Abstract:
PURPOSE:To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS:This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices regarding education/work and their work-performance, the Impact on Participation/Autonomy questionnaire and the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P). In addition, health-related quality of life (HRQoL) was assessed. RESULTS:Seventy-five patients participated (median age 20, inter quartile range 17-27). Twenty were full-time students, 28 students with a job, 21 employed, two unemployed, and four work-disabled. Sixty-six patients had had a job at some stage. Patients' overall HRQoL was comparable to the general population. 27/75 patients reported that NBPP had affected their choices regarding education and 26/75 those regarding work. 33/66 reported impact on their work performance. On the Impact on Participation/Autonomy questionnaire, 80% (49/61) reported restrictions in the work-and-education domain, 74% in social-relations and 67% in autonomy-outdoors. 37/61 reported participation restrictions on the USER-P. CONCLUSIONS:Although their overall HRQoL was not impaired, a substantial proportion of adolescent/adult patients reported that NBPP had an impact on choices regarding education and profession, as well as on work-performance. Restrictions in participation, especially in work and education were also reported. Guiding patients in making choices on education and work at an early stage and providing tailored physical as well as psychosocial care may prevent or address restrictions, which may improve participation. Implications for Rehabilitation Adolescent and adult patients with neonatal brachial plexus palsy perceive restrictions in societal participation, especially regarding the work-and-education domain. All patients with neonatal brachial plexus palsy may perceive restrictions in societal participation regardless of lesion severity, treatment history and side of the lesion. Adolescents and adults with neonatal brachial plexus palsy report that their choices regarding education and work, as well as their work-performance are influenced by their neonatal brachial plexus palsy. Patients with neonatal brachial plexus palsy should be followed throughout their life in order to provide them with appropriate information and treatment when health- or participation-related issues arise. Rehabilitation treatment is the best option to address all of the aforementioned issues, as surgical options in adolescents and adults are limited.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
van der Holst M,Groot J,Steenbeek D,Pondaag W,Nelissen RG,Vliet Vlieland TPdoi
10.1080/09638288.2017.1380717subject
Has Abstractpub_date
2018-12-01 00:00:00pages
3147-3155issue
26eissn
0963-8288issn
1464-5165journal_volume
40pub_type
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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abstract:PURPOSE:This paper is a literature review, the purpose of which was to examine the legislative framework and the Australian Government Information Policy and how this has impacted on virtual communication and the well-being of Australians with disabilities. METHOD:This has been a systematic review of current Australia...
journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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abstract::The consequences of asthma are described in accordance with the definitions of the three levels of the International Classification of Impairments, Disabilities and Handicaps (ICIDH). Because asthma is a chronic disease, health care should emphasize how to cope with it. The goal of physical activities for persons with...
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journal_title:Disability and rehabilitation
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更新日期:2003-12-02 00:00:00
abstract::Purpose: Patients with Parkinson's and Huntington's Disease (PD and HD) present impairments in cognitively challenging everyday activities. This study contrasts these two basal ganglia disorders on the ability to perform daily life- like tasks and their level of awareness regarding the disease impact on function.Metho...
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更新日期:2020-07-03 00:00:00
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journal_title:Disability and rehabilitation
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更新日期:2015-01-01 00:00:00
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更新日期:2020-09-01 00:00:00
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