Abstract:
PURPOSE:To identify the information needs of people with low back pain (LBP) in Australia, and the preferred methods to present this information online, as a basis for development of a patient-centred website. Available online LBP resources are limited in quality and content and it is not clear if they are meeting the needs of sufferers. METHOD:Focus groups and semi-structured telephone interviews, involving 28 people with LBP. RESULTS:Seven categories of information were identified: reasons for LBP, treatment and management options, self-help information, psychological and social dimensions, lay stories, quality assurance of information and roles of different healthcare professionals and locally available services. Identified preferences for online presentation included: multimodality, emphasis on visual media, readability and interactivity. Participants had been unable to obtain desired LBP information using existing resources. CONCLUSIONS:This study provides important guidance for development of a patient-centred website grounded in the expressed needs and preferences of people with LBP. Understanding the breadth of patients' questions and concerns is essential for provision of patient-centred information and interventions. Incorporating these with the current evidence base would provide an accessible and relevant LBP patient education referral point, which is currently lacking. Implications for Rehabilitation Use of the internet to obtain health information is increasing, although there is little evidence that existing low back pain websites are meeting the expressed needs of health consumers. Our research suggests that people with low back pain have difficulty finding relevant and trustworthy information about the condition on the internet. Taking patient information needs and presentation preferences into account when designing online information material will provide people with low back pain an accessible and relevant educational resource that is currently lacking.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Nielsen M,Jull G,Hodges PWdoi
10.3109/09638288.2013.829532subject
Has Abstractpub_date
2014-01-01 00:00:00pages
1085-91issue
13eissn
0963-8288issn
1464-5165journal_volume
36pub_type
杂志文章abstract:PURPOSE:Restorative sleep is clearly linked with well-being in youth with chronic health conditions. This review addresses the methodological quality of non-pharmacological sleep intervention (NPSI) research for youth with chronic health conditions. METHOD:The Guidelines for Critical Review (GCR) and the Effective Pub...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.723788
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:To describe cost-effectiveness of the Physical Activity in Rheumatoid Arthritis (PARA) study intervention. METHOD:Costs were collected and estimated retrospectively. Cost-effectiveness was calculated based on the intervention cost per patient with respect to change in health status (EuroQol global visual analo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.3109/09638288.2014.940429
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862925
更新日期:2020-12-23 00:00:00
abstract:PURPOSE:Stressors in acute whiplash associated disorders (WAD), as reported on a daily basis, have hitherto been neglected in research. The primary aim of this study was to describe the most stressful daily situation or event reported by individuals with acute WAD within a month of a whiplash trauma. Another aim was to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.662571
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:The term "Living Lab" was coined to reflect the use of sensors to monitor human behavior in real life environments. Until recently such measurements had been feasible only within experimental laboratory settings. The objective of this paper is to highlight research on health care sensing and monitoring devices ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2015.1059494
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To compare self-reported function and disability between women with urgency urinary incontinence (UUI) and healthy controls. METHOD:Self-reported function and disability were evaluated using the Late Life Function and Disability Instrument (LLFDI) in 66 women with UUI (mean age 61.9 ± 5.6) and 66 age-matched c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.660597
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Post-stroke hemiparesis may manifest as asymmetric gait, poor balance, and inefficient movement patterns. We investigated improvements in lower-limb muscle activation and function during Wii-based Movement Therapy (WMT), a rehabilitation program specifically targeting upper-limb motor-function. METHODS:Electro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1213892
更新日期:2017-09-01 00:00:00
abstract::Purpose The content of and methods for collecting health information often vary across settings and challenge the comparability of health information across time, individuals or populations. The International Classification of Functioning, Disability and Health (ICF) contains an exhaustive set of categories of informa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1145258
更新日期:2019-03-01 00:00:00
abstract:PURPOSE:The study aimed to establish whether the manual ability classification system (MACS), a valid classification system for manual ability in children with cerebral palsy (CP), is applicable in young adults with CP and normal intelligence. SUBJECTS:The participants (n = 83) were young adults with CP and normal int...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003611011
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:Demonstrating the effectiveness of health care interventions requires valid measurement of the impact of those interventions. However, outlining precisely what constitutes a 'good outcome' in the field of rehabilitation is no easy task and tends to rely on models proposed by 'experts' rather than people with th...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110049919
更新日期:2001-11-10 00:00:00
abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.705220
更新日期:2013-02-01 00:00:00
abstract:PURPOSE:To review research that examined the participation in activities of children who have cerebral palsy, in order to understand their extent of participation and the factors that influenced participation. METHODS:A comprehensive search of seven databases retrieved 2,111 papers, 40 of which met criteria and were r...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701673542
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To examine the psychometric properties of the Driving Awareness Questionnaire (DriveAware) and to compare this rating of awareness of driving ability with the rating made in the context of an on-road assessment. METHOD:A prospective design was employed to examine the psychometric properties of DriveAware using...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802509553
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Exercise therapy is effective in a wide range of chronic diseases. Comorbid disease necessitates adaptations to exercise therapy. Guidance on how to develop such adaptations is currently not available. We present an innovative strategy for the development of comorbidity-related adaptations to exercise therapy i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1066451
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To explore the psychosocial outcomes of an inclusive adapted sport and adventurous training course that aims to support the rehabilitation and personal development of military personnel who have sustained physical and/or psychological disability. METHOD:Narrative life story interviews were conducted with 11 me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.802376
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:To improve clinical management of patients with hemiplegic shoulder pain through development of an evidence-based multidisciplinary integrated care pathway (ICP), and to use this to audit quality of care against predefined standards. METHODS:The ICP was developed by a team of medical, paramedical and nursing s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110101569
更新日期:2002-05-10 00:00:00
abstract:PURPOSE:National and International guidelines recommend cognition and mood assessment for all stroke survivors. However, there is no consensus on preferred screening tool or method of assessment. We aimed to describe clinical practice in cognitive and mood assessment across Scottish stroke services. METHOD:We used a q...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.791728
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:This manuscript seeks to explain why applications of item response theory (IRT) and factor analytic methods provide evidence of validity, and why for the same reasons that they provide evidence of validity, they can advance substantive knowledge. METHODS:A narrative review of the psychometrics literature and d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.872201
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:Tendon injuries (tendinopathy) are prevalent across the population, affecting active and inactive individuals and manual workers. The aetiology of tendinopathy is not known. However, extrinsic factors such as load are known to affect the prevalence. More recently, intrinsic factors have been shown to also affec...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701786864
更新日期:2008-01-01 00:00:00
abstract:AIM:In this narrative review the potential and importance of handcycling are evaluated. Four conceptual models form the framework for this review; (1) the International Classification of Functioning, Disability and Health; (2) the Stress-Strain-Capacity model; (3) the Human-Activity-Assistive Technology model; and (4) ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1815872
更新日期:2020-09-09 00:00:00
abstract:PURPOSE:Bladder dysfunction and disability may cause people with multiple sclerosis (pwMS) to limit fluid intake. However, hydration is rarely considered in the multiple sclerosis literature. We investigated the hydration status of people with pwMS and its association with independence in activities of daily living. M...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.549286
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Although an effective face-to-face fatigue program is available, people with transportation, time or geographic restrictions cannot access this intervention. Therefore, the aim of this study was to develop and to evaluate effectiveness of an online fatigue self-management program (online FSMP). METHODS:Key fea...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280902751956
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The objectives of this study were to describe perceptions of disability among South Asian immigrant mothers of children with disabilities in a large multicultural urban centre in Ontario, Canada, and to explore how these perceptions influence rehabilitation services. The study was built on our previous work con...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.498549
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Aphasia is a debilitating chronic acquired language disorder that impacts heavily on a person's life. Behavioural treatments aim to remediate language processing skills or to enhance communication between the person with aphasia and others, and a number of different treatments are efficacious. However, it is un...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1843079
更新日期:2020-11-09 00:00:00
abstract:PURPOSE:This study was designed to explore the cultural meaning and dimensions of quality of life from the perspective of Brazilian burn patients. METHOD:A qualitative research approach was used. Nineteen burn patients and their close relatives participated in this ethnographic study. Data were collected by means of d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306257
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To compare the characteristics of elderly patients hospitalized for rehabilitation following stroke with those following hip fracture (HF). METHODS:A prospective study in a geriatrics department of a general university hospital in southern Israel. Five hundred and sixteen hospitalized elderly patients were inc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899297198
更新日期:1999-12-01 00:00:00
abstract::The subacute phase of low back pain has been termed as the "golden hour" to intervene to prevent work disability. This notion is based on the literature up to 2001 and is limited to back pain. In this narrative review, we examined whether the current literature indicate an optimal time for return to work (RTW) interve...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1503735
更新日期:2020-02-01 00:00:00
abstract:PURPOSE:To explore, from the perspective of the person with tetraplegia, the issues that influenced decision making about upper limb surgery and develop a conceptual framework describing the decision making process. METHOD:Purposive and theoretical sampling of 22 people with tetraplegia, followed by interviews. Ten pe...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.727945
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:To explore the use of International Classification of Functioning, Disability, and Health for Children and Youth (ICF-CY) based profiles of children's functional abilities in relation to their social competence. Subgroups based on shared profiles of functional ability were investigated as an alternative or comp...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1363823
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:Few studies on disabilities relate to neurogenic chronic pain conditions and how pain influences the patient's ability to maintain life roles. Polyneuropathy is a condition with muscle weakness, sensory impairment and sometimes additional pain of neurogenic origin. The aim was to investigate disability reported...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802621382
更新日期:2009-01-01 00:00:00