Abstract:
:Purpose: To systematically review and synthesise the qualitative literature on experiences that challenge self-identity following traumatic brain injury (TBI).Method: Four electronic databases were searched systematically for qualitative research published between 1965 and August 2017, investigating subjective experiences of identity change following TBI. Papers which met the inclusion criteria were evaluated using the Critical Skills Appraisal Programme (CASP) tool and synthesised using guidelines by Thomas and Harden (2008).Results: Of the 1965 papers retrieved, 36 met inclusion and quality criteria. Synthesis resulted in six themes: (1) awareness of change in physical, cognitive, emotional and social functioning; (2) autobiographical memory loss; (3) responses of other people that highlight change; (4) loss of autonomy; (5) comparing old me and new me-loss of valued roles and activities; (6) social rejection and stigma.Conclusions: An in-depth understanding of the experiences that challenge self-identity after TBI can inform rehabilitation to support individuals to negotiate these processes with less distress and more successfully.IMPLICATIONS FOR REHABILITATIONAfter a traumatic brain injury some people perceive catastrophic changes in their self-identity, and this can have a substantial negative impact on their psychological well-being.Circumstances and events that can trigger such appraisals include developing awareness of loss of ability and function; gaps in autobiographical memory; when others highlight loss and change; the loss of valued roles and activities; and social stigma and rejection.Clinicians should be aware of these triggers and their potential impact so that they can support people to negotiate them more effectively, with less damage to self-identity and psychological well-being.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Villa D,Causer H,Riley GAdoi
10.1080/09638288.2020.1743773subject
Has Abstractpub_date
2020-03-28 00:00:00pages
1-17eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract::Purpose: This study aims to explore the physical, psychological and social wellbeing of veterans who have experienced limb-loss and to ascertain the factors that contribute to the ability of veterans to maintain their independence at various stages in their lives.Methods: Sixty two life-story interviews were conducted...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1734875
更新日期:2020-03-03 00:00:00
abstract:PURPOSE:To determine the prognostic value of single items of the Barthel Index (BI) at discharge from rehabilitation, in predicting independence in personal activities of daily living (ADL) (BI score ≥ 95/100) at five years after stroke. METHOD:People with stroke were recruited consecutively from four European rehabil...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.793411
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:Supportive interventions to enhance return to work (RTW) in cancer survivors hardly showed positive effects so far. Behavioral determinants might have to be considered in the development of interventions to achieve sustained employability. This study aimed to explore cancer survivors' perspectives and experienc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1219924
更新日期:2017-10-01 00:00:00
abstract::Purpose: Peer support can be helpful in rehabilitation from breast cancer, but participation in peer support groups is low. Groups that provide support opportunities in physical activity contexts are an attractive alternative for some survivors. This study examined survivors' reasons for joining and maintaining partic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1449259
更新日期:2019-07-01 00:00:00
abstract:PURPOSE:To investigate how well visually impaired individuals can learn to use mobility scooters and which parts of the driving task deserve special attention. MATERIALS AND METHODS:A mobility scooter driving skill test was developed to compare driving skills (e.g. reverse driving, turning) between 48 visually impaire...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1295471
更新日期:2018-06-01 00:00:00
abstract:PURPOSE:To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS:Families were recruited in Sweden and Norway and stratified according to the ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1378930
更新日期:2019-01-01 00:00:00
abstract:PURPOSE:Many adults aged less than 65 years with high-care needs resulting from acquired disabilities are unable to access age-appropriate housing and support, and reside in residential aged care or live with family members who may struggle to navigate the disability support system. This qualitative study aimed to inve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1212108
更新日期:2017-09-01 00:00:00
abstract:PURPOSE:This study extends understanding of the relationship between disability and independence in older adults with COPD. METHODS:An interviewer-administered questionnaire was used to examine disability, adaptation, perceptions of independence, and self-efficacy in a sample of 50 community-dwelling older adults. Odd...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000093495
更新日期:2003-07-22 00:00:00
abstract:PURPOSE:To explore factors influencing physical activity (PA) reported by people living in rural/semi-rural communities in the south of England post-stroke, and to understand relationships between personal, interpersonal and environmental barriers and self-reported levels of PA. METHOD:A survey was mailed to patients ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1258437
更新日期:2018-02-01 00:00:00
abstract:PURPOSE:The Arm propelled three wheeled chair (APTWC) is in common use in the economically poor countries for outdoor ambulation, the propulsion force of which is exerted by arm cranking in asynchronous fashion. The purpose of the study was to assess the ambulatory performance of the users of the device using heart rat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050045947
更新日期:2000-07-10 00:00:00
abstract:PURPOSE:To identify the information needs of people with low back pain (LBP) in Australia, and the preferred methods to present this information online, as a basis for development of a patient-centred website. Available online LBP resources are limited in quality and content and it is not clear if they are meeting the ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.829532
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To assess the prevalence and variation of post-concussion symptoms within the first year after mild traumatic brain injury (TBI), and explore the association between injury severity, demographic factors and symptoms. METHODS:Prospective study of patients with mild TBI followed up at 3, 6 and 12 months (N= 96 i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802532720
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To assess long-term impairments of executive functioning in adult survivors of bronchopulmonary dysplasia (BPD). METHOD:Participants were assessed on measures of executive functioning, health-related quality of life (HRQoL) and social functioning. Survivors of BPD (n = 63; 34 males; mean age 24.2 years) were c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.991451
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To evaluate discriminative validity, relative reliability and absolute reliability of four tablet-based tests for the evaluation of upper limb motor function in healthy persons and patients with neurological disorders. METHODS:Cross-sectional study in 54 participants: 29 patients with upper limb movement impai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1800838
更新日期:2020-08-05 00:00:00
abstract:PURPOSE:To describe functioning and health of elderly patients in an early post-acute rehabilitation facility and to identify the most common problems using the International Classification of Functioning, Disability and Health (ICF). METHODS:Cross-sectional survey in a convenience sample of elderly patients requiring...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400014055
更新日期:2005-04-08 00:00:00
abstract::Purpose: Voice and communication changes can occur following cervical spinal cord injury due to dysfunction of the respiratory and phonatory subsystems. Few studies have explored the "lived experience" of communication changes post cervical spinal cord injury. Furthermore, the impacts of these changes on community act...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1557264
更新日期:2020-08-01 00:00:00
abstract::Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802280585
更新日期:2009-01-01 00:00:00
abstract::The pixel values in fat/water suppression magnetic resonance (MR) images were measured for the thigh muscles of 18 healthy volunteers to investigate age-related changes in muscle water and fat content. Prior to the human studies the reproducibility of the data was confirmed using phantoms. The standard deviations (SDs...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166650
更新日期:1995-08-01 00:00:00
abstract:PURPOSE:The aim of this study is twofold: (1) to explore health service providers' perceptions regarding fibromyalgia patients in Spain and (2) to analyze possible consequences of these perceptions in terms of how health service providers construct the disease and treat their patients. DESIGN:Qualitative study. SUBJE...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1306759
更新日期:2018-07-01 00:00:00
abstract::Purpose: To study the long-term evolution of patients with lower-limb Complex Regional Pain Syndrome (CRPS), focusing on functional and proprioceptive aspects and quality of life. Methods: In 20 patients suffering from chronic distal lower-limb CRPS diagnosed using Budapest criteria, we assessed joint position sense a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1650295
更新日期:2019-08-14 00:00:00
abstract:PURPOSE:The objectives of this study were to describe perceptions of disability among South Asian immigrant mothers of children with disabilities in a large multicultural urban centre in Ontario, Canada, and to explore how these perceptions influence rehabilitation services. The study was built on our previous work con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.498549
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To describe and evaluate the establishment of the first VCT services for the Deaf in Africa. METHOD:Operational research methods were used to document programme establishment. The demographics of deaf VCT clients were compared with hearing clients at the same sites as well as where clients had learned of the s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802133115
更新日期:2009-01-01 00:00:00
abstract:AIM:Treatment efficacy is established via controlled research trials, but treatment in real-world clinical environments is typically highly variable and may differ from research protocols by necessity. Here, we examined provision of visual retraining for adults after neurological injury at an outpatient rehabilitation ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1616835
更新日期:2021-01-01 00:00:00
abstract:PURPOSE:Research has suggested that people with Parkinson's disease (PD) can experience apathy. This study explored the lived experiences of apathy in people with PD. METHOD:Seven participants with Parkinson's disease who were also described as having apathy were interviewed and the data analysed using interpretative ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.939771
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To evaluate the psychometric properties of the UK FIM + FAM. METHODS:(a) A systematic literature review integrating the evidence for psychometric qualities of both the original and UK versions, and (b) exploratory and confirmatory factor analysis of admission/discharge data from an inpatient general neuro-reha...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.766271
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:Two physical function questions on the widely used SF-12 Health Related Quality of Life questionnaire appear less than optimal for people with complete spinal cord injury (SCI). Physical function questions typically receive the lowest score unless the individual is ambulatory. Additionally, the influence of sec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500163828
更新日期:2006-01-30 00:00:00
abstract::In this paper I want to tread a careful path between spirituality as something to be examined and spirituality as something to be experienced. While we need knowledge, the relationship between spirituality and disability exists in the experiences of those concerned, and should not be reduced to purely analytical categ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289709166564
更新日期:1997-10-01 00:00:00
abstract:PURPOSE:To investigate the effects of dynamic ankle-foot orthoses (DAFOs) on functional ambulation activities, weight bearing and spatio-temporal characteristics of hemiparetic gait and to inquire whether wearing a DAFO for 3 months has a carryover effect. METHOD:Fourteen chronic hemiparetic patients who could walk in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.582926
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To describe shared meanings of success, happiness, and health of adults with cerebral palsy and physiotherapists. MATERIALS AND METHODS:Ethnography employed open ended/semi-structured interviews and structured questionnaires (Satisfaction with Life Scale, Beck Depression Inventory-II®, Oxford Happiness Questio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1425488
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:To present the preliminary results of training courses on the International Classification of Functioning, Disability and Health (ICF) prepared by Italian WHO FIC CC and to report on strategies for ICF dissemination among primary health care (PHC) workers in Mavalane Health Area, Maputo, Mozambique. METHODS:A ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903317930
更新日期:2009-01-01 00:00:00