Abstract:
PURPOSE:To explore, from the perspective of the person with tetraplegia, the issues that influenced decision making about upper limb surgery and develop a conceptual framework describing the decision making process. METHOD:Purposive and theoretical sampling of 22 people with tetraplegia, followed by interviews. Ten people had upper limb surgery and 12 had not. Verbatim transcripts were analyzed with constructivist grounded theory. RESULTS:Participants responded to the offer of surgery in one of three ways: yes, let me have it; no thanks; or possibly. Many influences on the decision about surgery had a temporal element, such as hope for the cure or recovery from SCI, inadequate physical or social supports while rehabilitating, life roles and goals, and the avoidance of re-hospitalization. The conceptual framework illustrated that many participants entered a liminal state within which they required a stimulus to review their decision about upper limb surgery. CONCLUSION:Decision making is a temporal process, and for some the process was a prolonged and liminal one. Therefore, multiple offers for surgery are required to allow for changing thoughts and circumstances throughout an individual's lifetime. Flexibility with regard to timing for surgery and type of rehabilitation may increase the uptake, especially for women. IMPLICATIONS FOR REHABILITATION:• Multiple offers for upper limb surgery are required throughout an individual's lifetime to account for changing thoughts and priorities. • Identification of the type of support required (informational, emotional) may assist in decreasing the time taken to make the decision about surgery. • Flexibility in surgical and rehabilitation options, especially for women, may increase the uptake of surgery.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Dunn JA,Hay-Smith EJ,Whitehead LC,Keeling Sdoi
10.3109/09638288.2012.727945subject
Has Abstractpub_date
2013-07-01 00:00:00pages
1293-301issue
15eissn
0963-8288issn
1464-5165journal_volume
35pub_type
杂志文章abstract:PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862925
更新日期:2020-12-23 00:00:00
abstract:PURPOSE:To discover whether there are differences between patients with RA with and without active motion deficit in the shoulder (passive ROM greater than active ROM) concerning disease characteristics and shoulder function, and examine the role of active motion deficit in explaining limitations of shoulder function i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.732187
更新日期:2013-08-01 00:00:00
abstract:PURPOSE:Psychometric validation of the authorized Polish version of the Neck Disability Index (NDI). METHODS:Ninety-five patients with neck pain were enrolled. Reliability was assessed through Cronbach's alpha, split-half reliability, intra-class correlation (ICC) and agreement between measures with limits of agreemen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.771706
更新日期:2013-01-01 00:00:00
abstract:BACKGROUND:Childhood mild traumatic brain injury (mTBI) has been associated with negative adult outcomes. Effective interventions require identification of the injury event. There is currently little information regarding the accuracy of adult recall of childhood mTBI. METHOD:Prospectively collected information from a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193905
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:Disability management (DM) is a term developed in North America and refers to the prevention and management of injury and illness in the workplace. The purpose of this paper is to report findings of an Australian study that examined whether self-insured employers in that country have implemented integrated DM p...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280210124347
更新日期:2002-09-20 00:00:00
abstract:PURPOSE:Evidence regarding everyday life activities in people living with COPD is limited. Such evidence can improve our understanding when designing interventions for pulmonary rehabilitation that aim at increasing or maintaining participation in these activities. The aim of this study was to describe how people livin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862314
更新日期:2021-01-20 00:00:00
abstract:PURPOSE:To explore the role of leadership by physiotherapists in implementing and sustaining an evidence-based complex intervention (ESCAPE-pain) for osteoarthritis. MATERIALS AND METHODS:A qualitative case study approach using in-depth interviews with 23 clinicians and managers from 4 National Health Service (NHS) ph...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1803997
更新日期:2020-08-05 00:00:00
abstract:PURPOSE:Understanding the hierarchy of higher-level physical functions to infer disability level (mild, moderate or severe) is essential for the precise targeting of preventive interventions and has been examined previously in a cross-sectional study. Based on longitudinal data, this study evaluated the hierarchy of hi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641657
更新日期:2012-01-01 00:00:00
abstract::Progress in rehabilitation medicine requires an understanding of the basic rules of motor coordination, as well as of the contribution of adaptive processes within the central nervous system to the patterns of impaired movements. We assume that patterns of voluntary movements reflect rules of coordination that are use...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289609165883
更新日期:1996-06-01 00:00:00
abstract:AIMS OF THE PAPER:This article presents a more dynamic and constructive paradigm than the current dominant ones (for example medical or social models), to describe and change the impact of impairment and disability. The reflections contained are inspired by personal and professional frustration with the existing polari...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701618778
更新日期:2007-10-30 00:00:00
abstract:PURPOSE:Community participation is of importance to people with aphasia, who are at risk of becoming socially isolated. This study investigates the content of measures of community and social participation for this population by crosswalking items to the ICF. This will evaluate: (1) to what extent the included assessme...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2014.955132
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:To assess whether life-circumstances and factors other than those described in the EuroQol EQ-5D instrument have a systematic influence on how the same EuroQol health-state is valued. METHOD:A simulation exercise whereby health professionals were asked to rate the health-state of 16 case-scenarios. Each case-s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382801750143607
更新日期:2001-05-10 00:00:00
abstract:PURPOSE:After stroke, impaired walking ability may affect activity and participation. The aim was to investigate whether self-reported activity and participation were associated with walking endurance late after stroke. METHOD:A non-randomised sample of 31 persons with a mean age of 59.7 years and time since stroke of...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.560329
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The study aimed to explore the views of health professionals on (i) physical activity in people who have rheumatoid arthritis (RA) and (ii) the design of an intervention to promote physical activity in this population. METHOD:We used a qualitative methodology and conducted 14 interviews (rheumatologists n = 7,...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1180548
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:Storybook reading provides a natural language learning context in which to support early symbolic communication. In this study, we explored the impact of (1) resting hand splints, (2) light tech augmentative communication systems such as voice-output devices and symbols, and (3) very basic parent training on th...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章
doi:10.1080/09638280150504225
更新日期:2001-02-15 00:00:00
abstract:PURPOSE:To examine the carer's role regarding early hospital rehabilitation. METHOD:A qualitative study, using semi-structured interviews with 30 carers. A convenience sample was obtained through participants volunteering for the study. Interviews were of 30 - 45 minutes duration and were audiotaped. The transcripts w...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500056303
更新日期:2005-09-30 00:00:00
abstract:PURPOSE:This study was planned to investigate the effects of individual and group approaches to sensory-perceptual-motor (SPM) training on children with cerebral palsy. METHOD:This study was carried out at the School of Physical Therapy and Rehabilitation of Hacettepe University, Occupational Therapy Unit. Forty-one c...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1080/09638280010008843
更新日期:2001-06-15 00:00:00
abstract:PURPOSE:To explore how patients experience the process and personal impact of deriving outcomes from a rheumatological rehabilitation program. METHODS:Semi-structured interviews were conducted with 23 patients with inflammatory rheumatic diseases approximately 2 months after a 4-week hospital based multidisciplinary r...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.626485
更新日期:2012-01-01 00:00:00
abstract::Purpose Transitioning to independence may be problematic for persons with spina bifida (SB). Experiences of young persons with SB may provide insights into this group's needs for support. Therefore, the aim of this study was to investigate children's and adolescents' experiences of living with SB, their social and emo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1146355
更新日期:2017-02-01 00:00:00
abstract:PURPOSE:To ascertain how well health services in Lusaka, Zambia currently meet the safe motherhood and reproductive health care needs of women who have physical impairment leading to disability. METHODS:A qualitative study was conducted in Lusaka, Zambia. In-depth tape-recorded interviews were conducted with 24 purpos...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001629651
更新日期:2004-01-21 00:00:00
abstract:PURPOSE:To understand why individuals with Parkinson's disease (PD) participate in a community-based therapeutic dance program and to explore its influence on perceived physical, social and emotional well-being of participants. METHODS:A qualitative descriptive design was employed using one-on-one semi-structured inte...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1175037
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To determine whether English proficiency and/or the frequency of interpreter use impacts on health outcomes for inpatient stroke rehabilitation. METHOD: STUDY DESIGN:Retrospective case-control study. PARTICIPANTS:People admitted for inpatient stroke rehabilitation. A high English proficiency group comprised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1092173
更新日期:2016-07-01 00:00:00
abstract:PURPOSE:The diagnosis of a life-threatening illness can be an extremely stressful, traumatic experience. However, many survivors report also various positive changes, referred in empirical literature as post-traumatic growth (PTG). Empirical studies that documented stress disorders and PTG in patients and survivors of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280902738441
更新日期:2009-01-01 00:00:00
abstract::Purpose: Youths with disabilities have lower employment rates than youths without disabilities, which are often a result of inaccessible environments, employer's lack of knowledge about people with disabilities and discriminatory attitudes. Exploring youths' career aspirations is important because it can prompt or hin...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1671505
更新日期:2019-10-07 00:00:00
abstract::Purpose: Fugl-Meyer Assessment (FMA) is the most widely used and recommended clinical scale for evaluation of sensorimotor impairment post stroke, but an official Spanish version is not available today. This study aimed to establish methodological structure for translation and cultural adaptation process and perform a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1464604
更新日期:2019-09-01 00:00:00
abstract:PURPOSE:The purpose of this study was to compare two-year effects of once-weekly and twice-weekly water exercise programmes at a day-service facility on the health-related quality of life (HRQL) of frail elderly people. METHOD:This single blind, prospective, longitudinal randomized pilot study separated 22 community-d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638280701817552
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Prolonged grief, a severe and chronic form of grieving most commonly studied in the context of bereavement, may have relevance to losses associated with chronic illness (e.g. grief related to loss of functioning or loss of a planned future). The purpose of the present study is to examine the unique associations...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1031830
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:The aim is to examine two aspects of outcome after traumatic brain injury (TBI). Functional outcome was assessed by the Glasgow Outcome Scale - Extended (GOSE) and by clinician ratings, while health-related quality of life (HRQoL) was assessed by the Quality of Life after Brain Injury (QOLIBRI). METHOD:The GOS...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.574776
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:Prior rehabilitation outcome studies have had many weaknesses. but they gradually observe a lack of long-term benefits from inpatient care alone. The goal of this study was to measure the additive effect of outpatient, subacute rehabilitation (compared with usual outpatient primary medical care) for adults diag...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
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更新日期:2001-08-15 00:00:00
abstract:PURPOSE:Symmetry tendencies in human movement have generally been regarded as a constraint to upper limb motor performance. However, several recent studies have suggested that this phenomenon might be utilized in the rehabilitation of individuals with motor disability due to unilateral brain injury. In this paper the e...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500526537
更新日期:2006-09-30 00:00:00