杂志文章,多中心研究
doi:10.3109/09638288.2016.1170214
更新日期:2017-05-01 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2012-01-01 00:00:00