Abstract:
:Cystic fibrosis is now an adult disease. The understanding of the basic pathophysiology of this disease has increased considerably over the past decade. This has resulted in effective management protocols and the development of innovative approaches to therapy. Management of young adults is complex and requires expert medical care delivered in a sensitive and appropriate way. The daily treatment schedule for many adults involves physiotherapy; nebulized, oral and i.v. drugs; exercise and nutritional supplements. Adherence to such treatment while living a busy school, work and social life is extremely difficult for patients. The psychological implications of having a disease with very significant morbidity and mortality also has an enormous impact on individuals with CF. Many of these issues have evolved as survival has increased and the next few decades may produce more unexpected 'genies'. These may be from the disease itself or from some of the exciting new treatments currently being developed. It is important that individuals with CF are fully involved in decisions relating to their treatment and that CF teams provide optimal and appropriate care to enable these young adults to enjoy their lives to the fullest extent.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Elborn Sdoi
10.3109/09638289809166732subject
Has Abstractpub_date
1998-06-01 00:00:00pages
217-25issue
6-7eissn
0963-8288issn
1464-5165journal_volume
20pub_type
杂志文章,评审abstract:PURPOSE:To develop screening protocols to detect depression and anxiety after stroke in a community setting and train therapists to administer them. METHOD:Psychologists and a community therapist met to design a system suitable for screening for anxiety and depression in all those with stroke, including people with co...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.636137
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:It has been argued, by many, that mathematical formulae for estimating sample size are unnecessarily complex, so much so that researchers may be reluctant to seek statistical advice. METHOD:This paper reviews methods of sample size estimation arguing that two formulae (one based on comparison of proportion of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166102
更新日期:1998-11-01 00:00:00
abstract:PURPOSE:Incontinentia pigmenti (IP), or Bloch-Sulzberger syndrome, is a rare X-linked dominant genetic disorder with multisystem involvement. To our knowledge, there are no previous reports about rehabilitation in IP adult with intact cognitive development. We report a 20-year-old lady with IP managed and followed into...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.874504
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To study social validity and perceived fairness of a new method for assessing general work ability in a sickness insurance context. Assessments are based on self-reports, combined with examinations by physicians, and, if needed, occupational therapists, physiotherapists and/or psychologists. MATERIALS AND METH...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1401675
更新日期:2019-03-01 00:00:00
abstract::Purpose: Youths with disabilities have lower employment rates than youths without disabilities, which are often a result of inaccessible environments, employer's lack of knowledge about people with disabilities and discriminatory attitudes. Exploring youths' career aspirations is important because it can prompt or hin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1671505
更新日期:2019-10-07 00:00:00
abstract::Purpose: This study was conducted in a home-based context where trained occupational therapists delivered progressive physical exercise training and home modification intervention for preventing falls, namely the FIT-at-Home intervention. We assessed the feasibility of the intervention's content and mode of delivery f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1700564
更新日期:2019-12-22 00:00:00
abstract:PURPOSE:To evaluate the physical strain of comfortable walking in children with mild cerebral palsy (CP) in comparison to typically developing (TD) children. Physical strain was defined as the oxygen uptake during walking (VO(2walk)) expressed as a percentage of their maximal aerobic capacity (VO(2peak)). METHOD:Eight...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.531374
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To improve clinical management of patients with hemiplegic shoulder pain through development of an evidence-based multidisciplinary integrated care pathway (ICP), and to use this to audit quality of care against predefined standards. METHODS:The ICP was developed by a team of medical, paramedical and nursing s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110101569
更新日期:2002-05-10 00:00:00
abstract:OBJECTIVE:The aim of this study was to identify the treatment packages (combinations of interventions) used to treat postural control and mobility problems for patients with stroke. METHOD:A convenience sample of 74 physiotherapists from 34 National Health Service hospitals recorded the interventions used to treat pos...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802627686
更新日期:2009-01-01 00:00:00
abstract::Purpose To examine the measurement properties of measures of psychological constructs in people with knee osteoarthritis. Method Participants with osteoarthritis of the knee completed the beck depression inventory (BDI-II), state-trait anxiety inventory (STAI), arthritis helplessness index (AHI), fatigue severity scal...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1146356
更新日期:2017-02-01 00:00:00
abstract:OBJECTIVE:The National Service Framework (NSF) for Long-Term Neurological Conditions (LTNC) highlights the need for vocational rehabilitation (VR) services in quality requirement 6. As a part of a review of this requirement, an extensive literature review was undertaken to identify, review and report on all relevant re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.669019
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To enhance the employment outcomes of individuals who experience a stroke, it is essential to understand the factors that determine successful return to work. The aim of this systematic review was to examine barriers to and facilitators of return to work after stroke from the perspective of people with stroke t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析
doi:10.3109/09638288.2016.1141242
更新日期:2017-02-01 00:00:00
abstract:PURPOSE:Little is known concerning changes in neuromuscular fatigue following a stroke. The purpose of this study was to evaluate the effect of a stroke on fatigue-related changes in upper limb torque patterns and electromyographic signals. METHOD:The paretic and non-paretic upper limb of 10 adults (51-79 years) who h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000007932
更新日期:2002-12-15 00:00:00
abstract:PURPOSE:The purpose of this experiment was to quantify lumbar muscle endurance training for individuals with a recent episode of acute low back pain (LBP) (≥ moderate pain for ≥ 2 days) and to observe whether the training would reduce the rate and severity of recurrent LBP episodes. METHOD:Twenty-six participants who ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.656787
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Few studies on disabilities relate to neurogenic chronic pain conditions and how pain influences the patient's ability to maintain life roles. Polyneuropathy is a condition with muscle weakness, sensory impairment and sometimes additional pain of neurogenic origin. The aim was to investigate disability reported...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802621382
更新日期:2009-01-01 00:00:00
abstract:BACKGROUND:There are relatively few reports describing gait patterns in multiple sclerosis (MS) and most are confined to the analysis of temporal distance parameters with some assessment of joint range of motion. The aim of this study was to perform a biomechanical characterisation of gait patterns among people with MS...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903464497
更新日期:2010-01-01 00:00:00
abstract::Purpose: The purpose of this scoping review was to explore the literature on experiences and perspectives of patients with hip fractures and their caregivers during transitions in care.Methods: Seven databases were searched for studies published between 1 January 2000 and 3 July 2018. Grey literature was also searched...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1595181
更新日期:2020-12-01 00:00:00
abstract:PURPOSE:To assess quality of life (QoL) in two groups of patients with long-term musculoskeletal pain with and without psychiatric co-morbidity and to compare them with a reference group of normative controls. The patients in both study groups were sick-listed full or part time for 3 months or more. METHOD:The patient...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003734383
更新日期:2010-01-01 00:00:00
abstract::The aim of the study was to investigate the effect of perceptual assessment and treatment provided on a stroke unit by comparison with that provided on health care of the elderly and general medical wards. Stroke patients admitted to hospital were randomly allocated to a stroke unit or conventional wards. Perceptual i...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.3109/09638289709166532
更新日期:1997-06-01 00:00:00
abstract:PURPOSE:The aim of this study is to do a cost-benefit analysis with monetary and non-monetary benefits for sheltered employment service programs and try to provide more evidence-based information for policy makers and practitioners to understand the outcomes of sheltered employment services. METHOD:This study analyzed...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.656786
更新日期:2012-01-01 00:00:00
abstract::Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802280585
更新日期:2009-01-01 00:00:00
abstract:METHODS:Six electronic databases were searched for relevant studies from 2000 to 2019. Forty-one eligible studies were identified. RESULTS:Findings suggest that the people with disabilities' choice to seek healthcare services or not, as well as the quality of intervention provided by primary healthcare providers, are ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1817984
更新日期:2020-09-21 00:00:00
abstract:OBJECTIVES:This study aimed to examine "intention to" and "performance of" oral hygiene care to stroke patients using the Theory of Planned Behavior. MATERIALS AND METHODS:A large scale survey of 13 centers in Malaysia was conducted involving 806 nurses in relation to oral hygiene care intentions and practices. In add...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1080/09638288.2016.1277397
更新日期:2018-04-01 00:00:00
abstract:PURPOSE:The objectives of this study were to describe perceptions of disability among South Asian immigrant mothers of children with disabilities in a large multicultural urban centre in Ontario, Canada, and to explore how these perceptions influence rehabilitation services. The study was built on our previous work con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.498549
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:This study extends understanding of the relationship between disability and independence in older adults with COPD. METHODS:An interviewer-administered questionnaire was used to examine disability, adaptation, perceptions of independence, and self-efficacy in a sample of 50 community-dwelling older adults. Odd...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000093495
更新日期:2003-07-22 00:00:00
abstract:OBJECTIVE:To compare the effects of goal directed functional therapy (GDT) to activity focused therapy (AT) for preschool children with cerebral palsy (CP) on everyday activities and gross motor function. Another aim was to evaluate goal attainment in the GDT group. METHODS:A prospective intervention study comparing t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
doi:10.1080/09638280902822278
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To explore how women experience living with long-term pregnancy-related pelvic girdle pain. MATERIALS AND METHODS:Nine women with persistent pregnancy-related pelvic girdle pain of 2-13 years were recruited by means of purposive sampling from long-term follow-up studies. The women were 28-42 years of age and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1368724
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:To examine the met and unmet needs of young people with stroke who accessed services run by the Stroke Association. METHODS:One hundred and thirty-five out of 200 members of 14 participating Young Stroke groups completed and returned the postal version of the Southampton Needs Assessment Questionnaire for Stro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000069753
更新日期:2003-09-16 00:00:00
abstract:PURPOSE:To review the literature on cognitive functioning in persons with lower limb amputations. METHOD:A search of the MEDLINE, PsycINFO and Web of Science databases was carried out. RESULTS:Thirty papers were found that met the inclusion criteria. The studies were characterised by heterogeneity of design, methodol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.667190
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To investigate the extent to which selected individual, family and environmental variables were associated with participation of children who have cerebral palsy in activities outside school. METHODS:Data were gathered through a population-based survey of 114 children born in 1994 or 1995 in Victoria, Australi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280902971406
更新日期:2009-01-01 00:00:00