Abstract:
PURPOSE: To expand understanding of informal stroke care-giving, validated tools previously used in Hong Kong and in the U.K. were used with Australian stroke carers to assess their stroke-related knowledge, perceived needs, satisfaction with services received and sense of burden after stroke patients' discharge home from acute hospital care. METHODS: Record audit and telephone interviews with two cohorts of 32 carers recruited in Sydney and Brisbane 1 and 3 months post-hospital discharge, using validated scales and open questions in May-July 2006. RESULTS: Female carers, those with prior care-giving responsibility, and those interviewed at three compared to one month post-discharge reported greatest needs and burden from the care-giving role; needs alone significantly predicted burden. Getting information and being prepared for life after discharge were central concerns. Some felt this was accomplished, but inadequate information giving and communication mismatches were apparent. CONCLUSIONS: Service providers need to develop partnership working with stroke families and provide a network of services and inputs that cut across conventional boundaries between health and social care, public, private and voluntary organisations, with care plans that deliver what they delineate. Stroke care-givers have common issues across countries and healthcare systems; collaborative research-based service development is advocated.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Perry L,Middleton Sdoi
10.3109/09638288.2011.553702subject
Has Abstractpub_date
2011-01-01 00:00:00pages
1890-900issue
19-20eissn
0963-8288issn
1464-5165journal_volume
33pub_type
杂志文章abstract::The population of the First World is ageing, and as it does so elderly people are becoming an increasingly significant consumer group. This process has important ramifications for the ergonomics and design professions. The demand for products that have been developed with consideration for the elderly consumer will re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289609166034
更新日期:1996-10-01 00:00:00
abstract:PURPOSE:Explore the potential benefits of using priming methods prior to an active hand task in the acute phase post-stroke in persons with severe upper extremity hemiparesis. METHODS:Five individuals were trained using priming techniques including virtual reality (VR) based visual mirror feedback and contralaterally ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226419
更新日期:2017-07-01 00:00:00
abstract:OBJECTIVE:To evaluate the extent to which the rehabilitation outcome levels (ROL) and the spinal cord independence measure (SCIM) III could be mapped to the International Classification of Functioning, Disability and Health (ICF) and the brief core set for spinal cord injury (SCI) in the post-acute context. METHODS:Tw...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1107762
更新日期:2016-08-01 00:00:00
abstract::Background: Physical activity confers many physical and psychosocial benefits for adolescent and young adult cancer survivors, yet most are not active enough to accrue benefits. Parental support for physical activity may be important to consider when exploring factors that influence physical activity in this populatio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1712621
更新日期:2020-01-19 00:00:00
abstract::Purpose: Although measuring outcome of rehabilitation in children with Developmental Coordination Disorder is considered important no consensus exists on which instruments to use. An important attribute of a measurement instrument would be that it is sensitive to clinical changes. The aim of this prospective, observat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1785022
更新日期:2020-07-02 00:00:00
abstract:PURPOSE:The Motor Assessment Scale (MAS) has shown to be a reliable and valid instrument for measuring motor functioning for stroke patients. The purpose of this paper was to study dimensionality and scalability of the instrument. METHOD:A total number of 137 patients were evaluated at admission and on discharge. To s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500476188
更新日期:2006-08-30 00:00:00
abstract:PURPOSE:To discover whether there are differences between patients with RA with and without active motion deficit in the shoulder (passive ROM greater than active ROM) concerning disease characteristics and shoulder function, and examine the role of active motion deficit in explaining limitations of shoulder function i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.732187
更新日期:2013-08-01 00:00:00
abstract:PURPOSE:To identify trajectories of physical and psychosocial health-related quality of life (HRQoL) from two months to one-year post stroke and to determine the factors that are associated with trajectory membership. METHOD:Multicenter prospective cohort study in which 351 stroke patients were followed up at 2, 6, an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1292320
更新日期:2018-05-01 00:00:00
abstract:PURPOSE:To evaluate the two year outcome of multidisciplinary rehabilitation for patients with prolonged musculoskeletal disorders (MSDs), in terms of health-related quality of life (HRQL) and working ability. In addition, predictors of outcome were examined. METHODS:The rehabilitation group and the matched control gr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382800445443
更新日期:2000-10-15 00:00:00
abstract:PURPOSE:Problems with access to outpatient physiotherapy services have been reported in publicly funded healthcare systems worldwide. A few studies have reported management strategies aimed at reducing extensive waiting lists, but their association with waiting times is not fully understood. The purpose of this study w...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1238967
更新日期:2017-12-01 00:00:00
abstract::Aim: Few studies have addressed impact of participation in exercise programs on caregivers or family members of individuals with disabilities.Purpose: To evaluate the impact of interaction rich wellness program on family members or caregivers of participants.Methods: Nine family members or caregivers were selected for...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1522549
更新日期:2020-05-01 00:00:00
abstract::In this paper I want to tread a careful path between spirituality as something to be examined and spirituality as something to be experienced. While we need knowledge, the relationship between spirituality and disability exists in the experiences of those concerned, and should not be reduced to purely analytical categ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166564
更新日期:1997-10-01 00:00:00
abstract:PURPOSE:The purpose was to explore, describe and compare the characteristics of physiotherapy sessions with patients after stroke from two perspectives: the patients' and the physiotherapists', in relation to observed behaviour. METHODS:A qualitative, descriptive, comparative approach was used. Nine patients and 10 ph...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001724889
更新日期:2004-10-21 00:00:00
abstract:PURPOSE:Quality of life (QoL) is an important measure of the burden of disease and could be useful in evaluating patient management and practical interventions. The aim of this study was to explore the association of psychological and clinical variables with QoL in patients with multiple sclerosis (MS). METHODS:One hu...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.540292
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To understand why individuals with Parkinson's disease (PD) participate in a community-based therapeutic dance program and to explore its influence on perceived physical, social and emotional well-being of participants. METHODS:A qualitative descriptive design was employed using one-on-one semi-structured inte...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1175037
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1092173
更新日期:2016-07-01 00:00:00
abstract::Purpose: To explore medical doctors' views on what are barriers in providing rehabilitation services for persons with SCI in Mongolia.Methods: A qualitative study with semi-structured interviews was conducted with 12 medical doctors. Participants were purposely sampled. The World Health Organization (WHO)'s report Int...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1696415
更新日期:2019-11-30 00:00:00
abstract:PURPOSE:Studies of occupational low back pain (OLBP) have shown that return to work after injury is influenced by workers' concerns and expectations; however, these theoretical constructs have not been explored. The specific aim of this study was to identify themes related to self-efficacy and outcome expectancy for re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500076269
更新日期:2005-11-15 00:00:00
abstract:PURPOSE:National and International guidelines recommend cognition and mood assessment for all stroke survivors. However, there is no consensus on preferred screening tool or method of assessment. We aimed to describe clinical practice in cognitive and mood assessment across Scottish stroke services. METHOD:We used a q...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.791728
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To describe the extended Rehabilitation Complexity Scale (RCS-E) and its factor structure, and to determine whether it provides added value over the RCS-version 2 to identify patients with highly complex rehabilitation needs. METHOD:A cohort analysis of prospectively-collected routine clinical data from 331 pa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.615880
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:The provision of informal care plays a crucial role in supporting those with long term illness such as MS to stay in the community, but there is no recent United Kingdom (UK) research into the nature of this care provision and how it interacts with professional community care. The aim of this study was to inves...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400007802
更新日期:2004-12-16 00:00:00
abstract:PURPOSE:The purpose of this paper is to show how the Rasch model can be used to develop a computer adaptive self-report of walking, climbing, and running. METHOD:Our instrument development work on the walking/climbing/running construct of the ICF Activity Measure was used to show how to develop a computer adaptive tes...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701617317
更新日期:2008-01-01 00:00:00
abstract::Objectives: To investigate the: (i) inter-rater and test-retest reliability of the toe tap test for people with stroke, (ii) the convergent validity of toe tap test counts with stroke-specific impairments, (iii) minimum detectable change in toe tap test counts, (iv) toe tap test cutoff counts which best discriminating...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1479454
更新日期:2019-11-01 00:00:00
abstract:BACKGROUND:Few functional outcomes scales have used Item Response Theory (IRT) for validation. IRT allows individual line item validations and offers substantial advantages over classic methods of scale validation or the simplest from of IRT known as Rasch. Rasch analysis reduces data to dichotomous variables thus decr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500404263
更新日期:2006-08-15 00:00:00
abstract:PURPOSE:To explore the long-term functional outcomes of stroke patients with very mild severity at 6 months after stroke. METHODS:This study presents the interim results of the Korean Stroke Cohort for Functioning and Rehabilitation. On day 7, stroke evaluation was performed using the functional assessment battery inc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.3109/09638288.2016.1170214
更新日期:2017-05-01 00:00:00
abstract:PURPOSE:To obtain information about the wishes and experiences of patients with a lower limb amputation with regard to prosthetic prescription and their exchange of information with the healthcare providers. METHOD: DESIGN:Cross-sectional questionnaire. SETTING:Outpatient clinic of a Rehabilitation Centre. STUDY PA...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600948375
更新日期:2007-07-15 00:00:00
abstract:PURPOSE:Rehabilitation research information can be obtained from various bibliographic sources. Nevertheless, search strategies and terminologies differ from one database to another making it challenging for the novice user or users of multiple databases. This paper discusses a novel approach of using the International...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701800285
更新日期:2008-01-01 00:00:00
abstract::Developing a programme of research is important in advancing the science and practice of a discipline. This paper addresses in general the steps taken in developing a programme of research on pain in children. It reports the results of studies undertaken to develop and test a Pain Assessment Tool for Children and give...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289409166436
更新日期:1994-01-01 00:00:00
abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.705220
更新日期:2013-02-01 00:00:00
abstract::Cystic fibrosis is now an adult disease. The understanding of the basic pathophysiology of this disease has increased considerably over the past decade. This has resulted in effective management protocols and the development of innovative approaches to therapy. Management of young adults is complex and requires expert...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166732
更新日期:1998-06-01 00:00:00