Abstract:
OBJECTIVE:To adapt and to combine the self-report Upper Extremity Functional Index and Lower Extremity Function Scale, for the assessment of disability severity in patients with a neuromuscular disease and to examine its psychometric properties in order to make it suitable for indicating disease severity in neuromuscular diseases. DESIGN:A cross-sectional postal survey study was performed among patients diagnosed with a neuromuscular disease. METHODS:Patients completed both adapted extremity function scales, questionnaires for psychometric evaluation, and disease-specific questions. Confirmatory factor analysis was performed, and reliability and validity were examined. RESULTS:Response rate was 70% (n = 702). The Extremity Function Index model with a two-factor structure - for upper and lower extremities - showed an acceptable fit. The Extremity Function Index scales showed good internal consistency (alphas: 0.97-0.98). The known-groups validity test confirmed that Extremity Function Index scales discriminate between categories of "Extent of limitations" and "Quality of Life." Convergent and divergent validity tests confirmed that Extremity Function Index scales measure the physical impact of neuromuscular diseases. Relative validity tests showed that the Extremity Function Index scales performed well in discriminating between subgroups of patients with increasing "Extent of limitations" compared to concurrent measurement instruments. CONCLUSION:The Extremity Function Index proved to be a sound and easy to apply self-report disability severity measurement instrument in neuromuscular diseases. Implications for rehabilitation The Extremity Function Index reflects the functioning of all muscles in the upper and lower extremities involved in activities of daily living. The Extremity Function Index is an easy to administer and patient-friendly disability severity measurement instrument that has the ability to evaluate differences in disability severity between relevant neuromuscular disease subgroups. The Extremity Function Index is a valid and reliable disability severity measurement instrument for neuromuscular diseases.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Bos I,Wynia K,Drost G,Almansa J,Kuks JBMdoi
10.1080/09638288.2017.1300690subject
Has Abstractpub_date
2018-06-01 00:00:00pages
1561-1568issue
13eissn
0963-8288issn
1464-5165journal_volume
40pub_type
杂志文章abstract:PURPOSE:To assess quality of life (QoL) in two groups of patients with long-term musculoskeletal pain with and without psychiatric co-morbidity and to compare them with a reference group of normative controls. The patients in both study groups were sick-listed full or part time for 3 months or more. METHOD:The patient...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003734383
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:The problem of complex healthcare to MS patients, together with the rising prevalence of MS and escalating costs, has caused healthcare policy makers to consider innovative approaches to controlling costs and improving the quality of care. An integrated care approach may provide a means for better coordination ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600845555
更新日期:2007-04-15 00:00:00
abstract::This paper presents a model of disability disparities. Though the concept of health disparities is discussed in the health care literature, there is no such model that explicitly addresses disparities in the disability literature. Therefore, this model begins to fill a void in the disability literature. Part of the va...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280902773737
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The effects of gravity and immobilisation are regarded as factors in the development of spinal deformity in cerebral palsy (CP). This study was to assess the body positions in daily life of children with CP using a wearable device. METHOD:Four institutionalised children with severe quadriplegic CP participated...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.579221
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To develop screening protocols to detect depression and anxiety after stroke in a community setting and train therapists to administer them. METHOD:Psychologists and a community therapist met to design a system suitable for screening for anxiety and depression in all those with stroke, including people with co...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.636137
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This manuscript seeks to explain why applications of item response theory (IRT) and factor analytic methods provide evidence of validity, and why for the same reasons that they provide evidence of validity, they can advance substantive knowledge. METHODS:A narrative review of the psychometrics literature and d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.872201
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To investigate the responsiveness and cross-sectional and longitudinal validity of the Motor Activity Log (MAL) in the subacute phase after stroke. METHOD:Data were collected pre-intervention, post-intervention, and at 3-month follow-up evaluations from 30 patients with stroke participating in a randomized tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903437253
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To evaluate the two year outcome of multidisciplinary rehabilitation for patients with prolonged musculoskeletal disorders (MSDs), in terms of health-related quality of life (HRQL) and working ability. In addition, predictors of outcome were examined. METHODS:The rehabilitation group and the matched control gr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382800445443
更新日期:2000-10-15 00:00:00
abstract::The pixel values in fat/water suppression magnetic resonance (MR) images were measured for the thigh muscles of 18 healthy volunteers to investigate age-related changes in muscle water and fat content. Prior to the human studies the reproducibility of the data was confirmed using phantoms. The standard deviations (SDs...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166650
更新日期:1995-08-01 00:00:00
abstract:PURPOSE:The primary aim of this study was to analyse the predictive value of cognitive and behavioural factors, in relation to pain, disability and quality of life (QoL) one year after lumbar disc surgery. METHOD:The study design was prospective. Fifty-nine patients scheduled for first time lumbar disc surgery were in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.3109/09638280903177243
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Outcome measures must be responsive to change (able to show statistically significant change) and must also produce information on the degree of change that is clinically significant, or the minimal clinically important difference (MCID). This research sought to establish the MCID for four domains of the Austra...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.952450
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The aim of the present study was to investigate sense of coherence (SOC) in adults with cerebral palsy (CP) compared to the general population. METHOD:A questionnaire was sent to a representative sample of adults with CP, including the 3-item version of SOC and items on their life situation and follow-up progr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110108805
更新日期:2002-07-10 00:00:00
abstract:PURPOSE:The aim of this paper is to describe and analyse the current situation of the physiotherapy component of the Rehabilitation of Afghans with Disability (RAD) programme, in order to identify the needs and challenges for further development. METHOD:The study was conducted as a field study with an anthropological ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701257205
更新日期:2008-01-01 00:00:00
abstract::Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802280585
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
abstract:PURPOSE:Bladder dysfunction and disability may cause people with multiple sclerosis (pwMS) to limit fluid intake. However, hydration is rarely considered in the multiple sclerosis literature. We investigated the hydration status of people with pwMS and its association with independence in activities of daily living. M...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.549286
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:A 4-week Pain Coping Strategies (PCS) programme has been developed for chronic pain patients who may still be undergoing medical interventions but who would benefit from learning pain management skills. The long-term negative behaviours associated with chronic pain may be prevented by introducing pain managemen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600756117
更新日期:2007-02-15 00:00:00
abstract:PURPOSE:Many adults aged less than 65 years with high-care needs resulting from acquired disabilities are unable to access age-appropriate housing and support, and reside in residential aged care or live with family members who may struggle to navigate the disability support system. This qualitative study aimed to inve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1212108
更新日期:2017-09-01 00:00:00
abstract:PURPOSE:To evaluate outcome measures and the factors affecting them in patients treated between 1962 and 2000 at Loewenstein Rehabilitation Hospital, Israel. METHOD:This retrospective cohort study included 262 patients with spinal neurological lesions (spinal cord or cauda equina lesions) following degenerative spinal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500030886
更新日期:2005-08-05 00:00:00
abstract:OBJECTIVE:Action Observation Treatment is a novel rehabilitation approach exploiting a neurophysiological mechanism that allows one to recruit the neural structures sub-serving action execution during the mere observation of those same actions. Action Observation Treatment is effective in the rehabilitation of several ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1793009
更新日期:2020-08-17 00:00:00
abstract:PURPOSE:This systematic review aimed to reconceptualize experiences from a variety of papers to provide direction for research, policy and practice. METHOD:Meta-ethnography was used to inform the review, and 21 studies were included. FINDINGS:The analysis identified a core theme of "engaging in care: struggling throu...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638288.2016.1262467
更新日期:2018-04-01 00:00:00
abstract:BACKGROUND:Few functional outcomes scales have used Item Response Theory (IRT) for validation. IRT allows individual line item validations and offers substantial advantages over classic methods of scale validation or the simplest from of IRT known as Rasch. Rasch analysis reduces data to dichotomous variables thus decr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500404263
更新日期:2006-08-15 00:00:00
abstract:PURPOSE:Kinesiophobia and catastrophizing are frequent among people with chronic fatigue syndrome (CFS). This study was aimed at examining (1) whether kinesiophobia, anticipated symptoms and fatigue catastrophizing are related to stair climbing performance in people with CFS; and (2) whether kinesiophobia and fatigue c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641661
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:This survey was carried out to study the views of multidisciplinary health professionals about discussing sexual issues with patients. METHODS:A questionnaire was sent to professionals (nurses, doctors, physiotherapists and occupational therapists) to return by post. A duplicate questionnaire was sent 4 weeks ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000031188
更新日期:2003-03-18 00:00:00
abstract:PURPOSE:To describe the development and feasibility of a self-management intervention called the Help to Overcome Problems Effectively (HOPE: MS), aimed at improving the physical and psychological wellbeing of people living with Multiple Sclerosis (MS). METHOD:HOPE: MS is an innovative, 6-week group-based, manualised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1181211
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:Tendon injuries (tendinopathy) are prevalent across the population, affecting active and inactive individuals and manual workers. The aetiology of tendinopathy is not known. However, extrinsic factors such as load are known to affect the prevalence. More recently, intrinsic factors have been shown to also affec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701786864
更新日期:2008-01-01 00:00:00
abstract:OBJECTIVE:This survey aimed to provide an expert consensus view of the theoretical beliefs underlying physiotherapy practice in stroke rehabilitation the United Kingdom. METHOD:Questionnaires (with sections related to: therapist background, physiotherapy management, theoretical beliefs and gait re-education strategies...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000069744
更新日期:2003-05-06 00:00:00
abstract:PURPOSE:In this paper we examine how the intersection of various social and political influences shapes discharge planning and rehabilitation practices in ways that may not meet the espoused aims of rehabilitation programs or the preferences of older adults and their families. METHODS:Taking a critical bioethics persp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193232
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:The purpose of this article is to describe the changing nature, process and structure of an international non-governmental organisation (NGO) in response to internal and external factors. METHOD:This article is based on the interview data collected for the study which focussed on the experiences and perception...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802260322
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Studies of occupational low back pain (OLBP) have shown that return to work after injury is influenced by workers' concerns and expectations; however, these theoretical constructs have not been explored. The specific aim of this study was to identify themes related to self-efficacy and outcome expectancy for re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500076269
更新日期:2005-11-15 00:00:00