Abstract:
PURPOSE:The provision of informal care plays a crucial role in supporting those with long term illness such as MS to stay in the community, but there is no recent United Kingdom (UK) research into the nature of this care provision and how it interacts with professional community care. The aim of this study was to investigate the nature of informal and professional care in a community population of people with MS living in the UK from the perspectives of people with MS. METHOD:Data on the Standard Day Dependency Record (SDDR), Barthel Index, a measure of disability, and SF-36 were collected from a community sample of volunteers with MS from a postal questionnaire and visits from researchers. RESULTS:The response rate was 61%, (n = 169). Respondents in this study were most likely to be assisted by family rather than health or social service professionals and the help was considered essential for approximately 70% of individuals. Only 15% of respondents in this survey received visits from a professional in the preceding 24 h. There was a subgroup who considered help to be significantly more essential and who required assistance on more occasions by the SDDR (t = 13.01, df = 622, p < 0.001, t = 10.38, df = 36.4, p < 0.001). Other subgroups were also identified who may be in need of support from professionals but who were not receiving it. CONCLUSIONS:There are reports of considerable amounts of care being provided by families to people with MS who may not be receiving the support required from professional caregivers. Further work needs to establish which groups need assistance and what form this assistance should take.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
O'Hara L,De Souza L,Ide Ldoi
10.1080/09638280400007802subject
Has Abstractpub_date
2004-12-16 00:00:00pages
1401-10issue
24eissn
0963-8288issn
1464-5165pii
HDKCCLAFU3KC4R1Ljournal_volume
26pub_type
杂志文章abstract:PURPOSE:To assess and compare the levels of walking symmetry in ambulatory participants with spinal cord injury (SCI) who had different degrees of lesion severity, levels of walking ability, and fall history. In addition, the study explored the relationship between the levels of walking symmetry and variables related t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1277398
更新日期:2018-04-01 00:00:00
abstract:PURPOSE:The purpose of this study was to assess health-related quality of life (HRQOL) in spinal-cord-injured adults living in Quebec (Canada). METHOD:Subjects with spinal cord injury (SCI) all of whom were members of the Quebec Paraplegic Association who gave their consent to participate completed the 36-item Short F...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 共识发展会议,杂志文章,评审
doi:10.1080/09638280400013990
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:2015-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2018-06-01 00:00:00
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000137072
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1643417
更新日期:2019-07-28 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2020-12-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2015-01-01 00:00:00
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更新日期:2004-10-21 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2011.635746
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To study the impact on health status as measured by SF-36 in groups of subjects having chronic musculoskeletal pain with different degree of generalization: No chronic pain (NCP), chronic regional pain (CRP), chronic widespread pain (CWP), CWP with a stricter 'Manchester' definition (CWP-M), and clinically defi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2004-12-02 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2018-12-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:1995-04-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.956813
更新日期:2015-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究
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更新日期:2011-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2003-07-22 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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更新日期:2013-08-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2005-07-08 00:00:00