Abstract:
PURPOSE:This systematic review aimed to reconceptualize experiences from a variety of papers to provide direction for research, policy and practice. METHOD:Meta-ethnography was used to inform the review, and 21 studies were included. FINDINGS:The analysis identified a core theme of "engaging in care: struggling through", as carers, who wanted to be involved in caring, learnt to live with the intense and stressful impact of caring and changes to their life. The core theme is represented through three themes (1) Helping another to live, (2) Adapting ways of living and (3) Negotiating the unknown. CONCLUSIONS:The discussion identified a focus on carers of people suffering from a hip fracture, the willingness of informal carers to engage in caring and the intense experience of adapting to changes in relationships and dependency alongside a steep experiential learning curve. Tensions exist in negotiations with complex health care systems as carers do not feel their expertise is valued and struggle to find and understand information. Implications for Rehabilitation Including relatives/carers in the umbrella of care within a family-centred approach. Involving relatives/carers within shared decision-making about care requirements and rehabilitation goals. Utilizing forms of experiential learning to help the development of relatives/carers skills in relation to their role as carer. Providing opportunities for carers to explore ways of sustaining their own health through self-compassion.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Saletti-Cuesta L,Tutton E,Langstaff D,Willett Kdoi
10.1080/09638288.2016.1262467subject
Has Abstractpub_date
2018-04-01 00:00:00pages
740-750issue
7eissn
0963-8288issn
1464-5165journal_volume
40pub_type
杂志文章,评审abstract::The study evaluated the sensitivity of a newly devised scale for measurement of emotional reactions and depression, on a group of 25 stroke patients, with right or left hemisphere damage, and 15 age-matched controls. Four clusters were examined: communication, expression of emotions, sense of self and physical or psyc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166828
更新日期:1997-02-01 00:00:00
abstract::Purpose: To examine how deliberate rumination and psychological need satisfaction interact to facilitate posttraumatic growth for para sport athletes with acquired disability. Methods: Utilizing a sample of 70 para sport athletes, the hypothesized mediating role of deliberate rumination was examined via a simple media...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1466203
更新日期:2019-10-01 00:00:00
abstract:PURPOSE:The purpose was to explore, describe and compare the characteristics of physiotherapy sessions with patients after stroke from two perspectives: the patients' and the physiotherapists', in relation to observed behaviour. METHODS:A qualitative, descriptive, comparative approach was used. Nine patients and 10 ph...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001724889
更新日期:2004-10-21 00:00:00
abstract:PURPOSE:To evaluate a time out based discipline strategy designed to decrease treatment avoidance in children with cystic fibrosis (CF) who displayed non-compliant behaviour to their parents' treatment requests. METHOD:A single-subject reversal design was used to compare baseline compliance when a time out based disci...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802051713
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To improve the operating speed of the traditional row-column scanning computer keyboard-mouse composite panel controlled using a single key. METHOD:Using a single mouse input control window can avoid scanning unnecessary keyboard characters, thereby increasing the speed in performing mouse commands. In additio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000030909
更新日期:2003-02-18 00:00:00
abstract:PURPOSE:To perform the Manchester-Oxford Foot Questionnaire Chinese Version (MOXFQ-Ch) through a cross-cultural adaptation and validation of the original questionnaire. MATERIAL AND METHODS:Three hundred and sixty nine patients (241 women/128 men, 48.75 ± 8.17 years old) with a diagnosis of hallux valgus foot (237 bot...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1616834
更新日期:2021-01-01 00:00:00
abstract:PURPOSE:The purpose of this study is to present a retrospective study on clients with Acquired Brain Injury (ABI) enrolled in a tele-motion-rehabilitation service program for two or more months. METHODS:Data from 82 clients (46 males; 74 with ABI), aged 22-85 years, are reported. The Kinect-based CogniMotion System (R...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1250827
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disorder affecting the peripheral nerves. The purpose of this study was to describe disability and health status in patients with CIDP in Sweden. METHODS:All 22 adult patients with CIDP at the Karolinska University Hospital, Huddinge were invited to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306497
更新日期:2009-01-01 00:00:00
abstract:PURPOSE: To expand understanding of informal stroke care-giving, validated tools previously used in Hong Kong and in the U.K. were used with Australian stroke carers to assess their stroke-related knowledge, perceived needs, satisfaction with services received and sense of burden after stroke patients' discharge home f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.553702
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Little is known concerning changes in neuromuscular fatigue following a stroke. The purpose of this study was to evaluate the effect of a stroke on fatigue-related changes in upper limb torque patterns and electromyographic signals. METHOD:The paretic and non-paretic upper limb of 10 adults (51-79 years) who h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000007932
更新日期:2002-12-15 00:00:00
abstract:PURPOSE:To describe cost-effectiveness of the Physical Activity in Rheumatoid Arthritis (PARA) study intervention. METHOD:Costs were collected and estimated retrospectively. Cost-effectiveness was calculated based on the intervention cost per patient with respect to change in health status (EuroQol global visual analo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.3109/09638288.2014.940429
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To evaluate the effects of eccentric strengthening exercises (ESE) in athletic patients with Achilles tendinopathy. METHODS:Forty-five athletic patients (29 men, average age 26 years +/- 12.8, range 18 - 42; 16 women, average age 28 years +/- 13.1, range 20 - 46; average height: 173 +/- 16.8, range 158 - 191; ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701786427
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To explore the psychosocial outcomes of an inclusive adapted sport and adventurous training course that aims to support the rehabilitation and personal development of military personnel who have sustained physical and/or psychological disability. METHOD:Narrative life story interviews were conducted with 11 me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.802376
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:To perform a Rasch analysis (RA) of the Fear Avoidance Beliefs questionnaire (FABQ-I) in a sample of chronic non-specific low back pain (CLBP) patients. The RA is expected to provide information about the internal construct validity and all the single items consistency of the FABQ-I and then contributing to the...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.3109/09638288.2014.909890
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The aim was to compare self-rated health, health-related quality of life (HRQoL), social networks and health care utilisation of those granted disability pension (DP) and those not granted disability pension (nDP). METHOD:Demographic data and medical diagnoses were obtained from the records of the social insur...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500165179
更新日期:2006-01-15 00:00:00
abstract:PURPOSE:There is little guidance on using extrinsic feedback to enhance motor learning after stroke. This narrative review synthesises research findings and identifies questions remaining to be answered. METHOD:A summary is given relating to the use of extrinsic feedback in healthy subjects. Then, research concerning ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500534937
更新日期:2006-07-15 00:00:00
abstract::Purpose: This study explored the impact of a 12-week stroke self-management program on occupational performance, the role of self-efficacy on improving occupational performance and the potential barriers and facilitators to self-efficacy as reported by clients and careers. Materials and methods: Participants (n = 40) ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1666431
更新日期:2019-09-27 00:00:00
abstract::Purpose Transitioning to independence may be problematic for persons with spina bifida (SB). Experiences of young persons with SB may provide insights into this group's needs for support. Therefore, the aim of this study was to investigate children's and adolescents' experiences of living with SB, their social and emo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1146355
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:To adapt and to combine the self-report Upper Extremity Functional Index and Lower Extremity Function Scale, for the assessment of disability severity in patients with a neuromuscular disease and to examine its psychometric properties in order to make it suitable for indicating disease severity in neuromuscul...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1300690
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:To pilot-test and evaluate an innovative program providing information technology (IT) access to people with disabilities transitioning out of nursing homes into the community using a participatory approach. METHODS:Pre- and post-training data was collected on the 61 program participants to reflect three broad...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600551633
更新日期:2006-10-15 00:00:00
abstract:PURPOSE:The purpose of this study is to cross-culturally adapt the Knee Outcome Survey-Activities of Daily Living Scale into Arabic and to assess its psychometric properties (internal consistency, reliability, validity, and responsiveness) in patients with knee disorders. METHODS:The cross-cultural adaptation process ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313319
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:To obtain information about the wishes and experiences of patients with a lower limb amputation with regard to prosthetic prescription and their exchange of information with the healthcare providers. METHOD: DESIGN:Cross-sectional questionnaire. SETTING:Outpatient clinic of a Rehabilitation Centre. STUDY PA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600948375
更新日期:2007-07-15 00:00:00
abstract:PURPOSE:The purpose of this study was to determine the feasibility of providing a community-based aquatic exercise programme and to examine the effects of a group aquatic exercise programme in individuals with multiple sclerosis. This study illustrates the implementation of a multidisciplinary community-based programme...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.507855
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Aphasia can profoundly affect a person's capacity for social participation. The purpose of this study is to describe how people with aphasia participate socially, and to investigate the factors which are related to social participation. METHODS:A cross-sectional study was conducted in 150 people with aphasia u...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003649938
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Little information exists about the long-term outcome of amyoplasia. In this article, a case report of a 93-year old woman is presented including both the development of the physical limitations and coping strategies. METHOD:The medical records, physical examinations and personal interviews during the last 10 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.717577
更新日期:2013-06-01 00:00:00
abstract:PURPOSE:Walking ability in general and specifically for lower limb amputees is of major importance for social mobility and ADL independence. Walking determines prosthesis prescription. The aim of this study was to mathematically analyse factors influencing claimed walking distance of lower limb amputees of 500 m or mor...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009345
更新日期:2005-02-04 00:00:00
abstract::Purpose: To explore medical doctors' views on what are barriers in providing rehabilitation services for persons with SCI in Mongolia.Methods: A qualitative study with semi-structured interviews was conducted with 12 medical doctors. Participants were purposely sampled. The World Health Organization (WHO)'s report Int...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1696415
更新日期:2019-11-30 00:00:00
abstract:PURPOSE:To explore the use of International Classification of Functioning, Disability, and Health for Children and Youth (ICF-CY) based profiles of children's functional abilities in relation to their social competence. Subgroups based on shared profiles of functional ability were investigated as an alternative or comp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1363823
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:The purpose of this study was to learn more about individual beliefs and personal strategies used to support the period of recovery after stroke. It sought to identify the factors that were perceived to be enablers as well as challenges to recovery. Personal actions or experiences, which were perceived to be ef...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701355561
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:Post-stroke hemiparesis may manifest as asymmetric gait, poor balance, and inefficient movement patterns. We investigated improvements in lower-limb muscle activation and function during Wii-based Movement Therapy (WMT), a rehabilitation program specifically targeting upper-limb motor-function. METHODS:Electro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1213892
更新日期:2017-09-01 00:00:00